Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Hi If it has been more than 4 hours since the last dose then abort the round. Virtually everyone has to abort a round some time - because you sleep through the alarm, child is ill or whatever. It is disappointing but it happens. If it has been less than 4 hours you could try again to get the rest of the syringe into him. Maybe put a light on, try to stay calm and give it your best shot. Either way, I'm sure group members will have suggestions for preparing again for next time. With practice you work out what works, the kids get used to it and you get better at it. Kind regards, Alison W > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > Any advice on this would be very welcome. Please help. > > Thank you, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Sorry, ! You have to stop the round if you missed a dose and you cannot make up for skipping night doses by doing extra day doses. It is important to keep the 4 hr schedule to keep the blood levels of DMSA constant to minimize redistribution of mobilized metals in to the tissues/brain. It was also very difficult to get my son to take the night time doses for the first few rounds. He was disoriented and the taste was not good. I would wake him up to the point that he wouldn't fall back asleep. This is common, but hopefully will fade away as he gets used to the routine. The syringe was a nightmare. I suggest you find a real tasty alternative to pear sauce at night. At one point I used whipped cream (we were not GFCF) on a spoon. There are recipes for DMSA-laden chocolate bon bons. If you are not CF... beat some softened cream cheese until creamy and mix in melted semi-sweet chocolate (i can email amounts if you are interested). Chill until firm and then separate in to small balls: mix some DMSA in to each ball for the night's dose and pop in to mouth. Not the best thing for tooth health, but it worked here for a few weeks until I got him to swallow capsules. I kept the bon bons frozen and took out enough for the weekend night time doses on Friday. They soften up enough quickly on the counter that you can make a hole with your finger and dump in the small amount of DMSA powder (then pinch it closed again). I didn't make these up until he went to bed. I hated the idea of leaving all this sugar on his teeth for the night, but it was what I had to do to get him to take the DMSA. This experience motivated me to get him to swallow capsules. You are not dealing with a unique situation, but you will need to experiment to find what works for your son. It will get easier. I crack up when I give my son his 2 night doses now: he is literally still asleep and starts making a sucking sound like he wants the straw I always pop in his mouth for water even before it gets there. He never, ever stays awake after doses anymore. good luck! It is an adjustment for sure. Don't get discouraged and don't take the dangerous/easy way out by dosing every 8 hours. Pam > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > Any advice on this would be very welcome. Please help. > > Thank you, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 , Sorry your first night time dose was like that. My son was resistent at first (mostly to the waking up part not to the actually dose) and I remember it taking 10 minutes the first few times to get him to take the dose. Some possible helps: Like Pam said, change the medium you are using to something your son likes better...we use orange juice here...something stronger flavored than pear might hide the DMSA taste better. Warn your son at bed time that you are going to wake him up to take medicine... Use the same words/process for every night time dose. Now I turn on the bathroom light next to my son's room, go in and poke my son's mouth with the oral syringe, and say " time for medicine " . My son normally will just open his mouth like a little bird and suck the stuff down. Occasionally, I will have to shake him a little or turn him over and he'll wake up slightly, but he goes right back to sleep. He never remembers the dose in the morning. Chelation is really just keeping on " keeping on. " I get tired of doing it (the nighttime doses are much harder on me than they are on my son), then take a few weeks off and then start up again. > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > Any advice on this would be very welcome. Please help. > > Thank you, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 , I utilize Zeolites from Wiora instead of DMSA to absorb mercury in the body together with ALA to remove it from the brain. I've used this combination for the past 8 months with great results. I use the mixture of both together with Vitamin C and 5ml of water/per dose. I use Andy's protocol and give it every 2.5-3 hours Friday - Monday morning. Vitaly Vitaly > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > Any advice on this would be very welcome. Please help. > > > > Thank you, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 I hope you are not paying too much for the rocks (zeolites). Hate to see people pay good money for rock and dirt, and then eat them. TJ ________________________________ From: vitlap7 <vitaly@...> Sent: Fri, May 21, 2010 2:25:59 PM Subject: [ ] Re: child refuses DMSA at night... now what? (Andy?)  , I utilize Zeolites from Wiora instead of DMSA to absorb mercury in the body together with ALA to remove it from the brain. I've used this combination for the past 8 months with great results. I use the mixture of both together with Vitamin C and 5ml of water/per dose. I use Andy's protocol and give it every 2.5-3 hours Friday - Monday morning. Vitaly Vitaly > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > Any advice on this would be very welcome. Please help. > > > > Thank you, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Thank you to everyone who responded. My husband managed to get the midnight dose into our son, more or less (I think a third went on the sheet). We switched to using applesauce and he seemed mostly fine today with doses every two hours (about 2mg each [please forgive my wandering numbers in my different posts--I am not sleeping well myself and apparently cannot do arithmetic ]). However tonight, after having a small piece of dark chocolate (dairy-free), he became very fatigued, the dark circles under his eyes seemed to get deeper and darker, he said he had a headache, and he said he was cold. We gave him a hot water bottle and he hugged it for a half hour, lying down. His appetite was less at supper. He had a little brown rice and seaweed, an ounce of tofu (usually his favorite food but tonight he couldn't eat much), some mango smoothie (mango, soy milk, hemp milk, a one-inch chunk of banana, agave nectar, and a little rice protein powder), and watermelon (about a half cup). Then he had an Epsom salts bath. He's shivering now, has an oral temperature of 101F (38.4C), has become disoriented (he didn't want to " take off his pajamas " and didn't want to " have any more play dates today, please " ), and just fell asleep before his usual nightly licorice-and-chamomile tea with glycine and taurine. Needless to say, we are very worried about him. Are these all expected " normal " side effects of DMSA? His supper did contain sulfur and phenol foods, though I tried to limit them; are the above symptoms common sulfur or phenol food reactions? Should we stop the chelation cycle? This is all rather scary. We are wondering if we are doing the right thing. Logically this would seem to indicate that the DMSA is pulling out something from his body...? Any advice will be much appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 What does the group have to say about topical DMSA for child refusing oral form??? Theodora > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > Any advice on this would be very welcome. Please help. > > Thank you, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Waste of precious time and $$: I speak from experience. Pam > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > Any advice on this would be very welcome. Please help. > > > > Thank you, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 You can make your own topical ALA by mixing it with quality hand lotion. It works well and it is cheap. TJ ________________________________ From: Pamela H <phaselow@...> Sent: Sat, May 22, 2010 6:07:44 PM Subject: [ ] Re: child refuses DMSA at night... now what? (Andy?)  Waste of precious time and $$: I speak from experience. Pam > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > Any advice on this would be very welcome. Please help. > > > > Thank you, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 I should've clarified we used TD-DMSA. > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > Any advice on this would be very welcome. Please help. > > > > > > Thank you, > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 To replace a DMSA dosage during a round???? :-{ Is that OK? Thanks Isa Enviado desde mi oficina móvil BlackBerry® de Telcel [ ] Re: child refuses DMSA at night... now what? (Andy?) I should've clarified we used TD-DMSA. > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > Any advice on this would be very welcome. Please help. > > > > > > Thank you, > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 , I have been there for both my boys who started at around your son's age. My advice is to chug through it and don't give up so easily. Can you imagine if we gave up every time we wanted to introduce a new vegetable? I remember my mom telling me that it takes 30 days of doing anything to make it a " habit " . I kept this in mind when my first son was kicking me and screaming to take his middle-of-the-night dose. After a couple months, he'll be opening his little mouth like a baby bird and falling back asleep. I do have a few suggestions for you, though: 1) You are giving now with pear juice. I felt that orange juice was more masking of the flavor. 2) Also, you mentioned that you chase the daytime doses down with a chewable? Well, in my opinion you should be more consistent. You wouldn't give him a chewable at night, right? Adding the chewable makes it more like " a big deal " . All I do is get the syringe ready, say " open " , administer, and that's it. No conversations and no reward. Then, when i go in at night, I lightly tap his lip with the syringe and say " open " and he does so automatically. This may help. 3) I don't use the light in the room, but a light in the hallway outside the room-it gives me plenty of backlight (unlike a cell phone) without having to turn a light on right in his eyes. 4) There is NO kid on the face of the earth who likes being woken for anything. However, once he realized that mom is going to do this anyways and it's a part of his weekend routine like brushing his teeth in the morning or going potty before bed, he'll get over it. Be strong...you're helping him have a more independent future and it's something beyond his understanding-keep that in mind during the kicking and screaming. It's just his way of telling you he hates it, but just keep giving it to him. It's not hurting him, just annoying him a little. My eldest son woke the entire house up the first few months and then little by little it tapered off. My hats of to you for getting this far and a pat on the back for your patience. There's a reason why there's a special place in heaven for moms > > > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > Any advice on this would be very welcome. Please help. > > > > > > Thank you, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 Where from you buy TD DMSA??? Sasmita > > > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > > > Any advice on this would be very welcome. Please help. > > > > > > > > Thank you, > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 , Thank you for all the helpful tips! He does prefer the dosage in apple sauce, we discovered. I will save your tips and refer to them in future. At the moment, though, we're currently dealing with what I assume is bad redistribution due to my botched first-ever DMSA schedule. :( I got confused and tried doing every two hours during the day and every four hours at night, starting Thursday afternoon. Our son has had a fever on and off since Friday night, sleeping most of the time and looking very fatigued. He's been worse today than yesterday, and we're very worried about him. We don't know what to expect from this or what we might be doing to help him, other than pushing fluids and urination. He has had a couple incidences of tingling on his feet and toes though they seemed to vanish quickly. He hasn't eaten much, he says peeing hurts, and he's not quite as lucid today as he was yesterday. We have a pediatrician appointment tomorrow morning. His fever is at least 38.8C (about 102F) and his pulse is 125 bpm when he's sleeping. Any advice on handling this would be very welcome. Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 Hi My younger son was 5 and probably about 40lb when we started AC chelation. I started him on 10mg DMSA and he was absolutely fine the first round but half-way through the second round he woke up an hour or so after going to sleep: crying, talking nonsense like he was hallucinating, high temperature etc. I did stop the round. I waited a couple of weeks before trying again, I halved his dose and off we went - no problems. I gradually, over the next year or so increased his doses to 16.5mg without ever having another issue like that. Your dose is already minimal so it's probably just a matter of working on bedding down his supplement program and diet for a little while. Wait until you are comfortable that he is well, that you have caught up on some rest then try again. In the meantime, time is not being wasted there are worthwhile things for you to do. Teaching him to swallow capsules would be a huge benefit and help to make sure you can get proper amounts of yukky-tasting stuff into him. Although you can never get rid of yeast while the metals are in there it is worth spending some particular effort in this area. Make sure you are able to dose viable amounts of anti-yeast supplements. Yeast will flare up when you are chelating so you really do need to be ready for it. It is a worrying time when they are knocked about by early attempts but don't panic. (Compared to what some people do under a DAN protocol any potential damage from your weekend is absolutely negligible.) You did the right thing starting with a tiny dose, put it down to experience. Kind regards, Alison W > > > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > > > Any advice on this would be very welcome. Please help. > > > > > > > > Thank you, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Hi Alison, Thank you for your post. As you can imagine, my husband and I are on tenterhooks trying to help our son come out of his fevered state (going on 53 hours now, with the fever seeming worse). We don't want to over-push fluids because we're worried about his kidneys being overtaxed, yet that's the only thing we can think to do... He doesn't want to take his vitamins C, A, and E, we assume because they're sugary. He's been refusing digestive enzyme chewables as well and asking for much more probiotics than he usually has. Could prolonged high fever, painful urination, and lethargy be due to a yeast flare-up? > My younger son was 5 and probably about 40lb when we started AC chelation. I started him on 10mg DMSA and he was absolutely fine the first round but half-way through the second round he woke up an hour or so after going to sleep: crying, talking nonsense like he was hallucinating, high temperature etc. I did stop the round. Wow! How long did his hallucinations and high temperature last? Did you take any particular steps to help him at that point? > Although you can never get rid of yeast while the metals are in there it is worth spending some particular effort in this area. Make sure you are able to dose viable amounts of anti-yeast supplements. Yeast will flare up when you are chelating so you really do need to be ready for it. For a 40lb boy, what's a viable amount? I have (horrible tasting) caprylic acid tablets, 365mg with small amounts of calcium, magnesium, and zinc (zinc caprylate). Would one of those be appropriate, assuming I can get him to swallow one? And do I give probiotics with that? > It is a worrying time when they are knocked about by early attempts but don't panic. (Compared to what some people do under a DAN protocol any potential damage from your weekend is absolutely negligible.) You did the right thing starting with a tiny dose, put it down to experience. Kind regards, Alison W Thank you so much for saying this. It is incredibly helpful to hear this from an experienced parent. Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Hi , It's 3 years ago now and seems like a long time. During that afternoon he had loss of appetite and lethargy. I think that after a little while I was able to settle him back to sleep and my diary says that the next day he was much better. However it developed into a cold over the next week. It is very hard to figure out what is what, but I believe there is some connection between moving the mercury around and the symptoms - even though it seems like there is a virus involved (maybe there is??) I don't know if yeast could be a culprit in your little boy's fever. Personally I would treat with the usual TLC that you do for such symptoms. Also I love homeopathics. Ainsworths has a fantastic kit you can buy over the net, or if you can find a homeopath nearby it can be a great moral support. To treat my younger son's yeast I started with a smaller dose but I would tend to give him one 125mg capsule of GSE morning and night. I gave him double this at times. Probiotics are good. Just give at a separate time, as the GSE would be antagonistic to the probiotics. Also I would take note of the comments made earlier about soy - it is very allergenic and many kids on the spectrum cannot tolerate it. Kind regards and I hope he is much better soon. Alison W > > Hi Alison, > > Thank you for your post. As you can imagine, my husband and I are on tenterhooks trying to help our son come out of his fevered state (going on 53 hours now, with the fever seeming worse). > > We don't want to over-push fluids because we're worried about his kidneys being overtaxed, yet that's the only thing we can think to do... He doesn't want to take his vitamins C, A, and E, we assume because they're sugary. He's been refusing digestive enzyme chewables as well and asking for much more probiotics than he usually has. Could prolonged high fever, painful urination, and lethargy be due to a yeast flare-up? > > > My younger son was 5 and probably about 40lb when we started AC chelation. I started him on 10mg DMSA and he was absolutely fine the first round but half-way through the second round he woke up an hour or so after going to sleep: crying, talking nonsense like he was hallucinating, high temperature etc. I did stop the round. > > Wow! How long did his hallucinations and high temperature last? Did you take any particular steps to help him at that point? > > > Although you can never get rid of yeast while the metals are in there it is worth spending some particular effort in this area. Make sure you are able to dose viable amounts of anti-yeast supplements. Yeast will flare up when you are chelating so you really do need to be ready for it. > > For a 40lb boy, what's a viable amount? I have (horrible tasting) caprylic acid tablets, 365mg with small amounts of calcium, magnesium, and zinc (zinc caprylate). Would one of those be appropriate, assuming I can get him to swallow one? And do I give probiotics with that? > > > It is a worrying time when they are knocked about by early attempts but don't panic. (Compared to what some people do under a DAN protocol any potential damage from your weekend is absolutely negligible.) You did the right thing starting with a tiny dose, put it down to experience. Kind regards, Alison W > > Thank you so much for saying this. It is incredibly helpful to hear this from an experienced parent. > > Thanks again, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 > We don't want to over-push fluids because we're worried about his kidneys being overtaxed, yet that's the only thing we can think to do... He doesn't want to take his vitamins C, A, and E, we assume because they're sugary. He's been refusing digestive enzyme chewables as well and asking for much more probiotics than he usually has. Could prolonged high fever, painful urination, and lethargy be due to a yeast flare-up? At my house, there were a few instances of yeast overgrowth causing similar symptoms. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Not suppose to. You should do all TD or all oral. The absorbtion rates are different. TJ ________________________________ From: " isaguzmandiaz2@... " <isaguzmandiaz2@...> Autism mercury group < > Sent: Sun, May 23, 2010 7:04:33 AM Subject: Re: [ ] Re: child refuses DMSA at night... now what? (Andy?) To replace a DMSA dosage during a round???? :-{ Is that OK? Thanks Isa Enviado desde mi oficina móvil BlackBerry® de Telcel [ ] Re: child refuses DMSA at night... now what? (Andy?) I should've clarified we used TD-DMSA. > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > Any advice on this would be very welcome. Please help. > > > > > > Thank you, > > > > > > > > > > > > > >   > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 That's what I thought.....how to be sure about how much is being absorbed....and how often to reapply it.... TJ: is there a reliable source for such a cream??? TIA Isa Enviado desde mi oficina móvil BlackBerry® de Telcel [ ] Re: child refuses DMSA at night... now what? (Andy?) I should've clarified we used TD-DMSA. > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > Any advice on this would be very welcome. Please help. > > > > > > Thank you, > > > > > > > > > > > > > >   > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 I just wanted to thank this group again for all the information and advice on this thread. As it turns out, our son's fever came down significantly this morning and has stayed lower for five hours. His energy level is up and he's eating, talking, and playing again. Needless to say, we are much relieved! So it appears at this point that he got a virus coincidentally around the time we happened to do a chelation round. Living and learning...! Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 From what I hear, TD DMSA doesn't really work. DMSA is too suceptible to oxidation when exposed to the air or something like that. TD ALA is suppose to work well and can be made at home just by mixing it with quality hand lotion. The dosing and frequency are the same. Mix it up and rub it in... TJ ________________________________ From: " isaguzmandiaz2@... " <isaguzmandiaz2@...> Autism mercury group < > Sent: Mon, May 24, 2010 9:51:24 PM Subject: Re: [ ] Re: child refuses DMSA at night... now what? (Andy?) That's what I thought.....how to be sure about how much is being absorbed....and how often to reapply it.... TJ: is there a reliable source for such a cream??? TIA Isa Enviado desde mi oficina móvil BlackBerry® de Telcel [ ] Re: child refuses DMSA at night... now what? (Andy?) I should've clarified we used TD-DMSA. > > > > > > We started our first chelation round with our 40lb almost-four-year-old son. He took 2.8mg (a twelfth of one DMSA capsule) at 2:00, 4:00, 6:00 and 8:00 PM without a hitch, though he didn't like the taste. I put it in a teaspoon of pear juice and used an oral syringe to inject it into his mouth, followed by a tasty chewable vitamin. However when I just attempted to give him the midnight dose, he was flat-out asleep and hated being woken, screamed bloody murder and thrashed, waking his little sister and my husband in the other bedrooms. He bit my finger pretty hard in the process. Some of the dose went into his mouth, some on the sheet, and the rest is still in the oral syringe. I had trouble finding his mouth because I didn't want to turn on a light. > > > > > > What does this mean in terms of chelation? Should we abort the chelation round, or will this cause redistribution? Should we turn on the lights, hold him down, and force him to swallow it? Is it okay to do very short 12-hour daytime-only rounds, such as every two hours between 8AM and 8PM? > > > > > > Any advice on this would be very welcome. Please help. > > > > > > Thank you, > > > > > > > > > > > > > >   > > Quote Link to comment Share on other sites More sharing options...
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