What activities are you folks able to do?

[Guest guest]

My name is Miriam and I have severe RA that just keeps getting

worse. I am 40 years old and at times, I feel like my life is

over. I sit home all day every day and alternate between laying in

bed watching TV and sitting in the living room watching TV. I

generally have Dr. appointments 2-3 days a week and go for aquatic

therapy 3x a week. Other than this, I don't leave my house!

My husband is also home full time and takes care of everything. He

asked me to send a note to the list and ask what others do with

their time. What activites do you guys do, for those with more

severe RA whose joints are swollen and deteriorated, who have had

surgeries, who has constant swelling despite medications, chronic

pain etc.

I have 6 children and I hate them seeing me like this. Thanksfully,

they aren't so young anymore that they can do a lot for themselves

and they can do things to help me as well.

There has to be more to life than this. What else can I try to do?

What do you guys do?

My current meds, just so you have some idea!

Abatacept/Orencia, Methotrexate (injectable), Lodine XL for

inflamation, Neurontin, Topomax, Avinza (A morpphine based

narcotic), Actiq (Oral Fentanyl sucker for breakthrough pain),

Skelaxin, and I can't even think of what else right now. I do also

take meds for the depression though.

Please Help,

Miriam