Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Dear Artist, Welcome to the group! I'm really sorry to hear about your husband's troubles. He really needs to see a physician ASAP. Has he tried to contact his rheumatologist to tell him that his knee is more swollen than ever? I would try to get him squeezed in. Or could he be placed on a cancellation list? Maybe a very good interest could help him sooner. [ ] treatment > My husband was diagnosed with RA 3 years ago. He is currently taking > Prednisone and Methatrexate, but in the past 6 months he has been > experiencing more morning stiffness and pain, and his right knee is > swollen to to point where he walks with a noticeable limp. The knee > has been drained three times in the last 1 1/2 years, but this last > time, April 2003, the swelling never completely went down, and is now > greater than before it was drained. He is seen at a University > hospital and he cannot get an appt. except every 6 months. We are > searching for another doctor, but in the meantime, any suggestions on > other things he can do for the swelling and morning stiffness, until > he can get into the doctor's office. artist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Welcome to our group. I'm sorry your husband is suffering so much. You may be able to locate a rheumatologist in your area: http://www.rheumatology.org/directory/geo.asp The only thing that really helps me with morning stiffness and pain is exercise. I know that sounds opposite of what you'd expect, but exercising our joints is very important to keep them moving and to reduce inflammation by pushing the fluids out of the joints. I start while still in bed and do gentle range of motion exercises. Some people find that ice packs or heat may help. Some like alternating heat and ice. I hope he gets in to see a doctor quickly. a > My husband was diagnosed with RA 3 years ago. He is currently taking > Prednisone and Methatrexate, but in the past 6 months he has been > experiencing more morning stiffness and pain, and his right knee is > swollen to to point where he walks with a noticeable limp. The knee > has been drained three times in the last 1 1/2 years, but this last > time, April 2003, the swelling never completely went down, and is now > greater than before it was drained. He is seen at a University > hospital and he cannot get an appt. except every 6 months. We are > searching for another doctor, but in the meantime, any suggestions on > other things he can do for the swelling and morning stiffness, until > he can get into the doctor's office. artist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Hawraa Al Shalah: I will try to respond to your post. I too was born with no symptoms. The first symptoms appeared in me about age 7, but some children show symptoms earlier. It is also common for those with CMT to be born without symptoms. My baby foot stamp is a perfect baby foot. Immunizations have nothing to do with CMT and do not cause CMT. CMT is genetic and if the parents were first cousins, it is possible the gene mutations for each combined at conception. Surgery can help. Sometimes more than one are needed. And the types of surgeries offered are varied depending on the person's needs. Perhaps the patients would do well wearing Ankle Foot Orthotics (AFOs) to help the feet and legs and enable better walking and give support to the feet and ankles. Yes, the nature of CMT is progressive. Research has also shown second generation CMT and on can be more progressive also. Do you have physical therapy in your country where the daughter could receive therapy and learn some stretching? As for the hands: Surgery is available for hands as well as feet. Followed by physical therapy and continued stretching. As for writing, perhaps some special pens and help from an occupational therapist/or even a physical therapist might help. Many young people here use computers with voice activated software - thus no writing required. Perhaps looking into the MDA International Association might give you more help. Also, do the patients have an exact CMT diagnosis? Research has found that Frederich's Ataxia (another neuromuscular and peripheral nerve disorder) is mimicking CMT; so perhaps a DNA test of the parents and daughter would give a correct diagnosis. ~ Gretchen http://www.cmtworld.org http://www.aicmt.org/america.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 Hawraa, If you mean " can surgery treatment take away CMT " the answer is " no " . CMT is a genetic disease. Now, there IS a way through a special method of in vitro fertilization where the CMT gene can be removed BEFORE conception, and if successful, this results in a CMT-free child. Surgery does help many people with CMT to correct foot/ankle and hand use. ~ Gretchen Hawraa Al_Shalah wrote: > Hi Gretchen > Thanx very much for your reply, but I mean if there is a surgery treatment !!??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 That sounds great Tom But if that was the simplified version then I know why I never made it in medical research LMFAO. Reg -------Original Message------- From: low dose naltrexone Date: 10/02/04 08:53:37 A Home away from Home a MS Support Board; MS-Christians ; MS_Community ; mscured ; MSersLife ; jjworld ; low dose naltrexone Subject: [low dose naltrexone] treatment Multiple Sclerosis, The Blood Brain Barrier, and New Treatment: Simplified Version by R. Stout Abstract: Survey of Journal articles shows preponderance of evidence that Multiple Sclerosis attacks occur during breakdowns of the blood-brain barrier. Other articles show that flavonoids including those found in blueberries and grape seeds amongst others can inhibit blood-brain barrier breakdown in rats under conditions which normally lead to such breakdown. The same flavonoids can also be effective in reducing inflammation, which Proposed Clinical Tests ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 congrats on your pending marriage!! You have obviously chosen an understanding man, hard to find. Also, Good luck on your treatment. SharonHangeth in there> > Hang in there Annita. I was sick the entire 24 weeks, off work and ou Right on Sharon you will be undectable at your 6 month checkup. I have been mostly sick so far but will be worth it. These first 2 months have gone by fast. Through this all Im getting married on the 1st of May. Add that one all to this crazyness of this disease.Annitat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 O lordy, I wish I knew what everyone was talking about. I was diagnosed about 5 years ago but have had it for over 30 years. My enzyemes were always 'normal' but the last two times they have been elevated. Now I'm waiting for my tests to come back from the lab (they take almost 4 weeks for the one test) then I'll know more about treatment etc. Until then, I'm going to go on no mail, cuz this is all Greek to me at this point. Thanks to everyone and will see ya in May sometime.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Cool! Getting married should take your mind off of the sick issue! Good luck! Peace...SharonCafonsen <afonsen@...> wrote: Right on Sharon you will be undectable at your 6 month checkup. I have been mostly sick so far but will be worth it. These first 2 months have gone by fast. Through this all Im getting married on the 1st of May. Add that one all to this crazyness of this disease.Annita> > Hang in there Annita. I was sick the entire 24 weeks, off work and out > of it. I go in for my 6 - month - check - up -after TX next Wednesday > and haven't felt this good in years! I don't remember much of the > time I was on TX. I know I was a sick person. Like having endless > flu for 6 months. Next week though, that's what will make it all ok. > When they tell me it's undetectable.> > Peace...SharonC__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Hi , Sorry you aren't doing well. Are you on anything else for your depression? Klonopin is a sedative, it will calm you down, but it won't help your depression. > > dear group, > i have bad rheumatoid arthritis. > i take klonpin 1 mg 4 pills at night. > i take for depression my nevers and my arthtitis. > i been off it for few days and my body have hurt alot puls i had 3 > sizusers in my self at time wake me up i jumpi have pankatcks sometimes > at night. > i had sizusers in my sleep if i not on the meds puls my eating gose down > and i get depressed and nevers,,,wensday night i thought i would have a > sizeruser in church i shoke alot pastor's bother his name john came > over to me and ask me angela whats going on we know when you dont get or > when you shake your nevers are bad i was off my meds for few days could > not sleep wake up like lighting hit me i jump i feel my bodu hurts but > called the doctor today he was not to happpy i not called sooner but got > me back on 4 pills at night and it supost to help relax my body and mind > so no sizeusers take place i know i can count i had 3 in my sleep couse > i had headacks after it. > i happy a christian friend gave me 1.oo for my meds and i am back on it > to night the doctor say i will feel little relax but not fulling uitl > its in me for 2 days by satruday or sunday i should be feeling better. > > my RA Doctor say i cant be stress it can couse siuzers and nevers bad so > i try to do my relax tharoy my pt gave me i going to do it agian > tonight. > i hear nice muise and sometimes a chirstian pastor teaching i fall into > relaxing time my pt tells me i should do that more to reless stress i > may have to go back into pt for relaxing thapry musle mushes and its > hard in my shoukders my pt pull down on my shoukder for me to try not to > let him pull down. > he pin points my stress and rodes my nick and with a relaxing cream and > sometime use heat and sometime ultersound heat and munshes my back and > shoukders and nick i know my doctor may want to send me back to my pt > but my pt and i talk in email and he writes me tells me what to do he > thinks sometimes warm shower would help, > > i also take perdsion one pill in the day and mathtake every sunday every > 8 weeks i in for reminced treament for 200mg...i see my doctor in june > so i do keep in touch with my doctor take my blood work every month in > my town i live in and when i go to the clinit for treatment or see my > doctor,,,' > > i take tyenol arthtitis pian 2 pills at night and 2 in the morning 650 > mg for one pill but i take to. > i have to take benadryl for alngerys i be on then for nect few > weeks,,,,i take my vetiom at day time to help me not to be sick from my > mathtake cemo pills 8 at sunday night....it helps just dain. > the meds help the klonpine keeps me going helps depression stress, > packackts and nevers and relax me i took it tonight the doctor say it > may take a day or 2 for it to get back into helping me sleep but now its > hard with stress and sizuers and packats. > > have any one been having trold sleeping with depression and eating not > much and so much going on...i hear for my RA Doctor stress and > depression makes things bad so he put me on the pills 4 pills at bed > time i just got back on it intime my moods been not good,,,,i dont like > Rheumatoid Arthritis it just gets to me with my depression but the > doctor say it gose with it and nevers to so he put me back on my meds.. > i have to keep a sleep chart,,,i dont how. > but my Rheumatoid Arthritis doctors wants to know things,,,,i hope you > all can help me to. > > angela from ky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 I’m more familiar with rheumatoid arthritis than I am with your other symptoms. I notice that you are taking Methotrexate, Remicade, and Prednisone as medicines for rheumatoid arthritis and these are the medications that have helped me greatly. However, they did take quite a while to work well so I had to be patient. Along with Methotrexate my doctor gave me Folic Acid to help counteract the side effects of Methotrexate and also to replace some of the Folic Acid that is used up by Methotrexate. You might ask your rheumatologist about that if you are not already taking it. I’m not familiar with Klonopin so I looked it up and found that it is used to control seizures. I don’t know what kind of a doctor you see for the seizures but that is not usually treated by a rheumatologist. You should be seeing a general practitioner or family doctor for most things and a rheumatologist for your arthritis. However, I think you should also be seeing a specialist for your seizures but I’m not sure what kind of specialist. That same specialist may be able to help with the problems you are having with nerves. I hope you are able to get your medical problems solved. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of angelafromky@... Sent: Friday, April 28, 2006 9:59 PM Rheumatoid Arthritis Subject: Treatment dear group, i have bad rheumatoid arthritis. i take klonpin 1 mg 4 pills at night. i take for depression my nevers and my arthtitis. i been off it for few days and my body have hurt alot puls i had 3 sizusers in my self at time wake me up i jumpi have pankatcks sometimes at night. i had sizusers in my sleep if i not on the meds puls my eating gose down and i get depressed and nevers,,,wensday night i thought i would have a sizeruser in church i shoke alot pastor's bother his name john came over to me and ask me angela whats going on we know when you dont get or when you shake your nevers are bad i was off my meds for few days could not sleep wake up like lighting hit me i jump i feel my bodu hurts but called the doctor today he was not to happpy i not called sooner but got me back on 4 pills at night and it supost to help relax my body and mind so no sizeusers take place i know i can count i had 3 in my sleep couse i had headacks after it. i happy a christian friend gave me 1.oo for my meds and i am back on it to night the doctor say i will feel little relax but not fulling uitl its in me for 2 days by satruday or sunday i should be feeling better. my RA Doctor say i cant be stress it can couse siuzers and nevers bad so i try to do my relax tharoy my pt gave me i going to do it agian tonight. i hear nice muise and sometimes a chirstian pastor teaching i fall into relaxing time my pt tells me i should do that more to reless stress i may have to go back into pt for relaxing thapry musle mushes and its hard in my shoukders my pt pull down on my shoukder for me to try not to let him pull down. he pin points my stress and rodes my nick and with a relaxing cream and sometime use heat and sometime ultersound heat and munshes my back and shoukders and nick i know my doctor may want to send me back to my pt but my pt and i talk in email and he writes me tells me what to do he thinks sometimes warm shower would help, i also take perdsion one pill in the day and mathtake every sunday every 8 weeks i in for reminced treament for 200mg...i see my doctor in june so i do keep in touch with my doctor take my blood work every month in my town i live in and when i go to the clinit for treatment or see my doctor,,,' i take tyenol arthtitis pian 2 pills at night and 2 in the morning 650 mg for one pill but i take to. i have to take benadryl for alngerys i be on then for nect few weeks,,,,i take my vetiom at day time to help me not to be sick from my mathtake cemo pills 8 at sunday night....it helps just dain. the meds help the klonpine keeps me going helps depression stress, packackts and nevers and relax me i took it tonight the doctor say it may take a day or 2 for it to get back into helping me sleep but now its hard with stress and sizuers and packats. have any one been having trold sleeping with depression and eating not much and so much going on...i hear for my RA Doctor stress and depression makes things bad so he put me on the pills 4 pills at bed time i just got back on it intime my moods been not good,,,,i dont like Rheumatoid Arthritis it just gets to me with my depression but the doctor say it gose with it and nevers to so he put me back on my meds.. i have to keep a sleep chart,,,i dont how. but my Rheumatoid Arthritis doctors wants to know things,,,,i hope you all can help me to. angela from ky Quote Link to comment Share on other sites More sharing options...
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