Re: I'm a new member,forgive me my long introduction!

[Guest guest]

I noticed in your mail that the seizures seemed to start after he started taking

100mg of ALA per day.

ALA is actually a chelator and for a toxic person that is a large dose, plus

only once a day will cause re-distribution of the mercury in his brain. 49kg =

108lbs by my calculations, so max dose of ALA would be around 50mg. IF he has no

amalgam fillings....

    I would suggest you:

1. Read about the AC protocol of chelation in the files section here on the

group.

2. Start your boy on the supporting supplements, especially the antioxidants

like C and E.

3. Get a yeast protocol in place, like Grapefruit Seed Extract and Biotin.

4. Start on a low dose of ALA, 1/8 mg per pound of body weight. For your boy

12.5mg.

5. Give the ALA every three hours, day and night, for at least three days.

6. Take at least the same amount off of the ALA. Many do three days on and four

off = 1 week.

7. Try this for 10 weeks and look for subtle improvements.

TJ

________________________________

From: " nevin.penny@... " <Nevin.Penny@...>

Sent: Fri, September 17, 2010 2:44:15 AM

Subject: [ ] I'm a new member,forgive me my long introduction!

 

Hello list members,

I've just joined to your group but I feel I should have joined here before.I

would like to give a short summary about the struggle with my son's health.I

would appreciate if you could make a few suggestions.

My son will be 17 next month.He was diagnosed with autism and developmental

delay at the age of 3, he had some spontaneous language in both English and

Turkish (I am Turkish).My suspicious about his autism started when he had the

first Diphtheria, Polio, Tetanus vaccinations which were given at the age of

2months, 3 months and 4months. Because after that I had a concern about his head

size,getting bigger, it was OK when he was born! Then he had MMR when he was 18

months, refused to hold hands,you know the picture,similar regression possibly

which everybody witnessed.

When he was five he had the second MMR,after a month of this ,his expressive

language was in a mess, confusing all the words calling me daddy, cat..lion..so

on.We started Gluten free/casein free diet at the same time.Before the diet, he

had limited eating habit but he had nicely developed bone structure,looked

healthy after the diet he gradually getting slimmer despite he was eating

everything !.Then he developed sensitivities to certain food..His expressive

language ,spontaneous language needed to be worked on hard to build again in

intensive ABA sessions,he became passive and quieter despite the early

childhood.

When he was 9 he had a gastrointestinal infection and hospitalised,severe

diarrhoea,weight lose,temperature.He had the blasto hominis parasites.Following

the second year in abroad, this episode repeated, he was once again in the

hospital,for the same problem.The third year nothing happened,because it was in

his system!His health ,his weight gain was poorer and poorer..Today ,I am still

trying to find a total celarance of this parasitic infection on his system..

We had several biomedical interventions.Mainly focused on his gut problems.Once

we had the challenge test with DMSA as my Dr insisted,It didn't show anything.It

really surprised me because I had some amalgams when I was pregnant,he had all

early childhood vaccines..I was sure that he was toxic, he was presenting

neurological problems.So, the test didn't convince my Dr to offer a treatment

and I was so timid to start with chelation.We tried some herbal stuff.

One condition started at the same time when the gastro problems started, that

was anxiety, hyperventilation which turned out very chronic medical condition

when the yeras went by.They called it behavioural, he had MRI but didn't show

anything.He had a few EEG after my suspicion about his staring attitude but EEG

didn't show anything!

Last year my Dr gave him some supplements to increase his weight gain, reduce

hyperventilation and anxiety.In May 2009 Dr recommended chlorella 8 tablets, to

support liver function and Gilbert Syndrome...ALA100mg a day,Pea Protein powder

(one scoop ) day which has high glutamic acid(2000) together with some other

supplements which addresses his gut problems.He has been on this ones since May

to November in 2009 then he had the first full blown seizure and taken to the

Emergency section.Since then he had nearly monthly seizures and went to the

Emergency Section.I stopped all the supplements which I mentioned them above and

replaced with B6, taurine,MG, several others,recently added carnosine (I believe

absent seizures have disappeared since we added this one) He has been put on

Sodium Valproate after the third one which was bad enough to persuaded me to

start with the medication.The good thing is he is still on the same low dose

(10mlX2) a day and seizures have stopped at the end of May 2010.He had several

tests, include testosterone ,none of them showed any particular reason for his

seizures.He had sleep EEG, didn't show anyting and they didn't call him

epileptic but epilepsy like seizures! that's the phrase they used..He is 176 cm

height but hardly reached 49kg.

They are suspicious about his chronic hyperventilation..which may triggered the

seizures..He had MRI in the past, didn't show anything..Once again, I've become

suspicious about the toxicity perhaps he was having,perhaps tests didn't show

anything.In the past he had porphryrin test but showed very little

mercury..blood tests showed the same,DMSA showed nothing.!.

He grew slim,presenting neurological problems, he has more receptive language

and comprehension rather than expressive language.He has dislexia,

dispraxia,fine motor problems (having said that he can play piano in chords! but

can't use zips or buttons!).He can also write ,type and read..He has lots of

self stimuli behaviours,concentration problems.I am very dissapointed to see him

having a medical problems like the parasites in his gut despite treatments,

hyperventilation, concerns about his bone development. depite of huge effort of

keeping biomedical intervention since he was five!.

Do you think that chelation may be too harsh for a child presenting very fragile

state of health,poor immune problems can he take the difficult route of

chelation?Do I have to do some tests prior for the chelation but as I said, they

didn't show anything in the past.

I am in a big dilemma..All those years, our intervention with biomedical is not

successful,either my son's problems are really complicated which is true, he is

a hard case but also lack of understanding and knowledge which doctors are

having for treating medically sick children with autism.

I am very sorry for this long mail but having a picture of my search for

questions and answers I needed to write this.English is my second language,that

one also made the task harder for me.

Once again, forgive me for my long mail.

All the best

Nevin from London

[Guest guest]

ALA is a not good chelator agent used alone. The effective time for 100mg is

less than 4 hours. Your son must need to take 100mg to control mercury every 4

hours. Otherwise, the disturbed mercury increased brain pressure inside his

skull, which led to seizure eventually.

DMSA is a chelator stronger than ALA.

My son has a health weight of 50 lbs. He can take 100mg of DMSA (three times a

day) for 6 days.

>

> Hello list members,

> I've just joined to your group but I feel I should have joined here before.I

would like to give a short summary about the struggle with my son's health.I

would appreciate if you could make a few suggestions.

> My son will be 17 next month.He was diagnosed with autism and developmental

delay at the age of 3, he had some spontaneous language in both English and

Turkish (I am Turkish).My suspicious about his autism started when he had the

first Diphtheria, Polio, Tetanus vaccinations which were given at the age of

2months, 3 months and 4months. Because after that I had a concern about his head

size,getting bigger, it was OK when he was born! Then he had MMR when he was 18

months, refused to hold hands,you know the picture,similar regression possibly

which everybody witnessed.

>

> When he was five he had the second MMR,after a month of this ,his expressive

language was in a mess, confusing all the words calling me daddy, cat..lion..so

on.We started Gluten free/casein free diet at the same time.Before the diet, he

had limited eating habit but he had nicely developed bone structure,looked

healthy after the diet he gradually getting slimmer despite he was eating

everything !.Then he developed sensitivities to certain food..His expressive

language ,spontaneous language needed to be worked on hard to build again in

intensive ABA sessions,he became passive and quieter despite the early

childhood.

> When he was 9 he had a gastrointestinal infection and hospitalised,severe

diarrhoea,weight lose,temperature.He had the blasto hominis parasites.Following

the second year in abroad, this episode repeated, he was once again in the

hospital,for the same problem.The third year nothing happened,because it was in

his system!His health ,his weight gain was poorer and poorer..Today ,I am still

trying to find a total celarance of this parasitic infection on his system..

>

> We had several biomedical interventions.Mainly focused on his gut

problems.Once we had the challenge test with DMSA as my Dr insisted,It didn't

show anything.It really surprised me because I had some amalgams when I was

pregnant,he had all early childhood vaccines..I was sure that he was toxic, he

was presenting neurological problems.So, the test didn't convince my Dr to offer

a treatment and I was so timid to start with chelation.We tried some herbal

stuff.

> One condition started at the same time when the gastro problems started, that

was anxiety, hyperventilation which turned out very chronic medical condition

when the yeras went by.They called it behavioural, he had MRI but didn't show

anything.He had a few EEG after my suspicion about his staring attitude but EEG

didn't show anything!

> Last year my Dr gave him some supplements to increase his weight gain, reduce

hyperventilation and anxiety.In May 2009 Dr recommended chlorella 8 tablets, to

support liver function and Gilbert Syndrome...ALA100mg a day,Pea Protein powder

(one scoop ) day which has high glutamic acid(2000) together with some other

supplements which addresses his gut problems.He has been on this ones since May

to November in 2009 then he had the first full blown seizure and taken to the

Emergency section.Since then he had nearly monthly seizures and went to the

Emergency Section.I stopped all the supplements which I mentioned them above and

replaced with B6, taurine,MG, several others,recently added carnosine (I

believe absent seizures have disappeared since we added this one) He has been

put on Sodium Valproate after the third one which was bad enough to persuaded me

to start with the medication.The good thing is he is still on the same low dose

(10mlX2) a day and seizures have stopped at the end of May 2010.He had several

tests, include testosterone ,none of them showed any particular reason for his

seizures.He had sleep EEG, didn't show anyting and they didn't call him

epileptic but epilepsy like seizures! that's the phrase they used..He is 176 cm

height but hardly reached 49kg.

> They are suspicious about his chronic hyperventilation..which may triggered

the seizures..He had MRI in the past, didn't show anything..Once again, I've

become suspicious about the toxicity perhaps he was having,perhaps tests didn't

show anything.In the past he had porphryrin test but showed very little

mercury..blood tests showed the same,DMSA showed nothing.!.

> He grew slim,presenting neurological problems, he has more receptive language

and comprehension rather than expressive language.He has dislexia,

dispraxia,fine motor problems (having said that he can play piano in chords! but

can't use zips or buttons!).He can also write ,type and read..He has lots of

self stimuli behaviours,concentration problems.I am very dissapointed to see him

having a medical problems like the parasites in his gut despite treatments,

hyperventilation, concerns about his bone development. depite of huge effort of

keeping biomedical intervention since he was five!.

> Do you think that chelation may be too harsh for a child presenting very

fragile state of health,poor immune problems can he take the difficult route of

chelation?Do I have to do some tests prior for the chelation but as I said, they

didn't show anything in the past.

> I am in a big dilemma..All those years, our intervention with biomedical is

not successful,either my son's problems are really complicated which is true, he

is a hard case but also lack of understanding and knowledge which doctors are

having for treating medically sick children with autism.

> I am very sorry for this long mail but having a picture of my search for

questions and answers I needed to write this.English is my second language,that

one also made the task harder for me.

> Once again, forgive me for my long mail.

> All the best

> Nevin from London

>

[Guest guest]

Nevin:

Andy doesn't recommend that high of a dosage for anyone, no matter what age

they are. In your son 's case if he is in poor health, the more reason to

start slow, low and safe. I would think, no more then 12mg or so.

I should also share with everyone, that Mickie has now had a total of 31

rounds all together-10 rounds in 2002, 10 scattered between 2003 till 3

months ago and 11 rounds in a row until now, every weekend and he is much

calmer, more patient and he has stopped peeling the skin around his nails(I

just realized this in the morning). I only wish I had continued without

breaks before. Some improvements kind of hit you by surprise, just like

regression interesting enough.

I wonder if I should count all 31 rounds or just 11, since 21 were so long

ago?

Thanks,

-Zurama

Mickie 12yrs

Round #31

25mg DMSA 25mg ALA

[Guest guest]

Hi Nevin,

Welcome to the list. Does he have any mercury amalgam dental fillings himself?

I would stop the ALA immediately. The dose is too high and too frequent for

someone who may have mercury toxicity.

Can you order a DDI (Doctor's Data, Inc.) hair elements test through DLS (Direct

Lab Services) and apply counting rules and/or post results here? They offer a

discount if you mention this list.

Plant-based digestive enzymes may help. Many here use Houston Enzymes.

I'm a new member,forgive me my long introduction!

Posted by: " nevin.penny@... " Nevin.Penny@...

nevin.penny@...

Fri Sep 17, 2010 2:44 am (PDT)

Hello list members,

I've just joined to your group but I feel I should have joined here before.I

would like to give a short summary about the struggle with my son's health.I

would appreciate if you could make a few suggestions.

My son will be 17 next month.He was diagnosed with autism and developmental

delay at the age of 3, he had some spontaneous language in both English and

Turkish (I am Turkish).My suspicious about his autism started when he had the

first Diphtheria, Polio, Tetanus vaccinations which were given at the age of

2months, 3 months and 4months. Because after that I had a concern about his head

size,getting bigger, it was OK when he was born! Then he had MMR when he was 18

months, refused to hold hands,you know the picture,similar regression possibly

which everybody witnessed.

When he was five he had the second MMR,after a month of this ,his expressive

language was in a mess, confusing all the words calling me daddy, cat..lion..so

on.We started Gluten free/casein free diet at the same time.Before the diet, he

had limited eating habit but he had nicely developed bone structure,looked

healthy after the diet he gradually getting slimmer despite he was eating

everything !.Then he developed sensitivities to certain food..His expressive

language ,spontaneous language needed to be worked on hard to build again in

intensive ABA sessions,he became passive and quieter despite the early

childhood.

When he was 9 he had a gastrointestinal infection and hospitalised,severe

diarrhoea,weight lose,temperature.He had the blasto hominis parasites.Following

the second year in abroad, this episode repeated, he was once again in the

hospital,for the same problem.The third year nothing happened,because it was in

his system!His health ,his weight gain was poorer and poorer..Today ,I am still

trying to find a total celarance of this parasitic infection on his system..

We had several biomedical interventions.Mainly focused on his gut problems.Once

we had the challenge test with DMSA as my Dr insisted,It didn't show anything.It

really surprised me because I had some amalgams when I was pregnant,he had all

early childhood vaccines..I was sure that he was toxic, he was presenting

neurological problems.So, the test didn't convince my Dr to offer a treatment

and I was so timid to start with chelation.We tried some herbal stuff.

One condition started at the same time when the gastro problems started, that

was anxiety, hyperventilation which turned out very chronic medical condition

when the yeras went by.They called it behavioural, he had MRI but didn't show

anything.He had a few EEG after my suspicion about his staring attitude but EEG

didn't show anything!

Last year my Dr gave him some supplements to increase his weight gain, reduce

hyperventilation and anxiety.In May 2009 Dr recommended chlorella 8 tablets, to

support liver function and Gilbert Syndrome...ALA100mg a day,Pea Protein powder

(one scoop ) day which has high glutamic acid(2000) together with some other

supplements which addresses his gut problems.He has been on this ones since May

to November in 2009 then he had the first full blown seizure and taken to the

Emergency section.Since then he had nearly monthly seizures and went to the

Emergency Section.I stopped all the supplements which I mentioned them above and

replaced with B6, taurine,MG, several others,recently added carnosine (I believe

absent seizures have disappeared since we added this one) He has been put on

Sodium Valproate after the third one which was bad enough to persuaded me to

start with the medication.The good thing is he is still on the same low dose

(10mlX2) a day and seizures have stopped at the end of May 2010.He had several

tests, include testosterone ,none of them showed any particular reason for his

seizures.He had sleep EEG, didn't show anyting and they didn't call him

epileptic but epilepsy like seizures! that's the phrase they used..He is 176 cm

height but hardly reached 49kg.

They are suspicious about his chronic hyperventilation..which may triggered the

seizures..He had MRI in the past, didn't show anything..Once again, I've become

suspicious about the toxicity perhaps he was having,perhaps tests didn't show

anything.In the past he had porphryrin test but showed very little

mercury..blood tests showed the same,DMSA showed nothing.!.

He grew slim,presenting neurological problems, he has more receptive language

and comprehension rather than expressive language.He has dislexia,

dispraxia,fine motor problems (having said that he can play piano in chords! but

can't use zips or buttons!).He can also write ,type and read..He has lots of

self stimuli behaviours,concentration problems.I am very dissapointed to see him

having a medical problems like the parasites in his gut despite treatments,

hyperventilation, concerns about his bone development. depite of huge effort of

keeping biomedical intervention since he was five!.

Do you think that chelation may be too harsh for a child presenting very fragile

state of health,poor immune problems can he take the difficult route of

chelation?Do I have to do some tests prior for the chelation but as I said, they

didn't show anything in the past.

I am in a big dilemma..All those years, our intervention with biomedical is not

successful,either my son's problems are really complicated which is true, he is

a hard case but also lack of understanding and knowledge which doctors are

having for treating medically sick children with autism.

I am very sorry for this long mail but having a picture of my search for

questions and answers I needed to write this.English is my second language,that

one also made the task harder for me.

Once again, forgive me for my long mail.

All the best

Nevin from London

[Guest guest]

Comments interspersed.

S S

Re: I'm a new member,forgive me my long introduction!

Posted by: " Pang " richardpang56@... richardpang56

Fri Sep 17, 2010 3:25 pm (PDT)

ALA is a not good chelator agent used alone.

*ALA chelates mercury from body and brain and chelates arsenic and can be used

alone or in combination with DMSA.

The effective time for 100mg is less than 4 hours.

*The effective dosing schedule for DMSA is every 4 hours day and night for 3

days on and at least as many off.

Your son must need to take 100mg

*If your son weighs 200-800 lbs.

to control mercury every 4 hours. Otherwise, the disturbed mercury increased

brain pressure inside his skull, which led to seizure eventually.

DMSA is a chelator stronger than ALA.

*DMSA chelates mercury from body but not brain and chelates lead.

My son has a health weight of 50 lbs. He can take 100mg of DMSA (three times a

day) for 6 days.

*Expect significant problems in the future on this dose and dosing schedule.

[Guest guest]

Please stop giving advice that is false and dangerous. ALA is a good chelator by

itself. You have the option of using DMSA or DMPS with it. 100mg is a

dangerously high dose for a child. You really should stop posting information

since this board is not moderated and someone could really hurt their kid. You

take chelators on their half life not random schedules like 3x daily.

> >

> > Hello list members,

> > I've just joined to your group but I feel I should have joined here

before.I would like to give a short summary about the struggle with my son's

health.I would appreciate if you could make a few suggestions.

> > My son will be 17 next month.He was diagnosed with autism and developmental

delay at the age of 3, he had some spontaneous language in both English and

Turkish (I am Turkish).My suspicious about his autism started when he had the

first Diphtheria, Polio, Tetanus vaccinations which were given at the age of

2months, 3 months and 4months. Because after that I had a concern about his head

size,getting bigger, it was OK when he was born! Then he had MMR when he was 18

months, refused to hold hands,you know the picture,similar regression possibly

which everybody witnessed.

> >

> > When he was five he had the second MMR,after a month of this ,his expressive

language was in a mess, confusing all the words calling me daddy, cat..lion..so

on.We started Gluten free/casein free diet at the same time.Before the diet, he

had limited eating habit but he had nicely developed bone structure,looked

healthy after the diet he gradually getting slimmer despite he was eating

everything !.Then he developed sensitivities to certain food..His expressive

language ,spontaneous language needed to be worked on hard to build again in

intensive ABA sessions,he became passive and quieter despite the early

childhood.

> > When he was 9 he had a gastrointestinal infection and hospitalised,severe

diarrhoea,weight lose,temperature.He had the blasto hominis parasites.Following

the second year in abroad, this episode repeated, he was once again in the

hospital,for the same problem.The third year nothing happened,because it was in

his system!His health ,his weight gain was poorer and poorer..Today ,I am still

trying to find a total celarance of this parasitic infection on his system..

> >

> > We had several biomedical interventions.Mainly focused on his gut

problems.Once we had the challenge test with DMSA as my Dr insisted,It didn't

show anything.It really surprised me because I had some amalgams when I was

pregnant,he had all early childhood vaccines..I was sure that he was toxic, he

was presenting neurological problems.So, the test didn't convince my Dr to offer

a treatment and I was so timid to start with chelation.We tried some herbal

stuff.

> > One condition started at the same time when the gastro problems started,

that was anxiety, hyperventilation which turned out very chronic medical

condition when the yeras went by.They called it behavioural, he had MRI but

didn't show anything.He had a few EEG after my suspicion about his staring

attitude but EEG didn't show anything!

> > Last year my Dr gave him some supplements to increase his weight gain,

reduce hyperventilation and anxiety.In May 2009 Dr recommended chlorella 8

tablets, to support liver function and Gilbert Syndrome...ALA100mg a day,Pea

Protein powder (one scoop ) day which has high glutamic acid(2000) together with

some other supplements which addresses his gut problems.He has been on this ones

since May to November in 2009 then he had the first full blown seizure and

taken to the Emergency section.Since then he had nearly monthly seizures and

went to the Emergency Section.I stopped all the supplements which I mentioned

them above and replaced with B6, taurine,MG, several others,recently added

carnosine (I believe absent seizures have disappeared since we added this one)

He has been put on Sodium Valproate after the third one which was bad enough to

persuaded me to start with the medication.The good thing is he is still on the

same low dose (10mlX2) a day and seizures have stopped at the end of May 2010.He

had several tests, include testosterone ,none of them showed any particular

reason for his seizures.He had sleep EEG, didn't show anyting and they didn't

call him epileptic but epilepsy like seizures! that's the phrase they used..He

is 176 cm height but hardly reached 49kg.

> > They are suspicious about his chronic hyperventilation..which may triggered

the seizures..He had MRI in the past, didn't show anything..Once again, I've

become suspicious about the toxicity perhaps he was having,perhaps tests didn't

show anything.In the past he had porphryrin test but showed very little

mercury..blood tests showed the same,DMSA showed nothing.!.

> > He grew slim,presenting neurological problems, he has more receptive

language and comprehension rather than expressive language.He has dislexia,

dispraxia,fine motor problems (having said that he can play piano in chords! but

can't use zips or buttons!).He can also write ,type and read..He has lots of

self stimuli behaviours,concentration problems.I am very dissapointed to see him

having a medical problems like the parasites in his gut despite treatments,

hyperventilation, concerns about his bone development. depite of huge effort of

keeping biomedical intervention since he was five!.

> > Do you think that chelation may be too harsh for a child presenting very

fragile state of health,poor immune problems can he take the difficult route of

chelation?Do I have to do some tests prior for the chelation but as I said, they

didn't show anything in the past.

> > I am in a big dilemma..All those years, our intervention with biomedical is

not successful,either my son's problems are really complicated which is true, he

is a hard case but also lack of understanding and knowledge which doctors are

having for treating medically sick children with autism.

> > I am very sorry for this long mail but having a picture of my search for

questions and answers I needed to write this.English is my second language,that

one also made the task harder for me.

> > Once again, forgive me for my long mail.

> > All the best

> > Nevin from London

> >

>

[Guest guest]

Look likes the official FDA approved mercury detox protocol needs to go your

way. Need to feed DMSA every 4 hours instead of 8 hours. Sorry, it just does

not work that way. You have read too much about the half life. You need to

think about the relationship between the effective time and dosage. I hope this

is too much for you. I have learnt the hard way with the low dosage protocol.

> > >

> > > Hello list members,

> > > I've just joined to your group but I feel I should have joined here

before.I would like to give a short summary about the struggle with my son's

health.I would appreciate if you could make a few suggestions.

> > > My son will be 17 next month.He was diagnosed with autism and

developmental delay at the age of 3, he had some spontaneous language in both

English and Turkish (I am Turkish).My suspicious about his autism started when

he had the first Diphtheria, Polio, Tetanus vaccinations which were given at the

age of 2months, 3 months and 4months. Because after that I had a concern about

his head size,getting bigger, it was OK when he was born! Then he had MMR when

he was 18 months, refused to hold hands,you know the picture,similar regression

possibly which everybody witnessed.

> > >

> > > When he was five he had the second MMR,after a month of this ,his

expressive language was in a mess, confusing all the words calling me daddy,

cat..lion..so on.We started Gluten free/casein free diet at the same time.Before

the diet, he had limited eating habit but he had nicely developed bone

structure,looked healthy after the diet he gradually getting slimmer despite he

was eating everything !.Then he developed sensitivities to certain food..His

expressive language ,spontaneous language needed to be worked on hard to build

again in intensive ABA sessions,he became passive and quieter despite the early

childhood.

> > > When he was 9 he had a gastrointestinal infection and hospitalised,severe

diarrhoea,weight lose,temperature.He had the blasto hominis parasites.Following

the second year in abroad, this episode repeated, he was once again in the

hospital,for the same problem.The third year nothing happened,because it was in

his system!His health ,his weight gain was poorer and poorer..Today ,I am still

trying to find a total celarance of this parasitic infection on his system..

> > >

> > > We had several biomedical interventions.Mainly focused on his gut

problems.Once we had the challenge test with DMSA as my Dr insisted,It didn't

show anything.It really surprised me because I had some amalgams when I was

pregnant,he had all early childhood vaccines..I was sure that he was toxic, he

was presenting neurological problems.So, the test didn't convince my Dr to offer

a treatment and I was so timid to start with chelation.We tried some herbal

stuff.

> > > One condition started at the same time when the gastro problems started,

that was anxiety, hyperventilation which turned out very chronic medical

condition when the yeras went by.They called it behavioural, he had MRI but

didn't show anything.He had a few EEG after my suspicion about his staring

attitude but EEG didn't show anything!

> > > Last year my Dr gave him some supplements to increase his weight gain,

reduce hyperventilation and anxiety.In May 2009 Dr recommended chlorella 8

tablets, to support liver function and Gilbert Syndrome...ALA100mg a day,Pea

Protein powder (one scoop ) day which has high glutamic acid(2000) together with

some other supplements which addresses his gut problems.He has been on this ones

since May to November in 2009 then he had the first full blown seizure and

taken to the Emergency section.Since then he had nearly monthly seizures and

went to the Emergency Section.I stopped all the supplements which I mentioned

them above and replaced with B6, taurine,MG, several others,recently added

carnosine (I believe absent seizures have disappeared since we added this one)

He has been put on Sodium Valproate after the third one which was bad enough to

persuaded me to start with the medication.The good thing is he is still on the

same low dose (10mlX2) a day and seizures have stopped at the end of May 2010.He

had several tests, include testosterone ,none of them showed any particular

reason for his seizures.He had sleep EEG, didn't show anyting and they didn't

call him epileptic but epilepsy like seizures! that's the phrase they used..He

is 176 cm height but hardly reached 49kg.

> > > They are suspicious about his chronic hyperventilation..which may

triggered the seizures..He had MRI in the past, didn't show anything..Once

again, I've become suspicious about the toxicity perhaps he was having,perhaps

tests didn't show anything.In the past he had porphryrin test but showed very

little mercury..blood tests showed the same,DMSA showed nothing.!.

> > > He grew slim,presenting neurological problems, he has more receptive

language and comprehension rather than expressive language.He has dislexia,

dispraxia,fine motor problems (having said that he can play piano in chords! but

can't use zips or buttons!).He can also write ,type and read..He has lots of

self stimuli behaviours,concentration problems.I am very dissapointed to see him

having a medical problems like the parasites in his gut despite treatments,

hyperventilation, concerns about his bone development. depite of huge effort of

keeping biomedical intervention since he was five!.

> > > Do you think that chelation may be too harsh for a child presenting very

fragile state of health,poor immune problems can he take the difficult route of

chelation?Do I have to do some tests prior for the chelation but as I said, they

didn't show anything in the past.

> > > I am in a big dilemma..All those years, our intervention with biomedical

is not successful,either my son's problems are really complicated which is true,

he is a hard case but also lack of understanding and knowledge which doctors are

having for treating medically sick children with autism.

> > > I am very sorry for this long mail but having a picture of my search for

questions and answers I needed to write this.English is my second language,that

one also made the task harder for me.

> > > Once again, forgive me for my long mail.

> > > All the best

> > > Nevin from London

> > >

> >

>

[Guest guest]

Hi Nevin

I second this...........resolve gut issues partly with diet and anti fungals and

get hair test.........then decide if you want to use dmsa,dmps,ala or a

combination.

Starting with low dose may not show positive results for upto 3 months sometimes

but is definitely the safest way.

Regards

Laila

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: I'm a new member,forgive me my long introduction!

autism treatment

Received: Friday, September 17, 2010, 8:26 PM

 

Hi Nevin,

Welcome to the list. Does he have any mercury amalgam dental fillings himself?

I would stop the ALA immediately. The dose is too high and too frequent for

someone who may have mercury toxicity.

Can you order a DDI (Doctor's Data, Inc.) hair elements test through DLS (Direct

Lab Services) and apply counting rules and/or post results here? They offer a

discount if you mention this list.

Plant-based digestive enzymes may help. Many here use Houston Enzymes.

I'm a new member,forgive me my long introduction!

Posted by: " nevin.penny@... " Nevin.Penny@...

nevin.penny@...

Fri Sep 17, 2010 2:44 am (PDT)

Hello list members,

I've just joined to your group but I feel I should have joined here before.I

would like to give a short summary about the struggle with my son's health.I

would appreciate if you could make a few suggestions.

My son will be 17 next month.He was diagnosed with autism and developmental

delay at the age of 3, he had some spontaneous language in both English and

Turkish (I am Turkish).My suspicious about his autism started when he had the

first Diphtheria, Polio, Tetanus vaccinations which were given at the age of

2months, 3 months and 4months. Because after that I had a concern about his head

size,getting bigger, it was OK when he was born! Then he had MMR when he was 18

months, refused to hold hands,you know the picture,similar regression possibly

which everybody witnessed.

When he was five he had the second MMR,after a month of this ,his expressive

language was in a mess, confusing all the words calling me daddy, cat..lion..so

on.We started Gluten free/casein free diet at the same time.Before the diet, he

had limited eating habit but he had nicely developed bone structure,looked

healthy after the diet he gradually getting slimmer despite he was eating

everything !.Then he developed sensitivities to certain food..His expressive

language ,spontaneous language needed to be worked on hard to build again in

intensive ABA sessions,he became passive and quieter despite the early

childhood.

When he was 9 he had a gastrointestinal infection and hospitalised,severe

diarrhoea,weight lose,temperature.He had the blasto hominis parasites.Following

the second year in abroad, this episode repeated, he was once again in the

hospital,for the same problem.The third year nothing happened,because it was in

his system!His health ,his weight gain was poorer and poorer..Today ,I am still

trying to find a total celarance of this parasitic infection on his system..

We had several biomedical interventions.Mainly focused on his gut problems.Once

we had the challenge test with DMSA as my Dr insisted,It didn't show anything.It

really surprised me because I had some amalgams when I was pregnant,he had all

early childhood vaccines..I was sure that he was toxic, he was presenting

neurological problems.So, the test didn't convince my Dr to offer a treatment

and I was so timid to start with chelation.We tried some herbal stuff.

One condition started at the same time when the gastro problems started, that

was anxiety, hyperventilation which turned out very chronic medical condition

when the yeras went by.They called it behavioural, he had MRI but didn't show

anything.He had a few EEG after my suspicion about his staring attitude but EEG

didn't show anything!

Last year my Dr gave him some supplements to increase his weight gain, reduce

hyperventilation and anxiety.In May 2009 Dr recommended chlorella 8 tablets, to

support liver function and Gilbert Syndrome...ALA100mg a day,Pea Protein powder

(one scoop ) day which has high glutamic acid(2000) together with some other

supplements which addresses his gut problems.He has been on this ones since May

to November in 2009 then he had the first full blown seizure and taken to the

Emergency section.Since then he had nearly monthly seizures and went to the

Emergency Section.I stopped all the supplements which I mentioned them above and

replaced with B6, taurine,MG, several others,recently added carnosine (I believe

absent seizures have disappeared since we added this one) He has been put on

Sodium Valproate after the third one which was bad enough to persuaded me to

start with the medication.The good thing is he is still on the same low dose

(10mlX2) a day and

seizures have stopped at the end of May 2010.He had several tests, include

testosterone ,none of them showed any particular reason for his seizures.He had

sleep EEG, didn't show anyting and they didn't call him epileptic but epilepsy

like seizures! that's the phrase they used..He is 176 cm height but hardly

reached 49kg.

They are suspicious about his chronic hyperventilation..which may triggered the

seizures..He had MRI in the past, didn't show anything..Once again, I've become

suspicious about the toxicity perhaps he was having,perhaps tests didn't show

anything.In the past he had porphryrin test but showed very little

mercury..blood tests showed the same,DMSA showed nothing.!.

He grew slim,presenting neurological problems, he has more receptive language

and comprehension rather than expressive language.He has dislexia,

dispraxia,fine motor problems (having said that he can play piano in chords! but

can't use zips or buttons!).He can also write ,type and read..He has lots of

self stimuli behaviours,concentration problems.I am very dissapointed to see him

having a medical problems like the parasites in his gut despite treatments,

hyperventilation, concerns about his bone development. depite of huge effort of

keeping biomedical intervention since he was five!.

Do you think that chelation may be too harsh for a child presenting very fragile

state of health,poor immune problems can he take the difficult route of

chelation?Do I have to do some tests prior for the chelation but as I said, they

didn't show anything in the past.

I am in a big dilemma..All those years, our intervention with biomedical is not

successful,either my son's problems are really complicated which is true, he is

a hard case but also lack of understanding and knowledge which doctors are

having for treating medically sick children with autism.

I am very sorry for this long mail but having a picture of my search for

questions and answers I needed to write this.English is my second language,that

one also made the task harder for me.

Once again, forgive me for my long mail.

All the best

Nevin from London

[Guest guest]

That was designed for Lead only, not Mercury toxic people, perhaps you

should do more reading

Mandi in UK

In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

richardpang56@... writes:

Look likes the official FDA approved mercury detox protocol needs to go

your way.

[Guest guest]

And the FDA approve vaccines, that must make them safe?

Mandi in UK

Look likes the official FDA approved mercury detox protocol needs to go

your way.

[Guest guest]

>

> And the FDA approve vaccines, that must make them safe?

>

> Mandi in UK

LOL quite!!

emma

>

>

>

>

> Look likes the official FDA approved mercury detox protocol needs to go

> your way.

>

>

>

[Guest guest]

DMSA is a FDA approved substance to detox mercury, lead poisoned individuals.

Furthermore, FDA has approved DMSA can be used to treat lead-poisoned children.

I hope this clears the confusion.

>

> That was designed for Lead only, not Mercury toxic people, perhaps you

> should do more reading

>

> Mandi in UK

>

>

> In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> richardpang56@... writes:

>

> Look likes the official FDA approved mercury detox protocol needs to go

> your way.

>

>

>

[Guest guest]

Honestly ......the FDA?

As cows to the slaughter house we once marched willingly into doctors

offices all over the world and handed our children over to be injected with

vaccines approved by the FDA and other government entities.

Just because a protocol is approved by the FDA or who ever in

any government, it does not make it safe!

Z

On Sat, Sep 18, 2010 at 6:21 AM, Pang <richardpang56@...>wrote:

>

>

> DMSA is a FDA approved substance to detox mercury, lead poisoned

> individuals. Furthermore, FDA has approved DMSA can be used to treat

> lead-poisoned children. I hope this clears the confusion.

>

>

>

>

> >

> > That was designed for Lead only, not Mercury toxic people, perhaps you

> > should do more reading

> >

> > Mandi in UK

> >

> >

> > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > richardpang56@... writes:

> >

> > Look likes the official FDA approved mercury detox protocol needs to go

> > your way.

> >

> >

> >

[Guest guest]

Another example of how gives not just horrible advice but irresponsible

and dangerous advice!

> > >

> > > That was designed for Lead only, not Mercury toxic people, perhaps you

> > > should do more reading

> > >

> > > Mandi in UK

> > >

> > >

> > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > richardpang56@ writes:

> > >

> > > Look likes the official FDA approved mercury detox protocol needs to go

> > > your way.

> > >

> > >

> > >

[Guest guest]

Just because CDC or government denies a link between autism and mercury in

vaccine, you can't say everything done by FDA is wrong or stupid. Or just

replace the detox protocol (scientifically tested) with any other unproven

methods.

> > >

> > > That was designed for Lead only, not Mercury toxic people, perhaps you

> > > should do more reading

> > >

> > > Mandi in UK

> > >

> > >

> > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > richardpang56@ writes:

> > >

> > > Look likes the official FDA approved mercury detox protocol needs to go

> > > your way.

> > >

> > >

> > >

[Guest guest]

Let me tell you some of my personal experience of chelation. I hope you'll

learn something.

I did a low dosage method on my self using cured garlic for the last 2.5 months.

I sometime felt pulls in my brain. When I stopped using garlic, I did not feel

anything bad except that I still felt less energetic on the weekend as before.

I had to use tea to boost me up. Last weekend, I tried large dosages (one whole

garlic to 2 whole garlics one time, twice a day). I felt tons of pull in my

brain. I stopped using garlic on Monday because I had to work. I did not feel

any discomfort on Monday. But I felt some brain preesure on Tuesday afternoon.

I had to use garlic in the evening. I continued my large dosage garlic therapy

through Friday. Actually, I did not feel any big pull on Friday. Today, we

went to a big horse jumpping show and I was full of energy and I drank no tea

for the whole day.

> > > >

> > > > That was designed for Lead only, not Mercury toxic people, perhaps you

> > > > should do more reading

> > > >

> > > > Mandi in UK

> > > >

> > > >

> > > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > > richardpang56@ writes:

> > > >

> > > > Look likes the official FDA approved mercury detox protocol needs to go

> > > > your way.

> > > >

> > > >

> > > >

[Guest guest]

I say this with all sincerity, is a moron!

I feel sorry for your child, wasting an opportunity to get better with your

dangerous self made protocols.

>

> I'm not confused, I do not trust the FDA at all. I know what works for my

> child and many thousands of others, that's chelating efficiently with DMSA

> dosed to half life ie every 4 hours

> Mandi in UK

>

>

> In a message dated 18/09/2010 14:21:43 GMT Daylight Time,

> richardpang56@... writes:

>

> DMSA is a FDA approved substance to detox mercury, lead poisoned

> individuals. Furthermore, FDA has approved DMSA can be used to treat

lead-poisoned

> children. I hope this clears the confusion.

>

>

>

>

[Guest guest]

Garlic doesn't chelate mercury.

> > > > >

> > > > > That was designed for Lead only, not Mercury toxic people, perhaps you

> > > > > should do more reading

> > > > >

> > > > > Mandi in UK

> > > > >

> > > > >

> > > > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > > > richardpang56@ writes:

> > > > >

> > > > > Look likes the official FDA approved mercury detox protocol needs to

go

> > > > > your way.

> > > > >

> > > > >

> > > > >

[Guest guest]

You could feel the brain pull....uhhh ok!

> > > > > >

> > > > > > That was designed for Lead only, not Mercury toxic people, perhaps

you

> > > > > > should do more reading

> > > > > >

> > > > > > Mandi in UK

> > > > > >

> > > > > >

> > > > > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > > > > richardpang56@ writes:

> > > > > >

> > > > > > Look likes the official FDA approved mercury detox protocol needs to

go

> > > > > > your way.

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

I did not believe it either before. The garlic was initially prepared for my

son. Since he is on DMSA, I can't throw it away. You see: until you try it,

then you know the truth. Somebody says it can while others say no way. The

garlic I used went through a certain fermenting process.

> > > > > >

> > > > > > That was designed for Lead only, not Mercury toxic people, perhaps

you

> > > > > > should do more reading

> > > > > >

> > > > > > Mandi in UK

> > > > > >

> > > > > >

> > > > > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > > > > richardpang56@ writes:

> > > > > >

> > > > > > Look likes the official FDA approved mercury detox protocol needs to

go

> > > > > > your way.

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

I think you are a jerk.

> >

> > I'm not confused, I do not trust the FDA at all. I know what works for my

> > child and many thousands of others, that's chelating efficiently with DMSA

> > dosed to half life ie every 4 hours

> > Mandi in UK

> >

> >

> > In a message dated 18/09/2010 14:21:43 GMT Daylight Time,

> > richardpang56@ writes:

> >

> > DMSA is a FDA approved substance to detox mercury, lead poisoned

> > individuals. Furthermore, FDA has approved DMSA can be used to treat

lead-poisoned

> > children. I hope this clears the confusion.

> >

> >

> >

> >

[Guest guest]

Yes but DMSA given on an appropriate schedule is pulling it and removing it

from the body, not just bouncing it around

Mandi in UK

In a message dated 19/09/2010 13:21:36 GMT Daylight Time,

richardpang56@... writes:

If you go to mercurypoisoned.com, you will find that the lady also felt

brain pulls when she used DMSA.

[Guest guest]

Please be careful as most tea plants are contaminated with lead.

> > > > >

> > > > > That was designed for Lead only, not Mercury toxic people, perhaps you

> > > > > should do more reading

> > > > >

> > > > > Mandi in UK

> > > > >

> > > > >

> > > > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > > > richardpang56@ writes:

> > > > >

> > > > > Look likes the official FDA approved mercury detox protocol needs to

go

> > > > > your way.

> > > > >

> > > > >

> > > > >

[Guest guest]

No doubt you felt " pulls in your brain " . Garlic is a monothiol substance that

will make mercury bounce around the body really fast in someone who is mercury

toxic. It doesn't get it out, but it can make you a lot worse.

Mercury's effect on the brain is to make people crazy, like the Mad Hatter in

Alice in Wonderland. So garlic would serve to make you only...more crazy. Some

of us can't afford more crazy.

[ ] Re: I'm a new member,forgive me my long

introduction!

Let me tell you some of my personal experience of chelation. I hope you'll

learn something.

I did a low dosage method on my self using cured garlic for the last 2.5

months. I sometime felt pulls in my brain. When I stopped using garlic, I did

not feel anything bad except that I still felt less energetic on the weekend as

before. I had to use tea to boost me up. Last weekend, I tried large dosages

(one whole garlic to 2 whole garlics one time, twice a day). I felt tons of pull

in my brain. I stopped using garlic on Monday because I had to work. I did not

feel any discomfort on Monday. But I felt some brain preesure on Tuesday

afternoon. I had to use garlic in the evening. I continued my large dosage

garlic therapy through Friday. Actually, I did not feel any big pull on Friday.

Today, we went to a big horse jumpping show and I was full of energy and I drank

no tea for the whole day.

> > > >

> > > > That was designed for Lead only, not Mercury toxic people, perhaps you

> > > > should do more reading

> > > >

> > > > Mandi in UK

> > > >

> > > >

> > > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > > richardpang56@ writes:

> > > >

> > > > Look likes the official FDA approved mercury detox protocol needs to

go

> > > > your way.

> > > >

> > > >

> > > >

[Guest guest]

If you go to mercurypoisoned.com, you will find that the lady also felt brain

pulls when she used DMSA.

> > > > >

> > > > > That was designed for Lead only, not Mercury toxic people, perhaps

you

> > > > > should do more reading

> > > > >

> > > > > Mandi in UK

> > > > >

> > > > >

> > > > > In a message dated 18/09/2010 03:15:35 GMT Daylight Time,

> > > > > richardpang56@ writes:

> > > > >

> > > > > Look likes the official FDA approved mercury detox protocol needs to

go

> > > > > your way.

> > > > >

> > > > >

> > > > >