Please Help!!

December 19, 2000

Helena

I am not a Dr. , but it could be Primary Biliary Cirrhosis,If it is

PBC it has 4 stages,It is not cirrhosis until 4th stage. Urso or Actigall is medicine for this .I have PBC but the Dr.

gave me a Liver Biopsy. The biopsy does not hurt at all,

a small prick with a needle to get a very minute piece of

tissue( about the size of a pencil lead}.I didn't even feel it.

The Dr. uses a local antihesia. I drink a little wine,but maybe

you should check with your Dr. Your tests are coming down

so that is a good sign.Are you on any kind of medication

that would run up your liver enzymes?

Take Care

Dale Barnett

December 19, 2000

In a message dated 12/19/00 3:10:56 PM Pacific Standard Time, ccmcphe@... writes:

.. Did he mention Mononucleosis to you?

If mononucleosis is a possibility, then chronic fatigue syndrome would be, equally, I think. Both are very hard to diagnose. Neither results in itching or jaundice, as far as I have ever heard.

Harper

December 19, 2000

Helena:

Welcome to this group. I just got back from a business trip in Italy, I

really enjoyed the country. I was in Rome, Naples, and Florance

(Florance was beautiful). Your liver AST and ALT values appear to be

high. I was Dx'ed with AIH in August. My heptologist tested me for other

liver diseases also, even EBV (Mononucleosis). I had really bad itching

on my arms and thighs, and tired all the time. My test for mononucleosis

was negative. You could have autoimmune hepatitis, but you could even

have PBC (Primary Biliary Cirrhosis), drug induced hepatitis, or just

cirrhosis. If you are positive for EBV, then you could even have

Mononucleosis. Sounds like your doctor is checking everything. Did he

mention Mononucleosis to you?

-Clyde

December 19, 2000

Hi Clyde,

I'm glad you enyoyed your trip, We have been in Italy for five years, and I

still like it. My doctor did mention mononecluosis and asked if I had had any

bad colds recently. Maybe I have had a bit of a runny nose, but nothing else.

I'll have to do a search on mononecluosis and see what I can find out. It's nice

to hear that my doctor seems to know what he is doing. I do trust him, but we

have a bit of a communication problem. My knowledge of medical terms in italian

isn't what it should be.

Thank you for taking time to answer me, merry christmas and best wishes for the

new year.

Helena

On Tue, 19 Dec 2000 17:37:33 C C McPherson wrote:

>Helena:

>Welcome to this group. I just got back from a business trip in Italy, I

>really enjoyed the country. I was in Rome, Naples, and Florance

>(Florance was beautiful). Your liver AST and ALT values appear to be

>high. I was Dx'ed with AIH in August. My heptologist tested me for other

>liver diseases also, even EBV (Mononucleosis). I had really bad itching

>on my arms and thighs, and tired all the time. My test for mononucleosis

>was negative. You could have autoimmune hepatitis, but you could even

>have PBC (Primary Biliary Cirrhosis), drug induced hepatitis, or just

>cirrhosis. If you are positive for EBV, then you could even have

>Mononucleosis. Sounds like your doctor is checking everything. Did he

>mention Mononucleosis to you?

>

>-Clyde

>

December 20, 2000

Hi Helena,

My father's grandfather was supposed to be of Swedish royalty, though I have yet to be able to verify that. In the 70's I bought shoes for a major department store and traveled to Italy twice a year. It is a beautiful country and the people are the friendliest of any country I've visited.

The itching and joint pain are very common symptoms of liver disease. A positive ANA, or anticorpi anti nucleo, is a strong indicator of autoimmune activity. There are lots of things that can cause problems with your liver, including some common over the counter medications. Most of those kinds of problems will go away without doing anything. I'm sure that is why he wants to wait and see what happens.

A liver biopsy will help determine the type and extent of any liver damage. It's an important tool to help determine the cause, and prognosis. It is usually a very simple, relatively painless, procedure. So, it is really nothing to fear.

I would imagine that he will also do other blood tests to look for other indications of what might be causing the liver inflammation.

As for alcohol. I have totally lost any desire to drink. I know that every bit of alcohol will put additional strain on my already strained liver. Especially during the holidays when we probably overeat, have a lot of fatty foods, and otherwise strain our livers. Why add to that?

Good luck! Hopefully your problems are just a temporary thing.

Don

Terradon Unlimited

http://www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

-----Original Message-----From: nen@... [mailto:nen@...]Sent: Tuesday, December 19, 2000 8:29 AM egroupsSubject: [ ] Please help!!Hello everybody, My name is Helena. I'm swedish, living in italy with my two small children and my husband. I recently found this group after doing a search on autoimmune hepatitis. This is my story:Three months ago I started itching. It got to be unbearable and in the beginning of november my doctor sent me to do a bloodtest. The test showed that the liver enzymes were way too high. (ast664 and alt955). Hepatit A,B and C was excluded and an ultrasound of my liver showed no damages, only that there was some sludge in my bilaryducts.In the middle of november i saw a liver specialist, he sent me to do more bloodtests and gave me deursil (ursodexoholic acid?) to clear the bileducts. Apart from the itching i felt well and the deursil took away the itching. I thought all was fine until the 6 december when i got the result of the new tests: ast883 and alt1181. I also tested positiv for (in italian) "anticorpi anti nucleo" and "anticorpi anti EBV" He sent me to do further tests of the liver enzymes and a week later they had gone down to ast 826and ast844. The specialist said it was possible I had autoimmune hepatite or that there was some viral infection in the liver and I was told to rest and avoid alcohol. He sent me for more bloodtests and asked me to come back in the beginning of january. If the values still are high i might have to do a liver biopsy. My fingers and knees has started to ache quite badly, but only at night otherwise I feel fine. I had the results of my latest blood test today wich showed a further decrease in ast and alt (472 and 540). Now to my questions:Does this sound like autoimmune hepatitis to you?I dont feel ill or tired. That the values are getting lower must be a good sign, can it go away on it's own?How damaging is alcohol (Not alot, but I would like to be able to have a glass of wine with the christmas dinner and some champagne for new years eve)If it is not autoimmune hepatitis what could it be?Thank you very very much for reading this far, exuse me for any language errors. Merry christmas to everybody!!!!!

May 27, 2003

first off the seizures are not going ot turn him into a vegetable . it is the

drinking and drugs and without takign his meds on a regualr basis and that is

soemthing he needs to do not you it won't work. if the drug it self is haivng

horrible side effects there are plenty of new ones out there with less side

effects he could take and then his self esteem would get better. But most

neurologst won't put up with the pity party he is having.He has got to help

himself.

May 27, 2003

Dear Ron's Sister,

Is Ron in the care of a neurologist? If he is not, this should become a

top priority. If the Epilepsy Foundation has a chapter in your town, I

would definitely speak with them. If not, I would visit their website

and leave questions. If you brother is already seeing a neurologist and

neither of you are satisfied with the service that doctor is providing,

you need to seek a second opinion. You will find various clinics -

including the American Academy of Neurology - listed in the Link section

associated with this website. Please use it to help solve this

problem. That's what it's there for.

Good luck.

Lamar

Inbal wrote:

> My brother is 26 years old and he was in a bad car accident 1 year

> ago. He had 3 seizures the night of the accident and was put on

> Dylantin. Since then he has had 2 majors seizures. One last week

> and one 6 months ago. He drinks a lot every day and smokes weed.

> I am slowly watching him kill himself. He is going to get an MRI

> tonight although he has had one before and they couldn't find

> anything. He parties so much he forgets to take his medicine and

> then has a seizure. Does anyone know what I can do to help him.

> Last week the paramedics told me that if he continues to have

> seizures and has them back to back he can become a vegetable. Is

> there any sort of program he can get into?? Does anyone know where

> I can turn to for help??

> Thank You

> Ron's sister

May 28, 2003

Hi ,

I want you to know I joined this page 5-28-03. First, what type of

epilpepsy has your brother been diagnosed with. Some types of

epilepsy require two medications. Dilantin has been around for a long

time. I myself take Neurotin and Felbatol which flip flopped my

seizures so instead of me having seizures in the day I have them at

night. Two, if your brother has several seizures in one day his Dr.

will tell you to take him to the emergency room. I know this by

experience. I was visiting family and had 5 seizures, they called my

Dr. and he told them if I had one more to call him and then take me

to the emergency room, luckily I did not have anymore that day. My

seizures come in twos. Having 2 seizures 6 months apart will not kill

your brother. Three, if your brother can smoke weed and drink he can

take his meds. RESPONSIBILITY. It is not your responsibilty it is

your brothers. My epilepsy recurred at age 12. I took the

RESPONSIBILITY of taking my medicines 4 times a day. Four, For the

meds to have its complete effect your brother must get off pot and

stop drinking. If your brother prefers to be stupid YOU should not

put weight on your shoulders. I do not drive even though my seizures

occur while asleep, I do not want to chance hurting someone else.

People with epilepsy who choose to be stupid I do not feel sorry for,

I do feel for their family. I have been through 2 brain surgeries so

fellow epileptics get no sympathy from me. I feel family of the

epileptic go through more stress than the epileptic. Stay tough.

good luck,

solo_loner

> My brother is 26 years old and he was in a bad car accident 1 year

> ago. He had 3 seizures the night of the accident and was put on

> Dylantin. Since then he has had 2 majors seizures. One last week

> and one 6 months ago. He drinks a lot every day and smokes

weed.

> I am slowly watching him kill himself. He is going to get an MRI

> tonight although he has had one before and they couldn't find

> anything. He parties so much he forgets to take his medicine and

> then has a seizure. Does anyone know what I can do to help

him.

> Last week the paramedics told me that if he continues to have

> seizures and has them back to back he can become a vegetable. Is

> there any sort of program he can get into?? Does anyone know where

> I can turn to for help??

> Thank You

> Ron's sister

August 30, 2003

In a message dated 8/30/2003 9:59:00 AM Central Daylight Time,

loree5@... writes:

> My nephew Garmhausen has been kidnapped by his father Pat

> Garmhausen. Pat is divorced from sister Debbie. He had him for his week

> " vacation " and he didn't return and they are no where to be found. They were

last

> seen in Buffalo, NY last Sunday night. Pat was being investigated for another

> felony in recent months. He is about 6'4 " , 200lbs, brown hair, brown

> eyes.

>

> is 5 1/2 (will be 6 in Oct). He is 51 " , 55lbs, brown hair, brown

> eyes.

>

> I have attached a picture of both of them.

>

> PLEASE forward this email (DONT FORGET THE ATTACHMENT) to everyone in your

> address book and ask them to do the same. If you know anyone back east, NY,

> Canada or Ireland please make it a priority to email to them especially.

> Anything will help.

> My sister's number is 631-698-1289.... Thank you!

>

> Colleen Corridan Lienhard

> 4301 N. Paseo de Los Rancheros

> Tucson, AZ 85745

> home:(520)743-8891

> cell: (520)906-7150

> cell email: 5209067150@...

>

> [unable to display image]

August 30, 2003

Fwd: PLEASE HELP!!

Loree

my daughter's email attached with pictures of and father.

Loretta

lcorridan@...

March 9, 2009

She's sleeping....Do I wake her up & give her coffee? Jenn L

PLEASE HELP!!

Vaccinations

> HOMEOPATHIC OVERDOSE!!

> First I need to apologize for using the vax group for this but

> the OT group isn't replying & I feel I need help/info. right now

> if anyone is listening. I have tried to reach our homeopath but

> it's getting late. My daughter ate about 8 pellets of aconite

> 200c I think. She has been screaming out, very irritable, very

> thirsty, sleeping right now but keeps waking up screaming &

> yelling. I asked her what was wrong but she didn't/couldn't tell

> me. She is having pain or something down there where she keeps

> her legs crossed tightly & sometimes holds herself very tightly

> with hands when awake. Is there anything I can give her or do to

> help her if she ate those pellets? She already has bad kidneys &

> I'm scared. Jenn L

>

March 9, 2009

I'm on the phone with poison control now....