After chelating for one full year...LONG

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We started AC protocol chelation on Sept 6th last year.

A little background. Our only child is a girl and will be 5 y/o in January.

We never saw a regression. I thought " autism " when she had very poor eye

contact at around 8 months old. She wasn't diagnosed until 28 months.

I was 36 when she was born. I got the flu shot (willingly and dutifully) while

pregnant (about 7 months). She has had vaccinations up to age 2. She is now

exempt.

She has IgE allergies to milk, egg and peanut. She has been GFCF, and nut free

for at least 3 years and gets soy, artificial flavors/colors on a very limited

basis (maybe once every couple weeks). She gets egg cooked in things now as

that IgE allergy is low now.

We saw a DAN, then switched to a different one. He looked over the AC protocol

and is fine with it.

I think she would qualify as moderate to high functioning. There are times

where, but for her hyperactivity, one may not notice anything " different " about

her. The main thing that is noticeable about her (pre and post chelation) is

her inability to communicate effectively (she can talk but mainly asks for

things as opposed to having back and forth communication).

The main easy to measure changes in her from last year to this year -

1. She definitely understands what we're saying to her more. Doesn't mean she

will respond but we know she hears us.

2. She can read at around a 4th grade level. This was a big deal around here as

she is only 4 1/2. Not quite sure she has the comprehension but she could sit

here and read this entire email if I asked her to. Prior to chelating she knew

all of her letters and letter sounds and did " pretend " reading and loved books.

3. Her latest yeast stool test came back clean. She has ALWAYS had high yeast

and we have done almost every yeast prescription to no avail. Her newest DAN

suggested we stop the scripts so we did. She still has hyperactivity so I

tested it again recently and it came back clean.

4. She protests more. It is a pain in the behind (for instance, she insists on

only wearing dresses and tries to run when she sees us coming with her

supplements (which she used to take without protest)) -- but we feel like it is

just more of her 'awakening'.

I'm sure there's more but this is what I can think of off the top of my head.

She takes Brainchild vitamins and minerals, zinc, calcium, D, CLO, probiotic,

with the newest additions being Enhansa and Inositol.

We chelate with the highest dosage of ALA for her weight, 3 hrs Friday to Sunday

@ midnight (4 hrs at night). I barely notice getting up at 3am anymore. I

usually wake up a couple mins before my alarm goes off. It's doable. Our

bedrooms are on different floors. I have to get up and go into the kitchen,

turn on the light, make the dose (mix with water in syringe), then walk it

upstairs, turn on the hall light, dose her, then come downstairs and get back in

bed. We started with DMSA then added ALA then took away DMSA about 6 months

later.

I would like to explore some things to help with her hyperactivity and promoting

conversation. She is WAY ahead cognitively in school (attends 8-2pm spec needs

class M-F) but isn't mainstreamable yet as she still has a processing delay and

finds it hard to keep still. I'd like to know when it's ok to stop a supplement

(she hates the taste of Enhansa -- would love to stop that one). Also what

tests I need to run to see how she's doing with chelation (liver test name?)

I know I'm rambling! Please feel free to ask questions or comment.

Thanks!