Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 > > Four years ago, we considered chelation therapy and started my youngest son on TD-DMPS noticing NO change at all. We did this for 2 years. (I heard later that this turned out to be a scam?---Dr. Buttar anyone?) We did this based on a heavy metals test (hair test) where the kids were off the charts in metals except none showing for mercury. It would be exceptionally useful to actually see the hair test. I don't suppose you can post it in the files section? >We were told that sometimes mercury doesn't show if it doesn't spill. Is this true? Our oldest son's neurologist at Loma told us that if we were to chelate him that we could dislodge the mercury from his brain and it would " relodge " somewhere else, possibly causing him to seize even worse....so we opted out. Is this true?? Can chelating with DMSA and ALA worsen his seizures? If done wrong. Not if done properly. What is happening is the neurologist is telling lies as almost all doctors do to try to control you. This is one of the very difficult things for most people to accept and understand - doctors are taught in medical school and residency that they are SUPPOSED to make things up to scare you so you don't do anything other than regular mainstream medicine. It's pretty easy to verify this - just put the neuro on the spot to describe specific cases where s/he has observed this and keep asking questions until you get a clear picture or s/he gets mad. Do note that DURING the actual chelation cycles he may be more prone to having seizures, but this is easily controlled by using enough medication or reducing chelator amounts to a low enough level. Similarly there may be temporary issues during the 'detox hump,' but since you already chelated him that should have already happened (unless the TD-DMPS you got didn't actually contain any active DMPS). > Subsequently, this influenced our decision to NOT chelate. Now we regret it since time has passed and we have only placed small bandages (like gf/cf diet, hbot (made it worse) amongst all the other problems. HBOT is actually more risky for this than chelation. It is still worthwhile in certain specific situations. > After reading a ton of material on the internet on Cutler Protocol, and reading through only partially in the book Amalgam Illness:Diagnosis & Treatment, (I plan to finish soon), I would like to start my boys immediately with chelating. I can say that their guts have improved greatly over the last 4 years, to the point that I just started reintroducing wheat and all grains back into their diet, but their behaviors have worsened to some extent and I am finding my oldest son more aggressive and I am afraid I am losing them both to this disease. Sounds like you need to take the grains back out. This is part of the " GFCF religion. " The GFCF diet does NOT cure anything at all. It only holds the symptoms at bay as long as you continue the diet. Of course, when the kids reach adolescence they become rebellious and don't follow the diet, so people who have relied on it then have their children get catastrophically worse, become unmanageable and have to institutionalize them when the children often could have gotten all better if they'd been chelated earlier on - and after chelation most of them would not need the GFCF diet. Yours apparently still need it, but really do need to chelate. > > > So this is what I have gleaned from my initial reading (please those with experience let me know if I have this right and if I need to add more supplements???): > > > k > > Age: 10 years, 3 months > > Weight: 97.5 lbs. > > Supplements currently on: > P5P, 50 mg (2x/day) B complex (like B50) is usually adequate if given 3-4 times a day. > Vitamin C, 500 mg (1x/day) this needs to be 3-4 times a day. > GABA, 500 mg(1x/day) GABA only lasts a few hours. All the antiseizure meds are like it in action and should be used instead in the presence of frank seizures. > Taurine, 1000 mg (2x/day) > Magnesium (.9cc injection 1x/day) Give Mg by mouth several times a day, sometimes that is adequate and it will always help even if injections are needed. > Natural Calm, 325mg/2tsp (Magnesium tea...sometimes before bed if seizures are prevalent) > 1 Super Papaya Enzyme Plus with meals > 1 tsp coconut oil 3x/day They need zinc too. Maybe 50 mg once or twice a day. > > Other Issues to Consider: k had 1 febrile seizure at 14 months of age. At 28 months of age, k was hospitalized for seizure disorder and has had a total of 5 hospitalizations and thousands of seizures since. He has been on at least 10 different anticonvulsants with little or no success in stopping the seizures but leaving only lasting behavioral problems. The last drug he was on was the worst (Ativan: Lorazepam) which is a benzodiazepine that took 6 months to wean him off of. His seizures average about 3/week now down from and average of 22/week when he was on the medication! Please list all the ones that were tried, tell us what the neurologist says is causing the seizures, what exact type the neurologist says they are, and provide the actual EEG interpretive report discussing what they saw when they did an EEG. > And, sometimes he will have 2 weeks with NO seizures and then 4 or 5 days with about 8 seizures/day. Is it okay to chelate even though he is having seizures? You don't really have a choice if heavy metals are causing them and you want them to stop. It sounds like there may be some unrecognized trigger. Are you familiar with chemical sensitivity? Do you think he is chemically sensitive? > > > > Proposed Schedule for k > > > Start 12mg DMSA and 12mg ALA at the same time. For us, Monday 9am, 12pm, 3pm, 6pm, 9pm, 12pm, 3pm, 6am until Thursday, 9pm bedtime. > > Rest from Thursday at 9pm, Friday, Saturday and Sunday starting back at 9am Monday morning with the above schedule > > Add ?????? supplements to his protocol > > > This is fine. > > > Andy > > Age: 7 years, 5 months > > Weight: 47.5 lbs. Use comments above from k for Andy too. It is pretty likely both of them would benefit from some form of adrenal glandular, such as Thorne brand, Allergy Research Group/Nutricology brand, or Standard Process brand. I'm only naming brands because it isn't that common a supplement and these 3 lines carry it, any brand should be fine. > > Supplements/Medicine currently on: > Fluconazole, .75ml 1x/day, 40mg/ml concentration Did you ever try this on k? > P5P, 100 mg (2x/day) > Vitamin C, 500 mg (1x/day) > Taurine, 1000 mg (2x/day) > Glutagenics, 1tsp/day (1tsp = 3500mg L-Glutamine, 500mg Licorice Root, 50 mg Aloe Leaf Extract) > Natural Calm (Magnesium tea...sometimes before bed if seizures are prevalent) > 1 Super Papaya Enzyme Plus with meals > 1 tsp coconut oil 3x/day > > Other Issues to Consider: Andy has chronic constipation and is dependent on suppositories. I'm not sure if this is anxiety related since he acts like he is trying to hold back from pushing, but there may be other issues. Andy is one of the highest yeast kids that his ex-DAN! doctor ever had. Use more magnesium by mouth and also anything that enhances bile flow, lecithin, milk thistle extract (several times a day) glycine, etc. > > > Proposed Schedule for Andy > > Start 12.5mg DMSA and 12.5mg ALA at the same time. For us, Monday 9am, 12pm, 3pm, 6pm, 9pm, 12pm, 3pm, 6am until Thursday, 9pm bedtime. We are wanting to use liquid ALA throughout the night to help Andy stay asleep and powdered ALA during the day mixed in applesauce to save on cost. This is fine. > > Rest from Thursday at 9pm, Friday, Saturday and Sunday starting back at 9am Monday morning with the above schedule > > Add ?????? supplements to his protocol > As above. And please provide more information. Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Andy- Were you saying here that HBOT is actually more risky for possibly increasing seizures than chelation (or done incorrectly chelation)? Just want to be sure I am following the conversation correctly. If there is not a seizure issue what's your take on HBOT and who it may be appropriate for? Thanks- " There is a crack in everything and that is how the light gets in. " Leonard Cohen From: AndyCutler@... Date: Sat, 13 Feb 2010 20:17:58 +0000 Subject: [ ] Re: READY to START for my 2 boys!! ANDY...others with experience...is this corre > > Four years ago, we considered chelation therapy and started my youngest son on TD-DMPS noticing NO change at all. We did this for 2 years. (I heard later that this turned out to be a scam?---Dr. Buttar anyone?) We did this based on a heavy metals test (hair test) where the kids were off the charts in metals except none showing for mercury. It would be exceptionally useful to actually see the hair test. I don't suppose you can post it in the files section? >We were told that sometimes mercury doesn't show if it doesn't spill. Is this true? Our oldest son's neurologist at Loma told us that if we were to chelate him that we could dislodge the mercury from his brain and it would " relodge " somewhere else, possibly causing him to seize even worse....so we opted out. Is this true?? Can chelating with DMSA and ALA worsen his seizures? If done wrong. Not if done properly. What is happening is the neurologist is telling lies as almost all doctors do to try to control you. This is one of the very difficult things for most people to accept and understand - doctors are taught in medical school and residency that they are SUPPOSED to make things up to scare you so you don't do anything other than regular mainstream medicine. It's pretty easy to verify this - just put the neuro on the spot to describe specific cases where s/he has observed this and keep asking questions until you get a clear picture or s/he gets mad. Do note that DURING the actual chelation cycles he may be more prone to having seizures, but this is easily controlled by using enough medication or reducing chelator amounts to a low enough level. Similarly there may be temporary issues during the 'detox hump,' but since you already chelated him that should have already happened (unless the TD-DMPS you got didn't actually contain any active DMPS). > Subsequently, this influenced our decision to NOT chelate. Now we regret it since time has passed and we have only placed small bandages (like gf/cf diet, hbot (made it worse) amongst all the other problems. HBOT is actually more risky for this than chelation. It is still worthwhile in certain specific situations. > After reading a ton of material on the internet on Cutler Protocol, and reading through only partially in the book Amalgam Illness:Diagnosis & Treatment, (I plan to finish soon), I would like to start my boys immediately with chelating. I can say that their guts have improved greatly over the last 4 years, to the point that I just started reintroducing wheat and all grains back into their diet, but their behaviors have worsened to some extent and I am finding my oldest son more aggressive and I am afraid I am losing them both to this disease. Sounds like you need to take the grains back out. This is part of the " GFCF religion. " The GFCF diet does NOT cure anything at all. It only holds the symptoms at bay as long as you continue the diet. Of course, when the kids reach adolescence they become rebellious and don't follow the diet, so people who have relied on it then have their children get catastrophically worse, become unmanageable and have to institutionalize them when the children often could have gotten all better if they'd been chelated earlier on - and after chelation most of them would not need the GFCF diet. Yours apparently still need it, but really do need to chelate. > > > So this is what I have gleaned from my initial reading (please those with experience let me know if I have this right and if I need to add more supplements???): > > > k > > Age: 10 years, 3 months > > Weight: 97.5 lbs. > > Supplements currently on: > P5P, 50 mg (2x/day) B complex (like B50) is usually adequate if given 3-4 times a day. > Vitamin C, 500 mg (1x/day) this needs to be 3-4 times a day. > GABA, 500 mg(1x/day) GABA only lasts a few hours. All the antiseizure meds are like it in action and should be used instead in the presence of frank seizures. > Taurine, 1000 mg (2x/day) > Magnesium (.9cc injection 1x/day) Give Mg by mouth several times a day, sometimes that is adequate and it will always help even if injections are needed. > Natural Calm, 325mg/2tsp (Magnesium tea...sometimes before bed if seizures are prevalent) > 1 Super Papaya Enzyme Plus with meals > 1 tsp coconut oil 3x/day They need zinc too. Maybe 50 mg once or twice a day. > > Other Issues to Consider: k had 1 febrile seizure at 14 months of age. At 28 months of age, k was hospitalized for seizure disorder and has had a total of 5 hospitalizations and thousands of seizures since. He has been on at least 10 different anticonvulsants with little or no success in stopping the seizures but leaving only lasting behavioral problems. The last drug he was on was the worst (Ativan: Lorazepam) which is a benzodiazepine that took 6 months to wean him off of. His seizures average about 3/week now down from and average of 22/week when he was on the medication! Please list all the ones that were tried, tell us what the neurologist says is causing the seizures, what exact type the neurologist says they are, and provide the actual EEG interpretive report discussing what they saw when they did an EEG. > And, sometimes he will have 2 weeks with NO seizures and then 4 or 5 days with about 8 seizures/day. Is it okay to chelate even though he is having seizures? You don't really have a choice if heavy metals are causing them and you want them to stop. It sounds like there may be some unrecognized trigger. Are you familiar with chemical sensitivity? Do you think he is chemically sensitive? > > > > Proposed Schedule for k > > > Start 12mg DMSA and 12mg ALA at the same time. For us, Monday 9am, 12pm, 3pm, 6pm, 9pm, 12pm, 3pm, 6am until Thursday, 9pm bedtime. > > Rest from Thursday at 9pm, Friday, Saturday and Sunday starting back at 9am Monday morning with the above schedule > > Add ?????? supplements to his protocol > > > This is fine. > > > Andy > > Age: 7 years, 5 months > > Weight: 47.5 lbs. Use comments above from k for Andy too. It is pretty likely both of them would benefit from some form of adrenal glandular, such as Thorne brand, Allergy Research Group/Nutricology brand, or Standard Process brand. I'm only naming brands because it isn't that common a supplement and these 3 lines carry it, any brand should be fine. > > Supplements/Medicine currently on: > Fluconazole, .75ml 1x/day, 40mg/ml concentration Did you ever try this on k? > P5P, 100 mg (2x/day) > Vitamin C, 500 mg (1x/day) > Taurine, 1000 mg (2x/day) > Glutagenics, 1tsp/day (1tsp = 3500mg L-Glutamine, 500mg Licorice Root, 50 mg Aloe Leaf Extract) > Natural Calm (Magnesium tea...sometimes before bed if seizures are prevalent) > 1 Super Papaya Enzyme Plus with meals > 1 tsp coconut oil 3x/day > > Other Issues to Consider: Andy has chronic constipation and is dependent on suppositories. I'm not sure if this is anxiety related since he acts like he is trying to hold back from pushing, but there may be other issues. Andy is one of the highest yeast kids that his ex-DAN! doctor ever had. Use more magnesium by mouth and also anything that enhances bile flow, lecithin, milk thistle extract (several times a day) glycine, etc. > > > Proposed Schedule for Andy > > Start 12.5mg DMSA and 12.5mg ALA at the same time. For us, Monday 9am, 12pm, 3pm, 6pm, 9pm, 12pm, 3pm, 6am until Thursday, 9pm bedtime. We are wanting to use liquid ALA throughout the night to help Andy stay asleep and powdered ALA during the day mixed in applesauce to save on cost. This is fine. > > Rest from Thursday at 9pm, Friday, Saturday and Sunday starting back at 9am Monday morning with the above schedule > > Add ?????? supplements to his protocol > As above. And please provide more information. Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD _________________________________________________________________ Hotmail: Free, trusted and rich email service. http://clk.atdmt.com/GBL/go/201469228/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 > > > > > > Four years ago, we considered chelation therapy and started my youngest son on TD-DMPS noticing NO change at all. We did this for 2 years. (I heard later that this turned out to be a scam?---Dr. Buttar anyone?) We did this based on a heavy metals test (hair test) where the kids were off the charts in metals except none showing for mercury. > > > > It would be exceptionally useful to actually see the hair test. I don't suppose you can post it in the files section? > > > > >We were told that sometimes mercury doesn't show if it doesn't spill. Is this true? Our oldest son's neurologist at Loma told us that if we were to chelate him that we could dislodge the mercury from his brain and it would " relodge " somewhere else, possibly causing him to seize even worse....so we opted out. Is this true?? Can chelating with DMSA and ALA worsen his seizures? > > > > If done wrong. Not if done properly. > > > > What is happening is the neurologist is telling lies as almost all doctors do to try to control you. This is one of the very difficult things for most people to accept and understand - doctors are taught in medical school and residency that they are SUPPOSED to make things up to scare you so you don't do anything other than regular mainstream medicine. > > > > It's pretty easy to verify this - just put the neuro on the spot to describe specific cases where s/he has observed this and keep asking questions until you get a clear picture or s/he gets mad. > > > > Do note that DURING the actual chelation cycles he may be more prone to having seizures, but this is easily controlled by using enough medication or reducing chelator amounts to a low enough level. Similarly there may be temporary issues during the 'detox hump,' but since you already chelated him that should have already happened (unless the TD-DMPS you got didn't actually contain any active DMPS). > > > > > Subsequently, this influenced our decision to NOT chelate. Now we regret it since time has passed and we have only placed small bandages (like gf/cf diet, hbot (made it worse) amongst all the other problems. > > > > HBOT is actually more risky for this than chelation. It is still worthwhile in certain specific situations. > > > > > After reading a ton of material on the internet on Cutler Protocol, and reading through only partially in the book Amalgam Illness:Diagnosis & Treatment, (I plan to finish soon), I would like to start my boys immediately with chelating. I can say that their guts have improved greatly over the last 4 years, to the point that I just started reintroducing wheat and all grains back into their diet, but their behaviors have worsened to some extent and I am finding my oldest son more aggressive and I am afraid I am losing them both to this disease. > > > > Sounds like you need to take the grains back out. > > > > This is part of the " GFCF religion. " The GFCF diet does NOT cure anything at all. It only holds the symptoms at bay as long as you continue the diet. Of course, when the kids reach adolescence they become rebellious and don't follow the diet, so people who have relied on it then have their children get catastrophically worse, become unmanageable and have to institutionalize them when the children often could have gotten all better if they'd been chelated earlier on - and after chelation most of them would not need the GFCF diet. > > > > Yours apparently still need it, but really do need to chelate. > > > > > > > > > > > So this is what I have gleaned from my initial reading (please those with experience let me know if I have this right and if I need to add more supplements???): > > > > > > > > > k > > > > > > Age: 10 years, 3 months > > > > > > Weight: 97.5 lbs. > > > > > > Supplements currently on: > > > P5P, 50 mg (2x/day) > > > > B complex (like B50) is usually adequate if given 3-4 times a day. > > > > > Vitamin C, 500 mg (1x/day) > > > > this needs to be 3-4 times a day. > > > > > GABA, 500 mg(1x/day) > > > > GABA only lasts a few hours. All the antiseizure meds are like it in action and should be used instead in the presence of frank seizures. > > > > > Taurine, 1000 mg (2x/day) > > > Magnesium (.9cc injection 1x/day) > > > > Give Mg by mouth several times a day, sometimes that is adequate and it will always help even if injections are needed. > > > > > Natural Calm, 325mg/2tsp (Magnesium tea...sometimes before bed if seizures are prevalent) > > > 1 Super Papaya Enzyme Plus with meals > > > 1 tsp coconut oil 3x/day > > > > They need zinc too. Maybe 50 mg once or twice a day. > > > > > > Other Issues to Consider: k had 1 febrile seizure at 14 months of age. At 28 months of age, k was hospitalized for seizure disorder and has had a total of 5 hospitalizations and thousands of seizures since. He has been on at least 10 different anticonvulsants with little or no success in stopping the seizures but leaving only lasting behavioral problems. The last drug he was on was the worst (Ativan: Lorazepam) which is a benzodiazepine that took 6 months to wean him off of. His seizures average about 3/week now down from and average of 22/week when he was on the medication! > > > > Please list all the ones that were tried, tell us what the neurologist says is causing the seizures, what exact type the neurologist says they are, and provide the actual EEG interpretive report discussing what they saw when they did an EEG. > > > > > And, sometimes he will have 2 weeks with NO seizures and then 4 or 5 days with about 8 seizures/day. Is it okay to chelate even though he is having seizures? > > > > You don't really have a choice if heavy metals are causing them and you want them to stop. > > > > It sounds like there may be some unrecognized trigger. Are you familiar with chemical sensitivity? Do you think he is chemically sensitive? > > > > > > > > > > > > Proposed Schedule for k > > > > > > > > > Start 12mg DMSA and 12mg ALA at the same time. For us, Monday 9am, 12pm, 3pm, 6pm, 9pm, 12pm, 3pm, 6am until Thursday, 9pm bedtime. > > > > > > Rest from Thursday at 9pm, Friday, Saturday and Sunday starting back at 9am Monday morning with the above schedule > > > > > > Add ?????? supplements to his protocol > > > > > > > > > > > This is fine. > > > > > > > > > Andy > > > > > > Age: 7 years, 5 months > > > > > > Weight: 47.5 lbs. > > > > Use comments above from k for Andy too. > > > > It is pretty likely both of them would benefit from some form of adrenal glandular, such as Thorne brand, Allergy Research Group/Nutricology brand, or Standard Process brand. I'm only naming brands because it isn't that common a supplement and these 3 lines carry it, any brand should be fine. > > > > > > Supplements/Medicine currently on: > > > Fluconazole, .75ml 1x/day, 40mg/ml concentration > > > > Did you ever try this on k? > > > > > P5P, 100 mg (2x/day) > > > Vitamin C, 500 mg (1x/day) > > > Taurine, 1000 mg (2x/day) > > > Glutagenics, 1tsp/day (1tsp = 3500mg L-Glutamine, 500mg Licorice Root, 50 mg Aloe Leaf Extract) > > > Natural Calm (Magnesium tea...sometimes before bed if seizures are prevalent) > > > 1 Super Papaya Enzyme Plus with meals > > > 1 tsp coconut oil 3x/day > > > > > > Other Issues to Consider: Andy has chronic constipation and is dependent on suppositories. I'm not sure if this is anxiety related since he acts like he is trying to hold back from pushing, but there may be other issues. Andy is one of the highest yeast kids that his ex-DAN! doctor ever had. > > > > Use more magnesium by mouth and also anything that enhances bile flow, lecithin, milk thistle extract (several times a day) glycine, etc. > > > > > > > > > Proposed Schedule for Andy > > > > > > Start 12.5mg DMSA and 12.5mg ALA at the same time. For us, Monday 9am, 12pm, 3pm, 6pm, 9pm, 12pm, 3pm, 6am until Thursday, 9pm bedtime. We are wanting to use liquid ALA throughout the night to help Andy stay asleep and powdered ALA during the day mixed in applesauce to save on cost. > > > > This is fine. > > > > > > Rest from Thursday at 9pm, Friday, Saturday and Sunday starting back at 9am Monday morning with the above schedule > > > > > > Add ?????? supplements to his protocol > > > > > As above. And please provide more information. > > > > Andy > > > > http://www.noamalgam.com/index.html > > Amalgam Illness: Diagnosis and Treatment > > > > http://www.noamalgam.com/hairtestbook.html > > Hair Test Interpretation: Finding Hidden Toxicities > > > > http://www.noamalgam.com/nourishinghope.html > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > http://www.noamalgam.com/biologicaltreatments.html > > Biological Treatments for Autism and PDD > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Hotmail: Free, trusted and rich email service. > http://clk.atdmt.com/GBL/go/201469228/direct/01/ > > Quote Link to comment Share on other sites More sharing options...
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