Regression

[Guest guest]

In a message dated 9/22/00 8:26:50 AM Pacific Daylight Time,

egroups writes:

<< ive noticed nathan goes in plateu like

cycles, he does great for a while learning and doing many new things, then

all of a sudden he is stuck in a slump not doing new things and often

regressing a step but then after awhile he starts up again, i not sure if

others children are the same or not. >>

a:

's the same way! As a matter of fact, he is regressing at a rapid pace

since the ADHD med's don't seem to be slowing him down.........in his case,

he can't sit still long enough to learn or retain anything......last year,

when the Adderral and Clonidine combo worked for a whopping three months, he

had progressed very rapidly!!

Now, we're back to square one...........sigh.......the first few days of

school, the teacher had said how proud she was of all the kids and how well

they retained everything........now, I have my doubts........

[Guest guest]

dont woory, those regression phases always pass, in time they do anyways,

[Guest guest]

We home schooled CB for one year due to his behaviors, He was most cooperative when it was interest based learning. We had great results in some areas, but I was not able to gain gorund in non preferred activties, like writing.

CB's Granny

[Guest guest]

I wanted to home school Karac, but my daughter in law wouldn't let me. I think Karac would have normal functioning if I had been allowed too. The public school just undid all the previous two years of work that I had done with Karac. Pat K

[Guest guest]

>

,

If the IEP states that he get a 1on1 aide, the school has to give

it to him. They should have been aware of his IEP before he was even

registared.The IEP is a contract, upheld by law, if you have to go

that far.Have you spoken with your county special-ed director. If so

than call your states Department of Education and file a formal

complaint.

Robin

> My little boy has had one awful day... He was potty training and

> has been doing great since school was out. Today he tinkled

several

> times in his pants and intentionally in the floor.He also reverted

to

> smearing feces... oh how we love that one. I had noticed his

behavior

> had been horrible and he has been emotionally distraught this

week, I

> mean so bad it was like he was when he was first diagnosed. Even

his

> speech has gotten worse.

>

> He is supposed to start to school monday and I think all this

> change has really thrown him for a loop. He is 4 and I dont think

he

> is ready for school anyway. They didnt get him an aide. I dont

know

> how they think they are going to handle his pottying issues and

> especially if he decides to paint the desks with it... He used to

> always hide under the desk at the office and go then smear it

> everywhere... he did this tonight at the house and was covered....

> gross.

>

> I just dont know what to do. I worry that MY obsessing over his

going

> to school has really affected him. I am feeling so guilty because

of

> the lack of an aide... they are blaming me for not registering him

> sooner, yet we have an IEP that dictates an aide for him...

>

> And me being so upset over my baby going to school... full time

in

> a regular class...and he's only 4 and so delayed I just cant get

> comfortable with the idea... I feel like I am causing him to be

upset

> by this.

>

> Do any of you homeschool? He is very oppositional... they had

even

> at one time said possible ODD... but does anyone get their child

to

> actually cooperate? lol

>

>

[Guest guest]

They were fully aware of the IEP... the principal and the speech

therapist for this school were a part of the IEP meeting and had

made the request for an aide be included in the IEP... Although in

her language she asked for an aide for the entire school at large,

who would come in and help if needed, but thats not the way its

written in the IEP. ( for all the good it does)

[Guest guest]

,

I'm not sure where you live, but in Florida there is an agency called

the " Coalition for Independent Living " . My girlfriend went their for

information on her 3 y/o twin but it benefited her older son as well.

He has ADHD and the school wouldn't even give them an IEP due to

his " IQ Level " or something like that. He didn't qualify because he

wasn't disabled .... Anyway, they have lawyers and/or

advocates " free of charge " that will attend the IEP meetings and

enforce the LAWS. I think what they are doing is ridiculous and

a " no-brainer " esp. for a 4 y/o. Not sure if this will help in your

case, but just thought i'd " put it out there " for you.

Ann in Florida

[Guest guest]

Thank you all for your replies and advice. I am feeling better today

and we had a much better day today. I am still unsure of what to do,

but I know my options.

[Guest guest]

, I really got ticked off when told me that the people at

the Regional center that evaluated Evan said that even if he had improvement

he could regress.

That feces smearing is still off and on with us. This from a kid who had

been completely toilet trained. I do understand what you are going thru

there and how gross that it can be. One day, he will go right to the toilet

and do his duty, the next bm will be in his pants, maybe in the back yard

and smeared all over the grass or maybe he will try and clean himself up in

the bathroom and it gets smeared all over there while he is trying to clean

up. another time he will just smear it for the sensory feelings.

I have homeschooled Evan's brother, but not Evan. I do not feel qualified

but I do know many have homeschooled their kids. There are support groups

out there who can help you if you decide to go that way.

And as for the aide, IF his IEP calls for one what does it matter about the

registration? Nicely remind them that it is in his IEP and they are

responsible for providing him with whatever is in his IEP. Check out

www.wrightslaw.com for ideas on how to go about getting what your child is

entitled to with the best results.

Betty

[Guest guest]

In a message dated 1/15/2005 12:33:13 AM Eastern Standard Time,

avagaige@... writes:

I would like to ask a question of the group = I have heard and read about

regression a while after getting HBOT. Could someone explain why this

happens and

if that means that you need to keep getting HBOT to reap any benefit at all?

Therefore, if you can only afford to do the suggested 40 treatments one

time,

should you bother at all?

I don't know of many who regress beyond the gains.... and if your meaning

doing 40 then doing 40 at a later date... you would keep building on the

gains... as typical protocol done in the states is a set of only 40 at a

time...

??

[Guest guest]

Thank you for your response. Part of my dilemma, besides finances, is

that my husband was on board with the treatments when we personally met a

family who had taken their daughter several times. Now all of a sudden, he is

questioning if it is worth going further in debt when it is not an approved

treatment for CP = therefore, is it really any help?? Also, when there is no

proof

it will help. I argue exactly what you said = plus, I don't want to regret

it later on. (This family had mentioned that their daughter did regress but

leveled off at a better place.) I have read posts of others talking about

regression so I just wanted to clarify this concept in my own mind. I

definitely

want to take our daughter but I hate to have to fight my husband about it.

[Guest guest]

Yes, you should bother, There are some people who require more than one set

of 40, it is because not everyone is the same, for example I have treated

some children who have drown who at 40 treatments have walked out of the

office, others may take me 300 treatments. Everyone is different. 40 is not

written in stone. however you will never know unless you try. We are unable

to give a guarantee of success or cure, because that would be against the

law, but there is one guarantee, if you do nothing, that is the results that

you will get.

I hope that you will wisely consider HBOT for your loved one.

www.hbot4u.com

[ ] Regression

I would like to ask a question of the group = I have heard and read about

regression a while after getting HBOT. Could someone explain why this

happens and

if that means that you need to keep getting HBOT to reap any benefit at all?

Therefore, if you can only afford to do the suggested 40 treatments one

time,

should you bother at all?

[Guest guest]

There are many published studies that do say that it has worked for many

patients. Not approved, for what? insurance? just because something is not

payable by insurance, does not mean it does not work.

Please do not misunderstand me, I DID have three daughters treated in 1993

and it did cost, but the way I look at is just this way, I can always have a

car or a vacation, Later.... at the cost of HBOT now, it is less money then

a used car. Yes it was a huge sacrifice to have my daughters treated.

however the outcome changed their life. Have your husband read the

studies... ( I have many on my website) then think about it wisely.

www.hbot4u.com

Re: [ ] Regression

Thank you for your response. Part of my dilemma, besides finances, is

that my husband was on board with the treatments when we personally met a

family who had taken their daughter several times. Now all of a sudden, he

is

questioning if it is worth going further in debt when it is not an approved

treatment for CP = therefore, is it really any help?? Also, when there is

no proof

it will help. I argue exactly what you said = plus, I don't want to regret

it later on. (This family had mentioned that their daughter did regress but

leveled off at a better place.) I have read posts of others talking about

regression so I just wanted to clarify this concept in my own mind. I

definitely

want to take our daughter but I hate to have to fight my husband about it.

[Guest guest]

Thanks for your response. It is alwasy good to hear such news. We live in

mid-eastern NY.

[Guest guest]

Valarie I have a family that lives in NY as well that saw regression come to

find out the pressure was not what the child needed he needed a higher pressure

they were treating him at 1.2 and they moveds him to 1.5 and the child did

wonderfull. I would recomend doing more. Just my thought.

Darin

In a message dated 1/16/2005 4:45:20 PM Eastern Standard Time, avagaige@...

writes:

>

>Thanks for your response. It is alwasy good to hear such news.  We live in

>mid-eastern NY.

>

>

>

>

[Guest guest]

Point of Clarification. It was thru the efforts of IHMA that Diabetic

ulcers was included in payment by Medicare. Not UHMS.

Virginia

[Guest guest]

-

While reading this message you must keep in mind that I am rather biased

toward the success of HBOT. I have personally been involved with such

amazing recoveries that even the staunchest pessimist would have to

change their opinion.

Having said that, even for one who needed to look at the situation with

the most linear, logical, sterile perspective, the clinical information

available proves beyond a doubt that HBOT works.

You mentioned the word " APPROVED " , well let me inform you that just a

couple years ago Diabetic Foot Ulcers wasn't on the " approved " list for

Clinical Hyperbarics. Then one day the AMA and UHMS decided that they

couldn't deny the proof any longer and suddenly " ZAP-BANG-POW " overnight

HBOT was curing hundreds of DFU/DFI patients and saving millions of

dollars in amputation costs. Not to mention the quality of life that

those patients had being able to keep their limbs or toes. Even today,

the coverage for DFU/DFI has strict parameters and even though all

(almost all) DFU/DFI wounds will heal with HBOT, using the " APPROVED "

logic only a percentage of those wounds will be available for coverage

and reimbursement.

Simple truth is this: does HBOT work for " anything what ails ya " ? - no

Does HBOT work for many, many conditions ? - yes

Certainly you know this, but to reiterate the situation, insurance

companies are in the business of making money. Simply put, they don't

make a profit by giving away all their money. If they are able to limit

the coverage for a specific type of therapy then they are able to reduce

monies paid out and therefore put more money in their own bank account.

When deciding to cover or not cover a treatment, the insurance companies

will (and do) find any loophole to not pay you by finding a technicality

in research data. There have been hundreds of studies performed for

stroke, autism, CP for HBOT and each time the study is complete the

medical community or the insurance company will find some minute

technical detail as to why the data is inadmissible or faulty. But try

to tell the stroke survivor that was unable to feed themselves or walk

at all before HBOT and then after a number of treatments they were

eating without assistance and walking with the aid of a cane that the

therapy wasn't beneficial. Try to tell them they shouldn't have gotten

better because they were " UN APPROVED " .

HBOT does cost money. It is far from inexpensive, but compare it to

these other financial choices :

Many parents pay thousands for a daughters wedding

Many parents pay thousands for a child's college education

Many parents pay thousands for a child's orthodontic braces for a pretty

smile

How many parents would rather pay for the above niceties but chose not

to pay for their child's health and well being ?!

As to the regression: it is important to differentiate between

" regression " and a " slowing of progress " . Often parents will watch

their child make great strides using the HBOT and sometimes they will

see that the progress has slowed compared to the beginning of

HBOT....and suddenly they believe the child is regressing.

Case in point : child had very limited verbal skills, child began to

talk rather well after 60 HBOT sessions, 3weeks after completing dive 80

child STOPPED TALKING ALTOGETHER. Might seem like a regression until

you hear that the child began talking well again (compared to baseline)

2.5 weeks later. It is extremely rare that a HBOT patient will make

progress during the sessions, but then lose the progress altogether

after the therapy ends. In some therapies you will take a few steps

forward then a half a step back before you see the end result...in Texas

we call that dancing !

If you have any specific questions there are a number of HBOT

professionals on this site to talk to, myself included. Direct e-mail

can eliminate the public nature of your conversations and most of the

people involved with this site are very competent and willing to talk to

you about your child's progress if you would like.

And finally, yes....40 is better than nothing, and possibly the magic

number for your child. The only decision that would be foolish is not

to try the therapy....you may very well be amazed at how well it works.

-Jay

Jay A Rain, DMT, CHT

Director

South Coast Hyperbaric Medicine & Wound Care Center

3 Professional Park Drive

Webster, Texas 77598

281.554.8848

" He Heals most Successfully those in which he has the most confidence " -

Galen

Re: [ ] Regression

Thank you for your response. Part of my dilemma, besides

finances, is

that my husband was on board with the treatments when we personally met

a

family who had taken their daughter several times. Now all of a sudden,

he

is

questioning if it is worth going further in debt when it is not an

approved

treatment for CP = therefore, is it really any help?? Also, when there

is

no proof

it will help. I argue exactly what you said = plus, I don't want to

regret

it later on. (This family had mentioned that their daughter did regress

but

leveled off at a better place.) I have read posts of others talking

about

regression so I just wanted to clarify this concept in my own mind. I

definitely

want to take our daughter but I hate to have to fight my husband about

it.

[Guest guest]

Virginia-

If you had read the posting in a different light, you might had

understood the " tongue and cheek " inflection that was intended and you

may had understood that I was poking at the AMA and UHMS. I understand

full and well how the realities in reimbursement actually came about,

but even today if you look at the CPT codes which are accepted you will

find the following information.....and I quote directly from the

Medicaid guideline for 2005

" blah blah blah......the FDA-approved indications for the hyperbaric

oxygen chamber (therapy) in accordance with the guidelines established

by the UNDERSEA AND HYPERBARIC MEDICAL SOCIETY are as follows: " blah

blah blah

Even though we might understand the truth (and believe me Virginia, I am

on your side with the IHMA) it is still propagated that the UHMS is the

end all.

My point to was simply to illustrate that even though a

condition may or may not be endorsed and " approved " it is often more a

matter of finance and logistics rather than good medicine. Especially

if we use Hyperbarics as the example.

I really didn't mean to infer UHMS superiority nor step on anyone's toes

with my posting. If I did, please forgive me and understand we dance a

little differently here in Texas....undoubtedly my boots have stomped a

toe or two here and there along the way.

-Jay

Jay A Rain, DMT, CHT

Director

South Coast Hyperbaric Medicine & Wound Care Center

3 Professional Park Drive

Webster, Texas 77598

281.554.8848

" He Heals most Successfully those in which he has the most confidence " -

Galen

Re: [ ] Regression

Point of Clarification. It was thru the efforts of IHMA that Diabetic

ulcers was included in payment by Medicare. Not UHMS.

Virginia

[Guest guest]

Jay you did nothing wrong. It's a Texas thang. We youngins down hera have a hard

time conveying what we need to say somtimes. I thought you did a purty dang good

job myself. Hang in there Im sure most folk's knew whatcha was trying to say.

Take no offense.

Darin from Texas

In a message dated 1/17/2005 6:13:07 PM Eastern Standard Time, " Jay A Rain, DMT,

CHT " <jay@...> writes:

>

>Virginia-

>

>If you had read the posting in a different light, you might had

>understood the " tongue and cheek " inflection that was intended and you

>may had understood that I was poking at the AMA and UHMS.  I understand

>full and well how the realities in reimbursement actually came about,

>but even today if you look at the CPT codes which are accepted you will

>find the following information.....and I quote directly from the

>Medicaid guideline for 2005

>

> "  blah blah blah......the FDA-approved indications for the hyperbaric

>oxygen chamber (therapy) in accordance with the guidelines established

>by the UNDERSEA AND HYPERBARIC MEDICAL SOCIETY are as follows: " blah

>blah blah

>

>Even though we might understand the truth (and believe me Virginia, I am

>on your side with the IHMA) it is still propagated that the UHMS is the

>end all.

>

>My point to was simply to illustrate that even though a

>condition may or may not be endorsed and " approved " it is often more a

>matter of finance and logistics rather than good medicine.  Especially

>if we use Hyperbarics as the example.

>

>I really didn't mean to infer UHMS superiority nor step on anyone's toes

>with my posting.  If I did, please forgive me and understand we dance a

>little differently here in Texas....undoubtedly my boots have stomped a

>toe or two here and there along the way.

>

>-Jay

>

>Jay A Rain, DMT, CHT

>Director

>South Coast Hyperbaric Medicine & Wound Care Center

>3 Professional Park Drive

>Webster, Texas 77598

>281.554.8848

> " He Heals most Successfully those in which he has the most confidence " -

>Galen

>

>

> Re: [ ] Regression

>

>

>Point of Clarification.  It was thru the efforts of IHMA that Diabetic  

>ulcers was included in payment by Medicare.  Not UHMS.

>Virginia

>

>

>

[Guest guest]

Dear : I remember very well how my husband and I agonized

over whether or not to pursue HBOT, particularly because there was

only a limited pot of money and I was concerned that if HBOT didn't

work, it would be less money to devote to other treatments. In our

case, I ended up feeling the money was well spent. We didn't have

the miracle results that some parents report but I believe that it

contributed significantly to his ability to benefit from other more

physical therapies such as PT, OT, Conductive Ed. As for your

husband's comments about HBOT not being " approved " as a CP

treatment - as far as I know, there is no " approved " treatment for

CP. Some kids don't respond to botox, some do. Some kids don't

respond to PT, some do. I don't know they are still posted on the

UCP website but there used to be links to studies that said that

intense PT ( the currently most accepted and reimbursed treatment)

didn't result in a statistically significant improvement in CP kids

either. Yet most of us still do PT - as far as I am concerned,

there is no more statistical and scientific evidence behind PT than

there is behind HBOT. Of course, when everyone you know is doing

traditional therapies like PT and you feel like you are swimming

against the stream by trying HBOT, all that doesn't bring you (or,

more specifically, your husband) any comfort, does it? Good luck in

your decision.

Lynn

> Thank you for your response. Part of my dilemma, besides

finances, is

> that my husband was on board with the treatments when we

personally met a

> family who had taken their daughter several times. Now all of a

sudden, he is

> questioning if it is worth going further in debt when it is not an

approved

> treatment for CP = therefore, is it really any help?? Also, when

there is no proof

> it will help. I argue exactly what you said = plus, I don't want

to regret

> it later on. (This family had mentioned that their daughter did

regress but

> leveled off at a better place.) I have read posts of others

talking about

> regression so I just wanted to clarify this concept in my own

mind. I definitely

> want to take our daughter but I hate to have to fight my husband

about it.

>

>

>

>

[Guest guest]

Darin, how do you know if the child needs a lower or higher pressure to see

results? I mean, in the case you refer to, you might think that maybe it just

wasn't a treatment that would help that particular child and that is why there

was no change seen? Sorry to ask all these qustions. I believe with all my

heart that we need to take our daughter for HBOT. I quess I just want to learn

all I can about HBOT from every angle and where better to learn?

[Guest guest]

hello...im new to this list...does anyone know of papers published on the

efficacy of HBOT for autistic children? im leaning towards trying it with my

3.10

y.o son ASD non-verbal for the last 18 mos...only has made small gains with

SLP....heard of this new (or not so new) treatment for autism...if anyone knows

of data or papers published showing efficacy id appreciate it greatly..i want

all supporting materials i can get my hands on..

ive located a Unit close to home, and am waiting on word on funding..i think

we have a good shot at getting at least 5-10 treatments to at least establish

that this will work for him.

thanks for any feedback

kathleen mom to spencer

[Guest guest]

wow...thank you im encouraged by the responses im getting from this one post!

thank you everyone for your concerns and informative input...i will find that

magazine and look for your article...

this is wonderful...i will look into more treatments than the initial 5 or

10...see my sons dev ped was against writing a scrip at first and only after my

constant urging...he wrote

" as needed " instead of the 5 i originally asked for *a dr on another list

advised i ask for " as needed " to be put on the scrip.

my nurse coordinator is looking into funding...ive medicaid but CMS also

(they cover what isnt covered by medicaid ) as long as its done here thru

Shands...and i know theres a Unit at Shands...now its just a matter of

navigating the

red tape. also i dont know if the Unit is one that will allow me to accompany

Spencer inside the unit itself..thats a big consideration as spencer will not

willingly go into something like that alone. and i dont want to traumatize

him...i DO want to get him the best treatment chances tho...

sorry to get off track here

this was just to be a simple thank you...

kathleen mom to spencer 3.10 ASD non-verbal no motor problems and no

seizures...knock wood

[Guest guest]

Valarie you asked one of the best questions I have seen online in sometime. How

do you no. That is the question. I tell you the best person I can tell you to

ask at this point in the game would be Dr. Harch from Louisianna. What he does

different from most Dr.s in the feild is he takes a paitent and does a spect

Scan before treatment and then a dive and then does another spect scan. This

will give you and idea of the potential recoverable tissue that is available. At

this point I think he is the only one that is doing this concept. Don't get me

wrong IM not knocking the way andy one does this. Im just saying if you don't

want to wait the typical 20 or 40 treatments to see a repeat scan this would be

the best way to see what benifit you can look for. I can tell you as long as I

have been around the feild I have seen so many get better and some not do so

good and them the pressure was lowered or increased and the paitent did well.

But never have I seen a child get better and then have regression that was not

placed back in oxyegen with a higher presure that didn't regain the results they

had regressed from. Now I personally have seen it where a child got better had

great results and they raised the pressure and the child regressed then the

pressure was lowered back to where the child was doing good and they started

progressing again. See it is all on a individual basis. That is why I say there

should be a Dr. on hand with many of these kids to oversee the pressures.

However untill this is main stream Medicine that is imposible. However the IHMA

is working very hard to get this Main Stream. If I were you and your husband I

would seek advise from the profesionals in this feild like Dr. Neubauer, Dr.

Harch, Ken Stoller, and many others. Before I started back into

hyperbarics considering the issues you have. I would definatley seek out the

Scan dive scan method. See what you are looking at then make a choice from

there. Hyperbarics can be very expensice I no I spent many thousands dollars

before investing into my own Sechrist Hyperbaric Chamber in my home. It saved me

so much. However I would recomend that to noone untill they have reached a

certain point in therapy that they see the benifit for long term use. Kaltyn had

had over 100 dives before we invested in a chamber. If we could have gotten

insurance coverage we would not have put a chamber in in fact we had coverage at

one poin the3 only reason we were denied was and I quote " Allthough Kaltyn has

seen benifits from this therapy (Hyperbaric Oxygen Therapy) according to the

organization that overseas this procedure feels that is is experimental and

investigational for the use of neurological conditons. Dr. Jeffery stone and

Director Tom Workman say's this treatment has been used for several years for

these off-labeled conditions however there is no evidence to suport it's

benifits. " So we were left with having to cover this treatment on our own. But

if you have insurance there are companies that are paying for this. Blue Cross

is one of them. There is allway's a chance at fileing to see if they will pay.

Darin

In a message dated 1/19/2005 8:57:48 PM Eastern Standard Time, avagaige@...

writes:

>

>Darin, how do you know if the child needs a lower or higher pressure to see

>results?  I mean, in the case you refer to, you might think that maybe it just

>wasn't a treatment that would help that particular child and that is why there

>was no change seen? Sorry to ask all these qustions.  I believe with all my

>heart that we need to take our daughter for HBOT.  I quess I just want to learn

>all I can about HBOT from every angle and where better to learn?

>

>

>

>

[Guest guest]

My children had the scan dive scan with Dr Harch in 1993, with improvements,

however we often will do the scan then wait until the treatment is over to

have the second scan. We give the patient the choice if the want a scan, or

if their insurance does not cover spect scans, the choice is the patients/

parents. Some patients are tired of tests, others do not agree with the

chemicals involved, still others want to use their resources towards

treatment.

I show them scans, including my own children's 14 scans, and if they need a

picture, then by all means, Dr Underwood writes an RX for one. However if

they fully understand how HBOT works, and can see improvements with diary,

photos and other improvements, some which would become apparent after HBOT

is over. Then of course this is the way it would be.

I to tried to bill our insurance, and was given the same notice.

I hired a lawyer to write a letter, still taking all the way to Washington,

never the less, it was denied. That however was in 1993, things have changed

for some people.

and CHT, DMT, EMT

Dr Underwood, DO, MD, JD

www.hbot4u.com

Re: [ ] Regression

Valarie you asked one of the best questions I have seen online in sometime.

How do you no. That is the question. I tell you the best person I can tell

you to ask at this point in the game would be Dr. Harch from Louisianna.

What he does different from most Dr.s in the feild is he takes a paitent and

does a spect Scan before treatment and then a dive and then does another

spect scan. This will give you and idea of the potential recoverable tissue

that is available. At this point I think he is the only one that is doing

this concept. Don't get me wrong IM not knocking the way andy one does this.

Im just saying if you don't want to wait the typical 20 or 40 treatments to

see a repeat scan this would be the best way to see what benifit you can

look for. I can tell you as long as I have been around the feild I have seen

so many get better and some not do so good and them the pressure was lowered

or increased and the paitent did well. But never have I seen a child get

better and then have regression that was not placed back in oxyegen with a

higher presure that didn't regain the results they had regressed from. Now I

personally have seen it where a child got better had great results and they

raised the pressure and the child regressed then the pressure was lowered

back to where the child was doing good and they started progressing again.

See it is all on a individual basis. That is why I say there should be a Dr.

on hand with many of these kids to oversee the pressures. However untill

this is main stream Medicine that is imposible. However the IHMA is working

very hard to get this Main Stream. If I were you and your husband I would

seek advise from the profesionals in this feild like Dr. Neubauer, Dr.

Harch, Ken Stoller, and many others. Before I started back

into hyperbarics considering the issues you have. I would definatley seek

out the Scan dive scan method. See what you are looking at then make a

choice from there. Hyperbarics can be very expensice I no I spent many

thousands dollars before investing into my own Sechrist Hyperbaric Chamber

in my home. It saved me so much. However I would recomend that to noone

untill they have reached a certain point in therapy that they see the

benifit for long term use. Kaltyn had had over 100 dives before we invested

in a chamber. If we could have gotten insurance coverage we would not have

put a chamber in in fact we had coverage at one poin the3 only reason we

were denied was and I quote " Allthough Kaltyn has seen benifits from this

therapy (Hyperbaric Oxygen Therapy) according to the organization that

overseas this procedure feels that is is experimental and investigational

for the use of neurological conditons. Dr. Jeffery stone and Director Tom

Workman say's this treatment has been used for several years for these

off-labeled conditions however there is no evidence to suport it's

benifits. " So we were left with having to cover this treatment on our own.

But if you have insurance there are companies that are paying for this. Blue

Cross is one of them. There is allway's a chance at fileing to see if they

will pay.

Darin

In a message dated 1/19/2005 8:57:48 PM Eastern Standard Time,

avagaige@... writes:

>

>Darin, how do you know if the child needs a lower or higher pressure to see

>results?  I mean, in the case you refer to, you might think that maybe it

just

>wasn't a treatment that would help that particular child and that is why

there

>was no change seen? Sorry to ask all these qustions.  I believe with all my

>heart that we need to take our daughter for HBOT.  I quess I just want to

learn

>all I can about HBOT from every angle and where better to learn?

>

>

>

>