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Well, I know someone who trained as a doctor and the system is that

they cram a particular subject, take the exam and may never look at

that book again in their life!!

The major problems start when the doctor is a junior at a hospital,

that particular hospital will imbue all its juniors with its good or

bad habits and, as we all know, way too many of them are under the sway

of the BTA!!!

>

> Are we all presuming that our doctor was in the top 10 of his class

and passed with very high marks and therefore it must only be lack of

eduction that makes him say the things he does.

>

> Could be, combined with a certain lack of education a lot of the

doctors might have only scraped through their exams and came nowhere

near the top 10.

>

> Lilian

>

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  • 3 weeks later...

That is pretty funny Jane... I actually just told my Primary Care Doctor if I

could just be under his care for my AS. My Rheumy is so flaky and I find it a

waist of my time to pay the $25 every 6 months to sit and talk with her just to

get Enbrel. She NEVER ran ANY blood work and NEVER even checked my joints. It

was kind of like going to a therepist. Not really sure she knew what was going

on because when I first was refered to her (as to she is the only Rheumy in my

area) she told me that because I was a woman, she thought that I was

misdiagnosed as to " WOMENT DONT GET AS " . Nice......My Primary Care Doctor has

done more for my flare-ups and helping me get my meds than my Rheumy ever did.

I see him every 4 weeks and it is perfect. He runs all of my blood work and

checks my joints and seems to be very in tune with me and my disease and my

flare ups. I feel lucky.

Jane Pollock <janepollock@...> wrote:

I hope this doesnt sound too bad, but I'm wondering if

rheumatologists are flaky by nature or am I just the lucky soul to

have found 2 right off the bat?

No, your doctor's actions are right in line with what I have found for years. It

is my suspicion that since they don't know how to treat us, they refuse to make

a diagnosis. The doctor may not really know what is wrong or he may think he is

protecting us from the insurance companies. After so many years, I try not to

think about it. However, my medical problems made it much easier for the rhemy

to diagnose my son's AS. Even though the treatment is questionable, he is able

to get up and go to work. I try to look for the positive. I do hope things get

better for you.

---------------------------------

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Stolla <sillyhil@...> wrote:

That is pretty funny Jane... I actually just told my Primary Care Doctor

if I could just be under his care for my AS. My Rheumy is so flaky and I find it

a waist of my time to pay the $25 every 6 months to sit and talk with her just

to get Enbrel.

, I have a marvelous rhemy but I just got lucky. I have also been told

that I could have Reiters because it's a man's disease.

.

---------------------------------

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Boy, did I goof...............I have been told I could not have Reiters because

it is a man's disease. Jane

Jane Pollock <janepollock@...> wrote:

From: Jane Pollock <janepollock@...>

Date: Thu, 7 Feb 2008 16:28:11 -0800 (PST)

Subject: Re: doctors

Stolla <sillyhil@...> wrote:

That is pretty funny Jane... I actually just told my Primary Care Doctor if I

could just be under his care for my AS. My Rheumy is so flaky and I find it a

waist of my time to pay the $25 every 6 months to sit and talk with her just to

get Enbrel.

, I have a marvelous rhemy but I just got lucky. I have also been told

that I could have Reiters because it's a man's disease.

..

---------------------------------

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I wondered about that Jane, but there are some guys these days named

Jane,you know the Hollywood croud.LOL You should give your dr this site

address, and tell him to take a poll. Not so much a mans disease.I was

told AS is a mans disease, but both of my female cousins have it, as

well as my brother and son. I don't think these diseases care about

gender. Just like gout.In the old,old days men mostly got it, but things

have changed and we live different life styles than we did back then.

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When I was first diagnosed with having Reiter's Syndrome, I too was

told it was really rare for a woman to have it because of the fact

that it was a disease that normally effected men. Not trying to be

ugly or anything. My reply to the doc was I always knew I had a

bigger set of #$@! than most men. LOL.

Barbara

> From: Jane Pollock <janepollock@...>

> Date: Thu, 7 Feb 2008 16:28:11 -0800 (PST)

> Subject: Re: doctors

>

>

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  • 2 months later...
Guest guest

I have sent you the list of doctors off-list Jane.

luv - Sheila

>

> hi sheila; would you please let me know if there are any endos in

the

> west sussex area that would be good to see. i have my next gp's

> appointment in a few weeks and would like to have a name ready should

> consultant referrals come up. kind regards jane

>

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Guest guest

thanks sheila; your a star !!

>

> I have sent you the list of doctors off-list Jane.

>

> luv - Sheila

>

> >

> > hi sheila; would you please let me know if there are any endos in

> the

> > west sussex area that would be good to see. i have my next gp's

> > appointment in a few weeks and would like to have a name ready

should

> > consultant referrals come up. kind regards jane

> >

>

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  • 1 month later...
Guest guest

Many doctors are only there to prescribe

pharmaceutical drugs like the books and university taught them or surgery. I

met around 10 doctors are they are all crap in their own special way

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Guest guest

My GP used to be very thorough with my

asthma and would write out a script if I phoned and said I needed one. We

had a good plan in place for keeping it under control.

Unfortunately he moved on to another area

and the new one who took his place refuses to give out scripts via a phone call

(he doesn’t get the government kick back if he does that) and as far as

monitoring my asthma? What a joke. Last time I visited him with

shortness of breath, he prescribed anti depressants and didn’t even

bother to put me on that test that registers the lung readings (?) Then it was ‘next

patient please’. In and out in about 3 minutes. Unfortunately there

are no other GP’s in the near vicinity.

Oh how I wish my previous GP who had been

here for many years was still around. So Steve? I’m inclined to

agree there. Whatever happened to the caring type of doctor who was more

concerned about the patient than writing scripts.

From: Steve [mailto:skunkburner@...]

Sent: Monday, 16 June 2008 11:45

PM

samters

Subject: RE: Doctors

Importance: High

Many doctors are

only there to prescribe pharmaceutical drugs like the books and university

taught them or surgery. I met around 10 doctors are they are all crap in their

own special way

No virus found in this incoming message.

Checked by AVG.

Version: 8.0.100 / Virus Database: 270.3.0/1505 - Release Date: 6/16/2008 7:20 AM

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Guest guest

Have you seen the new "concierge doctors" (the GP who treats you for everything) who charges $1500 annually to get into their practice and then the regular fees? They are "on call 24/7" and have a maximum of 600 patience. It's a heck of an idea but I don't know too many of us who can afford this with all our other meds and appointments. Something new -- not like having different doctors for GP, ENT, and Pulmonary where there is no communication between them and trying to get refills from the "correct doctor" is a nightmare.

From: <soniarobins@...>Subject: RE: RE: Doctorssamters Date: Monday, June 16, 2008, 7:04 PM

My GP used to be very thorough with my asthma and would write out a script if I phoned and said I needed one. We had a good plan in place for keeping it under control.

Unfortunately he moved on to another area and the new one who took his place refuses to give out scripts via a phone call (he doesn¢t get the government kick back if he does that) and as far as monitoring my asthma? What a joke. Last time I visited him with shortness of breath, he prescribed anti depressants and didn¢t even bother to put me on that test that registers the lung readings (?) Then it was ¡next patient please¢. In and out in about 3 minutes. Unfortunately there are no other GP¢s in the near vicinity.

Oh how I wish my previous GP who had been here for many years was still around. So Steve? I¢m inclined to agree there. Whatever happened to the caring type of doctor who was more concerned about the patient than writing scripts.

From: Steve [mailto:skunkburner @.co. uk] Sent: Monday, 16 June 2008 11:45 PMsamters@groups .comSubject: RE: DoctorsImportance: High

Many doctors are only there to prescribe pharmaceutical drugs like the books and university taught them or surgery. I met around 10 doctors are they are all crap in their own special way

No virus found in this incoming message.Checked by AVG.Version: 8.0.100 / Virus Database: 270.3.0/1505 - Release Date: 6/16/2008 7:20 AM

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  • 3 months later...

, I went to a psychopharmacologist and had a 1 hour appointment with him.

I found that my internist, although he believe FM and CFS are real illnesses,

would prescribe anti d's for me but they don't really know as much about them as

the psychopharmacologists who can combine meds, help you through the initial

phases of taking a new med and, IMHO, know what they are doing as long as you

find a right fit with personality as well as experience. I too was jumping out

of my skin and I was very depressed once I began the peri menopause phase. I do

think hormones play a part but mostly I was depressed because I was afraid of

the anxiety issues. I hope this helps and perhaps someone else on the list has

something else to suggest.

Blog: http://maria165.vox.com/

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Moderator of Womens Weight Loss Journey

WomensWeightLossJourney

> From: Brecker <davidbrecker@...>

> Subject: doctors

> dominie , Fibromyalgia-Crochet

> Date: Monday, September 22, 2008, 2:48 AM

> hi howdo i get a doc to listen to me i feel as if i am going

> crazy flipping out over stupid things and high level of

> anxiety and at the last appointment  doc says lets go back

> on elavil nd i told him that it was tried in the past and it

> put me in the hospital with migraines and they tried upping

> my effexor before and that put me in the hospital. i have

> tried paxil, prozac, cymbalta, elavil and one other and they

> all gave me migraines and i am a migraine suffer and have

> been for 20 years now. mychildhood depression is reliving

> itself and i am going out of my mind. my husband wants me to

> change doctors and get with someone that has a heart and

> reads my records and listens to me for once.

> what are any suggestions

> shelly

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Hi ,

You sound a lot like me! I'm VERY sensitive to meds. and when you have a doctor who doesn't listen,believe, & have some heart for what you're going through,then maybe it is a good idea to find another doctor. I know a "GOOD" one is hard to find,but I really feel,from the sounds of it,that's your only choice at this point?! I had/have horrid depression problems as a child as well! I always say 4 yrs old it started because my mom always told me it started before I ever went to school. I really feel for you! I truly do! I hope I've helped & I hope you can find the correct help that you deserve! Take care,Pam Silvis

http://www.zazzle.com/pammys*

Fibromyalgia Awareness Items,etc...

doctors

hi howdo i get a doc to listen to me i feel as if i am going crazy flipping out over stupid things and high level of anxiety and at the last appointment doc says lets go back on elavil nd i told him that it was tried in the past and it put me in the hospital with migraines and they tried upping my effexor before and that put me in the hospital. i have tried paxil, prozac, cymbalta, elavil and one other and they all gave me migraines and i am a migraine suffer and have been for 20 years now. mychildhood depression is reliving itself and i am going out of my mind. my husband wants me to change doctors and get with someone that has a heart and reads my records and listens to me for once.

what are any suggestions

shelly

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  • 4 months later...

Thanks, . I know about Coutre, also that he is not, alas, in a

contractual relationship with any HMO's, including mine, so it would be

self-pay--i.e., an arm and a leg--to see him, which I feel I can't

afford to do at the moment.

I was hoping that " second best, " as Wolf put it-- my former

hematologist who's now a melanoma researcher at UCSF-- might be one of

the two CLL docs he recommended there--the ones I mentioned.

Jeff thinks Coutre is the best in northern CA, by the way! Having heard

him just last week at the ASH conference in SF, I can see where he

might be. I liked him a lot.

I have no idea at this point whether my HMO (Health Net Seniority Plus)

would " process " (as they say--such a cold word!) a request to see

Lawrence Kaplan, for example, at UCSF. I haven't gotten to that point

yet. If I get just one crack at a second opinion " out of plan, " I want

to make it good!

Fortunately, right now I'm not in need of treatment, so perhaps I have

a little while (or longer, I hope) to puzzle this out. But somewhere

along the line I want a specialist in my corner.

By the way, you and I met briefly in NY at the conference Rick Furman

ran. He's my sister Ellen's doc.

All the best, and thanks for your response.

On Friday, February 6, 2009, at 03:10 PM, jb50192@... wrote:

> - many think that the best CLL guy in the SF area is Dr.

> Coutre at Stanford -

>

<image.tiff>

>

> Nothing says I love you like flowers! Find a florist near you now.

>

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Re: the email below: I thought I was sending it to Balan only. Now

that I realize it went to the whole group, let me add that it was Dr.

Furman who first gave me Coutre's name, so he gets first thanks!

I hope I will be able to consult with Dr. Coutre some day.

Begin forwarded message:

> From: Friedman <msvoc@...>

> Date: Fri Feb 6, 2009 3:23:19 PM US/Pacific

>

> Subject: Re: doctors

>

> Thanks, . I know about Coutre, also that he is not, alas, in a

> contractual relationship with any HMO's, including mine, so it would

> be self-pay--i.e., an arm and a leg--to see him, which I feel I can't

> afford to do at the moment.

>

> I was hoping that " second best, " as Wolf put it-- my former

> hematologist who's now a melanoma researcher at UCSF-- might be one of

> the two CLL docs he recommended there--the ones I mentioned.

>

> Jeff thinks Coutre is the best in northern CA, by the way! Having

> heard him just last week at the ASH conference in SF, I can see where

> he might be. I liked him a lot.

>

> I have no idea at this point whether my HMO (Health Net Seniority

> Plus) would " process " (as they say--such a cold word!) a request to

> see Lawrence Kaplan, for example, at UCSF. I haven't gotten to that

> point yet. If I get just one crack at a second opinion " out of plan, "

> I want to make it good!

>

> Fortunately, right now I'm not in need of treatment, so perhaps I have

> a little while (or longer, I hope) to puzzle this out. But somewhere

> along the line I want a specialist in my corner.

>

> By the way, you and I met briefly in NY at the conference Rick Furman

> ran. He's my sister Ellen's doc.

>

> All the best, and thanks for your response.

>

>

>

> On Friday, February 6, 2009, at 03:10 PM, jb50192@... wrote:

>

>> - many think that the best CLL guy in the SF area is Dr.

>> Coutre at Stanford -

>>

> <image.tiff>

>>

>> Nothing says I love you like flowers! Find a florist near you now.

>>

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  • 6 months later...

Hi. Another good treatment for Fibro is the muscle relaxer Soma. Hope this helps

some body. ?Harv

Doctors

It is so frustrating sometimes. I remember the time and it wasn't that long ago

that the official stance in the medical community was that fibromyalgia pain was

all in your head.

I don't think it has been ten years yet that medical science has proved that

fibromyalgia is a real disease and the pain is very real. But some Physicians

still beleive that fibromyalgia pain is not real because that is what they were

taught in school.

Also medicine is different in different countries. I had a real bad

fibromyalgia attack when visiting Sweden. The Doctor gave my diazepam (Valium)

and within an hour the pain was gone. I had never seen that in North America,

even morphine-based painkillers didn't do as good as job for fibro pain.

But when I got back to North America and asked for diazepam for fibro pain, I

was treated like I was an addict looking for a fix. Fortunately I did find a

Physician who did believe me when I told him it worked. He doesn't give me

enough diazepam to take every day, but what he does do is that he gives me

enough so when I am experiencing real bad fibromyalgia pain, I can enough

diazepam to get relief.

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I would put up with this doctor if he is prescribing you Armour. He is a very rare doctor indeed. You will find it very difficult to get another doctor to prescribe it, unless he is being told to by an endocrinologist of course.

All doctors discuss cases they are not certain of, or for some other reason, with their colleagues, not usually mentioning the name of the patient. They should not be discussing a case with a receptionist, nor with their relatives - wives included. I would take exception to that if that is the case.

Lilian

would you change your doctor ? i dont think i could go see him again.

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Dear Marie

Tell them that as they are so curious to know the facts about

Armour Thyroid, they had better read the Statement written by the British

Thyroid Association, and the rebuttal written to them b y TPA-UK to show the

BTA statement was both misleading, and in parts incorrect (again on the

Internet, dear oh dear oh dear!!!). They will see that their own organisation

is not to be trusted with the FACTS regarding natural thyroid extract, and they

should be asking why. If they did a little research on the Internet, they would

learn a lot. Sorry the rebuttal is so long, but I would challenge this husband

and wife team to find something in it that was incorrect.

We have to face these people and let them know we are no longer

prepared to sit back and believe every word they say - tell them that ALL the

latest research is on the Internet, including all the up to date Medical

Journals - and this is why you use the Internet. Let them know you are not a

kid who doesn't know what is good and what's not.

Doctors don't like us going to the Internet because we might be

finding facts that they are not aware of, and when we face them with these,

they become totally embarrassed because we know something they don't, so they

retaliate by telling us that the Internet information is 'fatal'. Actually,

this doctor should be ashamed of herself.

Stick to what you believe and carry on doing your own research -

because to be honest, if we left our health completely to the doctors of today,

we would probably be dead - well, I know that I would have been had I stayed

with the NHS.

Stay looking pretty and smart with your thyroid extract -

without it, you would probably look like Zombie.

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of mariesimpson1248

Sent: 04 September 2009 19:58

thyroid treatment

Subject: doctors

Hi Sheila and every one if you can recall i had

to have bendrofluiazide stopped as it could be this causing my rash and

clinical nurse said to ask for a different diuretic and my doctor did not give

me one. i did ask for another and he said no. (still says it is not them that

is causing rash )and he started asking me what armour had done for me etc i

felt as if i was having a carrot dangled in front of me and i feel he had taken

umbrage over the fact i told the specialist nurse i had told him i thought the

bendrofluazide. he denied i had told him. Today i had to go and pick up my

prescription for my armour and the receptionist who happens to be his wife

(whom he had an affair with while married to some one else)asked me in a manner

i cant explain like she was being chatty but probing for information but it is

not her usual manner how i found out about Armour and i told her about the

group and she replied oh the internet its fatal so i told her british heart

foundation have a web site as well is that fateful. then she asked what had

armour done for me so i just said to many things to mention just look at me

dont i look good and she said oh yes. but i feel like i am being discussed by

my doctor and his wife and i am starting to feel imtimidated i am thinking of

looking for another doctor .i went to town with my hubby and would you believe

2japanese students asked me if they could take a photo of me for their project

as i looked so smart and pretty wished doctor was behind me then(i said yes of

course)18months ago they would not of looked at me. would you change your

doctor ? i dont think i could go see him again.

No virus

found in this incoming message.

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Version: 8.5.409 / Virus Database: 270.13.76/2342 - Release Date: 09/04/09

05:51:00

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  • 2 weeks later...

,

 

I hate to hear you're in pain. :(

 

You may or may not have run across this, but from everything I can find, neither

Burkus nor Horton specialize in revisions.

 

Based on what I've heard from former patients, Bridwell (St. Louis), Boachie

(NYC), and Rand (Boston) could easily be considered among the top U.S. revision

specialists.  I've yet to see anything but positive feedback from anyone

who's used these 3 for various complexities of revisions. 

 

LaGrone (Amarillo) is another one commonly mentioned on one of the other boards,

but I've seen mixed feedback on him. 

 

You mentioned horrible hospital care, and that's one thing I've repeatedly heard

about the Hospital for Special Surgery (HSS ... where Boachie operates).  People

sometimes opt for private nurses to get around this obstacle.  Although he's one

of the best, there are more than a few obstacles to having surgery with

Boachie:  The largest would probably be that he doesn't participate in ANY

insurance plan (although many plans will cover him at the out-of-network rate). 

His office staff also receives awful reviews from patients/potential patients. 

He, on the other hand, gets *glowing* reviews for talent and bedside manner ...

 

If it were me, I'd look at scheduling a consult with one the first 3 surgeons. 

The results they've achieved are very, very encouraging ...

 

I hope you find an answer soon!

 

Best regards,

Pam

 

--

Very proud Marine Mom of Cpl. Jett, 3rd generation USMC

VMGR-152 Marine of the Quarter (Q2/09), promoted by MAG-40 Meritorious Board

(06/09)

VMGR-152 (KC-130J Avionics) Futenma, Okinawa

Currently deployed to southern Afghanistan

 

From: kelizrm <kelizrm@...>

Subject: Doctors

Scoliosis Treatment

Date: Sunday, September 13, 2009, 1:38 PM

 

Hi all,

I am considering getting surgical opinions again. I still cannot work...or not

much. And money would be handy. (yes, that was sarcastic)

My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities

Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research

before my first revision in 2000 and decided he was " the best " . Now, I am not

sure. I didn't have a bad outcome, but my fusion failed once (I don't think it

was his fault), and I am again in a good bit of pain....or at least chronic

lying down to avoid pain.

I don't want to be this way. I just turned 50, but I am angry bc I don't have

the quality of life of my peers. I have no energy, I hurt, repeat.

Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA

and he is the one that removed my hardware last August. I just don't know if he

is really good... and I know their hospital care was HORRIBLE. Does anyone know

anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have

used him w good results.

I don't care where I go, I just want to feel better.

Thx,

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,

I can thow in my .02 worth about Dr. Bridwell in St. Louis, MO.  He was going to

do surgery for a slipped disc on my son, Bradley, who is 32 and has Down

Syndrome.  He was very through, ordering all kinds of cardiac testing, x-rays,

mylogram, CT Scan, blood work, treadmill test, and stationary bike

test.  Bradley did so well on the treadmill and bike--no pain that Dr. Bridwell

questioned whether or not the needed surgery, so we've put it off for now.  He's

doing remarkedly well and having no pain.

I admire a surgeon who will question if a patient needs surgery.  Most are all

gun ho on operating.

Bradley also has scoliosis in the upper spine but Dr. Bridwell said that is the

least of his problems.  If he ends up needing the surgery for either the slipped

disc or the scoliosis I would run back to Dr. Bridwell.  Also, a lady in my

church has had to scoliosis surgeries done by Dr. Bridwell and she swears by

him.

  Young

gatewaysspin@...

www.gatewaysspinone.com

CH Ecco Domani Gateways Daisy Mae,JH,CGC

CH Gateway's Lucina, JH, CGC, NA Prize III

Gateway's Angelina, JH

CH Gateway's Camilla, JH, RN, NA Prize I

Olivechi Mundi

________________________________

From: Pam <pamelicious2k4@...>

Scoliosis Treatment

Sent: Sunday, September 13, 2009 3:31:56 PM

Subject: Re: Doctors

 

,

 

I hate to hear you're in pain. :(

 

You may or may not have run across this, but from everything I can find, neither

Burkus nor Horton specialize in revisions.

 

Based on what I've heard from former patients, Bridwell (St. Louis), Boachie

(NYC), and Rand (Boston)  could easily be considered among the top U.S. revision

specialists.   I've yet to see anything but positive feedback from anyone

who's used these 3 for various complexities of revisions. 

 

LaGrone (Amarillo) is another one commonly mentioned on one of the other boards,

but I've seen mixed feedback on him. 

 

You mentioned horrible hospital care, and that's one thing I've repeatedly heard

about the Hospital for Special Surgery (HSS ... where Boachie operates).  People

sometimes opt for private nurses to get around this obstacle.  Although he's one

of the best, there are more than a few obstacles to having surgery with

Boachie:  The largest would probably be that he doesn't participate in ANY

insurance plan (although many plans will cover him at the out-of-network rate). 

His office staff also receives awful reviews from patients/potential patients. 

He, on the other hand, gets *glowing* reviews for talent and bedside manner ...

 

If it were me, I'd look at scheduling a consult with one the first 3 surgeons. 

The results they've achieved are very, very encouraging ...

 

I hope you find an answer soon!

 

Best regards,

Pam

 

--

Very proud Marine Mom of Cpl. Jett, 3rd generation USMC

VMGR-152 Marine of the Quarter (Q2/09), promoted by MAG-40 Meritorious Board

(06/09)

VMGR-152 (KC-130J Avionics) Futenma, Okinawa

Currently deployed to southern Afghanistan

 

From: kelizrm <kelizrm (DOT) com>

Subject: Doctors

Scoliosis Treatment

Date: Sunday, September 13, 2009, 1:38 PM

 

Hi all,

I am considering getting surgical opinions again. I still cannot work...or not

much. And money would be handy. (yes, that was sarcastic)

My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities

Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research

before my first revision in 2000 and decided he was " the best " . Now, I am not

sure. I didn't have a bad outcome, but my fusion failed once (I don't think it

was his fault), and I am again in a good bit of pain....or at least chronic

lying down to avoid pain.

I don't want to be this way. I just turned 50, but I am angry bc I don't have

the quality of life of my peers. I have no energy, I hurt, repeat.

Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA

and he is the one that removed my hardware last August. I just don't know if he

is really good... and I know their hospital care was HORRIBLE. Does anyone know

anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have

used him w good results.

I don't care where I go, I just want to feel better.

Thx,

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I will again recommend Dr. Tribus in Madison WI. He's talented and a good

listener. He's conservative in that he does the least amount of surgery

possible. This isn't necessarily the best way, if you end up having more

surgeries, but it would be great if you end up not needing to be fused top to

bottom, front and back, as some surgeons believe.

There is also a place in Texes called Baylor Institute. They don't take

Medicare. They referred me to three different surgeons for my next surgery,

which I hope will be minor. I need a screw removed and I hope that's all. But I

don't want to travel to WI. So they referred me to 3 different surgeons. I don't

remember all the names. One was in NY, one in Missouri, and the one I'm going to

is in San Francisco, Dr Berken.

________________________________

From: kelizrm <kelizrm@...>

Scoliosis Treatment

Sent: Sunday, September 13, 2009 12:38:31 PM

Subject: Doctors

 

Hi all,

I am considering getting surgical opinions again. I still cannot work...or not

much. And money would be handy. (yes, that was sarcastic)

My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities

Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research

before my first revision in 2000 and decided he was " the best " . Now, I am not

sure. I didn't have a bad outcome, but my fusion failed once (I don't think it

was his fault), and I am again in a good bit of pain....or at least chronic

lying down to avoid pain.

I don't want to be this way. I just turned 50, but I am angry bc I don't have

the quality of life of my peers. I have no energy, I hurt, repeat.

Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA

and he is the one that removed my hardware last August. I just don't know if he

is really good... and I know their hospital care was HORRIBLE. Does anyone know

anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have

used him w good results.

I don't care where I go, I just want to feel better.

Thx,

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Share on other sites

My name is .  I haven't been able to be of help to others or I think tell

my story due to all my pain.  I have insurmountable pain from a one in a million

disease that struck my spine transverse myelitis and it paralyzed me in Dec.

2006.  I had terrible burning in my feet when I left my spinal rehab. at Baylor

Rehab. Institute.  Oh, they showed me how to increase my muscle by it being like

a boot camp from 9:00 to 4:30 me pulling pulleys to rowing type machines, but

they never never tried I believe hard enough to get my pain under control.  My

doc. kept saying " you have more pain than most, but I've seen it happen like

this. "   There were nights I never slept, I screamed and cried into my pillow

from my feet burning.  That has gotten controlled by my great internist or long

ago pain doc.  Baylor let my morphine pump go dry.  I was told by my first doc.

" My asst. checked all over Dallas & no pain dr. knows about these pumps " .  I

never

believed it.  Dallas is much larger than Little Rock and North Little Rock,

Arkansas and they had several pain docs. who knew about pain pumps.  I had

already had one replaced as the battery went out on the old one.  I called the

Scoliosis Baylor Center and there are 2 docs. there, & one was a dr. who found

years ago 3 cracks in my neck, having lived in the pain for 5 years.  I've been

in pain since 1987. 

Now, Transverse Myelitis paralyzed me.  After all, it was Christmas time & my

doc. had to go on vacation and instead of giving me over to the one on call of

the group.  I was sent to a rehab. (right leg was only paralyzed then), before I

left the rehab. after being talked down to by the Big doc. over this rehab. I

wasn't trying enough.  My left leg became paralyzed.  Sooo, I couldn't do

anything else but wait for my back doc. to get back into town.  He was livid

this had happened to me - needless to say he was not the only one.  Now, I had

42% curve in the Spring of this year of scoliosis; which probably was a result

of the herniations and collapsing of my lower back.  It's been rescheduled 3

times; I hope when Oct. 16th comes I'll get this surgery over.  My scoliosis

pain is nothing compared to the Transverse Myelitis pain that attacks my legs

almost daily.  I've been 4 times to Emergency in my town in the last 2 weeks to

get my pain under

control from Transverse Myelitis.  I'm to have 2 rods and 18 pins, but it might

increase due to having to go thru all the testing process of x-rays, probably

another MRI again and such.  The last CT-myelogram my doc. (who I was sent to,

as he does the " Big " surgeries he said of the firm) the radiologist doc.

couldn't get a needle inbetween my epidural space due to spinal stenosis being

so bad; she went one level up and the dye ran thru after they tilted the table

some.  She almost gave me over to a neuro radiologist if the other level would

not go thru.  I have not been the same since..  Bad, Bad pain and I hope Oct.

16th helps.  I can't see anymore pain than I already have.  It has taken my life

for the past 23 years.  Car wreck and the guy doesn't even know that's where it

all began; I

never got his name.  Sorry, for the soap box, but does anyone know of a Dr.

Seal who use to be in California for several years correcting major

spinal problems.  I am worn out from surgeries, plus the pain of Transverse

Myelitis.  I must go & I apologize I took so long of anyone's time who reads

this.  I don't know anything about this doc. but I was sent to him by my old

doc.  I am requesting new x-rays  of my spine when I go to him.  Anyone out

there, know him?  Thanks,   P.S.  Any advice of this??

From: Randie Meyer <taknitlite@...>

Subject: Re: Doctors

Scoliosis Treatment

Date: Monday, September 14, 2009, 4:01 AM

 

I will again recommend Dr. Tribus in Madison WI. He's talented and a good

listener. He's conservative in that he does the least amount of surgery

possible. This isn't necessarily the best way, if you end up having more

surgeries, but it would be great if you end up not needing to be fused top to

bottom, front and back, as some surgeons believe.

There is also a place in Texes called Baylor Institute. They don't take

Medicare. They referred me to three different surgeons for my next surgery,

which I hope will be minor. I need a screw removed and I hope that's all. But I

don't want to travel to WI. So they referred me to 3 different surgeons. I don't

remember all the names. One was in NY, one in Missouri, and the one I'm going to

is in San Francisco, Dr Berken.

____________ _________ _________ __

From: kelizrm <kelizrm (DOT) com>

Scoliosis Treatment

Sent: Sunday, September 13, 2009 12:38:31 PM

Subject: Doctors

 

Hi all,

I am considering getting surgical opinions again. I still cannot work...or not

much. And money would be handy. (yes, that was sarcastic)

My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities

Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research

before my first revision in 2000 and decided he was " the best " . Now, I am not

sure. I didn't have a bad outcome, but my fusion failed once (I don't think it

was his fault), and I am again in a good bit of pain....or at least chronic

lying down to avoid pain.

I don't want to be this way. I just turned 50, but I am angry bc I don't have

the quality of life of my peers. I have no energy, I hurt, repeat.

Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA

and he is the one that removed my hardware last August. I just don't know if he

is really good... and I know their hospital care was HORRIBLE. Does anyone know

anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have

used him w good results.

I don't care where I go, I just want to feel better.

Thx,

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Share on other sites

Hi, ,

I met with Dr. Rand prior to my surgery that was performed by somebody else.

 

Dr. Rand was rude to me and hardly personable.  Go in with a smile, and it may

make a difference.  I was in pain, had a resp infection at the time, and boy. 

Not what he wanted to see.  He told me he wouldn't touch me 'with a ten foot

pole.'  ha.  He didn't know me and didn't care to hear what I had to say.  I'm a

woman with lots of inner strength....

 

Fyfer

From: kelizrm <kelizrm@...>

Subject: Re: Doctors

Scoliosis Treatment

Date: Wednesday, September 16, 2009, 11:54 PM

 

Thanks to all who have replied thus far...I guess since Boachie has lousy

staff/hospital care, that rules him out. So I will pursue both Rand and

Bridwell...I think.

Thanks.

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