Italy

[Guest guest]

> I have some info somewhere, I'll look around.

> Where are you from originally?

Dear Sheri,

thanks for the comilva stuff. the belgian " international vaccination

newsletter " has an interesting site.

i'm originally german, but living in italy - as you know one of the last

countries where vaccinations are obligatory by (self-contradictory) law.

i'm not a health fanatic or an integralist about natural remedies, it's just

that some of the vaccination logic doesn't add up to me, and i'm doing my

best to tackle what seems like a fairly important decision.

ciao for now

philip

[Guest guest]

Hi Antonella,

Can they order a DDI hair elements test? Do you know what toxic metal exposures

she has had. Might make more sense to get a mercury toxic diagnosis (if that's

the case) than a autism dx or proceed as if until they find out otherwise...

S S

Hi,

My cousins live in Italy and have a 7year little girl. All these years the

doctors have not diagnosed why she is not speaking. They have told them that it

might be a genetic disease from a long lost family member. Chiara has all the

symptons of Autism, but the Doctors have convinced them that she is not

autistic. I want them to come to Los Angeles to have her tested and start

getting proper care. I guess what I am asking is if anyone has any advise for us

on how to get her proper help.

Thanks,

Antonella

[Guest guest]

Hi Antonella,

The (Doctor's Data, Inc.) DDI hair elements test can be ordered through Direct

Labs Services (DLS) without a doctor. They send the test kit to many different

countries, I just don't happen to know if Italy is among them. Maybe you could

call DLS and ask or you could have the test kit sent to you and have them send

you the hair sample to send in. If they go that route they would then need to

apply the counting rules or have someone help do so. Many of the tests doctors

run to supposedly check for metal toxicity are useless (blood, for example,

shows only current exposure), others are dangerous (DMSA challenge). Many

doctors don't understand the gluten-free, casein-free diet or reasons for it.

They may want to run a trial,, but that could be challenging in Italy. I'm GF

and my husband and I are vegan. A couple years ago we considered visiting Italy

for vacation and decided diet would be too difficult without a kitchen.

S S

Re: Italy

Posted by: " Antonella Bravata " abravata75@... abravata75

Sun Aug 29, 2010 7:42 pm (PDT)

Hi ,

I actually asked them that question today, if they know what her mercury level

is. They have not had any testing of that sort. I can suggest that to them

tonight when I email them. Would they just ask the Dr to do the hair test to

check her level of mercury? If the Dr in Italy cant do that, can I have them

send me a sample and have it tested here? I also had them ask their Dr. if it

would be wise to alter her diet to be a gluten and dairy free. Do you think

that is something they should ask about as well?

[Guest guest]

Jumping in here:

Going gluten/casein free would be a wonderful step for them. I would not even

have them ask their doctor (doctors don't think it does anything at all), but

instead tell them that, typically, 50% of parents who take gluten/casein out of

the kids' diets see improvements in behaviors/function. The majority of the

rest see nothing at all, but some of that could be because the diet is hard to

follow 100% (both due to parent mistake and circumstances outside of their

control). A 4-6 month try would work. If they aren't going to make an honest

effort, then they should not try it at all.

you can send them here: www.talkaboutcuringautism.org if they speak English at

all. One of the researchers who helped with the recent study that concluded the

GFCF diet DOESN'T work was a person from the University of Bari, Italy; so I

assume docs in Italy all follow what he said!

Second, the DDI hair test is about so much more than the mercury. Autism is

about so much more than the mercury. You would have to call the Doctor's Data

company to see if you can get a hair test to Italy. Are your relatives even

interested? Do they do anything right now with diet, supplements, 'alternative'

medicine?

Whether or not to have a diagnosis of Autism is questionable. How would it

benefit them? The diagnosis, at least here, does not help with biomedical

treatment. The only thing it did for us was provide a resource for therapy

funding. I don't know what resources they have in Italy nor do I know how they

restrict access.

For language: fish oil (1+ grams/day), methylB12/TMG/folinic acid/B6 and Olive

leaf extract were all wonderful. That was for my son.

It is hard to recommend much when you know little. I suppose I'll keep my

opinions to myself for a bit. You are a good cousin for trying.

What was their reaction to your request to bring her to Los Angeles?

Pam

>

> From: Shepard Salzer <_Shepard@...>

> Subject: [ ] Italy

> autism treatment

> Date: Sunday, August 29, 2010, 7:32 PM

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> Hi Antonella,

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> Can they order a DDI hair elements test? Do you know what toxic metal

exposures she has had. Might make more sense to get a mercury toxic diagnosis

(if that's the case) than a autism dx or proceed as if until they find out

otherwise...

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> S S

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> Hi,

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> My cousins live in Italy and have a 7year little girl. All these years the

doctors have not diagnosed why she is not speaking. They have told them that it

might be a genetic disease from a long lost family member. Chiara has all the

symptons of Autism, but the Doctors have convinced them that she is not

autistic. I want them to come to Los Angeles to have her tested and start

getting proper care. I guess what I am asking is if anyone has any advise for us

on how to get her proper help.

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> Thanks,

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> Antonella

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