Anxiety decreased on AC chelation Was: Non Verbal kids

[Guest guest]

Hi,

I read Haven's description of her child's decreased anxiety and

stimming after child's removal from public school. Husband and I have

certainly considered this route for our son, and have not ruled it

out. However, I want to share our recent experience.

After our first " long round " (Friday through Monday) in late July,

son's anxiety decreased dramatically. For example, we were running

late a few days later and usually this would have sent son around the

bend. Instead, he remained calm and talked himself through it.

He began 5th grade a couple of weeks later -- the best start to a

school year he's ever had. Private ST, OT, and classroom teacher as

well as resource teacher all remarked on how calm he was (and still

is).

So for me, for now, the benefits of our particular public school

outweigh the negatives. AC chelation is the route for us. (STaying

ahead of the yeast is a constant battle.) I think it (and all the

wonderful advice and support from this board) is the way to recovery

for our son.

Thanks all.

[Guest guest]

,

Yes, if your child is receiving benefit from your school system, then that's

great! What I would give to have a good school and program! I tried fro

seven years only to find they just made up progress grades. How do you

trust them after that?

I, too, believe the anxiety and sound sensitivity will get better once we

start chelating again. I am proceeding cautiously. I want to re-read

Andy's book and then ask lots of questions.

After seven months of IV chelation in '06, our son had an asthma attack

after the treatment. It started about thirty minutes after the treatment.

The doctor said it was a coincidence. Yeah, where have I heard that before?

Then two weeks later, I was scared and we went back and had another

treatment, and the same thing happened --only this time, it snowballed into

pneumonia, which my son is prone to getting.

We had been chelating with EDTA/DMPS, and we saw much improvement, but the

reactions were frightening to us.

That was back in 06. Then this year, his lead levels showed high, so we

decided to just do chelation IV with EDTA. We did once a week for four

weeks, I think. My husband was with me on the fourth treatment, and usually

it is very hard to find a good vein on my son. It went easily and

smoothly. My husband was joking about how hard I always said it was. We

waited around the office a while, and then they said we could go. On the

freeway, stuck in traffic, my son began to have a pretty bad asthma attack.

We had to get out of the traffic and administer medication. I had the

doctor on the phone, and I was about to call 911 when the meds kicked in and

he was breathing better.

We got home and administered his other meds, and then he was fine, but I

would NEVER risk this again.

Also, after the first reactions in 06, our son developed some type of

allergy to some sulfa. He used to eat broccoli, but then broke out in hives

after eating it. Then for an infection he was but on Bactrim and he broke

out in hives, so now I am feel he cannot have any sulfa containing drugs.

No more broccoli, but he eats eggs with no problem. So I just don't

understand this.

Due to these reactions, we want to chelate using ALA alone. In the

meantime, we were to the point where we couldn't believe anything coming out

of the school's mouth anymore. they always have made promises and then do

not keep them. They always change one little thing and then say they are

going to buy such and such down the road in a couple of months and then they

don't buy it. He is too far behind his peers now, though he is capable of

reaching grade level. His spelling ability is probably above grade level,

and when he was four, he beat the school's fifth grade class in a geography

bee. Yet it has been fight, fight, fight to get them to not label him

" retarded. " He has never been diagnosed as MR, but that is exactly how they

have treated him.

When I explained to the parent of some NT kids what they had done (making up

grades) she said, " Well, if he can't do the work, then he can't so the work,

so what do you wan them to do? " The teacher is a friend of hers. So I

said, this evidence reflects they didn't even bother to try. The law says

they must. Are you saying we create Federal laws, but we really have no

intention of making anyone follow the law?

I left it at that, and just put her name on the list of people we will visit

when my son gets into college. Her thinking is that if they " think " he

can't do the work, then it's okay to fabricate progress on an IEP report.

NOT okay in my book.

I am looking forward to chelating again with ALA. Wouldn't it be nice to

run into my " list " of people after my son is fully recovered and on his way

to college? My son is soooo close to being able to get there, I just

have to shift our protocol, get siked up for the game and implement.