Cod Liver Concerns Re: Go thru likely needed protocols without testing ... good?

[Guest guest]

Then I wonder how they feel about the high dose Vitamin A treatments? I hear

for some they work very well. I guess there are always opposing sides when it

comes to supplementation.

When we used CLO, back in the day, it was amazing for language and clearing up

excessive ear wax. I use it only occasionally now.

According to the 'cons', the problem with my NN CLO is the A:D ratio. Not

enough D.

Thanks you for digging this up for me.

Pam

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> > > > > I would work on increasing biotin slowly to 10 mg....

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> > > > > I would wait on the antibiotics and anti-fungals until you test with

an

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> > > > > Organic Acid Test from Great Plains....will tell if these are

needed....I

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> > > > > would start with Nystatin and use Sacchromyces Boullardi for the

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> > > > > bacteria....

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> > > > > Cysteine is great for someone with an impaired sulphur system....my 7

yr old

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> > > > > has very low cysteine so he takes it....The tests for this is an amino

acid

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> > > > > urine test (also from GPL)....

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> > > > > I would wait on B12 shots....I wanted to do them and my dr wanted to

wait

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> > > > > and within 6 mo of using Nystatin, the shots were unnecessary. ...

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> > > > > If your son is doing well on D3...I would stick with it, but if you

find it

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> > > > > is making him sick, I would start at 1K and work your way up to

5......(I

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> > > > > got very toxic from D3 and it took a year before I could take it

again)

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> > > > > ANN

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> > > > > _____

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> > > > > From: [mailto: @

groups. com]

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> > > > > On Behalf Of mcdmcd888

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> > > > > Sent: Monday, February 08, 2010 11:15 PM

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> > > > > Subject: [ ] Go thru likely needed protocols without

testing

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> > > > > ... good?

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> > > > > Saw a DAN! doc for the first time for DS, age 13, recently.

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> > > > > DS is mainly mild Aspie-ish, OCD was obvious when age 7-9, has had gut

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> > > > > issues for most of life since stopped breastfeeding, enzymes have been

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> > > > > extremely helpful. I have provided his history before, so won't repeat

here

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> > > > > unless you want it.

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> > > > > The DAN! has advised this as a starting point with NO TESTS having

been

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> > > > > performed:

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> > > > > 1. continue Enzymatic's DigestGold, continue Calcium & Magnesium,

continue

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> > > > > Biotin 1000 mcg/day

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> > > > > 2. Add DIFLUCAN and FLAGYL (gave us a script for them)

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> > > > > 3. Add Kirkman Pro BioGold probiotic 1 cap/day (we were taking

Enzymatic's

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> > > > > brand of Pro Bio ... so ??)

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> > > > > 4. Omega-3 with DHA + EPA adding to 1000mg/day apx. (he was taking 1

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> > > > > Coromega a day, so I can up it to 2/day)

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> > > > > 5. Add N-acetyl-cysteine. Start at 500mg 2x/day and work to 1000 mg.

2x/day

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> > > > > (I'm worried about this supplement .... what is it needed for?

Shouldn't we

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> > > > > test first to see if this is required? I'm finally getting some good

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> > > > > behavior from him with controlling yeast and using neurofeedback ...

won't

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> > > > > this potentially throw a monkey wrench into the equation?? If so, what

test

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> > > > > should we take and who can do the test to see if this is really

needed??)

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> > > > > 6. Add Methyl B12. He wanted to do shots of 25mg/ML per day, but I

knew that

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> > > > > ds's father would never comply. So, DAN! backed off to oral methyl B12

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> > > > > (Kirkman) 2500 mcg/day

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> > > > > 7. Continue Vitamin D3 but reduce from 5K iu's/day to 1K iu/day (I

disagree

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> > > > > based on recent reports from the Vitamin D Council. I will have his 25

OH(D)

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> > > > > level tested, but the Vitamin D Council suggests that ASD patients

need to

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> > > > > have their activated Vit D3 levels higher than normal to function).

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> > > > > Please reply with your opinion on any of these. In particular, I am

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> > > > > concerned about item#5 and possibly item#6. I already have item#2

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> > > > > (prescriptions) in hand and am wondering if I can administer them now

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> > > > > without #3, #5 and #6 or not. I am thinking that I would need #3 to

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> > > > > accompany, but that the others can be entered into the equation later

IF

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> > > > > they are deemed " needed " based on testing results.

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> > > > > I really do not want him to go backwards in behavior. We had a really

good

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> > > > > January with yeast under control and neurofeedback.

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> > > > > Also, I had 2 RhoGam shots (one when he was a fetus and one

immediately

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> > > > > post-birth) plus a flu shot when he was a fetus. However, the DAN!

says that

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> > > > > the removal of mercury is the last resort action and they kind of go

thru a

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> > > > > bunch of other protocols first. With my kid being a " gut " kid (gut

issues of

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> > > > > constipation) , I just wonder why he doesn't test for these things

(heavy

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> > > > > metal, etc.)? Is it because the tests are not always conclusive? Is it

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> > > > > because it's cheaper to just go ahead and try the complete list of

protocols

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> > > > > in a certain order?

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> > > > > Again, I really just want to target the " right " problem and not go

backwards

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> > > > > in behavior. Your advice is much appreciated if you've already been

thru

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> > > > > this route for a gut kid who was mild Aspie-ish. Or, if you just have

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> > > > > experience with this otherwise.

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> > > > > Thanks,

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> > > > > M

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