seizures

[Guest guest]

Hi Stacey -

If your child had menengitis just last year, she would really benefit from being

on antivirals, especially if she is having ongoing problems as a result.  It

will help lower the ongoing immune response that the brain is expressing to keep

the virus suppressed.

The 'spells' do sound like they may be seizure related, and you might look up

absence seizures. 

Your child may have other disorders as a result of the virus, but it is possibly

not damage per se, but rather an ongoing process that has not resolved.  The old

paradigm believes in the damage, but there are so many findings now that the

immune response can continue and that treating the viruses can bring a lot of

relief to your child.

HTH-

seizures

Hi

I was hoping someone would have some advice. My three year old daughter has what

we call " spells " . Not quite a seizure but a few moments that she will stiffen up

and zone out for a few seconds, sometimes falling. This happens most often after

waking. We had her on kepra and the spells became worse not to mention the other

horrible side effects. She has other dosorders as a result of menengetis herpes

encephalitis she was sick from last year. Anybody that might have suggestions

would be grreatly appreciated.

Thank You

Stacey

[Guest guest]

I read in Bells book on chronic fatigue, that one symptom of the immune

dysfunction in cerebral dialtion due to the immune system being turned on and

the over production of cytocines.  I would look this up for a more accurate

description, but am lending my book to someone else to read!  I have no idea if

this is connected, but is more of a thought and theory.  If the bloodflow is not

stable or with too much dialtion, could it cause a zoning out and a falling /

mild syncopal episode?  No idea about the stiff joints though in this.  You said

you wanted suggestions! (:

From: Granny <granny.lucy@...>

Subject: seizures

Date: Saturday, October 18, 2008, 4:05 PM

Hi

I was hoping someone would have some advice. My three year old daughter has what

we call " spells " . Not quite a seizure but a few moments that she will stiffen up

and zone out for a few seconds, sometimes falling. This happens most often after

waking. We had her on kepra and the spells became worse not to mention the other

horrible side effects. She has other dosorders as a result of menengetis herpes

encephalitis she was sick from last year. Anybody that might have suggestions

would be grreatly appreciated.

Thank You

Stacey

[Guest guest]

Wow thanks for all the help! She is seeing a new neurologist November 6. Her

last one just wanted to keep her on drugs that never worked.... I dont know

anything about anti virals ......what do you recomend for a three year old.

Thanks so much...

 

Stacey

seizures

groups (DOT) com

Date: Saturday, October 18, 2008, 4:05 PM

Hi

I was hoping someone would have some advice. My three year old daughter has what

we call " spells " . Not quite a seizure but a few moments that she will stiffen up

and zone out for a few seconds, sometimes falling. This happens most often after

waking. We had her on kepra and the spells became worse not to mention the other

horrible side effects. She has other dosorders as a result of menengetis herpes

encephalitis she was sick from last year. Anybody that might have suggestions

would be grreatly appreciated.

Thank You

Stacey

[Guest guest]

Angie,

I think it has to do with the NO levels. NO is a dilator (nitroglycerine

for angina), and if it is chronically high such as in CFS and autism the

adrenals overcompensate resulting in constriction which I would assume would be

episodic in some people. I think that explains the low epinephrine we see in

many children and the adrenal fatigue.

Kathy

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[Guest guest]

Hi Stacey,

Has you daughter had an MRI with contrast, and a CINE flow study of her brain to

rule out a Chiari Malformation yet?

@...: granny.lucy@...: Wed, 22 Oct 2008

16:30:08 -0700Subject: Re: seizures

Wow thanks for all the help! She is seeing a new neurologist November 6. Her

last one just wanted to keep her on drugs that never worked.... I dont know

anything about anti virals ......what do you recomend for a three year old.

Thanks so much... Stacey seizuresgroups (DOT) comDate: Saturday, October 18,

2008, 4:05 PMHi I was hoping someone would have some advice. My three year old

daughter has what we call " spells " . Not quite a seizure but a few moments that

she will stiffen up and zone out for a few seconds, sometimes falling. This

happens most often after waking. We had her on kepra and the spells became worse

not to mention the other horrible side effects. She has other dosorders as a

result of menengetis herpes encephalitis she was sick from last year. Anybody

that might have suggestions would be grreatly appreciated.Thank YouStacey

[Guest guest]

I have not heard of chiari malformation....I will google it and talk to her

nuerologist about it...she had several MRI's in the hospital but again I dont

think I have heard of that....Thank You so much!!!!!!!

seizuresTo:

groups (DOT) comDate: Saturday, October 18, 2008, 4:05 PMHi I was hoping

someone would have some advice. My three year old daughter has what we call

" spells " . Not quite a seizure

but a few moments that she will stiffen up and zone out for a few seconds,!

sometim es falling. This happens most often after waking. We had her on kepra

and the spells became worse not to mention the other horrible side effects. She

has other dosorders as a result of menengetis herpes encephalitis she was sick

from last year. Anybody that might have suggestions would be grreatly

appreciated. Thank YouStacey [Non-text portions of this message have been

removed]____ ________ _________ _________ _________ _________ __Do You

?Tired of spam? has the best spam protection around

http://mail. [Non-text portions of this message have been

removed][Non- text portions of this message have been removed][Non- text

portions of this message have been removed]

[Guest guest]

Hi ,

 

Can you tell me where to get the antivirals for my daughter. I talked to her

 new doctor about them and he didn't seem to know anything. On the other hand,

the more I research it, my husband and I can't believe we were never told of the

possible benefit. If you could give me some tips on how to buy them that would

be great.

 

Stacey

seizures

Hi

I was hoping someone would have some advice. My three year old daughter has what

we call " spells " . Not quite a seizure but a few moments that she will stiffen up

and zone out for a few seconds, sometimes falling. This happens most often after

waking. We had her on kepra and the spells became worse not to mention the other

horrible side effects. She has other dosorders as a result of menengetis herpes

encephalitis she was sick from last year. Anybody that might have suggestions

would be grreatly appreciated.

Thank You

Stacey

[Guest guest]

You need a prescription for antivirals. It's surprising your doc wouldn't have a

least a passing familiarity with them. You may want to seek out a doctor that

specializes in Chronic Fatigue Syndrome and immune dysfunction.

Good luck,

Robyn

> From: Lucy Hardage <granny.lucy@...>

> Subject: Re: seizures

>

> Date: Monday, November 10, 2008, 3:25 PM

> Hi ,

>  

> Can you tell me where to get the antivirals for my

> daughter. I talked to her  new doctor about them and he

> didn't seem to know anything. On the other hand, the

> more I research it, my husband and I can't believe we

> were never told of the possible benefit. If you could give

> me some tips on how to buy them that would be great.

>  

> Stacey

>

>

>

> seizures

>

> Hi

>

> I was hoping someone would have some advice. My three year

> old daughter has what we call " spells " . Not quite

> a seizure but a few moments that she will stiffen up and

> zone out for a few seconds, sometimes falling. This happens

> most often after waking. We had her on kepra and the spells

> became worse not to mention the other horrible side effects.

> She has other dosorders as a result of menengetis herpes

> encephalitis she was sick from last year. Anybody that might

> have suggestions would be grreatly appreciated.

>

> Thank You

>

> Stacey

>

>