Re: Digest Number 1437

[Guest guest]

In a message dated 8/30/00 7:22:09 PM Pacific Daylight Time,

egroups writes:

<< " Elfkin Majik " <elfkin@...> >>

Dr. Zhang's herbal formulas for treating Lyme disease are very mild and

restorative.

You cam check out his protocol at dr-zhang.com.

Jen

[Guest guest]

Anyone had experience with this formula? Jen?

<< Dr. Zhang's herbal formulas for treating Lyme disease are very mild and

restorative.

You cam check out his protocol at dr-zhang.com.

Jen

>>

[Guest guest]

Welcome to this list.Still has a ton of mail as ever,lolSara and Nimet from Ohio

Hi Sara! You're on Feb 99 babies with me

Lesley

[Guest guest]

In a message dated 3/13/02 9:17:46 AM Central Standard Time,

writes:

> Subject: Re: Carol

>

> It's not a matter of me letting up on the schools, it's a matter of it

> getting through to the schools!

> I spoke with Trisha's teacher yesterday about the goals for her IEP and

> maybe

> I am way off base on this one but I kinda disagree with the way she wants

> to

> have sign included in the IEP. She wants to have it listed as a goal that

> she will learn X amount of chosen signs for the next year, and all the

> signs

> she listed where ones that Trisha already knows. I personally don't

> believe

> sign should be listed as a goal but she says they have to do that in order

> to

> be able to have a way of measuring her progress. Now to me, sign should be

>

> all encompassing in the IEP and not limiting to just a few signs, Sign is

> part of Trisha's language and should be worked on all the time and used by

> the staff working with Trisha all the time, not 5 or 10 mins a day. The

> teacher also asked me if I wanted her to go to the TASH workshop or go to a

>

> sign class, I said why not both and her answer was, " well Trisha is the

> only

> one who would benefit from the Tash workshop " I then asked if the other

> kids

> would benefit from the sign class and she said that Trisha was the only one

>

> that used signs. In which case what difference does it make about the

> workshop or the sign class, either way Trisha will hopefully benefit, so

> why

> not do both? So why not try to learn as much as possible? Doesn't she

> realize that what she learns at the workshop and sign class maybe actually

> help her other students more than she realizes?

>

> Carol

> Trishasmom

> She isn't typical, she's Trisha!

Carol,

Could the goal read something like " Trisha will use a sign approximation four

times during her school day to request an object or activity with one verbal

prompt " . Progress can be monitored by simple daily marking off on a chart

each time she does it. You can modify that goal to fit your needs better but

we would use that goal in our home program or school program. We would never

work on signs in isolation from the true communication purpose for . He

wouldn't do it. That is why his speech therapy goes on in his classroom

rather than a speech session.

Karyn

[Guest guest]

In a message dated 3/13/02 9:17:46 AM Central Standard Time,

writes:

> Subject: Re: Carol

>

> It's not a matter of me letting up on the schools, it's a matter of it

> getting through to the schools!

> I spoke with Trisha's teacher yesterday about the goals for her IEP and

> maybe

> I am way off base on this one but I kinda disagree with the way she wants

> to

> have sign included in the IEP. She wants to have it listed as a goal that

> she will learn X amount of chosen signs for the next year, and all the

> signs

> she listed where ones that Trisha already knows. I personally don't

> believe

> sign should be listed as a goal but she says they have to do that in order

> to

> be able to have a way of measuring her progress. Now to me, sign should be

>

> all encompassing in the IEP and not limiting to just a few signs, Sign is

> part of Trisha's language and should be worked on all the time and used by

> the staff working with Trisha all the time, not 5 or 10 mins a day. The

> teacher also asked me if I wanted her to go to the TASH workshop or go to a

>

> sign class, I said why not both and her answer was, " well Trisha is the

> only

> one who would benefit from the Tash workshop " I then asked if the other

> kids

> would benefit from the sign class and she said that Trisha was the only one

>

> that used signs. In which case what difference does it make about the

> workshop or the sign class, either way Trisha will hopefully benefit, so

> why

> not do both? So why not try to learn as much as possible? Doesn't she

> realize that what she learns at the workshop and sign class maybe actually

> help her other students more than she realizes?

>

> Carol

> Trishasmom

> She isn't typical, she's Trisha!

Carol,

Could the goal read something like " Trisha will use a sign approximation four

times during her school day to request an object or activity with one verbal

prompt " . Progress can be monitored by simple daily marking off on a chart

each time she does it. You can modify that goal to fit your needs better but

we would use that goal in our home program or school program. We would never

work on signs in isolation from the true communication purpose for . He

wouldn't do it. That is why his speech therapy goes on in his classroom

rather than a speech session.

Karyn

[Guest guest]

In a message dated 3/13/02 7:18:01 AM Pacific Standard Time,

writes:

> , thank Kathy!!!

> Charlyne

>

>

>

THANKS KATHY!!

[Guest guest]

LOL Robbin!!!!!Tickle,tickle!!!!!LOLL

[Guest guest]

In a message dated 3/27/2004 3:56:14 PM Eastern Standard Time,

writes:

From: " Mark Schauss " <schauss@...>

Subject: Re: Magnesium chloride... more

MJH and Grace,

Just because its liquid doesn't make it better. This is a field I have

studied for over 18 years and magnesium oxide just isn't that good and may,

in some cases, be worse than not taking magnesium at all. The oxide part of

makes it difficult to utilize by most people as it is a difficult bond to

break. Chloride, citrate, aspartates are much, much more bioavailable and

require a lower dosage than does the oxide to get the same bioavailable

magnesium in the body.

The only benefit of magnesium oxide is to the manufacturers as it is the

cheapest form and easier to work with. Having worked with Mag Chloride, I

can tell you that it is a bear to work with but once in solution, it is an

excellent source of magnesium. The Citrate form is also excellent with the

aspartate being a problem for epileptics as it uses aspartic acid (a

neuroexcititory amino acid) as its base. With my daughter I only use the

chloride and citrate form.

In health,

Mark Schauss

www.carbonbased.com

www.southwoodresearch.org

Re: [ ] Magnesium chloride... more

> MJH,

>

> I will try grinding the mag oxide I currently have and mix it with hot

> water, now here's my next question, I also give calcium with mag

> in it and a multi vitamin which also has mag in it, I don't want to over

> do the magnesium and that article you sent me said to take 450 mg, how

> exactly do I do this, should I subtract the amounts that she's already

> getting in her multi and cal/mag and then give her the balance? I am

> willing to try just about anything to help control her seizures

> naturally, but I'm really afraid of making things worse instead of

> better. Thanks MJH for all your help, you're the greatest!

>

> Grace

>

...

..

Mark and Grace

Then, a better option for Grace's (and probably Charlie, too) is the

LIQUID form on Mg citrate without sodium available in almost every grocery

store.

Grace, the Mg needs to be balanced with the Ca. SOme people need a one part

Mg to two parts Ca FROM ALL SOURCES, including food. Others, like me, need a

ratio closer to one to one. I need about 1500 mg Ca and 1500 mg Mg daily,

sometimes even more.

So, Grace, make a little table and write down and add up all the Ca in the

vitamins and Ca supplement, then do the same with the Mg. Then, figure out how

much milk and other high Calcium foods she eats each day and see how much Ca

comes from diet.

Then, when you add up both columns, you will know how much additional Mg to

give to .

Again, no matter what type of Mg I took in tabs and caps nor how expensive, I

saw only marginal effect until I took it in liquid form.

Hope this helps

mjh

http://foxhillfarm.us/FireBasil/

[Guest guest]

If there is a yeast overgrowth going on in the gut the yeast have a

tendency to gobble up magnesium much like a little pac-man.

[Guest guest]

MJH and Mark,

Thank you so much for your help, I will give it a try!

Grace

On Sat, 27 Mar 2004 17:12:58 EST foxhillers@... writes:

In a message dated 3/27/2004 3:56:14 PM Eastern Standard Time,

writes:

From: " Mark Schauss " <schauss@...>

Subject: Re: Magnesium chloride... more

MJH and Grace,

Just because its liquid doesn't make it better. This is a field I have

studied for over 18 years and magnesium oxide just isn't that good and

may,

in some cases, be worse than not taking magnesium at all. The oxide part

of

makes it difficult to utilize by most people as it is a difficult bond to

break. Chloride, citrate, aspartates are much, much more bioavailable

and

require a lower dosage than does the oxide to get the same bioavailable

magnesium in the body.

The only benefit of magnesium oxide is to the manufacturers as it is the

cheapest form and easier to work with. Having worked with Mag Chloride,

I

can tell you that it is a bear to work with but once in solution, it is

an

excellent source of magnesium. The Citrate form is also excellent with

the

aspartate being a problem for epileptics as it uses aspartic acid (a

neuroexcititory amino acid) as its base. With my daughter I only use the

chloride and citrate form.

In health,

Mark Schauss

www.carbonbased.com

www.southwoodresearch.org

Re: [ ] Magnesium chloride... more

> MJH,

>

> I will try grinding the mag oxide I currently have and mix it with hot

> water, now here's my next question, I also give calcium with

mag

> in it and a multi vitamin which also has mag in it, I don't want to

over

> do the magnesium and that article you sent me said to take 450 mg, how

> exactly do I do this, should I subtract the amounts that she's already

> getting in her multi and cal/mag and then give her the balance? I am

> willing to try just about anything to help control her

seizures

> naturally, but I'm really afraid of making things worse instead of

> better. Thanks MJH for all your help, you're the greatest!

>

> Grace

>

...

..

Mark and Grace

Then, a better option for Grace's (and probably Charlie, too) is

the

LIQUID form on Mg citrate without sodium available in almost every

grocery

store.

Grace, the Mg needs to be balanced with the Ca. SOme people need a one

part

Mg to two parts Ca FROM ALL SOURCES, including food. Others, like me,

need a

ratio closer to one to one. I need about 1500 mg Ca and 1500 mg Mg

daily,

sometimes even more.

So, Grace, make a little table and write down and add up all the Ca in

the

vitamins and Ca supplement, then do the same with the Mg. Then, figure

out how

much milk and other high Calcium foods she eats each day and see how much

Ca

comes from diet.

Then, when you add up both columns, you will know how much additional Mg

to

give to .

Again, no matter what type of Mg I took in tabs and caps nor how

expensive, I

saw only marginal effect until I took it in liquid form.

Hope this helps

mjh

http://foxhillfarm.us/FireBasil/

[Guest guest]

Depends on the species of bacteria . Not all do that. Some, like

the ones that produce tricarballylate bind magnesium so tightly as to induce

magnesium deficiences. Yeast does use some magnesium but will not get much

if you use a liquid form as MJH has mentioned. Using a liquid form makes

sure the magnesium is absorbed early on and not " down the pike " so as not to

get to the bacteria. Capsules usually breakdown early enough but tablets

rarely do.

In health,

Mark Schauss

www.carbonbased.com

www.southwoodresearch.org

[ ] Re: Digest Number 1437

> If there is a yeast overgrowth going on in the gut the yeast have a

> tendency to gobble up magnesium much like a little pac-man.

>

>

>

>

>

>

[Guest guest]

Keep the info coming Mark !

[Guest guest]

Hello Margaret

Thanks very much for this info. I would appreciate the contact details of

the public health director in the East.

Best wishes

Gill

Re: community nursing management

Hi Gill

I am begining to come across quite a few PCTs where they are separating out

DN and HV putting the former in adult or older people services and linking

them to practice nurses and placing HVs together with SN as one integrated

service in children and families directorates.

I was up in the East of the country earlier this week and there the HV and

SN are managed through the public helath directorate led by a very

enthusiastic director of public health with a total belief in priamry

prevention - it was refreshing. They have a lead for children and families

services who manages HV/SN/specila needs/paediatrics/family planning and one

or two other child based services. There is professional lead for HV and Sn

also and my impression is that it is working well. What they do not have is

a strong nursing structure elsewhere in the PCT so there is not really any

strategic leadership for nursing as such on the board. This is a felt gap

but it was clear HV and Sn were doing okay.

If you want some more detila sand contacts let me know and I can e.mail them

to you.

Hope all is going well

Regards

Margaret

community nursing management

Hello All

Our community nursing manager has recently left and the PCT has wisely

decided to consider what is really needed in the way of managers for

community nurses (ie DNs and HVs). I have started some e-mail

correspondence within the PCT, stating that the professions are very

different and it may be a good idea not to lump them together. I have

suggested that HVs be absorbed into public health directorate instead of

community nursing. I was wondering if any of you know of HVs who are

currently managed by public health and, if so, whether this is seen as

desirable.

Thanks

Gill

[Guest guest]

Ummmm Jen $196 CAD for 100 pills??????????? Please get in touch with 's

in Toronto! That price is ridiculous!! http://www.smithspharmacy.com/

I have been buying my LDN here for over a yr! You can have whichever filler

you want, if you go with the filler they normally go with it is less but if

you want say acidophilus you have to buy the capsules and they mix it for

you how you like... still ridiculously cheaper than what you have been

quoted!

Good luck!

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Fri, 17 Jun 2005 13:46:03 -0000

From: " dimas_jen " <dimas_jen@...>

Subject: Re: Skip's and LDN

Ok well here in Canada it seems to be a little more expensive but I

will do it as I have a great pharmasist and they have looked into LDN

alot to make sure that I am getting what I need but I pay $196

approx... for 100 caps.

Jen

[Guest guest]

I agree that price is way to high unless you are independently wealthy that is!

Here in Alberta Joe at "The Dispensary" in RedDeer charges thirty dollars for a months prescription of 3.0 mgs pills filled with acidophilus. He also bills Blue Cross if you have it and you pay only your share.

Mine is about Ten dollars as I have 80% coverage.

Reg.

-- Re: Skip's and LDNOk well here in Canada it seems to be a little more expensive but I will do it as I have a great pharmasist and they have looked into LDN alot to make sure that I am getting what I need but I pay $196 approx... for 100 caps.Jen

[Guest guest]

Hello /Dave

, we're in Villa Park. My daughter Chelsy, along with her now

best friend ie (Francesca - who she met through this site) have

everyone once in a while talked/chatted/written letters to the younger

kids who are just having/just had c-toma surgery, the resulting hearing

loss/wearing a hearing aid, the bullying that will unfortunately come

from the other kids for those who wear hearing aid(s), etc. Chelsy and

ie both had c-toma at the same age in 1996; they now talk over the

phone everyone weekend. Chels has been one of the lucky ones with no

recurrence; ie has not been so lucky; she had a recurrence about a

year ago and now wears aids in both ears. She and Chelsy have had lots

of problems with verbal bullying from classmates.

, if you think it would help for Chelsy to talk to your son, I'm

sure she be glad to. Chelsy takes riding lessons at Jaynesway Stables

on Friday evenings in Bartlett up there on Route 59; we're off tonite

because of the heat. If you like we can meet up on a Friday evening or

they chat over the phone or meet for lunch etc.

(ie's mum and also a visitor to the site) are you out there?

Dave, after my daughter had her surgery in 1996 at age 4 1/2 she was

severely restricted when it came to swimming; her surgeon told us if she

got water in her ear (her inner ear drum is sunken because of the

c-toma, which was massive and close to the brain)it could settle in

there causing the c-tom to recur. She's had to wear specialized plugs

plus an ear band. When she was 7-8, I realized how deathly afraid she

was of the water, and the fact that all her friends were swimming in

deep water, going to water parks, etc., I signed her up for private

lessons. Ironically, her instructor was also hearing impaired, wearing

two aids. Now at age 13 she still has to wear her plug, is a still a

tad afraid of deep water, and the swimming lessons weren't a great

success.

Take good care both!

Caryn G.

Caryn L. Gleixner

Seyfarth Shaw LLP

55 E. Monroe Street

Suite 4200

Chicago, IL 60603

Telephone: 312-621-8732

Facsimile: 312-269-8869

Re: Caryn / Dave Re: Chicago area

Hi everyone! My daughter Sierra had her 2nd look see surgery this

morning, and no C-toma, so he was able to replace her hearing bones and

says he is done with this ear. They will check the other ear in Dec.

Hopefully she won't have it in that ear. The last months have been a

nightmare waiting to see if it was back. This board has been very

helpful to me, gave me facts, and also makes me wonder if we truly are

over this thing. But now I know C-toma exists so It wont be such a

surprise if she does get it back. She was in awful pain this time,

don't know the difference, maybe just happened. Anyway I am wondering

now how I will know if she gets it back. She never had drainage, odor,

or really even any earaches. I only found out it was there, cause when

she was taking swim lessons it got too painful and took her to the dr.

Any other parents there with children without symptoms? How did you get

the diagnosis? Thanks so much all, and I will continue to read and

learn from you all.

Shirley Moma

Hello Caryn // Dave!

It's nice to know that there are other folks on this board from the

Chicago area! We live in Bartlett and Evan had his surgery at Loyola

in Maywood. His Dr. is Leonetti and so far we have been very

happy with everything. Evan is still kind of in the recovery stage I

guess you could say... we go for his second post op appointment in

about a week. I am anxious for him to have a follow up hearing test

to see if his hearing has improved in that ear. We were told after

his initial hearing test that he had mild conductive loss..I don't

know what percentage that would be - I guess I should have asked.

Things are going fine now but after all the things I read on this

board I wonder if we are at the beginning of a long journey with

Evan's ctoma. At this point I guess all we can do is stay on top of

it and think positive!

Thanks to all and take care!

Evan's mom

[Guest guest]

> the same thing happened to me four years ago. I had to stop the

methotrexate altogether. I take enbrel injections, alone, and neurontin

for pain.

Can you tell me more about the neurontin? I take Vicodin plus NSAIDS

for pain, but they don't work all that well. Does neurontin help?

Thx,

[Guest guest]

the neurontin was prescribed by the Pain Clinic. I was a referral because I kept insisting that I could not fuction = I still work full time. I also have fibromyalgia and restless leg syndrome, besides the RA. I take neurontin at supper and it knocks me out so I can get some sleep. gentle hugs! Marcia <kyrik@...> wrote: > the same thing happened to me four years ago. I had to stop themethotrexate altogether. I take enbrel injections, alone, and neurontinfor pain.Can you tell me more about the neurontin? I take Vicodin plus NSAIDSfor pain, but they don't work all that well. Does neurontin help?Thx,

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