update and question

[Guest guest]

Hi Kerin,

I, too, live in Mass. According to the Health Dept. office at UMASS,

all you need is a letter stating that " vaccinations are against my

sincere religious beliefs " . There isn't any form you need. You also

don't need any 'proof' of belonging to any particular religion. All you

need to do is give a copy to the school/daycare upon registering. I

haven't had any personal experience with it yet as our daughter is only

4 months old. I'd love to hear what experiences you have. Feel free to

e-mail me directly. BTW, where in Mass. do you live?- Jackie

[Guest guest]

There is a Mass. group called MCVC run by Debbie Bermudes and her

husband. They are working on changing the legislation in Mass. I think

Debbie is on this list...if not and you want her email...let me know.

in CT

Jackie ez wrote:

>

> From: Jackie ez <jaqjav@...>

>

> Hi Kerin,

> I, too, live in Mass. According to the Health Dept. office at UMASS,

> all you need is a letter stating that " vaccinations are against my

> sincere religious beliefs " . There isn't any form you need. You also

> don't need any 'proof' of belonging to any particular religion. All you

> need to do is give a copy to the school/daycare upon registering. I

> haven't had any personal experience with it yet as our daughter is only

> 4 months old. I'd love to hear what experiences you have. Feel free to

> e-mail me directly. BTW, where in Mass. do you live?- Jackie

>

> ---------------------------

[Guest guest]

Jackie and Kerin in Mass.

Are you part of the MCVC? The mass. group working on legislation. Let me

know if you need their email.

in CT

Jackie ez wrote:

>

> From: Jackie ez <jaqjav@...>

>

> Hi Kerin,

> I, too, live in Mass. According to the Health Dept. office at UMASS,

> all you need is a letter stating that " vaccinations are against my

> sincere religious beliefs " . There isn't any form you need. You also

> don't need any 'proof' of belonging to any particular religion. All you

> need to do is give a copy to the school/daycare upon registering. I

> haven't had any personal experience with it yet as our daughter is only

> 4 months old. I'd love to hear what experiences you have. Feel free to

> e-mail me directly. BTW, where in Mass. do you live?- Jackie

>

>

--

@...

***************************************************************

We Must Have The Freedom To Choose & Respect Everyone's Choice

***************************************************************

Any information obtained here is not to be construed as medical

OR legal advice. The decision to vaccinate and how you

implement that decision is yours and yours alone.

[Guest guest]

Claudine

Thank you so much I knew I could count on the group to help us get through

this once again. We feel like you about the Ribavarin pills and not really

helping the PCT. We do not see the Dermatologist until March 13th about the

moles that the GI doctor is worried about and then we can question him again

about the PCT hoping he can help us in that area again since he was the one

who Diagnosed it to begin with and sent us to the GI for the treatment for

the liver. My husband is really down right now but I will not let him give

up. Thanks for your input and support. We all need each other so much.

Thanks again.

Winne

[Guest guest]

Claudine

Thank you so much I knew I could count on the group to help us get through

this once again. We feel like you about the Ribavarin pills and not really

helping the PCT. We do not see the Dermatologist until March 13th about the

moles that the GI doctor is worried about and then we can question him again

about the PCT hoping he can help us in that area again since he was the one

who Diagnosed it to begin with and sent us to the GI for the treatment for

the liver. My husband is really down right now but I will not let him give

up. Thanks for your input and support. We all need each other so much.

Thanks again.

Winne

[Guest guest]

Claudine

Thank you so much I knew I could count on the group to help us get through

this once again. We feel like you about the Ribavarin pills and not really

helping the PCT. We do not see the Dermatologist until March 13th about the

moles that the GI doctor is worried about and then we can question him again

about the PCT hoping he can help us in that area again since he was the one

who Diagnosed it to begin with and sent us to the GI for the treatment for

the liver. My husband is really down right now but I will not let him give

up. Thanks for your input and support. We all need each other so much.

Thanks again.

Winne

[Guest guest]

Claudine

Thank you so much I knew I could count on the group to help us get through

this once again. We feel like you about the Ribavarin pills and not really

helping the PCT. We do not see the Dermatologist until March 13th about the

moles that the GI doctor is worried about and then we can question him again

about the PCT hoping he can help us in that area again since he was the one

who Diagnosed it to begin with and sent us to the GI for the treatment for

the liver. My husband is really down right now but I will not let him give

up. Thanks for your input and support. We all need each other so much.

Thanks again.

Winne

[Guest guest]

Hello Winnie,

I'm really sorry to hear that the PCT seems to be

coming back. I don't know of any studies on it, but

there might be other doctors with more experience than

yours in dealing with it if this is only the second

time he has dealt with it. I know that PCT is one of

the diseases that has been proved to be caused by the

HCV so it stands to reason someone somewhere has some

experience with it. I'm sure the reason he wants to

stop the ribavirin is because there have not been any

studies on using it long term, so long term side

effects and risks are not known. I have seen it

stated that it shouldn't be used for longer than one

year, and your hubby is already past that point.

Besides, I don't think the ribavirin is going to help

with the PCT any. As for the pegylated interferon

question, why not go ahead and switch to the

Peg-Intron as soon as it becomes available. Then if

you feel you need to you could still switch to the

Roche brand, Pegasys, when it is available. Well,

good luck today at the doctor. Be sure and let us

know what happens!

Claudine

>

__________________________________________________

[Guest guest]

Hello Winnie,

I'm really sorry to hear that the PCT seems to be

coming back. I don't know of any studies on it, but

there might be other doctors with more experience than

yours in dealing with it if this is only the second

time he has dealt with it. I know that PCT is one of

the diseases that has been proved to be caused by the

HCV so it stands to reason someone somewhere has some

experience with it. I'm sure the reason he wants to

stop the ribavirin is because there have not been any

studies on using it long term, so long term side

effects and risks are not known. I have seen it

stated that it shouldn't be used for longer than one

year, and your hubby is already past that point.

Besides, I don't think the ribavirin is going to help

with the PCT any. As for the pegylated interferon

question, why not go ahead and switch to the

Peg-Intron as soon as it becomes available. Then if

you feel you need to you could still switch to the

Roche brand, Pegasys, when it is available. Well,

good luck today at the doctor. Be sure and let us

know what happens!

Claudine

>

__________________________________________________

[Guest guest]

In a message dated 2/13/01 6:20:10 PM !!!First Boot!!!, RLWINNE@... writes:

> Thank you so much I knew I could count on the group to help us get through

> this once again. We feel like you about the Ribavarin pills and not really

> helping the PCT. We do not see the Dermatologist until March 13th about

> the

> moles that the GI doctor is worried about and then we can question him

> again

> about the PCT hoping he can help us in that area again since he was the one

> who Diagnosed it to begin with and sent us to the GI for the treatment for

> the liver. My husband is really down right now but I will not let him give

> up. Thanks for your input and support. We all need each other so much.

> Thanks again.

>

>

Dear Winne, I checked with the local GI physicians and the Dermatologists.

It took me awhile to get a response from everyone, but the general opinion

is: No more ribavirin. The long term effects are nasty in those few cases

where folks have had the stamina to hold out as long as your husband has.

The dermatologists are still scratching their heads over the abundance of

side effects from HCV,not to mention the treatment. I don't think they were

expecting this. Take care, Anne

[Guest guest]

In a message dated 2/13/01 6:20:10 PM !!!First Boot!!!, RLWINNE@... writes:

> Thank you so much I knew I could count on the group to help us get through

> this once again. We feel like you about the Ribavarin pills and not really

> helping the PCT. We do not see the Dermatologist until March 13th about

> the

> moles that the GI doctor is worried about and then we can question him

> again

> about the PCT hoping he can help us in that area again since he was the one

> who Diagnosed it to begin with and sent us to the GI for the treatment for

> the liver. My husband is really down right now but I will not let him give

> up. Thanks for your input and support. We all need each other so much.

> Thanks again.

>

>

Dear Winne, I checked with the local GI physicians and the Dermatologists.

It took me awhile to get a response from everyone, but the general opinion

is: No more ribavirin. The long term effects are nasty in those few cases

where folks have had the stamina to hold out as long as your husband has.

The dermatologists are still scratching their heads over the abundance of

side effects from HCV,not to mention the treatment. I don't think they were

expecting this. Take care, Anne

[Guest guest]

Yes, my friend ws a genotype 1a and she did a year on the old combo-

rebetron and rebetol. She went thru a lot but she made it.

I hv a question. I hv seen this mentioned on a couple of other boards

but no one hs explained it. What is this pain in the gut??Is this due

to peg or is it more hep problems. A couple of other people who is on

interferon hd mentioned it around the 6th-8th week and low and behold

I am experiecing it now and hv been for the last couple of weeks. I

am on week 7 of peg. Feels like where u run for awhile and get that

pain. Any info appreciated.

[Guest guest]

Yes, my friend ws a genotype 1a and she did a year on the old combo-

rebetron and rebetol. She went thru a lot but she made it.

I hv a question. I hv seen this mentioned on a couple of other boards

but no one hs explained it. What is this pain in the gut??Is this due

to peg or is it more hep problems. A couple of other people who is on

interferon hd mentioned it around the 6th-8th week and low and behold

I am experiecing it now and hv been for the last couple of weeks. I

am on week 7 of peg. Feels like where u run for awhile and get that

pain. Any info appreciated.

[Guest guest]

,

I've spent some time at a preschool for oral deaf children and just about all of

them have their body worn processors in a small harness that appears would

actually give balance rather than take it away. I can see how it would be

difficult to keep a 4 year old from getting to it when it is on her side. Here

is a picture of it and although it's at the Cochlear site, I expect that it

should work for Annika.

http://www.cochlearamericas.com/storefront/detail.asp?product_id=FUY047

Now.. I cannot end this without thanking you for sharing a beautiful message on

how she is doing. I had tears in my eyes when I read about her dancing at the

wedding. It sounds as if she is doing extremely well and this is exactly what

we want to read. If you have a picture and don't object to it being on the

website, I'd love to have it amongst all the rest. We need to see more of the

precious children here on our site.

I didn't pick the name justagram for nothing.

Please give her a big grandma hug. I can imagine how proud you are and I don't

blame you.

Alice

[Guest guest]

,

I wish I had some insight on this one, but I truly dont. I would tend to agree with the ortho that said her hips were now perfectly aligned......

Although, I would also trust my instinct and make it a point to get your concerns to Dr. . He is the only expert on the cast that he applied.

I would definately get in touch with him.....just to be sure..

Thats a great question. Please let us know his response.

Sincerely,

HRH

[Guest guest]

Hi Val,

Don't worry about not being able to post often. Everyone

understands how busy life can be. And of course its always nice to

be able to check in when you have a question, concern or update to

give.

I am sorry to hear about Marissa's increase stiffness in the

morning. From our experience we have found that when Aundrea's

arthritis is under control her morning stiffness is either absent or

limited to under 20 minutes. When she is in a flare or

undermedicated her morning stiffness is more likely to last 40-90

minutes. She differentiates between stiffness and pain. So she may

just be stiff or she may have pain. But its the length of stiffness

that seems to be a barometer as to how well controlled the arthritis

is.

So, my guess is that it would probably be a good idea to give

Marissa's rheumy a call and let him know about the increase time of

morning stiffness. It may be time to reevaluate her medications

and/or currents dosages.

Blessings,

(Aundrea 11 systemic jra/GERD)

-- In , " darksun1889 " <darksun1889@...>

wrote:

>

> Hi everyone its been a long time since I have posted (again). I

> don't post often because I am so busy all the time. I appreciate

> that even though I dont' post that often when I do I fel welcome

and

> supported. Between ' multiple illness and Marissa's multiple

> illness, plus another child that has some problems but no as many

but

> is a very active person. She is in marching band, concert band,

> winterguard, and a dozen other things. I really do wish I has

(took)

> more time to read messages and post because I really could use the

> support but its hard when you are on the go and stress out all day.

> Dont' feel bad my best friend in the whole world hasn't heard from

me

> in over three months. LOL!

>

> My son , 17, under went surgery about two months ago from

> severe apnea. Its been a long rode to recovery. He has his surgery

> in Ohio and as most of you know that remeber me I live in Souteast

> Tenn.

>

> As for Marissa, she is doing okay. She has been having some pain

and

> stiffness in the morning which is starting to last longer and

> longer. Before she would get the pain in the mornign but it wold be

> gone in only 10-20 minutes. Now it last about an hour maybe more

> sometimes it can last for hours. I was wondering how long your

> child's morning stiffness and pain typically last?

>

>

> Thanks, Val

>

>

> mom to Marissa,8, polyarthropathy undefined, eosinophilic

enteritis,

> & other chronic illness, , 17, undefines polyarthralgia,

> eosinophilic enteritis, keratitis & other chronic illness &

> , 15, GERD, migraines, ADHD, chronic sinusitis which will

> require surgery

>

[Guest guest]

Do you notice swelling in the area of stiffness or can Aundrea

complain of stiffness without obvious swelling? Also, do you, or

anyone else reading this, ever have your child complain of pain in

the back of knee?

Thanks, Val

> >

> > Hi everyone its been a long time since I have posted (again). I

> > don't post often because I am so busy all the time. I appreciate

> > that even though I dont' post that often when I do I fel welcome

> and

> > supported. Between ' multiple illness and Marissa's multiple

> > illness, plus another child that has some problems but no as many

> but

> > is a very active person. She is in marching band, concert band,

> > winterguard, and a dozen other things. I really do wish I has

> (took)

> > more time to read messages and post because I really could use the

> > support but its hard when you are on the go and stress out all

day.

> > Dont' feel bad my best friend in the whole world hasn't heard

from

> me

> > in over three months. LOL!

> >

> > My son , 17, under went surgery about two months ago from

> > severe apnea. Its been a long rode to recovery. He has his surgery

> > in Ohio and as most of you know that remeber me I live in Souteast

> > Tenn.

> >

> > As for Marissa, she is doing okay. She has been having some pain

> and

> > stiffness in the morning which is starting to last longer and

> > longer. Before she would get the pain in the mornign but it wold

be

> > gone in only 10-20 minutes. Now it last about an hour maybe more

> > sometimes it can last for hours. I was wondering how long your

> > child's morning stiffness and pain typically last?

> >

> >

> > Thanks, Val

> >

> >

> > mom to Marissa,8, polyarthropathy undefined, eosinophilic

> enteritis,

> > & other chronic illness, , 17, undefines polyarthralgia,

> > eosinophilic enteritis, keratitis & other chronic illness &

> > , 15, GERD, migraines, ADHD, chronic sinusitis which will

> > require surgery

> >

>

[Guest guest]

Val,

This message caught my attention. My daughter's first complaint was

pain behind her knees. I almost never see any obvious swelling when

she is complaining of pain, and on exam she tends to be hypermobile.

I finally made some headway with her rheumy in San Diego after a

flare up with obvious swelling (and foot deformity), but then we

moved to PA near Pittsburgh, and I find that I am starting all over

again here. She is complaining of pain in the hip, but according to

the new rheumy, the complaints are out of proportion to what he

found on exam, so I am unsure what to do from here. I would be

interested to learn if there are other children with these types of

symptoms, and what treatment they receive? What helps? Has anyone

encountered a rheumy who recommends psychiatric treatment?

Good luck with Marissa's care.

Sheila (PA, Miranda 11, pauci? spondylo? hypermobile?)

>

> Do you notice swelling in the area of stiffness or can Aundrea

> complain of stiffness without obvious swelling? Also, do you, or

> anyone else reading this, ever have your child complain of pain in

> the back of knee?

>

> Thanks, Val

>

[Guest guest]

Sheila:

My Hannah is exactly as you desribed. She rarely has swelling (although I see

it in evenings, but never during an appt). Our current rheumy (we are on our

2nd) has not officially diagnosed her. He told me the same thing that she does

not fall into the typical JRA category. I am constantly being told how

complicated she is, yet I'm not happy with how they are treating her. We have

tried Aleeve, Naproxen and we are now on Mobic (dose was changed about 4 weeks

ago). None of these meds have helped. We talked briefly about psych at our

last visit, but everyone felt this was not appropriate for Hannah, but he does

refer some patients to go that route. She will have significant morning

stiffness, pain gets better (not gone) during the day and then has evening pain

again.

We too are currently at a loss and I'm considering another change in doctors.

There has to be someone out there who can properly treat my daughter.

Good luck and keep us posted.

Beth (Hannah, almost 10, unspecified arthritis; asthma & GERD)

Sheila <mannas_mom@...> wrote:

Val,

This message caught my attention. My daughter's first complaint was

pain behind her knees. I almost never see any obvious swelling when

she is complaining of pain, and on exam she tends to be hypermobile.

I finally made some headway with her rheumy in San Diego after a

flare up with obvious swelling (and foot deformity), but then we

moved to PA near Pittsburgh, and I find that I am starting all over

again here. She is complaining of pain in the hip, but according to

the new rheumy, the complaints are out of proportion to what he

found on exam, so I am unsure what to do from here. I would be

interested to learn if there are other children with these types of

symptoms, and what treatment they receive? What helps? Has anyone

encountered a rheumy who recommends psychiatric treatment?

Good luck with Marissa's care.

Sheila (PA, Miranda 11, pauci? spondylo? hypermobile?)

>

> Do you notice swelling in the area of stiffness or can Aundrea

> complain of stiffness without obvious swelling? Also, do you, or

> anyone else reading this, ever have your child complain of pain in

> the back of knee?

>

> Thanks, Val

>

[Guest guest]

Dear Sheila,

It's me again ---- Tammy from Pennsylvania. You know,

if you aren't completely satisfied with your

daughter's rheumatologist, and if you wouldn't mind

driving a longer distance, you could possibly make an

appointment with one of the pediatric rheumatologists

at Hershey Medical Center in Hershey, PA. We're about

3-4 hours away from Pittsburgh. The pediatric

rheumatologists there have a lot of compassion and

empathy, and they will listen to your daughter. (My

daughter is also hypermobile.) I know some other

people who have switched from various other places,

and they have seen a difference in their childrens'

care.

If you want to e-mail me off-line with any questions

about the pediatric rheumatology department at Hershey

Med, please feel free to do so at rstlz@....

Tammy (mom to , age 9, with pauci-articular JA and

uveitis)

http://www.geocities.com/tlzeigler/sJRA.html

--- Sheila <mannas_mom@...> wrote:

> Val,

> This message caught my attention. My daughter's

> first complaint was

> pain behind her knees. I almost never see any

> obvious swelling when

> she is complaining of pain, and on exam she tends to

> be hypermobile.

> I finally made some headway with her rheumy in San

> Diego after a

> flare up with obvious swelling (and foot deformity),

> but then we

> moved to PA near Pittsburgh, and I find that I am

> starting all over

> again here. She is complaining of pain in the hip,

> but according to

> the new rheumy, the complaints are out of proportion

> to what he

> found on exam, so I am unsure what to do from here.

> I would be

> interested to learn if there are other children with

> these types of

> symptoms, and what treatment they receive? What

> helps? Has anyone

> encountered a rheumy who recommends psychiatric

> treatment?

> Good luck with Marissa's care.

> Sheila (PA, Miranda 11, pauci? spondylo?

> hypermobile?)

>

>

> >

> > Do you notice swelling in the area of stiffness or

> can Aundrea

> > complain of stiffness without obvious swelling?

> Also, do you, or

> > anyone else reading this, ever have your child

> complain of pain in

> > the back of knee?

> >

> > Thanks, Val

> >

>

>

>

>

__________________________________________________

[Guest guest]

Val,

Aundrea rarely has any swelling. Yes, she has often had pain behind

her knee cap. I think its either tendon or muscle pain. She also

had what she calls a ring around her ankle..which is basically

around the top of the ankle bone and also the achillies heal.

(Aundrea 11 systemic jra/gerd)-

-- In , " darksun1889 " <darksun1889@...>

wrote:

>

> Do you notice swelling in the area of stiffness or can Aundrea

> complain of stiffness without obvious swelling? Also, do you, or

> anyone else reading this, ever have your child complain of pain in

> the back of knee?

>

> Thanks, Val

>

>

>

> > >

> > > Hi everyone its been a long time since I have posted (again). I

> > > don't post often because I am so busy all the time. I

appreciate

> > > that even though I dont' post that often when I do I fel

welcome

> > and

> > > supported. Between ' multiple illness and Marissa's

multiple

> > > illness, plus another child that has some problems but no as

many

> > but

> > > is a very active person. She is in marching band, concert band,

> > > winterguard, and a dozen other things. I really do wish I has

> > (took)

> > > more time to read messages and post because I really could use

the

> > > support but its hard when you are on the go and stress out all

> day.

> > > Dont' feel bad my best friend in the whole world hasn't heard

> from

> > me

> > > in over three months. LOL!

> > >

> > > My son , 17, under went surgery about two months ago from

> > > severe apnea. Its been a long rode to recovery. He has his

surgery

> > > in Ohio and as most of you know that remeber me I live in

Souteast

> > > Tenn.

> > >

> > > As for Marissa, she is doing okay. She has been having some

pain

> > and

> > > stiffness in the morning which is starting to last longer and

> > > longer. Before she would get the pain in the mornign but it

wold

> be

> > > gone in only 10-20 minutes. Now it last about an hour maybe

more

> > > sometimes it can last for hours. I was wondering how long your

> > > child's morning stiffness and pain typically last?

> > >

> > >

> > > Thanks, Val

> > >

> > >

> > > mom to Marissa,8, polyarthropathy undefined, eosinophilic

> > enteritis,

> > > & other chronic illness, , 17, undefines polyarthralgia,

> > > eosinophilic enteritis, keratitis & other chronic illness &

> > > , 15, GERD, migraines, ADHD, chronic sinusitis which

will

> > > require surgery

> > >

> >

>

[Guest guest]

Sheila:

My son has both spondy and is hypermobile. It was quite difficult to

diagnose him, because he wasn't really swollen and is hypermobile as

well. The kicker was a bone scan that found increased activity in the

hips, as well as MRI's that showed joint effusions. If you have more

questions let me know.

and Rob 17 Spondy

On Tue, 26 Sep 2006 15:17:38 -0000 " Sheila "

<mannas_mom@...> writes:

Val,

This message caught my attention. My daughter's first complaint was

pain behind her knees. I almost never see any obvious swelling when

she is complaining of pain, and on exam she tends to be hypermobile.

I finally made some headway with her rheumy in San Diego after a

flare up with obvious swelling (and foot deformity), but then we

moved to PA near Pittsburgh, and I find that I am starting all over

again here. She is complaining of pain in the hip, but according to

the new rheumy, the complaints are out of proportion to what he

found on exam, so I am unsure what to do from here. I would be

interested to learn if there are other children with these types of

symptoms, and what treatment they receive? What helps? Has anyone

encountered a rheumy who recommends psychiatric treatment?

Good luck with Marissa's care.

Sheila (PA, Miranda 11, pauci? spondylo? hypermobile?)

>

> Do you notice swelling in the area of stiffness or can Aundrea

> complain of stiffness without obvious swelling? Also, do you, or

> anyone else reading this, ever have your child complain of pain in

> the back of knee?

>

> Thanks, Val

>

[Guest guest]

Stacie, My mother's incision from a hysterectomy burst in 1975 because she had a staph infection. My sister and I had to pack her wound with gauze pads. I was only 17, but I think we had tIo do it to soak up the infection. We had to change the pads every few hours. I don't remember if we had to put any medication in the would. It was a long time ago. Take care. BonnieLIghtingpaw <lightingpaw@...> wrote: went to doctors the took cuture of

the blister on my incsion site and of my blood so we shall see what they show there concerned there my be flooded / infection around the device itself but before tapign that they want to see what this othert comes back they beleave a stechdid not sdesolv eot somethign right and causes a infection ! has anyone ever had to pack a wound ? if so do you knwo what the reason for that is ? i'm supposed to pack the wound they made in order to get the coulter

Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

[Guest guest]

Hi Stacie, Ross had a little blister type bubble that formed at the end of his incision site just after his first pacer implant. I took him to the Dr. as it looked like it had puss in it. Sure enough, it did, they drained it, gave him lots and lots of antibiotics and he was fine. They did watch it closely though, as they didn't want the pocket to be infected. Fortunately it was a suture that was working it's way out. I hope things are ok for you. Laurie (Ross' mom)LIghtingpaw <lightingpaw@...> wrote: went to doctors the took cuture of the blister on my incsion site and of my blood so we shall see what they show there concerned there my be flooded / infection around the device itself but before tapign that they want to see what this othert comes back they beleave a stechdid not sdesolv eot somethign right and causes a infection ! has anyone ever had to pack a wound ? if so do you knwo what the reason for that is ? i'm supposed to pack the wound they made in order to get the coulter

[Guest guest]

Well, look who just popped out of the Eugene woods! lol!

Good to hear from you. I was talking about the pre-op LSD (liver

shrinking diet) that many were asked to do pre-op.

I have a liberalized version that I'm testing to see if it will also

work later on to jump-start weight loss again. I believe it will.

se post # 12100 for more info.

Congrats to your son on his marriage. Now, I hope you have some time

for YOU.

Sandy r

>

> <<Most of us seem to stall out sometimes, and for weeks/months in a

row.

>

> I believe that a version of the pre-op LSD will work well as a

> plateax-busting diet (PBD) later on, when needed periodically. >>

>

> Sandy, what are you talking about? LSD - the 60's version??? I'm

> sure I'm missing something in the translation;-)

>

> On another note, I went up to Dr. Neal's yesterday for a fill. I

> had only lost 2 stinkin pounds but given the fact the last 2

months

> have been stressful with planning my son's wedding, getting them

> married, holding a celebration of life memorial for an old

> friend..I'm surprised I didn't gain.

>

> The office has a new person for fills and after her 5th attempt to

> hit the port and failing (using fluro) I asked for Dr. Neals wife

to

> do the fill..of course she hit it the first time. I only had 1cc

and

> was wide open, able to eat anything in large of quantities so I

asked

> for 1/10th of a cc to inch up slowly. Well when we added the tiny

> amount the fluro showed my band was closing off the stoma and

nothing

> getting through;-( Granted I am retaining water and am always

tight

> in the morning so we decided to leave it as is. She told me 2

days

> liquids only, which I am following. I haven't had issues with

> sipping water, tea and broth but tonight I fixed myself a thicker

> chai tea and now my stomach and left arm hurt . Granted I woke up

> with a migraine headache this morning and have been taking

Tramadol

> so that might have something to do with it. I just hope that tiny

> fill wasn't too much, I certainly needed one.

>

> Kem in Eugene

> Dr. Neal 8.6.04

> <º)))><

>

>

>

>

>

>

>