Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Jessy, The improvements you are seeing are quite likely due to Vitamin B6. It has been shown to be very helpful with seizures, especially in very young children. You will likely continue to see improvements. Keep us posted. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Hi Steph, It depends on whether its B6 which is pyridoxine form or P5P which is the active form of B6 5 - 10 times stronger than the B6. Which are you using. THE MAXIMUM dosage according to DAN docs in USA is 100mg of P5P form. You would need to add up the B6 in the multis as well as any extras. Joanne > > Could people please post what dose of B6 they are giving? We were > giving 250mg a day with 300 mg of magnesium as per Dr H. Is anyone > else doing this? > > thanks > > Steph > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2006 Report Share Posted October 16, 2006 In a message dated 16/10/2006 12:06:35 GMT Daylight Time, acmpope@... writes: Does anyone have a good and reliable UK or European source for these? It seems to be getting harder and harder to get things sent from the US, not to mention the expense. >>>500mg?????? Gobsmacked. Don;t hink anywhere woudl make them that big but Metabolics is good brand you would probably have to use several though www.metabolics.co.uk Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2006 Report Share Posted October 16, 2006 Alison, you used to be able to buy B6 100mg BP standard for about £1 for 30 tablets from UK pharmacies, in case you run out. Safer than health food shop supplies in terms of assured dose of B6.(Very timy tablets.) Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 I would not ever give supplemental iron, I would eat things high in iron and cook on cast iron pans if I wanted more iron...but that's just me. > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Processed foods/cereals are notorious for over fortifying with B vitamins. Perhaps you should take a look at the products in your pantry to see how it all adds up. Plus, some foods contain a lot of B6, though dietary sources from whole foods (not fortified) shouldn't be an issue. Bananas, garbanzo beans, chicken breast, peanut butter etc. Do you have the test results? What was the number and the reference range for B6? I just Googled it quick: B6 deficiency is associated with RLS (magesium, too). I just can't find info on how B6 levels can be elevated in the blood without supplements being the cause. Maybe high B6 can mean the body isn't using it? Sorry, I'm probably just adding to the confusion. Pam > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 She has bad Restless leg syndrome, and low iron levels. The doctor said it needs to be treated. It's either iron, AED's or some other drug. I thought iron would be the safest. Do you think iron is dangerous to give? I don't think he could possible get any worse than she is right now. ;0( On Jun 9, 2010, at 11:36 AM, Liz wrote: > I would not ever give supplemental iron, I would eat things high in iron and cook on cast iron pans if I wanted more iron...but that's just me. > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Myself and one of my daughters has restless legs syndrome. It is a neurological condition which is essentially opposite of myoclonus (when your extremity or other body part feels a pin stick and your body part jumps). Too much or too little (so I have learned) of B vitamins may be a contributing factor. This will sound strange, but the ENT put me on an OTC supplement (which insurance pays for with a script) call Lipo-Flavonoid Plus, which is a combination of B vitamins and inositol for tinnitus. A side effect of the supplement was a reduction of the myoclonus and restless legs syndrome. I did start taking a calcium supplement also. Both help. > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Try using P5P. It is the most bioactive form of B6 and requires no futher metabolism for use. It might alleviate some of the RLS? Pam > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 No, your making perfect scense. The neurologist thinks that she is lacking an enzyme that uses B6 too. He is just not sure and he is going to do some research. My girl doesn't seem to eat things with too much B6 in it. She is a big veggie eater. For breakfast its usually? beans and rice, ham and egg sandwich. Lunch, lots of veggies, fruit and pasta. We are visiting family and they have been giving her some sweets, like cookies and some homemade cupcakes, which she usually never gets. Not sure what is happening or if its even anything to worry about. On Jun 9, 2010, at 11:42 AM, Pamela H wrote: > Processed foods/cereals are notorious for over fortifying with B vitamins. Perhaps you should take a look at the products in your pantry to see how it all adds up. Plus, some foods contain a lot of B6, though dietary sources from whole foods (not fortified) shouldn't be an issue. Bananas, garbanzo beans, chicken breast, peanut butter etc. > > Do you have the test results? What was the number and the reference range for B6? > > I just Googled it quick: B6 deficiency is associated with RLS (magesium, too). I just can't find info on how B6 levels can be elevated in the blood without supplements being the cause. Maybe high B6 can mean the body isn't using it? > > Sorry, I'm probably just adding to the confusion. > > Pam > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 That is interesting about the deficiencies. I know RLS is caused by low iron, but not the B6. It's wierd that her B6 is so high. On Jun 9, 2010, at 11:42 AM, Pamela H wrote: > Processed foods/cereals are notorious for over fortifying with B vitamins. Perhaps you should take a look at the products in your pantry to see how it all adds up. Plus, some foods contain a lot of B6, though dietary sources from whole foods (not fortified) shouldn't be an issue. Bananas, garbanzo beans, chicken breast, peanut butter etc. > > Do you have the test results? What was the number and the reference range for B6? > > I just Googled it quick: B6 deficiency is associated with RLS (magesium, too). I just can't find info on how B6 levels can be elevated in the blood without supplements being the cause. Maybe high B6 can mean the body isn't using it? > > Sorry, I'm probably just adding to the confusion. > > Pam > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 so too much of B6 can be a contributing factor of restless leg syndrome? On Jun 9, 2010, at 2:49 PM, agirlnamedsuess21 wrote: > Myself and one of my daughters has restless legs syndrome. It is a neurological condition which is essentially opposite of myoclonus (when your extremity or other body part feels a pin stick and your body part jumps). Too much or too little (so I have learned) of B vitamins may be a contributing factor. > This will sound strange, but the ENT put me on an OTC supplement (which insurance pays for with a script) call Lipo-Flavonoid Plus, which is a combination of B vitamins and inositol for tinnitus. A side effect of the supplement was a reduction of the myoclonus and restless legs syndrome. I did start taking a calcium supplement also. Both help. > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Well, if her body isn't utilizing B6 (thus high levels in her blood), then she needs some B6. I've seen RLS linked to low iron and low B6. Just because there is too much B6 in the blood doesn't mean there is too much B6 in tissues. It is odd that B6 is high if there is no B6 being added to the diet via supplements or fortified foods. I suppose I wouldn't do anything until I talked to someone who knew more. Pam > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 I have not read that too much B6 can cause RLS syndrome. On Jun 9, 2010, at 2:49 PM, agirlnamedsuess21 wrote: > Myself and one of my daughters has restless legs syndrome. It is a neurological condition which is essentially opposite of myoclonus (when your extremity or other body part feels a pin stick and your body part jumps). Too much or too little (so I have learned) of B vitamins may be a contributing factor. > This will sound strange, but the ENT put me on an OTC supplement (which insurance pays for with a script) call Lipo-Flavonoid Plus, which is a combination of B vitamins and inositol for tinnitus. A side effect of the supplement was a reduction of the myoclonus and restless legs syndrome. I did start taking a calcium supplement also. Both help. > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Isn't P5P a B vitamin? I am not sure if I should add more B, if her B6 is so very high on her labs. On Jun 9, 2010, at 7:04 PM, Pamela H wrote: > Try using P5P. It is the most bioactive form of B6 and requires no futher metabolism for use. It might alleviate some of the RLS? > > Pam > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Thanks for your help Pam. I will keep you posted. On Jun 9, 2010, at 8:33 PM, Pamela H wrote: > Well, if her body isn't utilizing B6 (thus high levels in her blood), then she needs some B6. I've seen RLS linked to low iron and low B6. > > Just because there is too much B6 in the blood doesn't mean there is too much B6 in tissues. It is odd that B6 is high if there is no B6 being added to the diet via supplements or fortified foods. > > I suppose I wouldn't do anything until I talked to someone who knew more. > > Pam > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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