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Turning a corner: thoughts on amazing gains and the AC protocol

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I posted on this on another forum. I apologize for the length. But I think my

experience with my son, bears posting here as well, to give hope and

encouragement to those just starting out and to those perhaps further along who

are in a stall or have hit a bump with the AC protocol.

My son is 5 now. We are coming up on round 96. We have been doing the AC

protocol for 2 years. My son got 26 shots in his first 18 months of life,

including several flu shots and one in utero. My boy lost his skills starting

with a Hep A shot at age one, and with all the ensuing shots down to age 18

months, before we stopped the madness. My boy was loaded with metals, needless

to say and was in a terrible way. Early Intervention in our state came in at 19

months and intimated we were dealing with a case of severe autism. We got an

appt with a neurodevelopmental ped - but that appt we had to wait 6 months for.

During this time we discovered biomed - started gfcf, omega 3 oils, yeast

fighters and probiotics. By the time of our appt, we got a dx of high

functioning PDD-nos. Whatever, labels meant nothing - my boy was vax injured.

His gut was still a mess and he could not function or communicate properly. For

the first several rounds of dmsa we saw lots of gains. Then we added ALA - this

was very tough, stressed his adrenals out, and we could only give him 3mg or so

for half a year. At 25 rounds we hit a stall, that lasted 8 months, 8 long,

long months where there was even regression. We tried everything people tout

here as miraculous - Enhansa, high dose vitamin A, antivirals, vinpocetine,

gingko,, b vites, you name it. Nothing worked or mattered. We persevered. By

round 50 we were able to up ALA and were at more weight appropriate doses. We

saw some satisfying gains, then nothing for a few months. At round 66 we saw

some good gains again, then nothing.

At this time my son's gut was basically healing - no more yeast or parasites for

months, formed stools, he could eat many things, corn eggs, some dairy, etc, and

he loved to try lots of new foods. His seasonal allergies were gone and food

allergies starting to abate. Still he spoke like a cave man and had limited

receptive understanding. Cognition lagged way behind. We just kept chelating.

My dh and I went round and round on whether an EEG was necessary. My dh said

no, no EEGS or Pharma rx meds, lets just chelate and eventually we will have

enough rounds and it will get better. He prevailed and we waited.

In the last 2 weeks it is like someone flipped a switch. My son talks, and

talks and talks, and seems to understand everything. He plays word games, makes

jokes. He seems to be 100% present for the first time in his life. The teacher

reports he greets peers and plays with them on the playground instead of merely

running around the perimeter as is his habit. He is by no means recovered or

age appropriate yet - but he is starting to be on his way there. It is like he

can't tell me enough things - like he is uncorked or something. The other night

he would not go to sleep, it was 11 pm and he is a good sleeper. He had a place

mat with the presidents on it and he was hell bent on showing me that he knew

all their names from Washington onward. He even told me, " you know,

Washington even has his own bridge. " I almost fell over laughing. I finally

uttered words I thought I would never say, but I had to... " sweetie, please be

quiet, stop talking, it is time to go to sleep. " We have done nothing really,

other than what we have for the last 2 years. In fact, we have recently lowered

all of his supplements considerably. He takes nothing but the most basic mins

and vites, a few amino acids, liver support, fish oils, antioxidants, and

probiotics. I even hesitated to post this, for fear of jinxing it somehow.

I posted this basically to say, there is one miracle supplement only in my view:

AC chelation - dmsa and ala, week after week, after tedious sleepless week. To

anyone doubting it or having a hard time of it, do not give up! We have had

stall after stall and regression, and at times I wanted to throw in the towel,

thinking my boy is damaged beyond repair. But with the support of people here

on the boards and Andy, and my spouse, we just forged on, and on and on. And I

believe we have another 200 rounds to go, for full recovery. But I believe in

my heart it is truly possible. We have only one child, and for the first time, I

feel his presence, his true presence as another person with opinions and ideas,

fully present living in our house. It is a beautiful thing.

I want to close my post with an inspirational saying my late mother, a

relentless optimist, kept by her bed side even as she lay dying of breast

cancer:

Keep your heart open to dreams, for as long as there is a dream, there is hope,

and as long as there is hope, there is joy in living.

She lived this and believed this, and she was very right. I have hope, and joy

now.

Irene

5 year old, 95 rounds

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