verbal stimming

May 9, 2004

Rita, why did you stop Straterra? Pat K

May 9, 2004

My son seemed to be having some pretty intense mood swings. While it definitely helped him focus, transitions were VERY difficult, more so than usual. We tried it 1.5 yrs. ago when he was 4. Now that he's older and has matured and progressed a bit, we may try it again.

Ritapkuenstler@... wrote:

Rita, why did you stop Straterra? Pat K

June 18, 2009

Oh, wow. I thought we were the only ones who could connect barometric pressure

to bad behavior! Grayson is a big verbal stimmer, too. Right now his favorites

are: The guinea pig squeal they taught him at speech therapy (Why???). The line

" She's a fish killer " from Finding Nemo. And " So it's come to this... " from an

episode of Sponge Bob.

Do you find that snowstorms affect him, too? If they have snow where you are

from. You are so lucky that he will stay in the yard. Gray is a runner, very

severe, and if we could only get it through his head that if he would stay put

he could BE outside! But oh, no. He runs every chance he gets.

>

> My 18 year old son has no speech but is also a verbal stimmer...in fact he is

yelling in the back yard as I write this. The weather has a very profound affect

on him....it is very hot and humid with a heat index of over 100 degrees with a

storm brewing...these are perfect conditions for my son's worst

behavior...very stimmy, very OCD, very AUTISTIC! The barometric pressure has a

definite bearing...these are days I lock him down in the house unless I can stay

outside with him , as he does tend to wander more during these types of days.

He is now in the front yard where I can watch him.

>

> " Do not fear nor be dismayed for the Lord your God is with you ALWAYS! "

1:9

> " The mighty oak was once a NUT that stood it's ground. "

>

June 18, 2009

Lindy, how does communicate? I think the weather effects

Karac also. Karac does that loud yelling in the backyard in the

morning and in the evening. I think it is his way of decompressing.

How was your day? Love and blessings Pat K

verbal stimming

My 18 year old son has no speech but is also a verbal stimmer...in fact he is yelling in the back yard as I write this. The weather has a very profound affect on him....it is very hot and humid with a heat index of over 100 degrees with a storm brewing...these are perfect conditions for my son's worst behavior...very stimmy, very OCD, very AUTISTIC! The barometric pressure has a definite bearing...these are days I lock him down in the house unless I can stay outside with him , as he does tend to wander more during these types of days. He is now in the front yard where I can watch him.

"Do not fear nor be dismayed for the Lord your God is with you ALWAYS!" 1:9

"The mighty oak was once a NUT that stood it's ground."

Dell Days of Deals! June 15-24 - A New Deal Everyday!

June 18, 2009

We don't have snow storms, but when it does snow, Karac likes it.

He lived in New York the first two years of his life and loved playing

in the snow before he became autistic; so I think he has happy

memories of that. He and his dad use to make snow angels. His

Dad loved him back then.

's verbal stimmers are funny. Karac doesn't have any funny ones;

His are mostly angry words that have been said to him or others in his family.

I can always tell what has been going on at his house, and it makes me sad.

Pat K

Re: verbal stimming

Oh, wow. I thought we were the only ones who could connect barometric pressure to bad behavior! Grayson is a big verbal stimmer, too. Right now his favorites are: The guinea pig squeal they taught him at speech therapy (Why???). The line "She's a fish killer" from Finding Nemo. And "So it's come to this..." from an episode of Sponge Bob.

Do you find that snowstorms affect him, too? If they have snow where you are from. You are so lucky that he will stay in the yard. Gray is a runner, very severe, and if we could only get it through his head that if he would stay put he could BE outside! But oh, no. He runs every chance he gets.

>

> My 18 year old son has no speech but is also a verbal stimmer...in fact he is yelling in the back yard as I write this. The weather has a very profound affect on him....it is very hot and humid with a heat index of over 100 degrees with a storm brewing...these are perfect conditions for my son's worst behavior...very stimmy, very OCD, very AUTISTIC! The barometric pressure has a definite bearing...these are days I lock him down in the house unless I can stay outside with him , as he does tend to wander more during these types of days. He is now in the front yard where I can watch him.

>

> "Do not fear nor be dismayed for the Lord your God is with you ALWAYS!" 1:9

> "The mighty oak was once a NUT that stood it's ground."

>

Dell Days of Deals! June 15-24 - A New Deal Everyday!

March 5, 2010

It might not be 'stimming' in the sense of regulating a sensory process. It

might be a verbal rehearsal to organise ideas. I encouraged my son to talk when

he was younger, even if it meant him reciting entire scripts of tv shows, in

order to develop his speech and sentence structure and understanding of

narrative. Then we began to say 'could we finish this later?'and would split

the story into two parts. He was about nine before he could postpone the end of

the story without getting upset. Now he's 11 he can summarise pretty succinctly,

doesn't mind interruptions etc.

I sometimes let him ramble on, but have found that I don't find it uncomfortable

if I'm doing something mindless at the same time - like ironing, or we're out

for a walk. He's now well aware that other people find it hard to listen for

long periods, just as he does.

I would see this astonishing memory as a 'strength' and would channel it in a

useful direction.

Sue

>

> Hi everyone, as I have said before, things are moving well in our recovery of

Leeboy junior. I am now looking to address the issue of verbal stimming. My boy

is 8 yeras old and he is semi-verbal, good at asking for stuff and just starting

to say thinks like " look at this daddy " and generally drawing attention to stuff

he likes or wants.

> He will verbally stim on whatever his favourite thing is at the moment.

Currently it is Mr Maker. He will recite the script from what he hears on the

website or TV but next wee kit will be something else. We have looked at

diverting his attention and just asking him to stop " babbling " as we call it but

although he tries hard he can't seem to stop it. We have tried ignoring it but

as it is does not appear to be attention seeking this hasn't worked either.

>

> I have done the ABA style before and after analysis and there doesn't seem to

be a pattern for the behaviour that I can pick up.

> It is sometimes worse in the evening but I can't put it 100% down to

tiredness. Sandy and Tim mentioned in their presentation at conference using

Atermesia, I tried this but saw no real change. I probably need a clear protocol

on using this.

>

> I am aware of the need for him to stimm to calm himself but he does it even if

he isn't under stress and seems to do it when he is otherwise generally happy.

>

> I don't think this will be cured by behaviour modification and as he tolerates

supplements well I was wondering if there is anything out there you good people

have tried that has worked.

> As always I never rule anything out, so feel free to suggest!

>

> thanks for your help in advance,

> keep the faith,

>

> Phil

>

March 6, 2010

Hi there

We had a lot of this. I think it is to do with the fact that some children

don't acquire the " meta-language " to communicate ideas. So as the other poster

said, its the fact that they want to share what they are thinking visually but

don't have the reference kind of language to dress up their communication, such

as " that video was really good Mum, so and so did this, etc " . But they still

want to share and talk about it (a positive sign). We reduced a lot of our

son's echolalia by saying " Oh you're talking about Shrek, I remember that

bit...and taught him how to respond to " Where's that from? " when we knew he was

scripting. He hardly does it at all now, its gradually being replaced by more

functional language. But occasionally it still crops up and it is usually when

he is a)ill b)on antibiotics or c)not giving full attention.

But possibly scripting (I don't like that term and I don't know why, it makes me

uncomfortable for some reason) serves another purpose i.e. becomes a stim when

it is exclusive and the speaker is in retreat from the world (like most stims)

and overly repetitive, - that's how we view it here but everyone is different.

And it is very hard to tell with a lot of kids particularly those with high

sensory needs/not a wide profile of skills to occupy themselves.

There's a lot of research (let me know if you want me to email) which shows how

verbal stimming decreased when play skills were increased, there was a strong

correlation.

I met a boy who had nothing but echolalia at age 7 again at age 9 and he was

speaking beautifully. I was so pleased for his Mum, she said she found this

aspect of his autism had been particularly hard on her - I agree, this is

something I found it hard to accept.

Eileen

> >

> > Hi everyone, as I have said before, things are moving well in our recovery

of Leeboy junior. I am now looking to address the issue of verbal stimming. My

boy is 8 yeras old and he is semi-verbal, good at asking for stuff and just

starting to say thinks like " look at this daddy " and generally drawing attention

to stuff he likes or wants.

> > He will verbally stim on whatever his favourite thing is at the moment.

Currently it is Mr Maker. He will recite the script from what he hears on the

website or TV but next wee kit will be something else. We have looked at

diverting his attention and just asking him to stop " babbling " as we call it but

although he tries hard he can't seem to stop it. We have tried ignoring it but

as it is does not appear to be attention seeking this hasn't worked either.

> >

> > I have done the ABA style before and after analysis and there doesn't seem

to be a pattern for the behaviour that I can pick up.

> > It is sometimes worse in the evening but I can't put it 100% down to

tiredness. Sandy and Tim mentioned in their presentation at conference using

Atermesia, I tried this but saw no real change. I probably need a clear protocol

on using this.

> >

> > I am aware of the need for him to stimm to calm himself but he does it even

if he isn't under stress and seems to do it when he is otherwise generally

happy.

> >

> > I don't think this will be cured by behaviour modification and as he

tolerates supplements well I was wondering if there is anything out there you

good people have tried that has worked.

> > As always I never rule anything out, so feel free to suggest!

> >

> > thanks for your help in advance,

> > keep the faith,

> >

> > Phil

> >

>

March 10, 2010

Hi and thanks for the great replies! Lots to consider here, most of the time he

is finds it fairly easy to communicate his likes and disslikes and with a bit of

effort we can get a fairly sensible two way conversation going.

The reason I think he is stimming is that he will lay in bed at night and go at

it for 30-45 minutes before he goes to sleep some nights unless he is really

tired. Looking over my notes from when I did an ABA style analysis of it, the

only thing I picked up sometimes was that he would do it when he wasn't

stimulated by something else. This was usually when he was finished on the PC or

wasn't interested in the programme on TV etc. He does appear to need constant

stimulation.

I know he does it sometimes at school and his LSA who is great and didn't know

much about autism when she started with him three years ago, just treats it his

way of telling her what he likes.

When he is scripting he doesn't look you in the eye and this is when he seems

most autistic and far away which is probably why we find it upsetting.

Anyway you people are great and I will take on board your generous advice,

ultimately it's communication of some form and I know a couple of parents who

would be grateful for speech of any sort. We would have been too at one point

when he was totally non verbal but you can soon forget the milestones. I am so

glad I write this stuff down so it reminds me to be grateful for what he has

achieved through us using this biomed stuff when the rest of " professionals "

tell you it doesn't work.

I know a solution will come, I'm just looking to see what action I can take to

move it along!

Thanks again everyone,

Phil

" What we do for ourselves dies with us.

What we do for others and

the world remains and is immortal. "

Albert Pine

> > >

> > > Hi everyone, as I have said before, things are moving well in our recovery

of Leeboy junior. I am now looking to address the issue of verbal stimming. My

boy is 8 yeras old and he is semi-verbal, good at asking for stuff and just

starting to say thinks like " look at this daddy " and generally drawing attention

to stuff he likes or wants.

> > > He will verbally stim on whatever his favourite thing is at the moment.

Currently it is Mr Maker. He will recite the script from what he hears on the

website or TV but next wee kit will be something else. We have looked at

diverting his attention and just asking him to stop " babbling " as we call it but

although he tries hard he can't seem to stop it. We have tried ignoring it but

as it is does not appear to be attention seeking this hasn't worked either.

> > >

> > > I have done the ABA style before and after analysis and there doesn't seem

to be a pattern for the behaviour that I can pick up.

> > > It is sometimes worse in the evening but I can't put it 100% down to

tiredness. Sandy and Tim mentioned in their presentation at conference using

Atermesia, I tried this but saw no real change. I probably need a clear protocol

on using this.

> > >

> > > I am aware of the need for him to stimm to calm himself but he does it

even if he isn't under stress and seems to do it when he is otherwise generally

happy.

> > >

> > > I don't think this will be cured by behaviour modification and as he

tolerates supplements well I was wondering if there is anything out there you

good people have tried that has worked.

> > > As always I never rule anything out, so feel free to suggest!

> > >

> > > thanks for your help in advance,

> > > keep the faith,

> > >

> > > Phil

> > >

> >

>

October 16, 2010

> yes, I think sometimes it's caused by stress - and maybe a way of

> blocking you or the world out due to sensory overload.

Im inclined to agree with this analysis as well. i talk with my

playmobils and to the untrained

eye they seem like gibberish but if they listen carefully im

verbalising what people in real life

might be thinking. So for example my mum is overloading gran with her

caring comments so i will

pick up grans playperson and say " dont fuss " . i also talk through my

playmobil person when im

embarrassed about what im going to say.

> It may also be a way of communicating. Some of our kids have not just

> language delay but a language disorder - my son certainly has. He uses

> chunks of films and books, etc like a phrase book and tries to put them

> in the right context. For example if it's snowing he might say " Maisy

> saw a beautiful snowy day'. " When he's tired he says 'Jonathon's tired'

> this is from Something Special, his name's Tom not Jonathon.

" Delayed echolalia " according to Olga Bogdashinas book on " Communication

issues in autism and asperger syndrome " is to do when a child remembers

something later on and communicates that memory. It is often out of context

and could explain why toilet training and autism is difficult?

> As communicating is so hard for our kids it's important to accept these

> for what they are - real attempts at communication. Sometimes it's out

> of context but it's his way of telling us that he's thinking about that

> film or book and that he likes it.

Like the rainman asking someone if they are on any medication to indicate

that he liked them?

> In either case, whether a sign of stress or an attempt at communication,

> it's important not to try to stop it - just go with it and answer it/join it.

Or increase b12 and other cognitive functional supplements to aid her attempt

at communication.

--

is

October 16, 2010