Another question...anyone have myoclonus?

[Guest guest]

I was just given another diagnosis of myoclonus, in addition to my

RA. It didn't start though until after my back surgery in December of

2005. However, it is horrible and I don't know what brought it on or

if the surgery just triggered it.

Anyone else have this diagnosis or know anything about it?

Thanks,

Miriam

[Guest guest]

I had not heard of it before so I looked

it up. It seems to be a description of symptoms rather than a specific

disease. It includes such benign things as hiccups to much more serious

problems. I hope you have a mild set of problems. God bless.

http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm

From:

Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ]

On Behalf Of mpalevsky_bunnylover

Sent: Sunday, March 05, 2006 2:27

PM

To:

Rheumatoid Arthritis

Subject:

Another question...anyone have myoclonus?

I was just given another

diagnosis of myoclonus, in addition to my

RA. It didn't start though until after my

back surgery in December of

2005. However, it is horrible and I don't

know what brought it on or

if the surgery just triggered it.

Anyone else have this diagnosis or know anything

about it?

Thanks,

Miriam

[Guest guest]

> I had not heard of it before so I looked it up. It seems to be a

> description of symptoms rather than a specific disease. It

includes such

> benign things as hiccups to much more serious problems. I hope

you have a

> mild set of problems. God bless.

>

> http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm

> & s=105 & .sig=T-rYJoP3ZHV__JG53sunOA> network

Thanks Harold,

It started after my back surgery, I have never had it before. It

started with slight tremors of my arms and legs, and cuased jerking

motions whenever I was laying down. It has now been almost 3 months

since my surgery and it has gotten worse. I get it when I am awake

and sitting, I can feel the muscles jerking, but the worst is when I

lay down.

It usually starts with my hands jerking around and then my upper

arms and shoulders. By this time, my legs have started to jump

around and so has my torso. The last 2 weeks, the jerking and

tremoring at night has been quite violent. I am practically

throwing myself off the bed and twisting, and it really hurts. My

husband said that last night was a really bad night. If I try to

write, my hand jerks and writes a scribble on the paper, if I try to

hold anything, my hands and arms tremor and I end up throwing

things. It is really frustrating and scary.

Thanks for looking it up for me,

Miriam

[Guest guest]

Your problem might

be somewhat similar to Restless Leg Syndrome (RLS) and here’s a link

about that that seems to be pretty recent. God bless.

http://www.mayoclinic.com/health/restless-legs-syndrome/DS00191

From: Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On

Behalf Of mpalevsky_bunnylover

Sent: Sunday, March 05, 2006 5:58

PM

To:

Rheumatoid Arthritis

Subject:

Re: Another question...anyone have myoclonus?

Thanks Harold,

It started after my back surgery, I have never had

it before. It

started with slight tremors of my arms and legs,

and cuased jerking

motions whenever I was laying down. It has

now been almost 3 months

since my surgery and it has gotten worse. I

get it when I am awake

and sitting, I can feel the muscles jerking, but

the worst is when I

lay down.

It usually starts with my hands jerking around and

then my upper

arms and shoulders. By this time, my legs

have started to jump

around and so has my torso. The last 2

weeks, the jerking and

tremoring at night has been quite violent. I

am practically

throwing myself off the bed and twisting, and it

really hurts. My

husband said that last night was a really bad

night. If I try to

write, my hand jerks and writes a scribble on the

paper, if I try to

hold anything, my hands and arms tremor and I end

up throwing

things. It is really frustrating and scary.

Thanks for looking it up for me,

Miriam

[Guest guest]

I have a friend with a very severe form of myoclonus. Baclofen works well in milder cases.

On Mon, 06 Mar 2006 01:57:54 -0000 "mpalevsky_bunnylover" <mpalevsky@...> writes:

> I had not heard of it before so I looked it up. It seems to be a> description of symptoms rather than a specific disease. It includes such> benign things as hiccups to much more serious problems. I hope you have a> mild set of problems. God bless.> > http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm > & s=105 & .sig=T-rYJoP3ZHV__JG53sunOA> network Thanks Harold,It started after my back surgery, I have never had it before. It started with slight tremors of my arms and legs, and cuased jerking motions whenever I was laying down. It has now been almost 3 months since my surgery and it has gotten worse. I get it when I am awake and sitting, I can feel the muscles jerking, but the worst is when I lay down.It usually starts with my hands jerking around and then my upper arms and shoulders. By this time, my legs have started to jump around and so has my torso. The last 2 weeks, the jerking and tremoring at night has been quite violent. I am practically throwing myself off the bed and twisting, and it really hurts. My husband said that last night was a really bad night. If I try to write, my hand jerks and writes a scribble on the paper, if I try to hold anything, my hands and arms tremor and I end up throwing things. It is really frustrating and scary.Thanks for looking it up for me,Miriam

"Have no fear for what tomorrow may bring. The same loving God who cares for you today will take care of you tomorrow and every day. God will either shield you from suffering or give you unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations."-St Francis DeSales

[Guest guest]

>

> I have a friend with a very severe form of myoclonus. Baclofen works

well

> in milder cases.

>

>

Hi ,

What makes your friends very severe? What kind of symptoms does

he/she have? Mine seems more severe than what I am reading on the web

pages about myoclonus, so I am just confused and worried. Does it

ever go away once it starts?

Thanks so much,

Miriam

[Guest guest]

My friend has such severe twitching and spasms that at times he cannot eat, or walk. It rarely lets up. He is constantly exhausted from the twitching. He has been seen by leading neurologists in the nation and had an intrathecal baclofen pump put in, which offered some relief.

On Mon, 06 Mar 2006 17:37:05 -0000 "mpalevsky_bunnylover" <mpalevsky@...> writes:

>> I have a friend with a very severe form of myoclonus. Baclofen works well> in milder cases.> > Hi ,What makes your friends very severe? What kind of symptoms does he/she have? Mine seems more severe than what I am reading on the web pages about myoclonus, so I am just confused and worried. Does it ever go away once it starts?Thanks so much,Miriam

"Have no fear for what tomorrow may bring. The same loving God who cares for you today will take care of you tomorrow and every day. God will either shield you from suffering or give you unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations."-St Francis DeSales

[Guest guest]

I posted awhile back and I guess I should have used the term " jerks " .

I read about it from Harold's post and it really hit sounds just like

what is happening to me.

I have epilepsy also, and I go to see my neurologist on the 9th. I'm

going to talk to him about it. I'll let you know more then.

Teah

>

> I was just given another diagnosis of myoclonus, in addition to my

> RA. It didn't start though until after my back surgery in December

of

> 2005. However, it is horrible and I don't know what brought it on

or

> if the surgery just triggered it.

>

> Anyone else have this diagnosis or know anything about it?

>

> Thanks,

> Miriam

>