Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 I agree with Dan!!! a > > It can't help that you're telling her that her tormentors are jealous > of her. They're not, and she knows it. > > Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 I have so many questions that are still not answered about this disease and I thank you all for helping me get the answers to some of them. My daughters doctor told me that I shouldn't give Emma any calcium and that she doesn't need it right now. I picked up an herbal milk thistle extract; I read on line that it was supposed to be good for the liver, so I was wondering if anyone could tell me anything about it or if anyone takes it. Do you think it is a good idea to give this to her? Emma is on so many different medicines now and I don't know if it will ever affect the way she thinks about her self or make her feel depressed and different form all of her peers. That is another question that I ask myself. I wish you all the best and I pray for you all every day. Thank you all so much for your support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Dear ! My heart completely aches to hear about your daughter. A child at such a precious age going thru so much. Its really hard to find words to say but be strong for her and never loose your faith. I will keep you both on my prayers. God Bless! tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 My heart broke when I read your story! I think the very best advice I can give you is to learn as much as you can about the disease. I was diagnosed with AIH just this past December and I have learned so much in just a couple of months. There are some good books including Dr. Palmer's Guide to Hepatitis & Liver Disease : What You Need to Know and The Liver Disorders Sourcebook (Lowell House)by J. Worman. You can order them from amazon.com. Also, don't be afraid to ask the doctors ANY questions you may have. Autoimmune diseases in general are, in some sense, inherited. It is really just the predisposition to autoimmune disease that seems to be passed on. There is no way to predict who will develop one, or even which particular autoimmune disease they may get. I am know noticing every ache and pain I have, too! I think this is normal shortly after diagnosis, and I hope to slowly get a better grip on what to worry about and what not to! There are many success stories in controlling AIH...and many people in this group have had transplants...so there is lots of support to be found! Let us know how things go, and make sure you learn as much as you can! Best wishes to you and your young daughter. > Hi my name is and I am new to the group, I have a daughter who's name > is Emma she is 8 yrs. old and we found out in Dec. that is has AIH. She was > going to have tubes put in her ears and have her adoids removed on Dec 6, had > the routine blood work done and found her pt level was 90,000. Well our peds > sent us to a hemo. and ran more blood work her alt's were over 500 and ast's > were high also bili. Her spleed was extremly inlarged.As it goes we were sent > to a GI more blood work and a liver biopsy on the 26 of Dec. Well as it goes > she bleed out, after countless pints of ffp and blood tranfustion along with > prednisone and imuran it finally came under control 16 days later She was so > close to being put on the tranplant list at a level 2-b Well her liver bio > shown she has cirrhosis and at that time 30% funtion. She is on so many meds > right now 40 of prednisone 50 of imuran 10 mg of propranolol 3x day, prilosec > 20 mg 2xday, spironolactone 25mg 2xday, Vit. k 10 mg 1xday ursodal 4ml 2xday > and constulose 20ml 1xday. They are saying she inherited this from her father > who had ulsertive colitis he lost his bowel and large intestine. i didn't > know anything about this being inherited. This has been a total shock. I > worry about my daughter's future and what she has store for her. I have so > many questions and not enough answers, so I am hoping by being in this group > some will be answered for me as time goes on. She has gained 10 lbs so far > and her moods have changed as well. The doctor said this is from the > prednisone. My concern is I seen no signs of anything wrong with her before > all of this started, thank God for the blood work because they say she could > of went into liver failure within 4 to 6 months. I could use any info all of > you can give me on AIH and meds. Thanks for being here to have someone to > vent too. Now with every ache and pain I worry and I'm always checking poop > for blood. She had some varices banned 2wks ago in her oesophagus (2) and > they found 4 ulsers in her stomach. My thoughts and blessings are with each > and everyone of you. @ Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 . I'm so sorry to hear about your daughter. She's so young to have to be going through this. Hopefully, when they get her bloodwork stabilized she will be able to start coming off some of the meds. I'm told that prednisone will make you gain weight. I'm only on imuran so I can't tell you for sure. I'm sure that there are a lot of people in this group that will be able to give you more information. Just ask the questions and you will get a response. I'm finding out that no question is stupid. Vent anytime you wish. Blessing and hugs coming to you and your family. Ann CT [ ] My daughter Hi my name is and I am new to the group, I have a daughter who's nameis Emma she is 8 yrs. old and we found out in Dec. that is has AIH. She wasgoing to have tubes put in her ears and have her adoids removed on Dec 6, hadthe routine blood work done and found her pt level was 90,000. Well our pedssent us to a hemo. and ran more blood work her alt's were over 500 and ast'swere high also bili. Her spleed was extremly inlarged.As it goes we were sentto a GI more blood work and a liver biopsy on the 26 of Dec. Well as it goesshe bleed out, after countless pints of ffp and blood tranfustion along withprednisone and imuran it finally came under control 16 days later She was soclose to being put on the tranplant list at a level 2-b Well her liver bioshown she has cirrhosis and at that time 30% funtion. She is on so many medsright now 40 of prednisone 50 of imuran 10 mg of propranolol 3x day, prilosec20 mg 2xday, spironolactone 25mg 2xday, Vit. k 10 mg 1xday ursodal 4ml 2xdayand constulose 20ml 1xday. They are saying she inherited this from her fatherwho had ulsertive colitis he lost his bowel and large intestine. i didn'tknow anything about this being inherited. This has been a total shock. Iworry about my daughter's future and what she has store for her. I have somany questions and not enough answers, so I am hoping by being in this groupsome will be answered for me as time goes on. She has gained 10 lbs so farand her moods have changed as well. The doctor said this is from theprednisone. My concern is I seen no signs of anything wrong with her beforeall of this started, thank God for the blood work because they say she couldof went into liver failure within 4 to 6 months. I could use any info all ofyou can give me on AIH and meds. Thanks for being here to have someone tovent too. Now with every ache and pain I worry and I'm always checking poopfor blood. She had some varices banned 2wks ago in her oesophagus (2) andthey found 4 ulsers in her stomach. My thoughts and blessings are with eachand everyone of you. @ Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 > Hi my name is and I am new to the group, I have a daughter who's name > is Emma she is 8 yrs. old and we found out in Dec. that is has AIH. Hi,My daughter's name is ,She's 15 & has UC & PSC.She was at first DX with AIH inNov.'99,But after many hospital stays in a 4 month time last year we took her to another children's hospital.There she had 7 veins banded,had the FFP,Red blood cells,Factor 7, & was on high doses of the lovely Prednisone. Emma is just about on all of the same drugs is on.It's just overwhelming . Are they sure she has AIH? in November had a port-a-cath installed(weird way of putting it) because her veins kept rolling & they would just stop flowing in the middle of a lab draw.This is much easier for her. Right now she has monthly labs & I'm always crossing my fingers that nothing crazy crops up-it does Talk to ya later Hang in there,you'll make it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Welcome ....I am truly sorry that your daughter is having such problems at such an early age. Having had a child with a major illness, I know what trauma it causes in the family. Just remember to cherish and take each day as it comes. For when we worry about tomorrow, it only confuses us. For me, the daily road is the only one I can travel! debby [ ] My daughter Hi my name is and I am new to the group, I have a daughter who's name is Emma she is 8 yrs. old and we found out in Dec. that is has AIH. She was going to have tubes put in her ears and have her adoids removed on Dec 6, had the routine blood work done and found her pt level was 90,000. Well our peds sent us to a hemo. and ran more blood work her alt's were over 500 and ast's were high also bili. Her spleed was extremly inlarged.As it goes we were sent to a GI more blood work and a liver biopsy on the 26 of Dec. Well as it goes she bleed out, after countless pints of ffp and blood tranfustion along with prednisone and imuran it finally came under control 16 days later She was so close to being put on the tranplant list at a level 2-b Well her liver bio shown she has cirrhosis and at that time 30% funtion. She is on so many meds right now 40 of prednisone 50 of imuran 10 mg of propranolol 3x day, prilosec 20 mg 2xday, spironolactone 25mg 2xday, Vit. k 10 mg 1xday ursodal 4ml 2xday and constulose 20ml 1xday. They are saying she inherited this from her father who had ulsertive colitis he lost his bowel and large intestine. i didn't know anything about this being inherited. This has been a total shock. I worry about my daughter's future and what she has store for her. I have so many questions and not enough answers, so I am hoping by being in this group some will be answered for me as time goes on. She has gained 10 lbs so far and her moods have changed as well. The doctor said this is from the prednisone. My concern is I seen no signs of anything wrong with her before all of this started, thank God for the blood work because they say she could of went into liver failure within 4 to 6 months. I could use any info all of you can give me on AIH and meds. Thanks for being here to have someone to vent too. Now with every ache and pain I worry and I'm always checking poop for blood. She had some varices banned 2wks ago in her oesophagus (2) and they found 4 ulsers in her stomach. My thoughts and blessings are with each and everyone of you. @ Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 , My heart goes out to you and your daughter. How fortunate that the blood work alerted you to the problem since there were no other signs. In addition to the other suggestions you have received here from some really great folks, I would like to add 2 more sources of information. One of our members has a website dedicated to AIH... www.autoimmunehepatitis.com where he has compiled quite a bit of information as well as links to other sites. Also, for more information about autoimmune disease in general, you may want to check the American Autoimmune Related Disease Association... www.aarda.org. Will keep your Emma in my prayers. nne > Hi my name is and I am new to the group, I have a daughter who's name > is Emma she is 8 yrs. old and we found out in Dec. that is has AIH. She was > going to have tubes put in her ears and have her adoids removed on Dec 6, had > the routine blood work done and found her pt level was 90,000. Well our peds > sent us to a hemo. and ran more blood work her alt's were over 500 and ast's > were high also bili. Her spleed was extremly inlarged.As it goes we were sent > to a GI more blood work and a liver biopsy on the 26 of Dec. Well as it goes > she bleed out, after countless pints of ffp and blood tranfustion along with > prednisone and imuran it finally came under control 16 days later She was so > close to being put on the tranplant list at a level 2-b Well her liver bio > shown she has cirrhosis and at that time 30% funtion. She is on so many meds > right now 40 of prednisone 50 of imuran 10 mg of propranolol 3x day, prilosec > 20 mg 2xday, spironolactone 25mg 2xday, Vit. k 10 mg 1xday ursodal 4ml 2xday > and constulose 20ml 1xday. They are saying she inherited this from her father > who had ulsertive colitis he lost his bowel and large intestine. i didn't > know anything about this being inherited. This has been a total shock. I > worry about my daughter's future and what she has store for her. I have so > many questions and not enough answers, so I am hoping by being in this group > some will be answered for me as time goes on. She has gained 10 lbs so far > and her moods have changed as well. The doctor said this is from the > prednisone. My concern is I seen no signs of anything wrong with her before > all of this started, thank God for the blood work because they say she could > of went into liver failure within 4 to 6 months. I could use any info all of > you can give me on AIH and meds. Thanks for being here to have someone to > vent too. Now with every ache and pain I worry and I'm always checking poop > for blood. She had some varices banned 2wks ago in her oesophagus (2) and > they found 4 ulsers in her stomach. My thoughts and blessings are with each > and everyone of you. @ Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 I'm so sorry to hear about Emma. My daughter, , is also 8 yrs old, she was diagnosed in July/00 with AIH. I know the fears that you are feeling and some of the worry does subside, but when you are dealing with your child it is so difficult not to worry yourself into a hole. I've been trying to climb out of one for the past few months. 's is taking 20 mg of pred and 1000 mg of Cellcept (another steroid) but she did take Imuran for a short time. 's AIH doesn't seem to respond well to the treatment and she always ends up on more pred. The doctors are trying to decide what to try next. 's weight has doubled because of the pred and her mood swings are incredible at times. seems to get very depressed on pred. I've found most of my info about AIH on the Internet and the books mentioned by the other group members. I've also discovered that you need as much info about the disease as possible so that you can ask your Dr. questions and help with decisions about the treatment of AIH. isn't taking calcium at this time either but will be starting soon since she has been on pred for so long. For kids the worries are mostly the same as for adults weight gain, mood swings, skin sensitivity to sun, bones degeneration, and with kids decreased growth. hasn't grown an inch since she started on the pred. Also you need to let her eye dr. know about the pred since it can cause problems with cataracts(sp?) and glaucoma. If you have specific questions ask the group but you really have to read up on AIH to find what questions to ask. If I can help in anyway please feel free to e-mail me at LANDJDUNCAN@.... I'm a shoulder when you need to vent and I do have some answers. You'll find that this group is very supportive and has lots of knowledge to share. My prayers are with you and Emma Lori ('s Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 In a message dated 2/12/02 7:05:45 PM Pacific Standard Time, scott_p@... writes: The thing that comes to mind is that prednisone can result in skin sensitivity and excessive bruising, but I was never told to avoid any physical activity. Sun exposure is another thing that I read should be avoided with Imuran, although my doctor disagreed when I mentioned it. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 , You will get mixed responses on milk thistle, it is suppose to be good for the liver but bad for us!. Those of us with AIH have to be vigilant about anything which is an immune system enhancer, we take prednisone and other lovely toxins to suppress our immune system. Something as innocous as melatonin says right on the label; 'do not take this if you have an autoimmune disease'. Most of us just say no to all herbals. In terms of how your daughter feels about herself, it's unfortunate she is just a kid and shouldn't have to deal with this disease. The thing that comes to mind is that prednisone can result in skin sensitivity and excessive bruising, but I was never told to avoid any physical activity. This is a one-day-at -a time disease since every one responds differently. Hang in there and stay with this group. It's a wonderful group of people. Patty Re: [ ] Re: My daughter I have so many questions that are still not answered about this disease and I thank you all for helping me get the answers to some of them. My daughters doctor told me that I shouldn't give Emma any calcium and that she doesn't need it right now. I picked up an herbal milk thistle extract; I read on line that it was supposed to be good for the liver, so I was wondering if anyone could tell me anything about it or if anyone takes it. Do you think it is a good idea to give this to her? Emma is on so many different medicines now and I don't know if it will ever affect the way she thinks about her self or make her feel depressed and different form all of her peers. That is another question that I ask myself. I wish you all the best and I pray for you all every day. Thank you all so much for your support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Theresa. You are stong and will become amazing. You love you beautiful daughter and that is all you need. To hold her, and to cry with her is all part of the love you will always have for this child. She is strong too. I wish you the best and I hope this get better soon SHU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Dear Theresa,welcome to the list,you have joined a wonderful support group.While we may not be able to help you deal with your daughters pain,we can listen to you and let you know you are not alone,we are all here to help each other through the good and the bad.There is nothing worse than watching your child in pain,and yes these strong,brave angels have so much to teach us.I bet you are MUCH stronger than you give yourself credit for.There are several children on this list that are systemic,and we all know the rash and other problems that our children face.We all know about the pain,and the worrying about what our kids futures hold.My 3 yr old(systemic)has gained 20lbs due to pred,while I have lost 20lbs worrying about him.Even when he is doing good I worry about things that may or may not happen in the future.Just yesterday I started worrying about our city Junior High has two stories and no elevator,hes not even 4 yet.With your love and support you and your daughter will get through this,and be stronger for it.When you e-mail this list everyone recieves it,so any question you ask goes to a couple hundred people who know exactly what you are going through.Ask any question,tell your story,vent,tell us when things are going good,you just ask away and know we are all here to help you,no parent should go through this alone.Gental hugs to Rae,and I hope shes feeling better soon. Becki and 3systemic spooner6395 wrote: > My daughter, Rae, was diagnosed with systemic JRA in November 2000. > What a shock to us! Anyway, she developed an ear infection and she > went into a complete flare up. She is 5 now and she is in constant > pain and the rash she gets is freaking her out. Before, after being > in the hospital for 2 weeks without a diagnosis, she was more > accepting of what was happening. She was 3.. She is 5 now and of > course she knows more. I don't know how to deal with her pain. She > actually makes jokes and goes on with her fun. I take it worse. How > strong am I, not very... > Theresa > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 Theresa, Yes, you're a strong person and you might not realize it at the moment. It is very painful as a mom to watch your child suffer and there is little that you can do to help ease the pain. My daughter was too diagnosed at the age of 3 and she is now 8 yrs. old. I would say for the first year, I watched her suffer more times than I'd like to recall. I've been open as much as I possibly can about this disease with my child so there would be no surprises. This has helped the both of us a great deal. Now when the rash appears she will make comments such as: "my arthiritis is acting ugly today isn't it" and laughs it off. For us, we are stubborn and determined this disease will not control us and at times it's much easier said than done. Try to be stong and not let your child see the pain you are in. They are very smart and can pick up on things we don't realize. You have picked a good place to come for feedback. This group has been my stronghold during some very hard times! Hang in there and I wish you and your daughter the very best. It will get earier-it just takes time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 ..... > This sounds awfully whiney....sorry Don't apologize! It's okay. You're dealing with a lot more, and in a short time, than most people have to deal with in a whole life- time. Do you mind if I ask your daughter's first name? I'll include her in my daily healings. Yer already there, of course. Oh, and my coworker is supposed to give your email addy. to her g.d. tomorrow sometime. She said her g.d.'s email addy. is 'freakinfatchick'!!! LOL! Sue > -- " She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. " -- Mark Twain Rich and Sue Owens http://www.geocities.com/Yosemite/Meadows/7457/index3.html http://www.nothnbut.net/~reo77/aurora.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2002 Report Share Posted May 11, 2002 Dear; My thoughts and prayers are with you and your daughter. Love TURK >From: " " <Scrapnfriend@...> >Reply- > " " < >, > " longqt " <longqt > >Subject: My daughter >Date: Fri, 10 May 2002 13:17:55 -0700 (Pacific Daylight Time) > >Please keep my daughter and I in your prayers. We go to Childrens >Hospital in 2 hours for her stress test. In a way I hope they find >something....then they can take care of it and she can get back to her busy >active life. I don't know how I'll feel if they keep insisting that it >could just be a teen thing. Then the worry will never stop. > > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2002 Report Share Posted May 13, 2002 Have you tested your family to see if they have the stealth virus. After going to your web page, it became minutually apparrent that a mycoplasma from your 1st husbands military shots could be suspected? www.ccid.org Sorry if this offends, it is not intended to, Blessings Kathy My daughter > I have 4 children with autism, my oldest is my only daughter. There > is a webring if you have a site for your autistic daughter, it's > called, " Rings for Mother's with Autistic Daughters " you can find it > at: > > http://l.webring.com/hub?ring=ringsformothersw > > You can read our story at: > http://autismfamilycircle.com/ourstory.html > > autiemom4 > http://autismfamilycircle.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 The Stealth Virus? I've never before heard of that. Whiteman was a missle base when we were there, the stealth was not part of Whiteman's mission during our 8 year stay. > Have you tested your family to see if they have the stealth virus. After > going > to your web page, it became minutually apparrent that a mycoplasma from > your 1st husbands military shots could be suspected? > > www.ccid.org > Sorry if this offends, it is not intended to, > Blessings > Kathy > > > My daughter > > > > I have 4 children with autism, my oldest is my only daughter. There > > is a webring if you have a site for your autistic daughter, it's > > called, " Rings for Mother's with Autistic Daughters " you can find it > > at: > > > > http://l.webring.com/hub?ring=ringsformothersw > > > > You can read our story at: > > http://autismfamilycircle.com/ourstory.html > > > > autiemom4 > > http://autismfamilycircle.com > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 it's actually not THE stealth virus, but a category of viruses that we've started referring to as stealth viruses. (It has nothing to do with the stealth aircraft) These so-called stealth viruses do not activate the immune system in the traditional way, which can allow them to go undetected for a long time. http://www.cknow.com/vtutor/vtstealth.htm I am curious what was meant by it became " minutually " apparent (sic) At 5/14/02 11:43 AM +0000, you wrote: >The Stealth Virus? I've never before heard of that. Whiteman was a >missle base when we were there, the stealth was not part of >Whiteman's mission during our 8 year stay. > > > > > Have you tested your family to see if they have the stealth virus. >After > > going > > to your web page, it became minutually apparrent that a mycoplasma >from > > your 1st husbands military shots could be suspected? > > > > www.ccid.org > > Sorry if this offends, it is not intended to, > > Blessings > > Kathy > > > > > > My daughter > > > > > > > I have 4 children with autism, my oldest is my only daughter. >There > > > is a webring if you have a site for your autistic daughter, it's > > > called, " Rings for Mother's with Autistic Daughters " you can >find it > > > at: > > > > > > > <http://l.webring.com/hub?ring=ringsformothersw>http://l.webring.com/hub?ring=ri\ ngsformothersw > > > > > > You can read our story at: > > > > <http://autismfamilycircle.com/ourstory.html>http://autismfamilycircle.com/ourst\ ory.html > > > > > > autiemom4 > > > <http://autismfamilycircle.com>http://autismfamilycircle.com > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 No, I am not talking of a military campaign, or am I LOL? What I am talking about is mycoplasma sv-40 in vaccines given to army personnel? This has the ability to do complex neurological adverse sequales in the offspring of those affected. Why don't you call me and I can tell you more? 503-629-2103 My daughter > > > > > > > I have 4 children with autism, my oldest is my only daughter. > There > > > is a webring if you have a site for your autistic daughter, it's > > > called, " Rings for Mother's with Autistic Daughters " you can > find it > > > at: > > > > > > http://l.webring.com/hub?ring=ringsformothersw > > > > > > You can read our story at: > > > http://autismfamilycircle.com/ourstory.html > > > > > > autiemom4 > > > http://autismfamilycircle.com > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 > Have you tested your family to see if they have the stealth virus. After > going > to your web page, it became minutually apparrent that a mycoplasma from > your 1st husbands military shots could be suspected? > > www.ccid.org > Sorry if this offends, it is not intended to, > Blessings > Kathy > > > ----- Original Message ----- > From: autiemom4 <autiemom4@y...> > <Autism_in_Girls@y...> > Sent: Monday, May 13, 2002 3:24 PM hey Kathy where at do you live now. I read your story It sounds great. you have some cute kids. I live in Wichita Kansas., Lorna HFA > > > I have 4 children with autism, my oldest is my only daughter. There > > is a webring if you have a site for your autistic daughter, it's > > called, " Rings for Mother's with Autistic Daughters " you can find it > > at: > > > > http://l.webring.com/hub?ring=ringsformothersw > > > > You can read our story at: > > http://autismfamilycircle.com/ourstory.html > > > > autiemom4 > > http://autismfamilycircle.com > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Not sure what to tell you Charlene, my daughter hasn;t reached that stage yet. She really does love the Tv, but they are kids shows she watches, and i simply don;t let her watch that other stuff.....how it will be when she is older, i am not sure. If it gets too bad, maybe the Tv needs a little holiday for awhile, and get her out of the routine. I am sure i am in for some fun as mine gets older. Cheryl S [australia] my daughter My daughter will not do anything. she just wants to watch TV all day. I cant get her interested in t-ball or soccer. She goes threw my movies and as she is watching them all day she is pretending she is in them. She is the actress and she changes clothes with the movies. Right now she didnt want to go with ehr dad to walmart and she didnt want to go with me to her grandmothers. She wants to sit and watch austin powers now. Earlier it was wish upon a star and she watched it 4 times over and over. the teenage girl would pput on make up and my daughter would put on make up. This girl is driving me nuts. Charlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 The worst thing Cheryl S is that she doesnt care about nothing else. Its her and TV and thats all that the world is. She is getting sassy too She is going to be 9 July 26th. You never know what your in for when they get older. I do not want to do the puberty thing LOL Charlene -- my daughter My daughter will not do anything. she just wants to watch TV all day. I cant get her interested in t-ball or soccer. She goes threw my movies and as she is watching them all day she is pretending she is in them. She is the actress and she changes clothes with the movies. Right now she didnt want to go with ehr dad to walmart and she didnt want to go with me to her grandmothers. She wants to sit and watch austin powers now. Earlier it was wish upon a star and she watched it 4 times over and over. the teenage girl would pput on make up and my daughter would put on make up. This girl is driving me nuts. Charlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Charlene, Cheryl sounds like Theresia! She has to have her tv on from the time she wakes up till she goes to bed. The sassy part too, she will make " snotty " faces at me when she gets corrected, just wait till pubery hits....lol Take care, > The worst thing Cheryl S is that she doesnt care about nothing else. > Its her and TV and thats all that the world is. She is getting sassy too > She is going to be 9 July 26th. You never know what your in for when > they get older. I do not want to do the puberty thing LOL Charlene > > -- my daughter > > > My daughter will not do anything. she just wants to watch TV all > day. I cant get her interested in t-ball or soccer. She goes threw my > movies and as she is watching them all day she is pretending she is in them. > She is the actress and she changes clothes with the movies. Right now she > didnt want to go with ehr dad to walmart and she didnt want to go with me to > her grandmothers. She wants to sit and watch austin powers now. Earlier > it was wish upon a star and she watched it 4 times over and over. the > teenage girl would pput on make up and my daughter would put on make up. > This girl is driving me nuts. Charlene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Not looking forward the the puberty thing myself.........not at all. I have just told Hannah that she has to share the tv, and when her sister wants to watch something different, she has to go with it, at first it was hard, but after awhile, she got used to the idea, and took off and played somewhere by herself. Cheryl S my daughter My daughter will not do anything. she just wants to watch TV all day. I cant get her interested in t-ball or soccer. She goes threw my movies and as she is watching them all day she is pretending she is in them. She is the actress and she changes clothes with the movies. Right now she didnt want to go with ehr dad to walmart and she didnt want to go with me to her grandmothers. She wants to sit and watch austin powers now. Earlier it was wish upon a star and she watched it 4 times over and over. the teenage girl would pput on make up and my daughter would put on make up. This girl is driving me nuts. Charlene [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.