new member question

[Guest guest]

Hi Jan,

I did respond, hope you got my email. Please continue to keep contact with this group. They truly are the most loving and supportive group of folks on our green planet. You (and your sister) are not alone...we are ALL here to help as best we can.

God bless,

[Guest guest]

Thanks for writing. I forwarded your email to my sister this morning and talked to her today by phone and encouraged her to try and get on the site or write if she felt like it. We are supposed to go to Shand's June 4 and would love to find out some more info on it, what to expect (this is first visit) and if there is anyplace for families to stay, or best motels, etc. I doubt this will be a 1 time visit. It's a 3 hour trip from my house in MS to hers in FL, then 350 miles from her house to Gainesville, so we'll be doing some traveling. Thanks for any info you can provide.

Jan (mizjan@...)

[Guest guest]

Hi ,

You definately came to the right place for info and advice. Im also new to the group and although I have no answers for you, Im sure someone here will. Good luck and welcome...

~*~Renonda~*~

[Guest guest]

Hi Dawn

If you are looking for an Immune Booster, then try

Aloe Vera Gel. The agent in Aloe Vera Gel which is

capable of modulating the immune system is the long

chain sugar known as Ace-Mannan.

Regards

McKelvey U.K.

For Top Quality Aloe Vera Gel, Check Out The Market

Forum On The Curezone Site.

--- Dawn Coombs <cannotbe@...> wrote:

---------------------------------

Does anyone have any experience with Total Immune

Booster with

probiotic Allimax? I just wondered if I should try it.

Thanks, Dawn

[Guest guest]

Jim wrote:

>

> Can Candida invade your liver?

>

> Has this happened to anyone?

Hi Jim,

It's good to hear from you. If you are new, welcome to our group.

I don't know about candida actually being " in " your liver, but

candida excretes toxins throughout your whole body, and since the

liver filters everything it can be very overburdened by toxins. My

girlfriend's boy, at 10 years old, was hospitalized for liver

problems and extensive testing couldn't locate any problems or

source. He was discharged without any recommended treatment. She

then found out about candida. So he went on the candida program and

his liver normalized.

Can you tell me any more details of what is happening that makes you

feel candida has invaded your liver?

The best to you,

Bee

[Guest guest]

Hi Jim,

As Bee has said, it can certainly affect your liver without invading

it. I have experienced this. Back in mid to late summer, my liver

hurt about 50% of the time.

I seem to have gotten over it now though. I haven't had a sore liver

in a couple months. I hope you recover too.

Zack

> >

> > Can Candida invade your liver?

> >

> > Has this happened to anyone?

>

> Hi Jim,

>

> It's good to hear from you. If you are new, welcome to our group.

>

> I don't know about candida actually being " in " your liver, but

> candida excretes toxins throughout your whole body, and since the

> liver filters everything it can be very overburdened by toxins.

[Guest guest]

I don't know what test level Henry told me meant but he did say 36

was in the normal range, what does it mean? thank you for help also

I don't plan on drinking any more!

>

> Good levels of what? If you are speaking of a liver panel coming

in within

> normal range, that means nothing at all with HCV. In fact, as the

liver

> approaches cirrhosis and beyond the liver panel numbers tend to

drop.

> There's already so much damage that there's not much left to

destroy, so the

> indications of active damage fall off.

>

> Even if the liver isn't in bad shape the liver panel results can

vary wildly

> in HCV. If you have HCV you need a PCR, to get the level of virus

in the

> blood stream, and you need ultrasound, CAT scan, and biopsy to see

the level

> of actual damage in the liver. No other tests can show this.

>

> And if you continue to drink, don't even bother worrying about

HCV. You're

> killing yourself with the alcohol.

>

> Sally

>

>

>

>

>

>

>

>

>

[Guest guest]

36 would be normal for either the AST or ALT, and

that's not very diagnostic in itself. If that is all

the doctor tries to go on, he's missing the train. I

had HepC for 24 years and had my liver enzymes tested

occasionally during that time, and my AST/ALT were

always normal. When I finally had a CAT scan and CBC

done, they diagnosed me with end-stage cirrhosis and

in need of a liver transplant.

There is a portion of the HepC population who, for

some reason, always have normal liver enzymes. I've

read some research that indicated that these people

may be harder to treat.

You need to look at other tests, like a PCR, CT scan,

the complete blood count, and the clotting time to

have a good overall look at what's happening. By the

time they got to doing that with me, I had the largest

portal vein the radiologist had ever seen, my spleen

was huge, and I had varices all the way up to my heart

- they looked like lovely round balloons on the CAT

scan. My albumin is low because my liver does not

process protein very well, my platelets and white

blood cells are low because my spleen destroys them,

and my blood clotting time is long because my liver is

not producing much clotting factor.

In my opinion, you should ALWAYS get a copy of your

tests: you can sign a request and fill it out so you

get copies of all future tests done there. ALso, your

other doctor can request those files be faxed to him

so he gets the information directly from the VA. You

really can't decide what to do next without further

information.

Good luck, we'll be waiting to hear what happens!

Michele

--- sweetcheekshogman <robertwpuckett@...>

wrote:

> I was diagnosis in 2001 with HCV, I got news today

> that the blood draw

> that was taken during the summer of 2005 during a

> heavy drinking bout

> was within the normal range of the standard that the

> Veteran's

> Hospital. (my second opinion) They would not give me

> the full results

> like CBC,(complete blood count)ALT,SGLT ect... over

> the phone and to

> get them I would have to fill out release forms

> (that takes time). I

> thought if I went to my doctor with ammo I could get

> the help if

> needed, and was worried. My question is how can a

> test prove

> conclusive? Levels are good then what's next step?

>

>

>

>

>

__________________________________________________

[Guest guest]

thank-you for alittle tolerance. I'm not sure what the 36 means. But

your interpetation could be right, on the 20th I see an MD and will

ask about my test. At that time I'm sure that he will inform me of

what do next, and I'll let you know. I want the group to understand

that I'm new to this and am having a hard time expressing what I

experience. I let my dignosis go because I was scared. I have

powered myself through education of reading on line about HCV, but

need help. As soon as I get the knowlegde from my MD I'll be back.

See you all soon.

>

> > I was diagnosis in 2001 with HCV, I got news today

> > that the blood draw

> > that was taken during the summer of 2005 during a

> > heavy drinking bout

> > was within the normal range of the standard that the

> > Veteran's

> > Hospital. (my second opinion) They would not give me

> > the full results

> > like CBC,(complete blood count)ALT,SGLT ect... over

> > the phone and to

> > get them I would have to fill out release forms

> > (that takes time). I

> > thought if I went to my doctor with ammo I could get

> > the help if

> > needed, and was worried. My question is how can a

> > test prove

> > conclusive? Levels are good then what's next step?

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Don't stress, we're tolerant because we've gone

through it. When I got diagnosed I would go to a

bookstore to get a book about HepC and end up leaving

the store in tears, without having bought a book. It

took me 6 months to stop panicking and be OK with

learning about it. So don't apologize for being

scared. Remember, this is a SLOW virus and is not

likely to do anything suddenly to you, so you have

time to learn about it, do tests, think and discuss

what you want to do. . .

What kind of doctor are you seeing? A general

physician, a gastroenterologist (specialist in

digestive diseases) or a hepatologist (specialist in

livers)? You may want to find out how many HepC

patients he's treated. You probably want to see

someone who has a lot of experience and dosn't need to

practice on you! Just keep that in mind when you talk

to your doctor, you have every right to expect to be

seen by a doctor with lots of experience in your area

of disease. Remember, you're not there to please your

doctor, you're there to get the best treatment you

can.

I'm just saying that because many of us knew more

about the disease than our doctors did. This was in

1997 when I was diagnosed. I'm sure doctors know more

about it these days, at least they darn well should. .

..

Keep in touch with us, we want to know how you're

doing. And we wish you the best!

Michele

> thank-you for alittle tolerance. I'm not sure what

> the 36 means. But

> your interpetation could be right, on the 20th I see

> an MD and will

> ask about my test. At that time I'm sure that he

> will inform me of

> what do next, and I'll let you know. I want the

> group to understand

> that I'm new to this and am having a hard time

> expressing what I

> experience. I let my dignosis go because I was

> scared. I have

> powered myself through education of reading on line

> about HCV, but

> need help. As soon as I get the knowlegde from my MD

> I'll be back.

> See you all soon.

__________________________________________________

[Guest guest]

Mike, it would have been said too late for me, I'm

already as mind-twisted as I can get. You too, I bet,

huh?

Michele

--- mike <hope_chem_survive@...> wrote:

> Michele,

>

> You angel. I'd have said mind twist someone else.

>

>

> Mike

__________________________________________________

[Guest guest]

Tell my sister, she always seems surprised when people

like me, hah!

Congrats on the new girlfriend, now just don't assume

she's desperate just because she wants to go out,

Sally and I would in a shot if were close. Don't tell

anyone, though. . . .

Michele

--- mike <hope_chem_survive@...> wrote:

> Michele,

>

> You really are an angel. I have a new girl friend.

> She knows I'm on

> chemo for hep c and not working and not on SSDI.

> She still want's to

> go out!!! I love desperate chicks they are the only

> game in town for

> me anymore. No really she seems nice and it does

> get me out of the

> house.

>

> I post on the hep c singles board sometimes this one

> is getting

> pretty dead.

>

> Mike

__________________________________________________

[Guest guest]

Especially don't tell Mike. Michele, your sister is just jealous.

I've been researching NASH, cirrhosis, insulin resistance and related topics

today. Seems all tied up in a nice neat package, and I've got one.

I survived the endo-colonoscopy of Monday. I tell you, by 2 am Monday I

wasn't at all sure! That Fleet Phospho-soda is NASTY stuff! Mix it with soda

for the taste, Ha!! Mix it with soda for the bubbles. It completely covers

the taste of anything.

Oh, and the violent end action! Lets just say it wasn't socially acceptable.

And because of my apnea they couldn't really knock me out for the

colonoscopy, but they wouldn't put my CPAP on me, so I had to be semi-aware

of all the painful activities down there. I recall moaning VERY loudly and

long several times. I'm sure it was in reaction to the air pressure being

introduced.

Good news is he says he found nothing of interest. How rude!! He could have

at least told me that my colon was " pretty " or something. But the heartburn

and other cramping after are still with me. I've been instructed to double

up my Nexium until next week when I see him for the follow up.

Oh! And my Riba will be at the pharmacy Monday late afternoon, so I can just

start killing myself with all that next week, too. All in all January has

been... well... what its been. So glad to find that the medically equivalent

to Copegasus is in tablet form. I don't handle capsules well.

My daughter was in the hospital over the weekend and this week. She's home

now, and I hope she's doing ok. She's back to not answering her phone. At

least they got her diabetes under control while she was in there. She's

disabled with a severe emotional disorder and I worry about her. It was nice

chatting with her while she was in the hospital. It was nice that she cried

for her Mommy when she was in pain before the surgery. I felt good about

that.

Oh no! Just heard the news that Pickett died. That's tragic. My song,

Mustang Sally, was his rendition.

Well, enough blabbering. I'm nervous again about starting on the juice again

next week. We'll see how it goes. Doctor has already told me that if this

time doesn't work we get me " listed " .

Sally

Re: new member question

Tell my sister, she always seems surprised when people

like me, hah!

Congrats on the new girlfriend, now just don't assume

she's desperate just because she wants to go out,

Sally and I would in a shot if were close. Don't tell

anyone, though. . . .

Michele

--- mike <hope_chem_survive@...> wrote:

> Michele,

>

> You really are an angel. I have a new girl friend.

> She knows I'm on

> chemo for hep c and not working and not on SSDI.

> She still want's to

> go out!!! I love desperate chicks they are the only

> game in town for

> me anymore. No really she seems nice and it does

> get me out of the

> house.

>

> I post on the hep c singles board sometimes this one

> is getting

> pretty dead.

>

> Mike

__________________________________________________

[Guest guest]

Hi Greg,

We need a little more information to answer your

question...when you say thyroid med, do you mean

thyroid replacement like synthroid or

anti-thyroid drugs like tapazole? Also, are you

worried that your TSH is too low or too high?

Nissa

>What are the symptoms of being too high on thyroid med? Also how

>important is TSH, I have gotten several opinions ranging from not

>important to it's the gold standard.

>

>Thanks you

>

>

[Guest guest]

>

> Sorry, I am taking armour and right now taking 3.5 grains. I was up

to 4 but was losing weight, sweaty, felt anxious and irritable etc.

My TSH was .01.

I came down to 3.5 for 3 weeks then dropped to 3 for 8 days but was

afraid I went down too fast so I went back to 3.5 and it's been 2

weeks now.

Some people say TSH is not important and some say it is. I am still

feeling warm and sweat more that I think I should, irritable, tense.

Weight lose has stopped.

I was taking 2.5 grains for about 13 years then had some problems and

the doc started playing with my dose and the poop hit the fan. I

started doing it my self and got back very close to my old self but

not quite.

Is TSH a good marker or not. Every Endo will say yes, but I have no

faith in them.

Thanks

Greg

Hi Greg,

>

>

We need a little more information to answer your

> question...when you say thyroid med, do you mean

> thyroid replacement like synthroid or

> anti-thyroid drugs like tapazole? Also, are you

> worried that your TSH is too low or too high?

>

> Nissa

>

> >What are the symptoms of being too high on thyroid med? Also how

> >important is TSH, I have gotten several opinions ranging from not

> >important to it's the gold standard.

> >

> >Thanks you

> >

> >

>

>

>

[Guest guest]

If I have a problem I say a prayer and ask out loud for help before going too sleep, the answer usually comes to me just before waking. Check the adrenal pathways and hormones as they are linked to breathing and lung problems. Hormones are in the Sports programmes. Once again oregano is great for fungus. Best of luck Sue

[Guest guest]

You can work at the large intestine in Short Sarcode/Irido/BodyViewer,

as it is the organ paired with lungs in Chinese Medicine. Good luck!

Dimitri

[Guest guest]

Hello everyone. I am a teacher of a 5 year old who has been exposed to lead for

several years in his home, and has recently moved. He has been diagnosed with

possible high functioning Aspbergers. Recently he has become very violent, using

violence almost as his immediate means of getting something or dealing with

another child. He utters death threats several times a day, mostly to me. He is

this way with his parents as well. This behaviour seems to be escalating, and is

triggered very easily. I know this is a mercury based group, but is anyone else

on this group having the same difficulties with lead? Also he is a vegetarian,

and I don't know if this has anything to do with his behaviour.

Thank you,

*****

[Guest guest]

> Hello everyone. I am a teacher of a 5 year old who has been exposed to lead

for several years in his home, and has recently moved. He has been diagnosed

with possible high functioning Aspbergers. Recently he has become very violent,

using violence almost as his immediate means of getting something or dealing

with another child.

> >He utters death threats several times a day, mostly to me.

This is pretty typical picture of lead problems.

He needs to be chelated PROPERLY, as do the parents. DMSA every 4 hours day and

night for several days in a row, skip for a while, repeat, do this for at least

3 years.

> > Also he is a vegetarian, and I don't know if this has anything to do with

his behaviour.

It probably improves his behavior.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

[Guest guest]

Thanks Pam and J. I am here " scoping out " the group so to speak so I can

recommend it to his parents. I wanted to be sure the group would also help with

lead. He is a very cute little guy when not angry, and I really want to help

him.

*****

[Guest guest]

Vitamin B 12 deficiency can compound the problem in vegans (not necessarily

" vegetarians " , especially those that use some animal products).

On Sun, Feb 14, 2010 at 3:20 PM, andrewhallcutler <AndyCutler@...>wrote:

>

>

> > Hello everyone. I am a teacher of a 5 year old who has been exposed to

> lead for several years in his home, and has recently moved. He has been

> diagnosed with possible high functioning Aspbergers. Recently he has become

> very violent, using violence almost as his immediate means of getting

> something or dealing with another child.

> > >He utters death threats several times a day, mostly to me.

>

> This is pretty typical picture of lead problems.

>

> He needs to be chelated PROPERLY, as do the parents. DMSA every 4 hours day

> and night for several days in a row, skip for a while, repeat, do this for

> at least 3 years.

>

> > > Also he is a vegetarian, and I don't know if this has anything to do

> with his behaviour.

>

> It probably improves his behavior.

>

> Andy

>

> http://www.noamalgam.com/index.html

> Amalgam Illness: Diagnosis and Treatment

>

> http://www.noamalgam.com/hairtestbook.html

> Hair Test Interpretation: Finding Hidden Toxicities

>

> http://www.noamalgam.com/nourishinghope.html

> Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

>

> http://www.noamalgam.com/biologicaltreatments.html

> Biological Treatments for Autism and PDD

>

>

>

--

God's blessings in Christ,

Your Partner in Health,

N. Rydland, M.D.

Founder and developer of kidsWellness, Inc.

Natural products and information for healthier families

www.kidswellness.com

www.rydlandjuice.com

Main office:

1921 Commonwealth Drive

Charlottesville, VA 22901

434-984-KIDS (5437)

Fax: 434-984-5439

Other offices:

140 N.E. 119 St

North Miami, FL

2316 Hollywood Blvd

Hollywood, Fl 33020

12595 S.W. 137 Ave, Suite 108

Miami Fl 33186

135 San Lorenzo Ave., Suite 640

Coral Gables, FL 33146

[Guest guest]

Hi,

I see that Andy already answered the important question on how to heal the kid.

That is the absolute way to go.

I can answer the vegetarian part. My whole family (including my daughter with

Autism) and several of my friends' families are vegetarian. Vegetarianism has

nothing to do with behavioral problems. The real culprits are toxic heavy metals

and Psych drugs.

HTH,

Ragha

>

> Hello everyone. I am a teacher of a 5 year old who has been exposed to lead

for several years in his home, and has recently moved. He has been diagnosed

with possible high functioning Aspbergers. Recently he has become very violent,

using violence almost as his immediate means of getting something or dealing

with another child. He utters death threats several times a day, mostly to me.

He is this way with his parents as well. This behaviour seems to be escalating,

and is triggered very easily. I know this is a mercury based group, but is

anyone else on this group having the same difficulties with lead? Also he is a

vegetarian, and I don't know if this has anything to do with his behaviour.

>

> Thank you,

>

> *****

>

>

>

[Guest guest]

I agree. B12 deficiency is very common in Vegans (who don't consume even milk,

yogurt, cheese, eggs etc).

Ragha

>

> >

> >

> > > Hello everyone. I am a teacher of a 5 year old who has been exposed to

> > lead for several years in his home, and has recently moved. He has been

> > diagnosed with possible high functioning Aspbergers. Recently he has become

> > very violent, using violence almost as his immediate means of getting

> > something or dealing with another child.

> > > >He utters death threats several times a day, mostly to me.

> >

> > This is pretty typical picture of lead problems.

> >

> > He needs to be chelated PROPERLY, as do the parents. DMSA every 4 hours day

> > and night for several days in a row, skip for a while, repeat, do this for

> > at least 3 years.

> >

> > > > Also he is a vegetarian, and I don't know if this has anything to do

> > with his behaviour.

> >

> > It probably improves his behavior.

> >

> > Andy

> >

> > http://www.noamalgam.com/index.html

> > Amalgam Illness: Diagnosis and Treatment

> >

> > http://www.noamalgam.com/hairtestbook.html

> > Hair Test Interpretation: Finding Hidden Toxicities

> >

> > http://www.noamalgam.com/nourishinghope.html

> > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

> >

> > http://www.noamalgam.com/biologicaltreatments.html

> > Biological Treatments for Autism and PDD

> >

> >

> >

>

>

>

> --

> God's blessings in Christ,

> Your Partner in Health,

> N. Rydland, M.D.

> Founder and developer of kidsWellness, Inc.

> Natural products and information for healthier families

> www.kidswellness.com

> www.rydlandjuice.com

>

> Main office:

> 1921 Commonwealth Drive

> Charlottesville, VA 22901

> 434-984-KIDS (5437)

> Fax: 434-984-5439

>

> Other offices:

> 140 N.E. 119 St

> North Miami, FL

>

> 2316 Hollywood Blvd

> Hollywood, Fl 33020

>

> 12595 S.W. 137 Ave, Suite 108

> Miami Fl 33186

>

> 135 San Lorenzo Ave., Suite 640

> Coral Gables, FL 33146

>

>

>

[Guest guest]

I have a lead laden kid. Not aggressive at all, though. More so the cognitive

side of it. He seems to get better and better as we chelate the lead with DMSA.

Mercury a problem, too, but lead is what we see coming out first.

Pam

>

> Thanks Pam and J. I am here " scoping out " the group so to speak so I can

recommend it to his parents. I wanted to be sure the group would also help with

lead. He is a very cute little guy when not angry, and I really want to help

him.

>

>

> *****

>

>

>

[Guest guest]

Hi J-welcome!What type of digestional issues, if that is not to personal to ask? I'm not a doctor but I don't think c-toma affects digestion directly. Howecer, I do know and it is well documented that the veritgo and dizziness can cause nausea. The headaches if they are migraine may cause nausea as well. The nausea can inturn mess up the signals to your other digestion as my doctor said "fight or flight" and so it can almost be like irratable bowel. Because your nauseated you may throw-up; or you may not actually throw-up but your body thinks it needs to rid itself of everything - you get the idea. Also, if you are on meds for the sinus infection or for the dizziness; depending on the types they can mess up digestion. For instance when I took phengren for nausea I would sometimes get "backed-up". So, indirectly it may very well be the cause. But this is only my experience. Is this kind of what you are asking? I hope this helps, but I would ask your doc and/or read the side effects of any meds you maybe taking.Good Luck!Sent on the Sprint® Now Network from my BlackBerry®From: "jmrogers31" <j_1207@...>Sender: cholesteatoma Date: Fri, 01 Jul 2011 14:06:32 -0000<cholesteatoma >Reply cholesteatoma Subject: New Member Question Hi Everyone,I am new to the group and have had 6 or 7 Chlosteatoma surgeries from ages 8 to 25. I am 30 now and haven't had any problems for five years. I got a sinus infection in January and ever since I have been dizzy and lightheaded with headaches and feel like I am having some digestional issues. My question is, can Chlosteatoma cause issues in your stomach or digestive track as well? It just seems that my dizzyness, headaches, and being lightheaded seem to be tied to my digestive issues. Thanks.