Regression

[Guest guest]

I have many studies on my site, www.hbot4u.com Please feel free to copy and

paste all that you need, I have had great improvements with the autistic

children that we have treated. Please wisely look into this for your child!

Re: [ ] Regression

hello...im new to this list...does anyone know of papers published on the

efficacy of HBOT for autistic children? im leaning towards trying it with my

3.10

y.o son ASD non-verbal for the last 18 mos...only has made small gains with

SLP....heard of this new (or not so new) treatment for autism...if anyone

knows

of data or papers published showing efficacy id appreciate it greatly..i

want

all supporting materials i can get my hands on..

ive located a Unit close to home, and am waiting on word on funding..i think

we have a good shot at getting at least 5-10 treatments to at least

establish

that this will work for him.

thanks for any feedback

kathleen mom to spencer

[Guest guest]

Kathleen-

As you are new to the HBOT environment, you are going to be overwhelmed

with new information from many different angles. You will find several

different facts, opinions, wonderful success stories and downright

lies.....so take everything with a grain of salt until you are able to

formulate your own opinion or find a practitioner that you trust.

About your recent posting I would offer this: in my professional

experience, 5 or 10 isn't enough to decide the efficacy of HBOT in an

autistic child. Although you may see amazing results after only 5 or 10

dives (it has happened before) you wouldn't really be giving the HBOT a

chance to " do its thing " and might therefore not see the results that

you would hope for and prematurely call it a failure.

You may however be able to show effects of HBOT using pre and post spect

scans after only a few dives (technically after only one dive) and

therefore quantify the result, but you probably wouldn't be able to

either subjectively or objectively qualify how well it worked. Parents

of children who receive HBOT are very often " hoping " so strongly that

the treatments will help, that they will try so very hard to find

anything that seems to be an improvement in their child....this often

can skew the truth as well.

You will need to talk to other professionals and parents, but I do

believe that most will tell you that quantity and repetition (although

not perpetual) are the key ingredients to successful HBOT. At our

facility we call 80 our magic number where we have really seen the

strongest results. We try to achieve the first series of dives by doing

the first 40 consecutively (one or two a day) and then beginning the

next series of 40 from 7 to 30 days following the first series. After

the first 40 are achieved, we evaluate the patient on both a qualitative

and quantitative basis and heavily involve the parents in the process.

During the next 40 dives we closely monitor the patients for abrupt

changes or " growth spurts " . After the 80 dives are achieved, we again

evaluate the patient. From that point forward, we decide with the

parent or patient (we also treat adult stroke patients) how to proceed

forward. The subsequent therapy regimen is very unique to each

individual. Some patients may achieve upwards of 300 or more dives,

some may very well have hit their plateau by 90. Everyone is different.

Although I would never dissuade anyone from trying HBOT as a therapy for

their child, I think that it is very important to understand the

realities of this type of therapy. If you have any way to hold off

taking HBOT until you can achieve a higher number of sequential dives

(personally I believe 20 is the minimum) you should seriously consider

it. What you are doing right now is the best thing you can do....talk

to other professionals and parents and get some background on HBOT so

you can make your own, educated and informed best decision.

Anyone else in the forum have any thoughts on this ??

-Jay

Jay A Rain, DMT, CHT

Director

South Coast Hyperbaric Medicine & Wound Care Center

3 Professional Park Drive

Webster, Texas 77598

281.554.8848

" He Heals most Successfully those in which he has the most confidence " -

Galen

Re: [ ] Regression

hello...im new to this list...does anyone know of papers published on

the

efficacy of HBOT for autistic children? im leaning towards trying it

with my 3.10

y.o son ASD non-verbal for the last 18 mos...only has made small gains

with

SLP....heard of this new (or not so new) treatment for autism...if

anyone knows

of data or papers published showing efficacy id appreciate it greatly..i

want

all supporting materials i can get my hands on..

ive located a Unit close to home, and am waiting on word on funding..i

think

we have a good shot at getting at least 5-10 treatments to at least

establish

that this will work for him.

thanks for any feedback

kathleen mom to spencer

[Guest guest]

Dear Kathleen, We will not treat any one below 40 treatments for the first

time, I would not be doing your child nor the field of HBOT justice if I

were to practice in any other fashion. Recently we were honored to publish

in " Autism Asperger's Magazine " under ask the experts.

It has been our opinion and that of other centers along with the personality

changes, some diet changes, nutritional changes, many of the children have

40 and more treatments. You may find centers that are willing to treat your

child for only 5 treatments, however this could be your child's answer, so I

urge you to wisely consider the studies posted.

Re: [ ] Regression

hello...im new to this list...does anyone know of papers published on

the

efficacy of HBOT for autistic children? im leaning towards trying it

with my 3.10

y.o son ASD non-verbal for the last 18 mos...only has made small gains

with

SLP....heard of this new (or not so new) treatment for autism...if

anyone knows

of data or papers published showing efficacy id appreciate it greatly..i

want

all supporting materials i can get my hands on..

ive located a Unit close to home, and am waiting on word on funding..i

think

we have a good shot at getting at least 5-10 treatments to at least

establish

that this will work for him.

thanks for any feedback

kathleen mom to spencer

[Guest guest]

Hello, Our article was printed in the May-June 2004 addition, I would be

more than happy to send you a copy, The vast part of the article is on our

website. Please send your mailing address ( off the list to my address of

hyperbaric1@...) My daughter was autistic-like with abnormal brain

SPECT scan, treated in 1993, she had a auto- immune disorder ( as you know

this can go along with autism) and has fully recovered. She at 17 years old

attended the Hyperbaric Course. We are very proud of her. So as you can see,

for our family it has made a life difference.

Most Sincerely,

CHT, DMT, EMT

Rapid Recovery Hyperbarics

www.hbot4u.com

Re: [ ] Regression

wow...thank you im encouraged by the responses im getting from this one

post!

thank you everyone for your concerns and informative input...i will find

that

magazine and look for your article...

this is wonderful...i will look into more treatments than the initial 5 or

10...see my sons dev ped was against writing a scrip at first and only after

my

constant urging...he wrote

" as needed " instead of the 5 i originally asked for *a dr on another list

advised i ask for " as needed " to be put on the scrip.

my nurse coordinator is looking into funding...ive medicaid but CMS also

(they cover what isnt covered by medicaid ) as long as its done here thru

Shands...and i know theres a Unit at Shands...now its just a matter of

navigating the

red tape. also i dont know if the Unit is one that will allow me to

accompany

Spencer inside the unit itself..thats a big consideration as spencer will

not

willingly go into something like that alone. and i dont want to traumatize

him...i DO want to get him the best treatment chances tho...

sorry to get off track here

this was just to be a simple thank you...

kathleen mom to spencer 3.10 ASD non-verbal no motor problems and no

seizures...knock wood

[Guest guest]

Kathleen,

We started Hyperbarics 4 years ago, in that time we have done over 1,000

treatments. Our son was 10 when we started. Age seeems to be a very

important factor. We have seen great improvements. Our son went from

understanding almost nothing to understand just about everything. He has

gone from a 12 word vocabulary to being able to express his wants and needs

in small sentences. My nephew was 3 when we started treatments with him.

He needed only 150 treatments and today he is completely well. In regular

school, with friends doing the work at age level (in fact ahead of the class

in math).

We find that it usually requirers at least 30 treatments to see improvement.

Then improvements continue until stopped and then usually for another couple

weeks. (of course everyone is different) When a break is taken we find you

have to wait another 30 treatments to begin seeing results again. Listen to

, do at least 40 so you will be giving Spencer the chance he desires.

Jay wrote when talking about how many to do >that quantity and repetition

(although > not perpetual). . We will do however many it takes. As I have

stated before if we stop seeing results we will do 100 more if that doesn't

work we will do another 100. I do not understand why anyone would make the

decision to stop until the results have stopped.

Love to all,

Rose Manning

Re: [ ] Regression

>

>

>

> hello...im new to this list...does anyone know of papers published on

> the

> efficacy of HBOT for autistic children? im leaning towards trying it

> with my 3.10

> y.o son ASD non-verbal for the last 18 mos...only has made small gains

> with

> SLP....heard of this new (or not so new) treatment for autism...if

> anyone knows

> of data or papers published showing efficacy id appreciate it greatly..i

> want

> all supporting materials i can get my hands on..

>

> ive located a Unit close to home, and am waiting on word on funding..i

> think

> we have a good shot at getting at least 5-10 treatments to at least

> establish

> that this will work for him.

>

> thanks for any feedback

>

> kathleen mom to spencer

>

>

>

[Guest guest]

Rose,

Good advice! our at 11 is still seeing and reaping the benefits of

HBOT. Like many treatments and therapies when one finds something that works

keep doing it. I think JB and his son is embarking on his first actual

exposure to HBOT and like for many-time will tell ! Do what you can JB ! and

as much of it as you can to give your son and HBOT a chance. once again we

wish you well.

(The JRC)

Re: [ ] Regression

Kathleen,

We started Hyperbarics 4 years ago, in that time we have done over 1,000

treatments. Our son was 10 when we started. Age seeems to be a very

important factor. We have seen great improvements. Our son went from

understanding almost nothing to understand just about everything. He has

gone from a 12 word vocabulary to being able to express his wants and

needs

in small sentences. My nephew was 3 when we started treatments with him.

He needed only 150 treatments and today he is completely well. In regular

school, with friends doing the work at age level (in fact ahead of the

class

in math).

We find that it usually requirers at least 30 treatments to see

improvement.

Then improvements continue until stopped and then usually for another

couple

weeks. (of course everyone is different) When a break is taken we find

you

have to wait another 30 treatments to begin seeing results again. Listen

to

, do at least 40 so you will be giving Spencer the chance he desires.

Jay wrote when talking about how many to do >that quantity and repetition

(although > not perpetual). . We will do however many it takes. As I

have

stated before if we stop seeing results we will do 100 more if that

doesn't

work we will do another 100. I do not understand why anyone would make

the

decision to stop until the results have stopped.

Love to all,

Rose Manning

Re: [ ] Regression

>

>

>

> hello...im new to this list...does anyone know of papers published on

> the

> efficacy of HBOT for autistic children? im leaning towards trying it

> with my 3.10

> y.o son ASD non-verbal for the last 18 mos...only has made small gains

> with

> SLP....heard of this new (or not so new) treatment for autism...if

> anyone knows

> of data or papers published showing efficacy id appreciate it greatly..i

> want

> all supporting materials i can get my hands on..

>

> ive located a Unit close to home, and am waiting on word on funding..i

> think

> we have a good shot at getting at least 5-10 treatments to at least

> establish

> that this will work for him.

>

> thanks for any feedback

>

> kathleen mom to spencer

>

>

>

[Guest guest]

OPPS! I seamed to have croosed email threads and mail servers! sorry

people---still the same good info!

JP

Re: [ ] Regression

Kathleen,

We started Hyperbarics 4 years ago, in that time we have done over 1,000

treatments. Our son was 10 when we started. Age seeems to be a very

important factor. We have seen great improvements. Our son went from

understanding almost nothing to understand just about everything. He

has

gone from a 12 word vocabulary to being able to express his wants and

needs

in small sentences. My nephew was 3 when we started treatments with

him.

He needed only 150 treatments and today he is completely well. In

regular

school, with friends doing the work at age level (in fact ahead of the

class

in math).

We find that it usually requirers at least 30 treatments to see

improvement.

Then improvements continue until stopped and then usually for another

couple

weeks. (of course everyone is different) When a break is taken we find

you

have to wait another 30 treatments to begin seeing results again.

Listen

to

, do at least 40 so you will be giving Spencer the chance he

desires.

Jay wrote when talking about how many to do >that quantity and

repetition

(although > not perpetual). . We will do however many it takes. As I

have

stated before if we stop seeing results we will do 100 more if that

doesn't

work we will do another 100. I do not understand why anyone would make

the

decision to stop until the results have stopped.

Love to all,

Rose Manning

Re: [ ] Regression

>

>

>

> hello...im new to this list...does anyone know of papers published on

> the

> efficacy of HBOT for autistic children? im leaning towards trying it

> with my 3.10

> y.o son ASD non-verbal for the last 18 mos...only has made small gains

> with

> SLP....heard of this new (or not so new) treatment for autism...if

> anyone knows

> of data or papers published showing efficacy id appreciate it

greatly..i

> want

> all supporting materials i can get my hands on..

>

> ive located a Unit close to home, and am waiting on word on funding..i

> think

> we have a good shot at getting at least 5-10 treatments to at least

> establish

> that this will work for him.

>

> thanks for any feedback

>

> kathleen mom to spencer

>

>

>

[Guest guest]

Hello Sonnet,

Your question is the type that most of us can jump in and give some

kind of an answer. The fix you got might be permanent, but is also

subject to a number of " conditons. " How are you " chasing " your food

down? water, soda, something else, how much of it? Obviously, you are

retaining food in your esophagus since you continue to taste it.

Perhaps you need to drink more of what you are drinking. Perhaps you

need to drink a full glass of your choice of beverage before you begin

a meal, in order to clear out what is left from your previous meal

(even if you don't sense it there).

Now, you are might be saying, what kind of surgery was this that you

are already getting sticking sensations? The surgery was a

mechanical " correction " and not a cure, and gravity is your friend, but

certain shaped and textured foods are not. Also if your LES closes,

you will have sticking sensations.

Such sticking is normal, but you want to be able to develop a method as

to how to deal with it. Perhaps in a followup post you can tell us

more about yourself and how you go about eating your meals.

>

> Hello everyone, hope you are all well and finding the information you

> need to help you through the world with Achalasia. I need to pick

your

> brains a bit. I had my hellers/nissen last September and had felt

> great. However I am now having some " stickage " and noticing that I

can

> taste my food several hours after I eat it. I was wondering if anyone

> else had any regression signs, I contacted my doctor but have not

> heard back yet. I guess I am looking for some feedback. Thanks Sonet

>

[Guest guest]

, my personal experience never had Allie out of her environment

with different people for that long. I do know each school year there

is a regression from the change, so I would think it would be

possible. If she had difficulty adjusting to dad's home, then back to

her home I would think it could be difficult for her. I know with

Allie, she went to a preschool she loved for a couple years, then on

to another school, then when we went back to visit she immediately

regressed back into the behaviors she had at the preschool, it was

sort of creepy.

Did you have her on any special biomed things that perhaps dad didn't

do while with him?

HTH,

Debi

[Guest guest]

, my personal experience never had Allie out of her environment

with different people for that long. I do know each school year there

is a regression from the change, so I would think it would be

possible. If she had difficulty adjusting to dad's home, then back to

her home I would think it could be difficult for her. I know with

Allie, she went to a preschool she loved for a couple years, then on

to another school, then when we went back to visit she immediately

regressed back into the behaviors she had at the preschool, it was

sort of creepy.

Did you have her on any special biomed things that perhaps dad didn't

do while with him?

HTH,

Debi

[Guest guest]

, my personal experience never had Allie out of her environment

with different people for that long. I do know each school year there

is a regression from the change, so I would think it would be

possible. If she had difficulty adjusting to dad's home, then back to

her home I would think it could be difficult for her. I know with

Allie, she went to a preschool she loved for a couple years, then on

to another school, then when we went back to visit she immediately

regressed back into the behaviors she had at the preschool, it was

sort of creepy.

Did you have her on any special biomed things that perhaps dad didn't

do while with him?

HTH,

Debi

[Guest guest]

Not that I am aware of

Sent via BlackBerry from T-Mobile

Re: regression

, my personal experience never had Allie out of her environment

with different people for that long. I do know each school year there

is a regression from the change, so I would think it would be

possible. If she had difficulty adjusting to dad's home, then back to

her home I would think it could be difficult for her. I know with

Allie, she went to a preschool she loved for a couple years, then on

to another school, then when we went back to visit she immediately

regressed back into the behaviors she had at the preschool, it was

sort of creepy.

Did you have her on any special biomed things that perhaps dad didn't

do while with him?

HTH,

Debi

[Guest guest]

Not that I am aware of

Sent via BlackBerry from T-Mobile

Re: regression

, my personal experience never had Allie out of her environment

with different people for that long. I do know each school year there

is a regression from the change, so I would think it would be

possible. If she had difficulty adjusting to dad's home, then back to

her home I would think it could be difficult for her. I know with

Allie, she went to a preschool she loved for a couple years, then on

to another school, then when we went back to visit she immediately

regressed back into the behaviors she had at the preschool, it was

sort of creepy.

Did you have her on any special biomed things that perhaps dad didn't

do while with him?

HTH,

Debi

[Guest guest]

Not that I am aware of

Sent via BlackBerry from T-Mobile

Re: regression

, my personal experience never had Allie out of her environment

with different people for that long. I do know each school year there

is a regression from the change, so I would think it would be

possible. If she had difficulty adjusting to dad's home, then back to

her home I would think it could be difficult for her. I know with

Allie, she went to a preschool she loved for a couple years, then on

to another school, then when we went back to visit she immediately

regressed back into the behaviors she had at the preschool, it was

sort of creepy.

Did you have her on any special biomed things that perhaps dad didn't

do while with him?

HTH,

Debi

[Guest guest]

,

Our daughter is now 8, but she does regress when she is out of school or if

things get stressful here at home. The regression almost always includes verbal

stemming, but it does vary in other areas. Since we do the diet, due to

intolerances to gluten, casein, soy and worstly, corn. We also experience

regression in areas when she gets infractions to her diet. The structure is

what they need and can't get at home. Sometimes autistic behaviors can be

modified, some may change as they get older, some go away (at least for a while

- more cyclic) and some get more intense.

Regina

________________________________

From: Autism_in_Girls [mailto:Autism_in_Girls ]

On Behalf Of

Sent: Friday, August 08, 2008 11:14 PM

To: Autism_in_Girls

Subject: regression

I was wondering if maybe someone could tell me if autistic children regress

normally when out of their normal environment? My daughter spent the past 6

weeks with her dad and when she returned her stimming has severely increased and

her speech has severely regressed.I had started potty training her and she is

potty trained during the day now which I feel is a huge accomplishment.

Everything else however has regressed. I just want to know is this normal and do

autistic behaviors increase with age? She is almost 4. She takes abilify twice

daily for a total of 4mg per day. Thanks in advance!

[Guest guest]

,

Our daughter is now 8, but she does regress when she is out of school or if

things get stressful here at home. The regression almost always includes verbal

stemming, but it does vary in other areas. Since we do the diet, due to

intolerances to gluten, casein, soy and worstly, corn. We also experience

regression in areas when she gets infractions to her diet. The structure is

what they need and can't get at home. Sometimes autistic behaviors can be

modified, some may change as they get older, some go away (at least for a while

- more cyclic) and some get more intense.

Regina

________________________________

From: Autism_in_Girls [mailto:Autism_in_Girls ]

On Behalf Of

Sent: Friday, August 08, 2008 11:14 PM

To: Autism_in_Girls

Subject: regression

I was wondering if maybe someone could tell me if autistic children regress

normally when out of their normal environment? My daughter spent the past 6

weeks with her dad and when she returned her stimming has severely increased and

her speech has severely regressed.I had started potty training her and she is

potty trained during the day now which I feel is a huge accomplishment.

Everything else however has regressed. I just want to know is this normal and do

autistic behaviors increase with age? She is almost 4. She takes abilify twice

daily for a total of 4mg per day. Thanks in advance!

[Guest guest]

,

Our daughter is now 8, but she does regress when she is out of school or if

things get stressful here at home. The regression almost always includes verbal

stemming, but it does vary in other areas. Since we do the diet, due to

intolerances to gluten, casein, soy and worstly, corn. We also experience

regression in areas when she gets infractions to her diet. The structure is

what they need and can't get at home. Sometimes autistic behaviors can be

modified, some may change as they get older, some go away (at least for a while

- more cyclic) and some get more intense.

Regina

________________________________

From: Autism_in_Girls [mailto:Autism_in_Girls ]

On Behalf Of

Sent: Friday, August 08, 2008 11:14 PM

To: Autism_in_Girls

Subject: regression

I was wondering if maybe someone could tell me if autistic children regress

normally when out of their normal environment? My daughter spent the past 6

weeks with her dad and when she returned her stimming has severely increased and

her speech has severely regressed.I had started potty training her and she is

potty trained during the day now which I feel is a huge accomplishment.

Everything else however has regressed. I just want to know is this normal and do

autistic behaviors increase with age? She is almost 4. She takes abilify twice

daily for a total of 4mg per day. Thanks in advance!

[Guest guest]

I've spoken to DAN doctors who have treated hundreds of children with

mild HBOT. This information comes from them. Regression varies from

child to child, but it will frequently occur if HBOT is stopped too

soon. For this reason, HBOT is normally continued until there are no

futher improvements, and for many children, this can take years.

Diane

>

> Diane,

>

> You are a new comer to HBOT, and I don't know your background, but

> you are not experienced in HBOT to make such statements.

>

> The issue of regression in autism patients has everything to do

with

> what was done before HBOT, and little to do with continuing

treatments.

>

> Please, if you don; tknow what you are talking about, please keep

> silent. Families have to sacrifice a lot to do all this and they

> need facts to mover their kids forward.

>

> Sorry to be harsh. But, this is an important point.

>

> Ed

[Guest guest]

For adults with neurological disorders, ongoing HBOT is the norm. In

the U.K., where there are over 60 HBOT clinics for MS, their standard

maintenance protocol to avoid regression is 1 hour of HBOT per week

indefinitely. I'm in touch with an MS patient with a portable chamber

who has been using it for 5 years.

Diane

[Guest guest]

For those who don't know this, Diane sells HBOT chambers for home therapy.  My

neurologist was happy to order HBOT for me for TBI; he has doubts about whether

it is of value for M.S.  It may, but I wouldn't consider Diane as a medical

expert on the indications of HBOT for " regression. "  

She suggested I buy a chamber for treatment because of my TBI, to avoid

" regression. "   Treatment for TBI has shown to have significant medical benefit,

and it is hard to know when maximal benefit is achieved, but " regression " is not

applicable for TBI. 

This is a great site for information, but also beware that you must consider the

source: in some cases what you get is misinformation.

By the way, if I had M.S., and could afford it, I would probably try HBOT--it

may not prevent progression, but it may delay it--there's a lot we don't know

about M.S. as well as many other neurological diseases.

From: hbotforhealth <diane@...>

Subject: [ ] Re: Regression

medicaid

Date: Wednesday, October 8, 2008, 1:32 AM

For adults with neurological disorders, ongoing HBOT is the norm. In

the U.K., where there are over 60 HBOT clinics for MS, their standard

maintenance protocol to avoid regression is 1 hour of HBOT per week

indefinitely. I'm in touch with an MS patient with a portable chamber

who has been using it for 5 years.

Diane

[Guest guest]

Due to the corruption of medicine by Big Pharma, prescription drugs

are the only accepted treatment for neurological disorders in the

United States. Unfortunately, the drugs prescribed for Multiple

Sclerosis are often ineffective, and their side effects are

frequently far worse the disease that they are treating.

Dianne

There are approximately 60 centres in the UK offering HBOT for MS and

over the last 20 years, between them have carried out in excess of

1.3 million treatments. The Federation of MS Therapy Centres has

monitored the results from these centres and produced a report

entitled " The Experience of Treating Multiple Sclerosis with

Prolonged Courses of Hyperbaric Oxygen " (Dr. D Perrins & Dr Philip

).

The report is not a double blind study, but follows the fate of 703

patients over a course of 10 to 13 years (too long for a double blind

I think!). The study assessed the Kurtzke Disability Scale (KDS) of

the patients and the severity of their symptoms. This was compared to

the known natural history of the disease.

Although there is a wide variation in the rate and pattern of

decline, the majority of patients deteriorate over a two year period

of observation. In this series the Relapsing/Remitting patients who

had less than two follow on treatments after the initial course had

deteriorated by 2.0 on the KDS after 10+ years, while those who

received more than 400 had deteriorated by only 1.1. This represents

a difference of being able to walk without assistance and the need to

use two sticks, or the ability to walk 200 yards and being confined

to a wheelchair.

The most frequently reported symptoms to improve with the continued

use of HBOT were fatigue, speech, bladder control and balance.

From my own experience of seeing patients benefit from this

treatment, I (and the patients) am convinced of its effectiveness.

Our protocol in the UK is an initial course of 18 to 20 one hour

treatments over 4 to 6 weeks, commencing at 1.5 ATA and increasing to

1.75 or 2.0 ATA. Most patients then continue with 1 one hour

treatment per week, without end.

Studies you can refer to include:

Fischer et al. Hyperbaric Oxygen Treatment of Multiple Sclerosis, A

randomised, placebo controlled, double blind study. New England

Journal of

Medicine 1983

Oriani et al. Hyperbaric Oxygen in Chronic Progressive Multiple

Sclerosis: a placebo controlled, double blind, randomised study with

evoked potentials evaluation. Proceedings of the 13th annual meeting

of the European Undersea Biomedical Society, Palermo 1987

Palotta et al. Experience in protracted follow-up on a group of

Multiple Sclerosis patients periodically treated with hyperbaric

oxygen therapy. Symposium sur le traitment de la sclerose multiple

par l'oxygene hyperbare. Paris 1986

et al. Hyperbaric oxygen and multiple sclerosis; short term

results of a placebo controlled double blind trail. The Lancet 1985

and Hyperbaric oxygen and Multiple sclerosis: final results of a

placebo controlled double blind study. Journal of Neurology,

Neurosurgery and Psychiatry 1987

Neubauer. Magnetic resonance imaging in multiple sclerosis following

hyperbaric oxygen. First Swiss Symposium on hyperbaric medicine 1986 &

Treatment of Multiple Sclerosis with monoplace hyperbaric oxygenation.

Journal of the Florida Medical Association 1978.

Gottlieb and Neubauer. Multiple Sclerosis: Its etiology, pathogenesis

and therapeutics with emphasis on the controversial use of HBO.

Journal of Hyperbaric Medicine 1988.

The last paper concludes " Of all the current therapies presumably

based on an understanding of the etiology and pathphysiology of the

disease process, HBOT has the soundest foundation. It is also the

safest drug available. It is not surprising therefore to find that

there is much positive evidence concerning the beneficial effects of

HBOT on cerebellar and bowel bladder function to sanction its use for

treating MS. Based on comparative efficacy and safety considerations,

it is recommended that HBOT be used for treating early MS and for

treating MS associated cerebellar and bowel bladder

dysfunction " .

There are, of course, more than this, but surely its time to stop

arguing the case and get as many MS people into HBO chambers as we

can!

Alan

Manager

The Sussex MS Treatment Centre

UK

>

> For those who don't know this, Diane sells HBOT chambers for home

therapy.  My neurologist was happy to order HBOT for me for TBI; he

has doubts about whether it is of value for M.S.  It may, but I

wouldn't consider Diane as a medical expert on the indications of

HBOT for " regression. "  

>

> She suggested I buy a chamber for treatment because of my TBI, to

avoid " regression. "   Treatment for TBI has shown to have significant

medical benefit, and it is hard to know when maximal benefit is

achieved, but " regression " is not applicable for TBI. 

>

> This is a great site for information, but also beware that you must

consider the source: in some cases what you get is misinformation.

>

> By the way, if I had M.S., and could afford it, I would probably

try HBOT--it may not prevent progression, but it may delay it--

there's a lot we don't know about M.S. as well as many other

neurological diseases.

>

>

[Guest guest]

Tsyabri is one of Big Pharma's popular MS drugs. Most of the MS

drugs cost $1,000 or more per month. However, unlike HBOT, Tsyabri

includes fatal brain infections as one of its side effects.

Diane

The drug Tysabri is used to treat Multiple Sclerosis, a devastating

disease of the central nervous system. Tragically, however, it has

been linked to a relatively rare condition known as Progressive

Multifocal Leukoencephalopathy, or PML, which affects patients with

immune systems compromised by drugs used to treat kidney transplants,

AIDS, and leukemia. PML is caused by the human polyomavirus, known

as the JC virus, which destroys the sheath of fat that insulates the

nerves in the brain.

The symptoms of PML include vision loss, paralysis, mental

deterioration, muscle problems, and the loss of speech, and it can

prove deadly within one to four months after the appearance of

initial symptoms. When Tysabri is taken in conjunction with other

medications used to treat MS such as Avonex, the risk for PML is even

more pronounced. Tysabri actually had to be removed from the market

after it was connected to one death and a potential PML case.

After the onset of these initial symptoms, the condition of a PML

patient continues to deteriorate and extensive brain damage can

result. Tragically, the condition is known to affect a number of

different areas of the brain simultaneously, and destroys the white

part of the brain in particular. Sadly, the entire brain can slowly

deteriorate into a collection of unorganized cells and can fail to

function properly, if at all.

http://www.sddefenselawyers.com/defectivedrugs/tsyabri.html

Biogen Idec, Elan Report Two New Cases of Rare Brain Infection in

Tysabri Patients

Luke Timmerman 7/31/08

Cambridge, MA-based Biogen Idec (NASDAQ: BIIB) and Ireland's Elan

reported some serious bad news this afternoon on their multiple

sclerosis drug Tysabri. Two new patients taking the drug in Europe

have developed the rare and often fatal brain infection progressive

multifocal leukoencephalopathy, or PML, according to a regulatory

filing with the Securities and Exchange Commission.

The filing says that one patient, in Europe, developed PML after

taking Tysabri by itself for about 17 months. The patient has

remained stable at home and able to walk, according to the statement.

The second patient, who took Tysabri for 14 months after having taken

other medicines for multiple sclerosis, is currently hospitalized,

according to the company.

Tysabri has a painful history with PML. The drug was pulled from the

market in February 2005 after doctors discovered two cases of the

rare infection, which can be deadly. The FDA allowed Tysabri back to

the market in July 2006 after deciding that the benefit of the drug—

the most effective yet against MS—was worth the risk.

As recently as last week, Biogen and Elan reported there were no new

cases of PML since Tysabri was reintroduced with a strict monitoring

program, and that 31,800 patients were taking it worldwide. The drug,

Biogen's fastest-growing product, is vital to the company's financial

future, and has been estimated to generate $2.8 billion in annual

sales at current prices in 2010.

Biogen's stock dropped 19 percent on the news at 5:58 p.m. Eastern

time in after-hours trading to $56.56. The company is planning to

have a conference call with investors at 8:30 a.m. Eastern time

tomorrow morning.

http://www.xconomy.com/boston/2008/07/31/biogen-idec-elan-report-two-

new-cases-of-rare-brain-infection-in-tysabri-patients/

[Guest guest]

Diane,

As I said earlier.... you are a new comer and are showing your ignorance.

Specifically, kids with autism WILL ABSOLUTELY SHOW REGRESSION if

they are not treated properly.

If you do not know what you are talking about, and why this is

occurring and what those physicians are doing wrong... then, please,

do not show us how much you do not know.

Parents come here to learn how to care for their kids, not how NOT TO

care for their kids.

Ed

At 10:09 PM 10/7/2008, you wrote:

>I've spoken to DAN doctors who have treated hundreds of children with

>mild HBOT. This information comes from them. Regression varies from

>child to child, but it will frequently occur if HBOT is stopped too

>soon. For this reason, HBOT is normally continued until there are no

>futher improvements, and for many children, this can take years.

>

>Diane

>

>

> >

> > Diane,

> >

> > You are a new comer to HBOT, and I don't know your background, but

> > you are not experienced in HBOT to make such statements.

> >

> > The issue of regression in autism patients has everything to do

>with

> > what was done before HBOT, and little to do with continuing

>treatments.

> >

> > Please, if you don; tknow what you are talking about, please keep

> > silent. Families have to sacrifice a lot to do all this and they

> > need facts to mover their kids forward.

> >

> > Sorry to be harsh. But, this is an important point.

> >

> > Ed

>

>

Ed Nemeth

President, CEO

Spectrum Events

444 North Third Street, Suite 304

Sacramento, CA 95814

916-856-7044 x 339

916-856-7040 (fax)

[Guest guest]

Allo Diane ? (or is it Dianne... ?)

Could you go back just a bit, looks like you have skipped some

messages to your attention... like # 13402 & 13416.

> >

> > For those who don't know this, Diane sells HBOT chambers for home

> therapy.  My neurologist was happy to order HBOT for me for TBI; he

> has doubts about whether it is of value for M.S.  It may, but I

> wouldn't consider Diane as a medical expert on the indications of

> HBOT for " regression. "  

> >

> > She suggested I buy a chamber for treatment because of my TBI, to

> avoid " regression. "   Treatment for TBI has shown to have significant

> medical benefit, and it is hard to know when maximal benefit is

> achieved, but " regression " is not applicable for TBI. 

> >

> > This is a great site for information, but also beware that you must

> consider the source: in some cases what you get is misinformation.

> >

> > By the way, if I had M.S., and could afford it, I would probably

> try HBOT--it may not prevent progression, but it may delay it--

> there's a lot we don't know about M.S. as well as many other

> neurological diseases.

> >

> >

>

[Guest guest]

I was just thinking the same thing!

_____

From: medicaid

[mailto:medicaid ] On Behalf Of hyperbare888

Sent: Wednesday, October 08, 2008 9:51 PM

medicaid

Subject: [ ] Re: Regression

Allo Diane ? (or is it Dianne... ?)

Could you go back just a bit, looks like you have skipped some

messages to your attention... like # 13402 & 13416.

> >

> > For those who don't know this, Diane sells HBOT chambers for home

> therapy. My neurologist was happy to order HBOT for me for TBI; he

> has doubts about whether it is of value for M.S. It may, but I

> wouldn't consider Diane as a medical expert on the indications of

> HBOT for " regression. "

> >

> > She suggested I buy a chamber for treatment because of my TBI, to

> avoid " regression. " Treatment for TBI has shown to have significant

> medical benefit, and it is hard to know when maximal benefit is

> achieved, but " regression " is not applicable for TBI.

> >

> > This is a great site for information, but also beware that you must

> consider the source: in some cases what you get is misinformation.

> >

> > By the way, if I had M.S., and could afford it, I would probably

> try HBOT--it may not prevent progression, but it may delay it--

> there's a lot we don't know about M.S. as well as many other

> neurological diseases.

> >

> >

>