Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Liz and group, I'm a little behind in my reading but the information in this digest seems to indicate htat the preferred dosage for early RA is 100mg twice daily of Minocyclene. I have had RA for almost 30 years now and I would like to hear what the reccomended dosage would be for me. At present, I am taking 100mg MWF as per my doctor plus Methotrexate, 2 1/2mg pred, and celebrex. This regimen has virtually stopped the progression of the arthritis (as long as I don't do anything stupid like forget to take it:) Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 > Liz and group, > > I'm a little behind in my reading but the information in this digest seems to > indicate htat the preferred dosage for early RA is 100mg twice daily of > Minocyclene. I have had RA for almost 30 years now and I would like to hear > what the reccomended dosage would be for me. At present, I am taking 100mg > MWF as per my doctor plus Methotrexate, 2 1/2mg pred, and celebrex. This > regimen has virtually stopped the progression of the arthritis (as long as I > don't do anything stupid like forget to take it:) > > Steve I'm a bit interested in hearing your doctor's explanation of why he would give you minocycline and methotrexate at the same time. Sort of opposing theories, wouldn't you say? Either can work, obviously the view inthis group is that you are trying to squash those little mycoplasma fellas and at the same time boost your immune system. Methotrexate isn't really focused on squashing little bugs, but is directed more towards suppressing your immune system from attacking itself. So I wonder how the two can work together? I suspect your doctor hasn't discussed the importance of boosting your immune system along with taking the minocycline, has he? I know one of my earlier doctors from the list here was opposed to me taking echinicea, being afraid it would boost my immune system and he was giving me minocycline at the time! Obviously, he didn't understand the protocol very well. Then again, I am certainly no expert or doctor when it comes to this - perhaps others with a deeper medical background will respond to you. (When i was on minocycline , I took 100mg 2x/day 7 days a week. Not everyone can handle that though). Mark RA 4/98 http://www.pbase.com/athiker95 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Hi Steve! Geoff here. Sorry if this and my other posts for awhile are a mess. I'm trying to post through the site. (U-G-H what a pig of a process!) > Message: 1 > Date: Sun, 28 Oct 2001 10:42:30 EST > From: N51SK@... > Subject: Re: Digest Number 1469 > > Liz and group, > > I'm a little behind in my reading but the information in this > digest seems to indicate htat the preferred dosage for early RA > is 100mg twice daily of Minocyclene. I have had RA for almost > 30 years now and I would like to hear what the reccomended dosage > would be for me. At present, I am taking 100mg MWF as per my > doctor plus Methotrexate, 2 1/2mg pred, and celebrex. This > regimen has virtually stopped the progression of the arthritis The MWF dosage is recommended for most people due to gut tolerance, long-term exposure, etc. Using the MWF method allows for repopulation ofbeneficial bacterium, reduces adverse events, allergic reactions, etc. If you can tolerate 200 mg/daily, that is the dosage used in the O'Dell study. As to these items: Methotrexate, 2 1/2mg pred, and Celebrex... they all work against the tetracycline theory, which posit the enhancement and strengthening of the immune system. (They weaken it.) Many physicians view the tetracyclines not from the perspective of ridding an infectious agent as the root cause of the disease, but from the perspective of their theoretical anti-inflammatory properties. Thus they have no qualms about combining the tetracyclines with other antiinflammatories, DMARD's, etc. In the end the choice is yours, but it may help knowing the reasoning behind how you are being medicated. FWIW, were it me, I might well choose a different route than you, being rid of the Methotrexate, 2 1/2mg pred, and Celebrex, and instead opting for an herbal anti-inflammatory in conjunction with the tetracyclines. Regards, ----------------------- Geoff ** Usual Disclaimers ** ----------------------- The Formula: Ge12.2+2Sa7.12.13(1Ch17.12.14)+(Ps2+69.4\72/78.2+107.9)+ Is2.3/7.14\11.1-5/35.4-6(42.1-4+45.21+50.6+52.13)53+59.16+ Je31.15+Mi5.2=SarShalom HaMoshiach http://www.healingyou.org/ Nonprofit: Herbs, Homeopathics & supp's. http://www.800-800-cruise.com/index-aff.html Make money & travel! http://www.800-800-cruise.com/ Over a MILLION travel deals! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 Way to go !!!!!! Have you ever considered the little foam ear plugs? (I sleep in them because hubby snores....I think I keep them in business, though I lucked out in that the previous renter left a whole jar of them, still individually sealed.) Just a thought. Loriann AKA Flitter the Christian clown Wife to Dewight Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease. , 2.5 years and Strong Willed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 Hi Loriann Thank You - but will not EVER have anything in his ears or on his head. We have tried everything!! He is sooo sensitive to anything near his head (he has long hair) or anything touching his skin Any other ideas - I'd love to hear!!! Kathy Re: Digest Number 1469 Way to go !!!!!! Have you ever considered the little foam ear plugs? (I sleep in them because hubby snores....I think I keep them in business, though I lucked out in that the previous renter left a whole jar of them, still individually sealed.) Just a thought. Loriann AKA Flitter the Christian clown Wife to Dewight Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease. , 2.5 years and Strong Willed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 In a message dated 3/30/02 10:15:59 PM Eastern Standard Time, outerspace@... writes: > Hi Loriann > Thank You - but will not EVER have anything in his ears or on his > head. > We have tried everything!! He is sooo sensitive to anything near his head > (he has long hair) > or anything touching his skin > > Any other ideas - I'd love to hear!!! > Kathy Maddie too Kathy. I had looked into AIT for her, but I told the therapist NO WAY in teh world would Maddie wear those headphones. She kept telling me that the kids get used to it, but I told her not Maddie!!!! Maddie still has issues with loud sounds, mostly unexpected ones (like the dog barking),b ut she has gotten SO much better than she used to be. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 In a message dated 4/2/02 11:54:55 AM Central Standard Time, duffey48@... writes: > Maddie too Kathy. I had looked into AIT for her, but I told the therapist > NO WAY in teh world would Maddie wear those headphones. She kept telling > me > that the kids get used to it, but I told her not Maddie!!!! Maddie still > has issues with loud sounds, mostly unexpected ones (like the dog > barking),b > ut she has gotten SO much better than she used to be. > Donna > > > We tried the AIT stuff with the CDs that you use at home. I don't know what it was about it but just about came unglued. He tolerated the headphones after some practice and would wear them but after listening to the CD for a few minutes he would flip out on me. Anyone want a used CD? Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 > Here is some information on UTIs. I would try to use a different position > first off, and use a condom as well as proper lubrication. Urinate right > afterward and clean yourself up. I used to get klebsiella bacteria which > always gave me a yeast infection. Using a condom helped keep that at bay. > http://www.hmc.psu.edu/healthinfo/uz/uti.htm Thx, Deborah. All that stuff worked for years then gradually stopped working, unfortunately. Now it's pretty much the different position or nothing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 > I have been doing a lot of reading on the possible link between RA and > food allergies. Has anyone had any experience with fasting and > switching to a vegetarian diet? If so, did it help your RA? I've been a vegetarian for 18 years and still got RA. Although I'm also very chemically sensitive and get sicker when I don't eat organic (which is a lot.) There's definitely a difference in swelling and fatigue when I eat organic foods, on the other hand, sometimes I get flares, then, too... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 > I'm sooo glad that you have a very supportive husband. It's nice that HE > has a headache and can sympathize with you. doesn't do that...lol he > talks about how bad he feels..and whines... I think that is a man thing. > (some men anyway). But he is good at helping me out and not expecting > anything from me if I can't give it. Oh, I'm so glad that mine doesn't whine too much, he's a tough guy Haha, it's me that does all the whining about this symptom and that or this pain or the other That's good that your husband helps out. Perhaps I need to give mine more credit We're stronger > than we think.... Like they say, r/a is not for sissies. Definitely not. Even if we start out as sissies, in the end we end up tough, eh? Quote Link to comment Share on other sites More sharing options...
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