Miralax

[Guest guest]

thats right, you mix up the 17g of powder in 8oz of whatever we usually use

orange juice, then he gets 4oz of that 8oz mix twice a day, so gets 4oz with his

breakfast and then he usually drinks his other 4oz with his night snack. I got

lucky and allsready have two perfect containers that go up to 16oz with lids and

everything, one is from a puree thing and the other is from hidden valley

ranch,lol, but they work perfectly. Im sure one could find great containers most

walmarts or whereever. I just mix up 16oz every couple days and put the

container in the fridge keep jucie/miralx fresh. Although it is important for

all to try and drink 8 glasses of water a day, the doc said drinking extra

fluids doesnt hlep with bm's, just make you pee more, and kidney wise good.

sees a specialist, GI Pediatrition for his constipation and other problem

i cant remember the name, starts with an " e " have to look at report,lol,

momheimers you know. The miralax not only helped tremendously with the

constipation, but no more smearing in undies, way less gas problems, and he

finally got over his humb in ptty training and has prettty much mastered it,

still working on the wiping. shawna.

miralax

Thanks for the information a, when you say to try 2oz a day- how do you

do this when the miralax is a powder and says to mix 17 grams of the powder with

8 oz of water. Do you mix it up and only measure out so many ounces of the

mixture or does this also come in liquid form? Also do you use this daily

instead of for the two week period or unless directed differently by your dr?

The only directions that the doctor wrote were one tablespoon a day. We used

Constulose daily for years and would change the amount depending on the

" circumstances " I have a call into the DAN Dr. (not the one who prescribed it)

, but you probably know more about how to use it than he does. does not

drink much water and some days not much liquid either. JoAnn Mom to in

Michigan

[Guest guest]

Have you seen the pediatrician about this? One of my kids (non-DS) had

constipation problems when she was 7. She became " impacted " - so constipated

that

nothing was able to move through. It took an xray to confirm it. After that

she had to have an enma a drink about a half gallon of a special liquid to

flush everything out and start fresh. After that she was OK. Also we had to

make

sure she got adequate time in the bathroom every day.

- Becky

In a message dated 9/9/2005 1:35:14 AM Eastern Standard Time,

colleenschildcare@... writes:

Does anyone here have any experience with this? My daughter who is 8 yrs

old just started this today for her constipation issues. She has always

tended to be constipated but up until now we have managed it on our own with

no real problems. For the last month or so, it has gotten bad - we have

tried prunes, prune juice, stool softeners and even suppositories.

[Guest guest]

My son, , has been on and off miralax for almost 2 years. He will be

three on the twentieth of this month. I do not use it everyday but I monitor

his poops and if they are hard or he is not going regularly, I end up giving it

to him. I usually sprinkle it over his yogurt and he does not even know he is

taking it. I also adjust how much I give him, by its effects.

Dawn

[Guest guest]

My daughter Bridget has been on this everyday for 2 + years now. She has had

constipation since birth so severe it was awful. We tried many things from

natural (juices etc) to lactulose syrup ( lots of gas & bloating) to

suppositories (really hated this) and on and on.

Miralax has worked GREAT!!!! We use 1/2 a dose every morning in 4 oz of juice.

She doesn't even know it is in there. It is a petroleum product that pulls

water into the stool to bulk it up and gives her the feel of needing to go. She

generally goes every 2 to 3 days with it. If she isn't going I can increase it

1 or 2 days and she goes, then go back to the reg dosing.

After having dealt with this so much, I have been really relieved to find

something that works and has not (knock on wood) caused nay side effects.

mom to Bridget 12

Miralax

Does anyone here have any experience with this? My daughter who is 8 yrs

old just started this today for her constipation issues. She has always

tended to be constipated but up until now we have managed it on our own with

no real problems. For the last month or so, it has gotten bad - we have

tried prunes, prune juice, stool softeners and even suppositories.

Colleen Stephansen

<http://www.colleenschildcare.com/> Colleen's Child Care

NAFCC Accredited Child Care in Riverbank, CA

3 Full time / Part time Openings are now available!

<https://www.redcross.org/donate/redir.asp?OID=Colleen's Child

Care & DID=09032005>

[Guest guest]

My daughter Olivia has been on Miralax for a long while now - probably 3+ years,

and she is 4. She had duodenal atresia at birth, and 2 surgeries to correct it,

so that may have made her even more likely to have the constipation issue. I

give her now less than a half-dose, and try to monitor her bm's too - they are

on the loose side, but if I skip the miralax, she really struggles and cries

about having a bm, even though they don't seem very hard. I am so glad to have

something tasteless/not uncomfortable to give her to help her with this.

Patty

Colleen's Child Care <colleenschildcare@...> wrote:Does anyone here have

any experience with this? My daughter who is 8 yrs

old just started this today for her constipation issues. She has always

tended to be constipated but up until now we have managed it on our own with

no real problems. For the last month or so, it has gotten bad - we have

tried prunes, prune juice, stool softeners and even suppositories.

Colleen Stephansen

<http://www.colleenschildcare.com/> Colleen's Child Care

NAFCC Accredited Child Care in Riverbank, CA

3 Full time / Part time Openings are now available!

<https://www.redcross.org/donate/redir.asp?OID=Colleen's Child

Care & DID=09032005>

[Guest guest]

my daughter had a duodenal stenosis and luckily only needed one surgery to

do a bypass around this... We are also lucky never to have encountered the

constipation issue..... we have others but not that one

Re: Miralax

> My daughter Olivia has been on Miralax for a long while now - probably 3+

> years, and she is 4. She had duodenal atresia at birth, and 2 surgeries to

> correct it, so that may have made her even more likely to have the

> constipation issue. I give her now less than a half-dose, and try to

> monitor her bm's too - they are on the loose side, but if I skip the

> miralax, she really struggles and cries about having a bm, even though

> they don't seem very hard. I am so glad to have something tasteless/not

> uncomfortable to give her to help her with this.

> Patty

>

> Colleen's Child Care <colleenschildcare@...> wrote:Does anyone

> here have any experience with this? My daughter who is 8 yrs

> old just started this today for her constipation issues. She has always

> tended to be constipated but up until now we have managed it on our own

> with

> no real problems. For the last month or so, it has gotten bad - we have

> tried prunes, prune juice, stool softeners and even suppositories.

>

> Colleen Stephansen

> <http://www.colleenschildcare.com/> Colleen's Child Care

> NAFCC Accredited Child Care in Riverbank, CA

> 3 Full time / Part time Openings are now available!

>

> <https://www.redcross.org/donate/redir.asp?OID=Colleen's Child

> Care & DID=09032005>

>

>

>

>

[Guest guest]

My doctor just told me NO applesauce or bananas. He said when a person has

diarrhea you eat Bananas applesauce and toast. this helps make firmer stools.

You want to loosen them. Prunes, prune juice and water. high fiber but the

water is what is absorbed in the colon to make the stools softer and move

along.

Jean

[Guest guest]

My son 17 ds takes Miralax off and on for about 7 months now. I try to give

him applesauce a day plus orange juice instead and it does help. But I do

monitor close and if it fails him I use Miralax and it does the job. I

either mix it in juice, milk, or soda. And routine bathroom visits do help.

Miralax

> Does anyone here have any experience with this? My daughter who is 8 yrs

> old just started this today for her constipation issues. She has always

> tended to be constipated but up until now we have managed it on our own

> with

> no real problems. For the last month or so, it has gotten bad - we have

> tried prunes, prune juice, stool softeners and even suppositories.

>

> Colleen Stephansen

> <http://www.colleenschildcare.com/> Colleen's Child Care

> NAFCC Accredited Child Care in Riverbank, CA

> 3 Full time / Part time Openings are now available!

>

> <https://www.redcross.org/donate/redir.asp?OID=Colleen's Child

> Care & DID=09032005>

>

>

>

>

[Guest guest]

That's true.......my kids used to go on the BRAT diet when they had

diarrhea.....

B-Bananas

R-Rice

A-Apples (not applesauce)

T-Tea

Jackie, Mom to 17ds, 15, and Bradley 11

-------------- Original message --------------

> My doctor just told me NO applesauce or bananas. He said when a person has

> diarrhea you eat Bananas applesauce and toast. this helps make firmer stools.

> You want to loosen them. Prunes, prune juice and water. high fiber but the

> water is what is absorbed in the colon to make the stools softer and move

> along.

> Jean

>

>

>

[Guest guest]

Thanks Becky, I'm going to call the ped again about it.

How is doing? I've never heard of that before, but it sounds awful!

Hopefully she's feeling better by now.

Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD,

Hashimoto's disease, hypogammaglobulinemia, complement deficiency, antibody

deficiency, NK cell defect, and resolved adrenal insufficiency),

Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, asthma and mild hearing loss/unaided),

and Kelsey - (9 going on 19!)

Please visit us at www.caringbridge.org/in/connersmith

>From: " Becky McClure " <beckymcclure825@...>

>Reply-

>

>Subject: Miralax

>Date: Tue, 31 Jan 2006 10:57:44 -0600

>

>maddie has been on miralax for at least 4-5 years-and her gastro said she

>can take it forever-we have never noticed any side effects-it is now

>generic

>and we use it almost every night-if she does nto fall asleep first! She

>drinks it mixed in jasmine-green tea and the warm tea helps relax her for

>bed too!

>

>Becky in IN-mom to Maddie age 9-IgA def, low IgG, gerd, chronic

>constipation, mild cp, nk cell defect......

>

>

[Guest guest]

Becky,

I've wondered about the CP issues for Conner too, he was still wearing AFO's

two years ago. However, he didn't really start having trouble with

constipation until a year or so ago. The miralax seems to do the trick for

him, but he really hates the stuff. We've never done much testing for him,

do you think we should pursue that if he's doing well on the meds?

Take care,

Mom to Conner (12, unknown combined immune deficiency, lymphadenopathy,

asthma,

Hashimoto's disease and resolved adrenal insufficiency),

Hayden (12, unknown immune deficiency, IBS and moderate hearing loss/aided),

Evan (12, unknown immune deficiency, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown immune deficiency and asthma)

Please visit us at www.caringbridge.org/in/connersmith

----- Original Message -----

From: " Becky McClure "

> We have always had good luck mixing the miralax in with some of Maddie's

> liquid requirement for the day. How much does Macy take at each dose?

> Maddie regularly has to take one to two capfuls-at least once a day to

> stay regular. We have done all of the motility tests and such and they

> can basically find no reason for the slow gut-she was diagnosed as a

> toddler with mild cp-but that was mainly her legs-so maybe it has affected

> her gut too? She now walks with out any braces or support and you would

> never know that she had been treated as a toddler.

>

>

> Becky in IN mom to Maddie-age 10, IgA def, low IgG, nk cell issues,

> asthma, gerd, milk allergy, .....

>

[Guest guest]

" I am unsure I feel comfortable with the Miralax being given to him for so long.

Is this fairly common? He is 2, but he weighs 44lbs. and is 39in. tall. "

Rogena,

I was told that to date Miralax is the safest product in the marketplace for a

" slow gut " .

Many docs are still writing prescriptions for senokot (sp?), bulk laxatives

(metamucil), herbal remedies, and drugs that irritate the lining of the gut to

get things to move -- and all of these products increase risk of GI damage and

should not be used in our kids.

My daughter has been on Miralax for 2 years and it has been prescribed for an

indefinite period of time. We met with a top-noch GI doc (at Cincy) and he

suggested that we use it. Without it, she would risk perforating her gut with

stool, bacterial translocation from her gut to her bloodstream (which has

already happened), and/or need surgery. This is not uncommon with our kids.

Cytokines? Disrupted flora? Autoimmune problems? Inflammation? Pathogens? I

don't know the reason for the " slowed gut " yet...but there are some mom's in the

group that are determined to find answers for our PIDDers. Often, if you scope,

you don't find answers...I don't believe technology has kept up with our

children.

How much to use?

Weight is a good starting point but you have to adjust it based on the kiddo's

needs. Our doc had my daughter start really high (to clean her out...it does

not work well unless the child gets a " clean out) 2 caps and then we titrated

down to 1 cap daily for a few months. Now she gets 2/3 cap and I go a little up

or down depending on her symptoms. Extra fluid helps as well (but you have to

balance this with the child's kidney status). Just to give you some

perspective, she was getting 1 cap a day for 38 lbs. My sister was getting 1

cap a day for 180 lbs!

Hope that helps. You are definitely not alone in gut department.

mom to CVIDer (4)

[Guest guest]

" ...it does not work well unless the child gets a " clean out) 2 caps

and then we titrated down to 1 cap daily for a few months. "

Thanks for this insight, ! I have only been giving him 1

tsp. (not 1 tbsp.) because I was afraid of overdoing it. He is gut

is moving a little better, but I think I see the wisdom in " cleaning

out " the gut first. I will start tommorow morning with the

prescribed dosage and hopefully it will relieve his impacted

bowels. I really don't think he will need the full dose to maintain

the movement, but I will keep an open mind.

It looks like quite a number of the kiddos take it long term, or at

least for several months, which is what Flynn will need to do until

his GI appt.

Thanks again for calming a worried mother's mind!

-Rogena (Mom to 4 boys, including Cole -Partial Selective IgA Def,

GERD, Asthma, Lactose-Intolerant, Unknown Food Allergen; & Flynn -

Unknown PID, GERD, Asthma)

[Guest guest]

We noticed a big difference between the Miralax and the Glycolax, Glycolax

didn't work for us at all and had to get a TAR for the Miralax.

Miralax

> Have you noticed a big difference between the generic and the name brand-I

> am just curious....we have used the generic since it came out-and I did

> just check our health plan and they will still cover the two big bottles

> of generic at refill for my copay-thank goodness!

[Guest guest]

We get it through our prescription benefit.

Peace,

Pattie

" Our greatest glory is not in never failing, but in rising up every time we

fail. " ~Ralph Waldo Emerson

[Guest guest]

Check the archives for horror stories.

S S

Miralax

Posted by: " Peggy " diamond12345@... diamond12345@...

Thu Feb 25, 2010 7:29 am (PST)

how dangerous is miralax for short term use?

------------------------------------------------------------

Click to learn about options trading and get the latest information.

Stock Options

http://tagline.excite.com/c?cp=VTatmNAh5MhUvWA6sK3AzgAAKZRr_2tbQBaG-3loGUsiTeHAA\

AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAAQlr47I28=

[Guest guest]

Dana,

Less than a year ago, I had a happy, even tempered son. Occasionally there were

flare-ups but not bad or serious. He had problems with his personal space being

invaded and when we had guests, would go in the other room. He also had anxiety

and fears of common things he had experienced in an adverse way, like being

afraid of things that fly because a wasp flew down his shirt and stung him a

couple of times before we could get it out.

Then he just started changing and now he is rude, obnoxious, demanding, and has

" behaviors " that could hurt him or someone else. I tried to think back about

this. It was about the time they started doing the colonoscopies with the

Miralax. Is it possible that Miralax could have caused such a personality

change? The first time we used Miralax he got to the place he didn't know when

he needed to go to the bathroom. The last time he started having some kidney

issues. So they told me to just use Milk of Magnesia with him about 6-9 months

ago. That I should give him a spoon every day to keep his bowels moving. But I

realized that this works the same way, pulling water out of the rest of the

body, because it is a saline solution.

D.