Re: low functioning autism question

[Guest guest]

I have had some e-mails with parents that have been successful-talk to dana at

danasview or Christel or Cheryl----some of these guys have been doing this long

before me---only three years---the clostridia in my then 4 yr old was like Dr

Jeckle and Mr Hide---I was told my a parent that knew what they were doing to

start using the Culturelle--not sure if spelled right and since then have never

stopped giving it to my child--except when rotate or give with Sac bour.

probio.  God Bless.

________________________________

From: calbenillie <teshgoen@...>

Sent: Sat, September 11, 2010 10:53:29 PM

Subject: [ ] low functioning autism question

 

Hi

Does anyone know of any child that has gone from low-functioning autism to

functioning or even high-functioning at an older age. My son is 12 almost 13

what can I do. We've found out he has very high levels of clostridia.

Thanks

Helen

[Guest guest]

> Does anyone know of any child that has gone from low-functioning autism to

functioning or even high-functioning at an older age. My son is 12 almost 13

what can I do.

My son was dx " classic Kanner's autism, severe, low functioning " when he was age

3.

Today he is 14, no longer autistic, but not yet age-appropriate.

I need to update this, but here is his story

http://www.danasview.net/myson.htm

>>We've found out he has very high levels of clostridia.

Try OLE and Culturelle.

Dana

[Guest guest]

My son was diagnosed as moderate/severe. We " knew " pretty much immediately

after vaccination, but his ped kept telling us we were " imagining things. "

By age two, a speech and language center suggested autism to us, but this

only confirmed what we believed. Of course we went from doctor to doctor,

and each gave various diagnosis: autism, PDD, PDD-NOS....blah blah blah;

it's all the same thing. Back then they didn't want to diagnosis them

early. My opinion is they wanted to put as much time between vaccination

and diagnosis as possible so they could exonerate their god.

My son was on the severe side with all loss of speech, severe stomach

problems, debilitating constipation resulting in impaction and subsequent

mega colon, severe staring spells, toe walking, spinning, stimming, hand

flapping, OCD, severe and frequent tantrums, running and throwing himself up

against the end of the hall so hard he would fall down, severe sleep

disturbance, development of frequent infections (he would get an infection

with fever like clock-work every two weeks [every now and then he would go

three weeks]),(the infections were almost always respiratory), development

of asthma, chronic bronchitis and chronic pneumonia, looking out the side of

his eyes, tremors with nystagmus, little to no eye contact, and going limp

when I tried to pick him up.

If this wasn't severe, I don't know what is, but I know there are a lot of

kids who were worse off than my son.

We began intervention when our son was two (right after the Callier Center

suggested autism to us). We started by cleaning up his diet. ECI suggested

the gf/cf diet to us. We took away casein first, and my son went through

horrible withdrawal for three weeks. I cried every day and was exhausted by

the end of the day. We wound up taking away gluten and soy too, using a

rotation diet, eliminating fillers, additives, dyes, preservatives etc... We

still look for ways to continue to improve his diet.

We added supplementation. ALC is very important, I think. We also used

behavioral interventions and play therapy. I (or his dad) was " in his

business " all the time. He was treated with IM broad spectrum antibiotics

followed by oral for ten days and on the fourth day, at age two, he said all

the words he had known before regression. He regressed somewhat after being

taken off antibiotics. At age three we removed soy protein. four days

later, he said his first sentence. Upon testing, his copper levels were

found to be high, 's was ruled out, but he has been on zinc e

supplementation ever since to keep his copper levels in check.

We did IV chelation for seven months using Dmps or DMSA or a combination of

EDTA/DMPS, but he had a reaction and we stopped. This past June we IV

chelated with only EDTA IV, and on the third round, he had an asthma attack

again. We stopped. We would only chelate with the AC protocol if we

chelate again (and we will probably using ALA alone). Chelation id bring

gains

We have continued diet, metabolic, behavioral, and therapeutic interventions

ever since. He has steadily improved with ups and downs along the way. He

will be eleven in December. He re-gained all forms of speech:receptive,

expressive, and reciprocal. He emerged.

He is " genuine. " He is pragmatic but has a good sense of humor and loves to

make people laugh. He is imaginative and engages in pretend play. He is a

whiz on the computer and uses a " Sketch Up " program to design buildings

inside and out and he is very detailed (his latest is a hotel). He is very

creative.

He is high functioning, but it didn't happen over night. There were " Wow!

moments, and there were times of regression or plateau. I believe you can

start treating at any age and than improvement is possible. Whether you get

the gains you want cannot be guaranteed, but cleaning up the diet, removing

chemicals, adding supplements, chelation, and interventions are all good

things to improve the quality of life for your child. You will not know

until you try. Ten years down the road you can still be wondering, " Is it

possible? " or You can say, " It worked, " or you can say, " I know at least I

tried. "

I decided a long time ago that down the road I wanted to know that I tried.

My son still has a long road to go. His immune issues are better, but still

ever present --He doesn't get the infections every two weeks anymore, but he

is still prone to lung infections and he is prone to cellulitis, but we keep

forging ahead and looking for answers.

I do know that I will find the answer here, on this forum, if there is an

answer to be had.

I pray you will succeed.

[Guest guest]

>

> Hi

> Does anyone know of any child that has gone from low-functioning autism to

functioning or even high-functioning at an older age. My son is 12 almost 13

what can I do. We've found out he has very high levels of clostridia.

>

> Thanks

> Helen

>

My oldest is faceblind and has a long list of other issues. Faceblindness is

something fairly often seen with severe autism, not usually associated with

asperger's. I began intervention when he was still quite young on the

assumption that I only had until he was about 7, when the brain stops growing,

to do anything. But he saw a lot of gains well after that and some of the most

meaningful leaps forward came at ages 9, 14, and 16. He is 23. He is not

" normal " (for one thing he has an incurable genetic disorder). But he is

healthy and I expect him to have a full and happy life.

Curing infection did a great deal for him. So just start by treating the

clostridia. Dana has already made some specific suggestions. It is not a bug I

am personally familiar with, so I would recommend you start with her

suggestions. If those don't work, there are quite a lot of other options for

getting infection under control, which has been a main focus for my family as

both I and my oldest son have a form of cystic fibrosis.

Good luck with this.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

[Guest guest]

Hi Haven,

When you say that your son had a reaction with DMSA IV, could you be specific on

that (on or off DMSA)? I'm glad to hear that your son has made progress in

recovering.

>

> My son was diagnosed as moderate/severe. We " knew " pretty much immediately

> after vaccination, but his ped kept telling us we were " imagining things. "

> By age two, a speech and language center suggested autism to us, but this

> only confirmed what we believed. Of course we went from doctor to doctor,

> and each gave various diagnosis: autism, PDD, PDD-NOS....blah blah blah;

> it's all the same thing. Back then they didn't want to diagnosis them

> early. My opinion is they wanted to put as much time between vaccination

> and diagnosis as possible so they could exonerate their god.

>

> My son was on the severe side with all loss of speech, severe stomach

> problems, debilitating constipation resulting in impaction and subsequent

> mega colon, severe staring spells, toe walking, spinning, stimming, hand

> flapping, OCD, severe and frequent tantrums, running and throwing himself up

> against the end of the hall so hard he would fall down, severe sleep

> disturbance, development of frequent infections (he would get an infection

> with fever like clock-work every two weeks [every now and then he would go

> three weeks]),(the infections were almost always respiratory), development

> of asthma, chronic bronchitis and chronic pneumonia, looking out the side of

> his eyes, tremors with nystagmus, little to no eye contact, and going limp

> when I tried to pick him up.

>

> If this wasn't severe, I don't know what is, but I know there are a lot of

> kids who were worse off than my son.

>

> We began intervention when our son was two (right after the Callier Center

> suggested autism to us). We started by cleaning up his diet. ECI suggested

> the gf/cf diet to us. We took away casein first, and my son went through

> horrible withdrawal for three weeks. I cried every day and was exhausted by

> the end of the day. We wound up taking away gluten and soy too, using a

> rotation diet, eliminating fillers, additives, dyes, preservatives etc... We

> still look for ways to continue to improve his diet.

>

> We added supplementation. ALC is very important, I think. We also used

> behavioral interventions and play therapy. I (or his dad) was " in his

> business " all the time. He was treated with IM broad spectrum antibiotics

> followed by oral for ten days and on the fourth day, at age two, he said all

> the words he had known before regression. He regressed somewhat after being

> taken off antibiotics. At age three we removed soy protein. four days

> later, he said his first sentence. Upon testing, his copper levels were

> found to be high, 's was ruled out, but he has been on zinc e

> supplementation ever since to keep his copper levels in check.

>

> We did IV chelation for seven months using Dmps or DMSA or a combination of

> EDTA/DMPS, but he had a reaction and we stopped. This past June we IV

> chelated with only EDTA IV, and on the third round, he had an asthma attack

> again. We stopped. We would only chelate with the AC protocol if we

> chelate again (and we will probably using ALA alone). Chelation id bring

> gains

>

> We have continued diet, metabolic, behavioral, and therapeutic interventions

> ever since. He has steadily improved with ups and downs along the way. He

> will be eleven in December. He re-gained all forms of speech:receptive,

> expressive, and reciprocal. He emerged.

>

> He is " genuine. " He is pragmatic but has a good sense of humor and loves to

> make people laugh. He is imaginative and engages in pretend play. He is a

> whiz on the computer and uses a " Sketch Up " program to design buildings

> inside and out and he is very detailed (his latest is a hotel). He is very

> creative.

>

> He is high functioning, but it didn't happen over night. There were " Wow!

> moments, and there were times of regression or plateau. I believe you can

> start treating at any age and than improvement is possible. Whether you get

> the gains you want cannot be guaranteed, but cleaning up the diet, removing

> chemicals, adding supplements, chelation, and interventions are all good

> things to improve the quality of life for your child. You will not know

> until you try. Ten years down the road you can still be wondering, " Is it

> possible? " or You can say, " It worked, " or you can say, " I know at least I

> tried. "

>

> I decided a long time ago that down the road I wanted to know that I tried.

>

> My son still has a long road to go. His immune issues are better, but still

> ever present --He doesn't get the infections every two weeks anymore, but he

> is still prone to lung infections and he is prone to cellulitis, but we keep

> forging ahead and looking for answers.

>

> I do know that I will find the answer here, on this forum, if there is an

> answer to be had.

>

> I pray you will succeed.

>

>

>

[Guest guest]

It's never too late for chelation. The AC method of chelation is very safe and

effective.

More than likely the clostridia is caused by an imbalance in his body caused by

mercury.

TJ

________________________________

From: calbenillie <teshgoen@...>

Sent: Sat, September 11, 2010 11:53:29 PM

Subject: [ ] low functioning autism question

 

Hi

Does anyone know of any child that has gone from low-functioning autism to

functioning or even high-functioning at an older age. My son is 12 almost 13

what can I do. We've found out he has very high levels of clostridia.

Thanks

Helen

[Guest guest]

>

> It's never too late for chelation.

People who were autistic since infancy have started chelation in adulthood and

achieved tremendous improvement.

>The AC method of chelation is very safe and

> effective.

> More than likely the clostridia is caused by an imbalance in his body caused

by

> mercury.

> TJ

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

[Guest guest]

> Does anyone know of any child that has gone from low-functioning autism to

> functioning or even high-functioning at an older age. My son is 12 almost 13

Actually yes I've heard this kind of improvement a lot.

You really can't know how much better you can make him. Maybe you can cure him.

Maybe no matter how hard you try, absolutely nothing will improve. The only way

to find out is start doing things and see.

The most common thing autistics respond to is chelation, and it is the most

helpful intervention when it works.

If you don't do it, the only thing you can be sure of is nobody else is going

to.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD