Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Hey all... i am home! Doc is very concerned as i am wheezing worse yet the x-ray looks better. Just started downhill yesterday or so, though. He debated putting me back in, knows how i would react. I am home with the promise to call in asap if i get worse, especially that side pain. I am still on the anti-biotics for another week. Sounds fair, i like that he is treating me like a grown up. I am exhausted and happy. Have fun, and thanks for all the luck. I have a feeling that helped more than we could know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Hey ! Do you think that your mind could be playing tricks on you? Just looking for something? What does your husband notice? Are you going to post some photos? I would love to see Cece anyway. If there is anything I can do, please ask, I've missed you! Natasha > Hello. I posted a couple months ago that my daughter Cece was diagnosed with tort. I even bragged about how great her head looked. Our son Dane was banded as an infant so this is a road we've traveled before. Well despite my best intentions she is getting some flatness. I didn't notice any asymmetries until yesterday. It looks as though her ears are uneven. I'll have to get her measured Friday while she's at PT. She seemed to look better last week but worse again this week. I am probably just focusing too much on it! > > I have been so dutiful about keeping her off her head. We took our older kids out of preschool in April. Since then I've had to lean on the bouncy chair a little (not much at all). That seems to have started the problem. I'm trying not to go anywhere as I don't want her getting any damage in the car seat. This morning I had to take her to the hospital for tests for her vesicoureteral reflux. Of course I got lost and all I kept thinking was that I needed to get her out of the car seat so her head didn't get any flatter. > > Ah, this is all so frustrating. Her plagio is nowhere near as bad as Dane's so it will be a harder decision. He had glaring asymmetries as well. If our insurance would pay for it she'd be casted this weekend. Going through this before I know it's not a painful thing and gave me incredible peace of mind. Our new ped is very interested in the DOC Band. She asked to see Dane's and was very impressed. She actually had a hard time believing he ever had a problem because his head isn't flat at all anymore. I'd love her to see how well it works firsthand just not at the expense of my wallet! We have had a boatload of medical bills in the past year and our policy isn't very generous! They denied Dane's band so I expect that would happen again especially since it' not " that " bad. > > I'm sure she's an excellent candidate for repositioning but my gosh I'll give myself an ulcer worrying about this for several months! Since we have 2 older children I planned lots of summer outings. I don't want to sit at home because I'm worried about Cece's head getting flat in the car seat! I remember how much better I slept when we decided to band Dane. It ended my worrying about his head getting worse. > > I'm also worrying that she won't be in the band for very long. I know that's a stupid thing to worry about but I'm thinking of regression since she's still so tiny. She is 4 months and not even 12 pounds! I guess I could wait a month or two. If I could just take the worrying out of the equation I'd feel so much better. If she needs it she'll get it. I guess I'll get more concrete info when she gets measured. My guess is that she falls into the gray area. > > Sorry for the stream of consciousness and all the worrying. I really expected we'd avoid this with Cece since I had experience with it before. She must have a very malleable skull. > > Thanks for listening to crazy ranting! > > > > Expecting? Consider umbilical cord blood banking > Ask me why we banked or call > 1.888.758.5115 to get more information. > Code 1030 is worth $255 off until 5/16/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Hi , Gosh, I'm sorry to see you posting this. Like Natasha said, I hope your mind is playing tricks on you! Have you tried taking pictures from above yet? Let us know what they say at her PT appt Friday. Thats great that she is so young and it sounds like you're doing what you can to keep her off her head. Hopefully it won't get any worse and instead starts to look better for you! I remember what you're saying about what a relief it was when I decided to band Hannah and not to have to worry about it again. As far as the regression goes, CT told me that it isn't necessarily age that makes a baby regress. My Hannah didn't have tort and regressed after graduating at 11 mos and we rebanded her at 15.5 mos. They said it isn't known why some babies regress. So, maybe you can try and worry a little less about that, lol. Please keep us posted on what you decide to do with Cece. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > Hello. I posted a couple months ago that my daughter Cece was diagnosed with tort. I even bragged about how great her head looked. Our son Dane was banded as an infant so this is a road we've traveled before. Well despite my best intentions she is getting some flatness. I didn't notice any asymmetries until yesterday. It looks as though her ears are uneven. I'll have to get her measured Friday while she's at PT. She seemed to look better last week but worse again this week. I am probably just focusing too much on it! > > I have been so dutiful about keeping her off her head. We took our older kids out of preschool in April. Since then I've had to lean on the bouncy chair a little (not much at all). That seems to have started the problem. I'm trying not to go anywhere as I don't want her getting any damage in the car seat. This morning I had to take her to the hospital for tests for her vesicoureteral reflux. Of course I got lost and all I kept thinking was that I needed to get her out of the car seat so her head didn't get any flatter. > > Ah, this is all so frustrating. Her plagio is nowhere near as bad as Dane's so it will be a harder decision. He had glaring asymmetries as well. If our insurance would pay for it she'd be casted this weekend. Going through this before I know it's not a painful thing and gave me incredible peace of mind. Our new ped is very interested in the DOC Band. She asked to see Dane's and was very impressed. She actually had a hard time believing he ever had a problem because his head isn't flat at all anymore. I'd love her to see how well it works firsthand just not at the expense of my wallet! We have had a boatload of medical bills in the past year and our policy isn't very generous! They denied Dane's band so I expect that would happen again especially since it' not " that " bad. > > I'm sure she's an excellent candidate for repositioning but my gosh I'll give myself an ulcer worrying about this for several months! Since we have 2 older children I planned lots of summer outings. I don't want to sit at home because I'm worried about Cece's head getting flat in the car seat! I remember how much better I slept when we decided to band Dane. It ended my worrying about his head getting worse. > > I'm also worrying that she won't be in the band for very long. I know that's a stupid thing to worry about but I'm thinking of regression since she's still so tiny. She is 4 months and not even 12 pounds! I guess I could wait a month or two. If I could just take the worrying out of the equation I'd feel so much better. If she needs it she'll get it. I guess I'll get more concrete info when she gets measured. My guess is that she falls into the gray area. > > Sorry for the stream of consciousness and all the worrying. I really expected we'd avoid this with Cece since I had experience with it before. She must have a very malleable skull. > > Thanks for listening to crazy ranting! > > > > Expecting? Consider umbilical cord blood banking > Ask me why we banked or call > 1.888.758.5115 to get more information. > Code 1030 is worth $255 off until 5/16/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 Hi . Nice to meet you. I'm so sorry to hear that you are down this road again. It sounds like you are very knowledgeable though and with all of the great repo help in our files now, hopefully you can avoid the helmet. But it's great that you know it is not as big of a deal as it seems to us that had never faced it before. Best wishes and I look forward to hearing your updates. Sue Colin F., 19 mos. STARband grad brachy > Hello. I posted a couple months ago that my daughter Cece was diagnosed with tort. I even bragged about how great her head looked. Our son Dane was banded as an infant so this is a road we've traveled before. Well despite my best intentions she is getting some flatness. I didn't notice any asymmetries until yesterday. It looks as though her ears are uneven. I'll have to get her measured Friday while she's at PT. She seemed to look better last week but worse again this week. I am probably just focusing too much on it! > > I have been so dutiful about keeping her off her head. We took our older kids out of preschool in April. Since then I've had to lean on the bouncy chair a little (not much at all). That seems to have started the problem. I'm trying not to go anywhere as I don't want her getting any damage in the car seat. This morning I had to take her to the hospital for tests for her vesicoureteral reflux. Of course I got lost and all I kept thinking was that I needed to get her out of the car seat so her head didn't get any flatter. > > Ah, this is all so frustrating. Her plagio is nowhere near as bad as Dane's so it will be a harder decision. He had glaring asymmetries as well. If our insurance would pay for it she'd be casted this weekend. Going through this before I know it's not a painful thing and gave me incredible peace of mind. Our new ped is very interested in the DOC Band. She asked to see Dane's and was very impressed. She actually had a hard time believing he ever had a problem because his head isn't flat at all anymore. I'd love her to see how well it works firsthand just not at the expense of my wallet! We have had a boatload of medical bills in the past year and our policy isn't very generous! They denied Dane's band so I expect that would happen again especially since it' not " that " bad. > > I'm sure she's an excellent candidate for repositioning but my gosh I'll give myself an ulcer worrying about this for several months! Since we have 2 older children I planned lots of summer outings. I don't want to sit at home because I'm worried about Cece's head getting flat in the car seat! I remember how much better I slept when we decided to band Dane. It ended my worrying about his head getting worse. > > I'm also worrying that she won't be in the band for very long. I know that's a stupid thing to worry about but I'm thinking of regression since she's still so tiny. She is 4 months and not even 12 pounds! I guess I could wait a month or two. If I could just take the worrying out of the equation I'd feel so much better. If she needs it she'll get it. I guess I'll get more concrete info when she gets measured. My guess is that she falls into the gray area. > > Sorry for the stream of consciousness and all the worrying. I really expected we'd avoid this with Cece since I had experience with it before. She must have a very malleable skull. > > Thanks for listening to crazy ranting! > > > > Expecting? Consider umbilical cord blood banking > Ask me why we banked or call > 1.888.758.5115 to get more information. > Code 1030 is worth $255 off until 5/16/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 Hi . Nice to meet you. I'm so sorry to hear that you are down this road again. It sounds like you are very knowledgeable though and with all of the great repo help in our files now, hopefully you can avoid the helmet. But it's great that you know it is not as big of a deal as it seems to us that had never faced it before. Best wishes and I look forward to hearing your updates. Sue Colin F., 19 mos. STARband grad brachy > Hello. I posted a couple months ago that my daughter Cece was diagnosed with tort. I even bragged about how great her head looked. Our son Dane was banded as an infant so this is a road we've traveled before. Well despite my best intentions she is getting some flatness. I didn't notice any asymmetries until yesterday. It looks as though her ears are uneven. I'll have to get her measured Friday while she's at PT. She seemed to look better last week but worse again this week. I am probably just focusing too much on it! > > I have been so dutiful about keeping her off her head. We took our older kids out of preschool in April. Since then I've had to lean on the bouncy chair a little (not much at all). That seems to have started the problem. I'm trying not to go anywhere as I don't want her getting any damage in the car seat. This morning I had to take her to the hospital for tests for her vesicoureteral reflux. Of course I got lost and all I kept thinking was that I needed to get her out of the car seat so her head didn't get any flatter. > > Ah, this is all so frustrating. Her plagio is nowhere near as bad as Dane's so it will be a harder decision. He had glaring asymmetries as well. If our insurance would pay for it she'd be casted this weekend. Going through this before I know it's not a painful thing and gave me incredible peace of mind. Our new ped is very interested in the DOC Band. She asked to see Dane's and was very impressed. She actually had a hard time believing he ever had a problem because his head isn't flat at all anymore. I'd love her to see how well it works firsthand just not at the expense of my wallet! We have had a boatload of medical bills in the past year and our policy isn't very generous! They denied Dane's band so I expect that would happen again especially since it' not " that " bad. > > I'm sure she's an excellent candidate for repositioning but my gosh I'll give myself an ulcer worrying about this for several months! Since we have 2 older children I planned lots of summer outings. I don't want to sit at home because I'm worried about Cece's head getting flat in the car seat! I remember how much better I slept when we decided to band Dane. It ended my worrying about his head getting worse. > > I'm also worrying that she won't be in the band for very long. I know that's a stupid thing to worry about but I'm thinking of regression since she's still so tiny. She is 4 months and not even 12 pounds! I guess I could wait a month or two. If I could just take the worrying out of the equation I'd feel so much better. If she needs it she'll get it. I guess I'll get more concrete info when she gets measured. My guess is that she falls into the gray area. > > Sorry for the stream of consciousness and all the worrying. I really expected we'd avoid this with Cece since I had experience with it before. She must have a very malleable skull. > > Thanks for listening to crazy ranting! > > > > Expecting? Consider umbilical cord blood banking > Ask me why we banked or call > 1.888.758.5115 to get more information. > Code 1030 is worth $255 off until 5/16/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 , I am sorry to hear that you are in such turmoil, I know that feeling( I have four). Are you sure it's not the tort causing the asymmetry? Because I had to rely on the seat somewhat before the band, we put a piece of memory foam(cut in an arch shape) behind Dominick's head to try and help reduce the pressure, maybe that will help and ease your mind. I remember worrying about every time I set him down too, but you just can't hold them all the time. Let us know how it goes with the measurements. CAROLG > Hello. I posted a couple months ago that my daughter Cece was diagnosed with tort. I even bragged about how great her head looked. Our son Dane was banded as an infant so this is a road we've traveled before. Well despite my best intentions she is getting some flatness. I didn't notice any asymmetries until yesterday. It looks as though her ears are uneven. I'll have to get her measured Friday while she's at PT. She seemed to look better last week but worse again this week. I am probably just focusing too much on it! > > I have been so dutiful about keeping her off her head. We took our older kids out of preschool in April. Since then I've had to lean on the bouncy chair a little (not much at all). That seems to have started the problem. I'm trying not to go anywhere as I don't want her getting any damage in the car seat. This morning I had to take her to the hospital for tests for her vesicoureteral reflux. Of course I got lost and all I kept thinking was that I needed to get her out of the car seat so her head didn't get any flatter. > > Ah, this is all so frustrating. Her plagio is nowhere near as bad as Dane's so it will be a harder decision. He had glaring asymmetries as well. If our insurance would pay for it she'd be casted this weekend. Going through this before I know it's not a painful thing and gave me incredible peace of mind. Our new ped is very interested in the DOC Band. She asked to see Dane's and was very impressed. She actually had a hard time believing he ever had a problem because his head isn't flat at all anymore. I'd love her to see how well it works firsthand just not at the expense of my wallet! We have had a boatload of medical bills in the past year and our policy isn't very generous! They denied Dane's band so I expect that would happen again especially since it' not " that " bad. > > I'm sure she's an excellent candidate for repositioning but my gosh I'll give myself an ulcer worrying about this for several months! Since we have 2 older children I planned lots of summer outings. I don't want to sit at home because I'm worried about Cece's head getting flat in the car seat! I remember how much better I slept when we decided to band Dane. It ended my worrying about his head getting worse. > > I'm also worrying that she won't be in the band for very long. I know that's a stupid thing to worry about but I'm thinking of regression since she's still so tiny. She is 4 months and not even 12 pounds! I guess I could wait a month or two. If I could just take the worrying out of the equation I'd feel so much better. If she needs it she'll get it. I guess I'll get more concrete info when she gets measured. My guess is that she falls into the gray area. > > Sorry for the stream of consciousness and all the worrying. I really expected we'd avoid this with Cece since I had experience with it before. She must have a very malleable skull. > > Thanks for listening to crazy ranting! > > > > Expecting? Consider umbilical cord blood banking > Ask me why we banked or call > 1.888.758.5115 to get more information. > Code 1030 is worth $255 off until 5/16/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 , I am sorry to hear that you are in such turmoil, I know that feeling( I have four). Are you sure it's not the tort causing the asymmetry? Because I had to rely on the seat somewhat before the band, we put a piece of memory foam(cut in an arch shape) behind Dominick's head to try and help reduce the pressure, maybe that will help and ease your mind. I remember worrying about every time I set him down too, but you just can't hold them all the time. Let us know how it goes with the measurements. CAROLG > Hello. I posted a couple months ago that my daughter Cece was diagnosed with tort. I even bragged about how great her head looked. Our son Dane was banded as an infant so this is a road we've traveled before. Well despite my best intentions she is getting some flatness. I didn't notice any asymmetries until yesterday. It looks as though her ears are uneven. I'll have to get her measured Friday while she's at PT. She seemed to look better last week but worse again this week. I am probably just focusing too much on it! > > I have been so dutiful about keeping her off her head. We took our older kids out of preschool in April. Since then I've had to lean on the bouncy chair a little (not much at all). That seems to have started the problem. I'm trying not to go anywhere as I don't want her getting any damage in the car seat. This morning I had to take her to the hospital for tests for her vesicoureteral reflux. Of course I got lost and all I kept thinking was that I needed to get her out of the car seat so her head didn't get any flatter. > > Ah, this is all so frustrating. Her plagio is nowhere near as bad as Dane's so it will be a harder decision. He had glaring asymmetries as well. If our insurance would pay for it she'd be casted this weekend. Going through this before I know it's not a painful thing and gave me incredible peace of mind. Our new ped is very interested in the DOC Band. She asked to see Dane's and was very impressed. She actually had a hard time believing he ever had a problem because his head isn't flat at all anymore. I'd love her to see how well it works firsthand just not at the expense of my wallet! We have had a boatload of medical bills in the past year and our policy isn't very generous! They denied Dane's band so I expect that would happen again especially since it' not " that " bad. > > I'm sure she's an excellent candidate for repositioning but my gosh I'll give myself an ulcer worrying about this for several months! Since we have 2 older children I planned lots of summer outings. I don't want to sit at home because I'm worried about Cece's head getting flat in the car seat! I remember how much better I slept when we decided to band Dane. It ended my worrying about his head getting worse. > > I'm also worrying that she won't be in the band for very long. I know that's a stupid thing to worry about but I'm thinking of regression since she's still so tiny. She is 4 months and not even 12 pounds! I guess I could wait a month or two. If I could just take the worrying out of the equation I'd feel so much better. If she needs it she'll get it. I guess I'll get more concrete info when she gets measured. My guess is that she falls into the gray area. > > Sorry for the stream of consciousness and all the worrying. I really expected we'd avoid this with Cece since I had experience with it before. She must have a very malleable skull. > > Thanks for listening to crazy ranting! > > > > Expecting? Consider umbilical cord blood banking > Ask me why we banked or call > 1.888.758.5115 to get more information. > Code 1030 is worth $255 off until 5/16/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 I will not miss the woman's self-righteousness. S. > > > > I agree with and Harold. I read the email from D and > didn't > > see it as promoting a product of hers. > > > a > > There is a history of it, a. > > S. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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