Cure

[Guest guest]

YOU NEED TO GIVE THE ENBREL A CHANCE IT DOESNT WORK ALL THE TIME

'BUT OVERALL ITS BETTER THAN THE OTHERS

LOIS

[Guest guest]

You're right on it Jerri!

cure

I've recently caught up reading some of the several months past posts

and I remember one email was speaking of cures and her son not cured and

wanting others to write of cures (something like that, forgive me if I'm

way off here). I have never heard Dr G speak of being able to cure kids.

He has told me the meds he uses are a stop gap measure. The regressive

side of autism I have seen is the most devastating. You work hard with

aba to obtain a skill and they lose it. To me this alone is cause to

rejoice. I think the meds are stoping the virus' and fungus' from

spreading even more and doing more damage. I'm not sure we ever totally

get rid of them. Please correct me if I am way off base here. I know Dr

G is always talking about cooling the immune system down and not making

it work so hard. To me it's like overloading a washing machine, it's

starts to get off balance and make a lot of weird noise. I see now that

is what is happening with my children. When they get out of whack

something has overloaded them and I start to remove things that might be

overloading the immune system. My son has not only stopped regressing he

is moving forward. Sometimes we fall back but only temporarily and soon

we're back on track. I don't know if my son will ever be cured or

recovered. I know a lot of it depends on me and how well I do the diet

and follow the instructions and look for things that might be

overloading the immune system. When it cools down my children improve.

My hope is one day the immune system gets repaired. I know the immune

modulators will be the biggest help if we ever get them, but in the

meantime I've got to do all I can do along with Dr G to get them better.

My older son is at least now mainstreamed with an aide, he is making

friends with a little help. He is communicating better everyday. Whether

he becomes indistinguishable or not I will never know but I know he is

constantly getting better. I know I have been frustrated with Dr G

sometimes when we take backwards steps but often times I can see it is

me that didn't do something I should be doing, usually food, which can

take weeks to work out of their systems. I hope we don't shoot one of

the only messengers out there because we are not seeing a " cure " and not

seeing that the lack of progress could be from something we are doing.

From everything I have read Dr G seems the safest and makes the most

sense to me. I know it's going to be a long haul. I know these meds are

not a cure they are just helping my son come out and develop in areas he

missed and THANK GOD not regressing. I am so thankful to have the stress

off of me being the Dr. which is what I was trying to do before Dr. G.

Well, I guess I better stop preaching and call this my thanksgiving

letter. Jerri

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opinion of the Research Institute.

[Guest guest]

Aound the time that I was diagnosed with RA, I read an article in the

doctor's column in the Sunday " Parade " magazine anout a man in his 70s

who discovered he had leukemia. He was certain it was the end of the

road, despite the fact that his doctor told him that there were some

exciting research breakthroughs happening with the type of leukemia the

man had. Ultimately, the man was able to take advantage of new meds and

was completely cured. I wish I had saved that article, because it

surprised and heartened me so much.

Sierra