Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Hello I have a question, maybe someone can help. My mom has rheumatoid arthritis * She is taking Methroxate and Prednisone * In the last few months she has lost the taste of food and/or certain foods (onions, meat, peanuts to name a few) have a very horrible taste to the point that she can't eat them. So far only sweets have the same taste. Note that as time goes on, more and more foods are tasting horrible thus reducing her choices in foods to eat. * She is taking zinc to help with the taste but it has been ineffective * I wanted to know if anyone is having this taste issue and what can be done to improve the taste or at least reduce the horrible taste she is getting. Thank you for taking the time to read Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 I joined this group because I have a dear friend who just found out she has RA this past year. She lost her sense of taste and smell. She thinks it was related to a sinus infection. Her sense of taste is coming back but sense of smell--not as much. She is trying to decide whether to go through with Remicade treatments. She is having a rough time. She has trouble turning the key in her ignition, putting her socks on, problems with hands, even her jaw, lots of pain. Is it really true that Remicade treatments cost about $1500 a treatment AFTER insurance? In other words, insurance is supposed to pay 80% and the 20% is the $1500. How well do they work and what are the side effects? Thanks, Annette McKinnon <anetto@...> wrote: My first thought is , maybe she is developing Sjogren's Syndrome. It is common in RA Annette On 1/19/06, dbargad@... <dbargad@...> wrote: Hi- It sounds like a chemical reaction to something. Prednisone is surely to blame but in most cases it increases the appetite. Perhaps something she is taking via supplements etc could be causing it. Laxatives or mylanta or something like grapefruit can cause it also. She should possibly go off one medication at a time to see if her taste improves or have her use an alternative for the time being. Remicade is she can take it is an infusion once every 8 weeks and shouldnt affect her taste. MTX is suggested with it, but she can try it without. Yours, Deborah Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Mr D <photonm0001@...> wrote: Hello I have a question, maybe someone can help.My mom has rheumatoid arthritis* She is taking Methroxate and Prednisone* In the last few months she has lost the taste of food and/or certain foods (onions, meat, peanuts to name a few) have a very horrible taste to the point that she can't eat them. So far only sweets have the same taste. Note that as time goes on, more and more foods are tasting horrible thus reducing her choices in foods to eat.* She is taking zinc to help with the taste but it has been ineffective* I wanted to know if anyone is having this taste issue and what can be done to improve the taste or at least reduce the horrible taste she is getting.Thank you for taking the time to read Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi, My 85 yr old friend had the same problem with loss of taste. At my advice, she called her doctor to see if he thought the drugs she was taking could be causing her loss of taste, and, if so, would he recommend another drug that would give her taste back...the dr. said yes to the taste/drug question and put her on a new drug. She now has her taste back. Hope this helps... Aimee Message: 3 Date: Wed, 18 Jan 2006 01:24:40 -0000 From: " Mr D " <photonm0001@...> Subject: Question of taste Hello I have a question, maybe someone can help. My mom has rheumatoid arthritis * She is taking Methroxate and Prednisone * In the last few months she has lost the taste of food and/or certain foods (onions, meat, peanuts to name a few) have a very horrible taste to the point that she can't eat them. So far only sweets have the same taste. Note that as time goes on, more and more foods are tasting horrible thus reducing her choices in foods to eat. * She is taking zinc to help with the taste but it has been ineffective * I wanted to know if anyone is having this taste issue and what can be done to improve the taste or at least reduce the horrible taste she is getting. Thank you for taking the time to read --------------------------------- Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 all the drug companies have patient assitance programs that can help with the portion that insurance does not pay. Have you call remicaide and get a list of the programs that she can sign up for and what the requirements are. I am in Humira and I get Humira SHARE program with pays up to $300 a month for my Humira for six months. Toni Hi- It sounds like a chemical reaction to something. Prednisone is surely to blame but in most cases it increases the appetite. Perhaps something she is taking via supplements etc could be causing it. Laxatives or mylanta or something like grapefruit can cause it also. She should possibly go off one medication at a time to see if her taste improves or have her use an alternative for the time being. Remicade is she can take it is an infusion once every 8 weeks and shouldnt affect her taste. MTX is suggested with it, but she can try it without. Yours, Deborah > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Remicade is given as a function of weight and I get 7 vials while some others get only 2 or 3 vials. My infusions cost about $8,400 every 8 weeks so 20% would be about $1,700. If I got only 2 vials the cost would be about $3,400 so 20% would be about $680. Remicade helped me very much and I have not identified any side effects. However, everyone is different and others may either get no benefit or have bad side effects. I hope something works for your friend. God bless both you and your friend. ----- Original Message ----- From: Schellman Rheumatoid Arthritis Sent: Thursday, January 19, 2006 5:19 AM Subject: Re: Question of taste I joined this group because I have a dear friend who just found out she has RA this past year. She lost her sense of taste and smell. She thinks it was related to a sinus infection. Her sense of taste is coming back but sense of smell--not as much.She is trying to decide whether to go through with Remicade treatments. She is having a rough time. She has trouble turning the key in her ignition, putting her socks on, problems with hands, even her jaw, lots of pain.Is it really true that Remicade treatments cost about $1500 a treatment AFTER insurance? In other words, insurance is supposed to pay 80% and the 20% is the $1500. How well do they work and what are the side effects?Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Hi , This is Steph in VA. I was diagnosed with RA in the fall of 1999. I have been taking Remicade without any side effects since April 2000. Before Remicade couldn't dress myself or use the commode on my own. Every insurance plan is different regarding cost. I had Anthem Blue Cross Blue Shield for 3 years. I got my Remicade at the local hospital in the outpatient dept. I paid $100 for each treatment -- the standard outpatient hospital co-pay under my plan. Under AT & T BC/BS I paid $15 for each treatment and received it at my rheumatologist's office. Currently I have MAMSI Optimum Choice. I receive my Remicade at home through home health care and I don't pay anything. Also, Remicade has a great patient assistance program. Essentially, if your insurance says "no" or the co-pay the insurance requires is too expensive for you, the patient assistance program picks it up. I was unemployed for almost 3 months and the patient assistance program gave me Remicade for free so that my unemployment didn't interfere with my treatment. Take care, Steph in VA Schellman <dr_doremi@...> wrote: Is it really true that Remicade treatments cost about $1500 a treatment AFTER insurance? In other words, insurance is supposed to pay 80% and the 20% is the $1500. How well do they work and what are the side effects?Thanks, ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ "Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has." (Margaret Mead) AmeriCorps Alums -- We're Still Getting Things Done Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Thank you for taking the time to reply. I passed your information on to my friend. She has not heard of Humira. Is this the drug that works for you? Is it expensive? Does it have very many side effects? Again, many thanks, Ms radar <aclavern33@...> wrote: all the drug companies have patient assitance programs that can help with the portion that insurance does not pay. Have you call remicaide and get a list of the programs that she can sign up for and what the requirements are. I am in Humira and I get Humira SHARE program with pays up to $300 a month for my Humira for six months. Toni Hi- It sounds like a chemical reaction to something. Prednisone is surely to blame but in most cases it increases the appetite. Perhaps something she is taking via supplements etc could be causing it. Laxatives or mylanta or something like grapefruit can cause it also. She should possibly go off one medication at a time to see if her taste improves or have her use an alternative for the time being. Remicade is she can take it is an infusion once every 8 weeks and shouldnt affect her taste. MTX is suggested with it, but she can try it without. Yours, Deborah > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I also take Humiria through the patient asstiance program. If you go to the web site for Humiria and look under insurance, there will be an 1-800 number fir you friend to call for more information. in WI Schellman <dr_doremi@...> wrote: Thank you for taking the time to reply.I passed your information on to my friend. She has not heard of Humira. Is this the drug that works for you? Is it expensive? Does it have very many side effects?Again, many thanks,Ms radar <aclavern33@...> wrote: all the drug companies have patient assitance programs that can help with the portion that insurance does not pay. Have you call remicaide and get a list of the programs that she can sign up for and what the requirements are.I am in Humira and I get Humira SHARE program with pays up to $300 a month for my Humira for six months. Toni Hi- It sounds like a chemical reaction to something. Prednisone is surely to blame but in most cases it increases the appetite. Perhaps something she is taking via supplements etc could be causing it. Laxatives or mylanta or something like grapefruit can cause it also. She should possibly go off one medication at a time to see if her taste improves or have her use an alternative for the time being. Remicade is she can take it is an infusion once every 8 weeks and shouldnt affect her taste. MTX is suggested with it, but she can try it without. Yours, Deborah > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 My wife takes Humira. She's had no side effects. Our insurance company covers all but $100 per month. She's had really good relief of her RA with the Humira. Good luck, Don & Eileen Schellman wrote: I joined this group because I have a dear friend who just found out she has RA this past year. She lost her sense of taste and smell. She thinks it was related to a sinus infection. Her sense of taste is coming back but sense of smell--not as much. She is trying to decide whether to go through with Remicade treatments. She is having a rough time. She has trouble turning the key in her ignition, putting her socks on, problems with hands, even her jaw, lots of pain. Is it really true that Remicade treatments cost about $1500 a treatment AFTER insurance? In other words, insurance is supposed to pay 80% and the 20% is the $1500. How well do they work and what are the side effects? Thanks, Annette McKinnon <anetto@...> wrote: My first thought is , maybe she is developing Sjogren's Syndrome. It is common in RA Annette On 1/19/06, dbargad@... <dbargad@...> wrote: Hi- It sounds like a chemical reaction to something. Prednisone is surely to blame but in most cases it increases the appetite. Perhaps something she is taking via supplements etc could be causing it. Laxatives or mylanta or something like grapefruit can cause it also. She should possibly go off one medication at a time to see if her taste improves or have her use an alternative for the time being. Remicade is she can take it is an infusion once every 8 weeks and shouldnt affect her taste. MTX is suggested with it, but she can try it without. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Dear Mr. D, I would try mangosteen juice from XanGo. It is the most powerful anti-inflammatory yet found, pure,. safe and all natural, so it can help with the arthritis. Maybe she could get OFF the poisonous methotrexate and prednisone like many others have done. This juice helped a friend of our daughter regain his senses of taste and smell after about many years without them. She will love the taste of the juice. There is a ton of independent science backing up the mangosteen's help for healing. Write me at ad7@... or click the links below for more info if you wish. Blessings! Arthur 888-533-7007 www.BestZapper.com www.BestWithoutDrugs.com Question of taste Hello I have a question, maybe someone can help. My mom has rheumatoid arthritis * She is taking Methroxate and Prednisone * In the last few months she has lost the taste of food and/or certain foods (onions, meat, peanuts to name a few) have a very horrible taste to the point that she can't eat them. So far only sweets have the same taste. Note that as time goes on, more and more foods are tasting horrible thus reducing her choices in foods to eat. * She is taking zinc to help with the taste but it has been ineffective * I wanted to know if anyone is having this taste issue and what can be done to improve the taste or at least reduce the horrible taste she is getting. Thank you for taking the time to read Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Go off the Prednisone slow, decreasing slow, monitored by a Dr. That is some strong stuff so be smart about it. Take care, Corey > > Dear Mr. D, > > I would try mangosteen juice from XanGo. It is the most powerful anti-inflammatory yet found, pure,. safe and all natural, so it can help with the arthritis. Maybe she could get OFF the poisonous methotrexate and prednisone like many others have done. This juice helped a friend of our daughter regain his senses of taste and smell after about many years without them. She will love the taste of the juice. There is a ton of independent science backing up the mangosteen's help for healing. > > Write me at ad7@... or click the links below for more info if you wish. > > Blessings! > Arthur > 888-533-7007 > > www.BestZapper.com > www.BestWithoutDrugs.com > > > Question of taste > > > Hello I have a question, maybe someone can help. > > My mom has rheumatoid arthritis > > * She is taking Methroxate and Prednisone > > * In the last few months she has lost the taste of food and/or > certain foods (onions, meat, peanuts to name a few) have a very > horrible taste to the point that she can't eat them. So far only > sweets have the same taste. Note that as time goes on, more and more > foods are tasting horrible thus reducing her choices in foods to eat. > > * She is taking zinc to help with the taste but it has been > ineffective > > * I wanted to know if anyone is having this taste issue and what can > be done to improve the taste or at least reduce the horrible taste > she is getting. > > Thank you for taking the time to read > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Go girl! koyd24 <c_dyok@...> wrote: Go off the Prednisone slow, decreasing slow, monitored by a Dr. That is some strong stuff so be smart about it. Take care, Corey > > Dear Mr. D, > > I would try mangosteen juice from XanGo. It is the most powerful anti-inflammatory yet found, pure,. safe and all natural, so it can help with the arthritis. Maybe she could get OFF the poisonous methotrexate and prednisone like many others have done. This juice helped a friend of our daughter regain his senses of taste and smell after about many years without them. She will love the taste of the juice. There is a ton of independent science backing up the mangosteen's help for healing. > > Write me at ad7@... or click the links below for more info if you wish. > > Blessings! > Arthur > 888-533-7007 > > www.BestZapper.com > www.BestWithoutDrugs.com > > > Question of taste > > > Hello I have a question, maybe someone can help. > > My mom has rheumatoid arthritis > > * She is taking Methroxate and Prednisone > > * In the last few months she has lost the taste of food and/or > certain foods (onions, meat, peanuts to name a few) have a very > horrible taste to the point that she can't eat them. So far only > sweets have the same taste. Note that as time goes on, more and more > foods are tasting horrible thus reducing her choices in foods to eat. > > * She is taking zinc to help with the taste but it has been > ineffective > > * I wanted to know if anyone is having this taste issue and what can > be done to improve the taste or at least reduce the horrible taste > she is getting. > > Thank you for taking the time to read > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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