Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Below is a list of DAN! (Defeat Autism Now) physicians practicing in New York State. I hope one of them is near you. You need to immediately file a report with VAERS (the Vaccine Adverse Events Reporting System) What ever you do, DO NOT call what happened to her " autism. " Just say that your daughter received the H1N1 at school. Report all the things she used to do and what she cannot do now post-vaccination. You can say she has sufferred neurological damage, but DON'T call it autism, or your case will just be blown off. Then find one of these physicians near you and consult with them. Bock, M.D. * 108 Montgomery Street Rhinebeck, NY 12572 tel: 914-876-7082 fax: 914-876-4615 New York - Cutler, M.D. 1081 Long Pond Road Rochester, NY 14626 tel: 585-720-1980 - Cutler, M.D. 652 Elmwood Avenue Niagara Falls, NY 14301 tel: 716-284-5159 fax: 716-284-5159 - Marvin Boris, M.D. Allergy and Immunology 77 Froelich Farm Boulevard Woddbury, NY 11797 tel: 516-921-3456 fax: 516-364-1844 - Allan Goldblatt, P.A.-C. 77 Froehlich Farm Boulevard. Woodbury, NY 11797 tel: 516-921-3456 fax: 516-364-0144 - Alan Sherr, D.C. 220 Ft. Salonga Road Northport, NY 11768 tel: 631-262-8505 fax: 631-754-2909 - Vianna, M.D. 6 Pine Street North Lake Grove, NY 11755 tel: 631-580-3307 fax: 631-580-3307 - Kurk, M.D. Lawrence Family Medical Practice, P.C. 310 Broadway Lawrence, NY 11559 tel: 516-239-5540 fax: 516-371-2919 - Alan Dattner, M.D. 17 Rodman Oval New Rochelle, NY 10805 tel: 914-637-0908 fax: 914-636-2503 - Varsames Young, M.Ed. Holistic Learning Center 575 White Plains Road Eastchester, NY 10709 tel: 914-793-9100 fax: 914-793-3988 - C. Kopelson M.D. 221 Clock Tower Commons Brewster, NY 10509 tel: 914-278-6800 fax: 914-278-6897 - Eugenia Corriero, M.S., P.A.-C. 192 Route 22, Suite 100 Brewster, NY 10509 tel: 845-277-7900 fax: 845-277-7905 - Peta Cohen, M.S., R.D. Total Life Center 1317 3rd Avenue, 9th Floor New York, NY 10021 tel: 201-541-7601 fax: 201-547-7876 - Warren Levin, M.D. 31 East 28th Street New York, NY 10016 tel: 212-679-9667 fax: 212-679-9730 - Hoffman, M.D. 40 E. 30th Street New York, NY 10016 tel: 212-779-1744 fax: 212-779-0891 - Cowan, M.D. 32 W. 22nd Street New York, NY 10010 tel: 212-255-1800 fax: 212-255-0714 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Thank you so much for your reply! Ive seen DR bock about seven years ago for Catie but I got sick my self (arsenic) and ran out of money and he is accross the state, but DR Cutler sounds promising. Catie is excempt from inoculations and school still denies doing it even though after I turned up the heat on them the principle of the school left message on the phone saying he resigns starting immediatly and moving to ohio. I asked other parents and they did not get the message sent to them though- More strange. School called me yesterday and they just dont get that if a child cant walk, talk, feed or pottie herself that teaching is not the priority but they are now saying Im denying to educate her!!! Seems like people paid for by our tax's think in a whole diff. world. Sorry ---frustration getting the best of me again Thanks again Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 According to the DEA, they must put an IEP in place that is designed to meet her unique needs and move her towards post-secondary education, employment, and independent living. You, as the parent have a legal rite to be included in the development of this plan, and they must consider what you believe her goals and objectives should be. the IEP goals should be designed so that she can master the goal within an ARD year's time. The goals and objectives should be written so that they are SMART: this means they should be specific, measurable, use action words, be relevant, and are time limited. Hope this helps. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2010 Report Share Posted August 15, 2010 I wish to thank all of you for responding to my plea for help and is helpful in many ways. Monday is a key day between possible new DR.s and the school. I will try to post results and hopefully they can get her better so we can start chelation for I was going to start but she became ill. Thank you again Tim Re: [ ] WNY DOCTOR HEEELP!! According to the DEA, they must put an IEP in place that is designed to meet her unique needs and move her towards post-secondary education, employment, and independent living. You, as the parent have a legal rite to be included in the development of this plan, and they must consider what you believe her goals and objectives should be. the IEP goals should be designed so that she can master the goal within an ARD year's time. The goals and objectives should be written so that they are SMART: this means they should be specific, measurable, use action words, be relevant, and are time limited. Hope this helps. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Does anybody know how or where I can get titers test done without using our DR for he will not call me back or comply with any requests even after I explain in detail of my daughters conditions to him? He said he would call the infectious disease specilists on monday and the only people I can get on the phone for the last 2 days are empathtic sounding nurses that say they will do something and then no return calls. Really makes me wonder, did she get H1N1 and did the school call DR. first for OK! to do it. Something is very odd going on in the medical community with a child so obviously ill. Sorry I'm just spilling over again! Tim [ ] WNY DOCTOR HEEELP!! Does anyone know of a DR. that understands or works with autism in western NY. As soon as the DRs see autism they say she is just fine!!! She is 13 and has lost ALL of her abilities for the last 7 months. She use to run,jump,play,feed herself,pottie herself,talk and even drive her own go cart -but last DEC. aft free H1N1 clinic @ school and came home with finger print bruises on both upper arms and school said she would not comply with something (this would be way out of character for my daughter) (NY was trying to pass law to innoculate without parents authority @ same time) she lost everything and is now in pullups,can't even draw and she was a very good artist,I have to feed her and is starting to loose ability to chew, cherry red fingernail beds,sores across forehead @ hairline, chicken skin all over esp. upper arms, body temp as low as 93.5,( have to give warm showers and keep in blankets) pupils were huge and unresponsive till ace given and thats a battle (porcine thyroid supp from canida also) White coming from privates and white tongue with bacteria poo breath, seizure type activity, and more. Dr did blood test and said she's fine!!! I get copy of tests and thats not what it says to me!!took to 2 diff. emergency rooms and as soon as autism is heard they dissmiss no mater if i show them her art or pics. from past they run. I insist fungal overgrowth and they wont beleive. I have tried small dose uva ursi, gse drops,coconut caps,garlic, biotin,OoO,cant use probiotics,clo makes bumps more and bigger,ole,enzymes (cant take) and more but afraid of hurting her for I have child services up my backside cause the school reported me for not giving drs care even though drs wont help! (strange) She seems to respond to antifungals some and poorly if she is given cheese products or sugar products. (spouse fights to add to the mix-wife has bailed) I called and screamed at the pediatrition again today and demanded to see infectious disease specialist @ childrens hosp. and said he would call on monday but he does'nt think it will help. The very first time I seen him 7 months ago I asked him for diflucan and he said no, EEG said normal results even though I looked at the screen and the lines were all going crazy as she was just laying their. So sorry to ramble on but after 7 months and not leaving her side for 1 minute Im loosing it I guess. Any thoughts ot imput would be greatly welcome!!! Tim ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3069 - Release Date: 08/13/10 14:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 I would get all her medical records - show up with an attorney's letter if you have to, and pay them to copy them right there and then (so they can't change anything). Then get a new doctor. Preferable a DAN type/friendly doctor or holistic type doctor to help you. > > Does anybody know how or where I can get titers test done without using our DR for he will not call me back or comply with any requests even after I explain in detail of my daughters conditions to him? He said he would call the infectious disease specilists on monday and the only people I can get on the phone for the last 2 days are empathtic sounding nurses that say they will do something and then no return calls. Really makes me wonder, did she get H1N1 and did the school call DR. first for OK! to do it. > Something is very odd going on in the medical community with a child so obviously ill. > Sorry I'm just spilling over again! > Tim > [ ] WNY DOCTOR HEEELP!! > > > > Does anyone know of a DR. that understands or works with autism in western NY. As soon as the DRs see autism they say she is just fine!!! > She is 13 and has lost ALL of her abilities for the last 7 months. She use to run,jump,play,feed herself,pottie herself,talk and even drive her own go cart -but last DEC. aft free H1N1 clinic @ school and came home with finger print bruises on both upper arms and school said she would not comply with something (this would be way out of character for my daughter) (NY was trying to pass law to innoculate without parents authority @ same time) she lost everything and is now in pullups,can't even draw and she was a very good artist,I have to feed her and is starting to loose ability to chew, cherry red fingernail beds,sores across forehead @ hairline, chicken skin all over esp. upper arms, body temp as low as 93.5,( have to give warm showers and keep in blankets) pupils were huge and unresponsive till ace given and thats a battle (porcine thyroid supp from canida also) White coming from privates and white tongue with bacteria poo breath, seizure type activity, and more. Dr did blood test and said she's fine!!! I get copy of tests and thats not what it says to me!!took to 2 diff. emergency rooms and as soon as autism is heard they dissmiss no mater if i show them her art or pics. from past they run. I insist fungal overgrowth and they wont beleive. I have tried small dose uva ursi, gse drops,coconut caps,garlic, biotin,OoO,cant use probiotics,clo makes bumps more and bigger,ole,enzymes (cant take) and more but afraid of hurting her for I have child services up my backside cause the school reported me for not giving drs care even though drs wont help! (strange) She seems to respond to antifungals some and poorly if she is given cheese products or sugar products. (spouse fights to add to the mix-wife has bailed) > I called and screamed at the pediatrition again today and demanded to see infectious disease specialist @ childrens hosp. and said he would call on monday but he does'nt think it will help. The very first time I seen him 7 months ago I asked him for diflucan and he said no, EEG said normal results even though I looked at the screen and the lines were all going crazy as she was just laying their. > So sorry to ramble on but after 7 months and not leaving her side for 1 minute Im loosing it I guess. Any thoughts ot imput would be greatly welcome!!! Tim > > > > > > > ------------------------------------------------------------------------------ > > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 9.0.851 / Virus Database: 271.1.1/3069 - Release Date: 08/13/10 14:34:00 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 We went through the NNY Autism center for all my son's blood tests incl viral titers. The blood was drawn at Quest labs but the center wrote the request.  http://www.nnyautismcenter.com/ From: tim mosher <mosher7655@...> Subject: Re: [ ] WNY DOCTOR HEEELP!! Date: Tuesday, August 17, 2010, 5:30 PM  Does anybody know how or where I can get titers test done without using our DR for he will not call me back or comply with any requests even after I explain in detail of my daughters conditions to him? He said he would call the infectious disease specilists on monday and the only people I can get on the phone for the last 2 days are empathtic sounding nurses that say they will do something and then no return calls. Really makes me wonder, did she get H1N1 and did the school call DR. first for OK! to do it. Something is very odd going on in the medical community with a child so obviously ill. Sorry I'm just spilling over again! Tim [ ] WNY DOCTOR HEEELP!! Does anyone know of a DR. that understands or works with autism in western NY. As soon as the DRs see autism they say she is just fine!!! She is 13 and has lost ALL of her abilities for the last 7 months. She use to run,jump,play,feed herself,pottie herself,talk and even drive her own go cart -but last DEC. aft free H1N1 clinic @ school and came home with finger print bruises on both upper arms and school said she would not comply with something (this would be way out of character for my daughter) (NY was trying to pass law to innoculate without parents authority @ same time) she lost everything and is now in pullups,can't even draw and she was a very good artist,I have to feed her and is starting to loose ability to chew, cherry red fingernail beds,sores across forehead @ hairline, chicken skin all over esp. upper arms, body temp as low as 93.5,( have to give warm showers and keep in blankets) pupils were huge and unresponsive till ace given and thats a battle (porcine thyroid supp from canida also) White coming from privates and white tongue with bacteria poo breath, seizure type activity, and more. Dr did blood test and said she's fine!!! I get copy of tests and thats not what it says to me!!took to 2 diff. emergency rooms and as soon as autism is heard they dissmiss no mater if i show them her art or pics. from past they run. I insist fungal overgrowth and they wont beleive. I have tried small dose uva ursi, gse drops,coconut caps,garlic, biotin,OoO,cant use probiotics,clo makes bumps more and bigger,ole,enzymes (cant take) and more but afraid of hurting her for I have child services up my backside cause the school reported me for not giving drs care even though drs wont help! (strange) She seems to respond to antifungals some and poorly if she is given cheese products or sugar products. (spouse fights to add to the mix-wife has bailed) I called and screamed at the pediatrition again today and demanded to see infectious disease specialist @ childrens hosp. and said he would call on monday but he does'nt think it will help. The very first time I seen him 7 months ago I asked him for diflucan and he said no, EEG said normal results even though I looked at the screen and the lines were all going crazy as she was just laying their. So sorry to ramble on but after 7 months and not leaving her side for 1 minute Im loosing it I guess. Any thoughts ot imput would be greatly welcome!!! Tim ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3069 - Release Date: 08/13/10 14:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 I love this group! I dont feel alone with all these matters anymore and can't say thanks enough to all. The DR finally called this afternoon with referal to infectious disease dr but cant see her until 9/23/10! I never would beleive that a child with some kind of infection in her body trying to shut her down and the best they can do is in over a month????? Is this what they would do if it were their child? I explained to them over & over that she is loosing more of her capabilities every day and even though it seems uva ursi and gse is her main responders and afraid of hurting her by giving to much or to little. I myself tested (5 years ago) high in arsenic in the blood and have not been able to do anything about it yet, but I planned on starting 8 months ago with catie before she got sick. So please excuse any spelling errors or mood swings for Im struggling. Its strange that alot of my symptoms stereo autism like loss of facial recognition,peoples names,spelling, tongue and lip coordination, organizing thoughts,loss of feelings in limbs and so on, when I spent 43 years of my life without these symptoms. It almost seems that the people of the whole world is getting heavy metal toxic and somehow it attacks human empathy and integrity in some and makes empathy get turned up with others. They maybe able to sit back and watch a child desolve but its way past time for us to move on and find DR.s who give a darn, and to all of you -your information and posts -past,present and future has been priceless to Catie. Didnt the Dr's take an oath to do no harm and doing nothing is doing harm? Thank you Tim [ ] WNY DOCTOR HEEELP!! Does anyone know of a DR. that understands or works with autism in western NY. As soon as the DRs see autism they say she is just fine!!! She is 13 and has lost ALL of her abilities for the last 7 months. She use to run,jump,play,feed herself,pottie herself,talk and even drive her own go cart -but last DEC. aft free H1N1 clinic @ school and came home with finger print bruises on both upper arms and school said she would not comply with something (this would be way out of character for my daughter) (NY was trying to pass law to innoculate without parents authority @ same time) she lost everything and is now in pullups,can't even draw and she was a very good artist,I have to feed her and is starting to loose ability to chew, cherry red fingernail beds,sores across forehead @ hairline, chicken skin all over esp. upper arms, body temp as low as 93.5,( have to give warm showers and keep in blankets) pupils were huge and unresponsive till ace given and thats a battle (porcine thyroid supp from canida also) White coming from privates and white tongue with bacteria poo breath, seizure type activity, and more. Dr did blood test and said she's fine!!! I get copy of tests and thats not what it says to me!!took to 2 diff. emergency rooms and as soon as autism is heard they dissmiss no mater if i show them her art or pics. from past they run. I insist fungal overgrowth and they wont beleive. I have tried small dose uva ursi, gse drops,coconut caps,garlic, biotin,OoO,cant use probiotics,clo makes bumps more and bigger,ole,enzymes (cant take) and more but afraid of hurting her for I have child services up my backside cause the school reported me for not giving drs care even though drs wont help! (strange) She seems to respond to antifungals some and poorly if she is given cheese products or sugar products. (spouse fights to add to the mix-wife has bailed) I called and screamed at the pediatrition again today and demanded to see infectious disease specialist @ childrens hosp. and said he would call on monday but he does'nt think it will help. The very first time I seen him 7 months ago I asked him for diflucan and he said no, EEG said normal results even though I looked at the screen and the lines were all going crazy as she was just laying their. So sorry to ramble on but after 7 months and not leaving her side for 1 minute Im loosing it I guess. Any thoughts ot imput would be greatly welcome!!! Tim ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3069 - Release Date: 08/13/10 14:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 I previously posted a list of these doctors in NY. Look in older posts. If you can't find it, I will try to locate it again. Quote Link to comment Share on other sites More sharing options...
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