vision

[Guest guest]

Phil, what you're referring to is covered in a chapter in The Clinical And

Scientific Basis for ME/CFS by The Nightingale Foundation in Canada. It 's a

common complaint in CFS.

Gail

[Guest guest]

Yes, it's cited in the Nightinggale book - in the clinical chapter (#5) -- your

local library system should have a copy, photocopy that chapter -- it is so

helpful to have a detail list of the 'typical' symptoms... (25+ pages). I also

suffered from this (in fact, it was present BETWEEN the two rounds of CFS that I

had... suggesting that I never got rid of it, it just went symptom-dormant.

If you can't find it, I will do an OCR scan of it this weekend..

----- Original Message -----

From: Philip L Comer

I recall earlier discussions last year about vision problems with CFS.

Tried to find them in the archives but can't. I notice that when looking

from close to longer distances in my house my vision is at first blurry

and takes a while to adjust. Now I don't know if that is just part of

aging(and I don't wear glasses) or if it's something related to CFS.

Does anyone else recall prior discussions on this topic?

Phil

[Guest guest]

In a message dated 2/3/2000 12:00:10 PM Eastern Standard Time,

philcome@... writes:

> from close to longer distances in my house my vision is at first blurry

> and takes a while to adjust

Phil, it is very common from my chats with cfs/me'ers, when I make an eye drs

appt. I make sure I am up and as rested as possible. I do wear glasses its

not age its cfs and genetics for me.

After 40 rumor has it that the general public looses some elascity sp?

I Have not broken as many dishes lately missing the shelves, etc.

http://www.chronicillnet.org/CFS/Ostrom/chp31.html

<A HREF= " http://www.chronicillnet.org/CFS/Ostrom/chp31.html " >Chapter 31Vision

</A>

[Guest guest]

> In a message dated 1/1/02 11:56:22 AM Pacific Standard Time,

> tdcc2000@e... writes:

>

>

> > I am going to see the optomologist this month because things are

NOT clear

> > anymore for me visually.

>

> yea i need to go back too, good lord, are we sending all these

doc's through

> school?

> lol......take care,

> bert.

Bert,

As I mentioned to you earlier today on IM, my vision has not been

good since being on the Prednisone. And, I had just got my new

glasses before the jaundice episode in June/July. I will have to see

the opthamologist soon too, I think.

Hugs,

Joanna In WA state

[Guest guest]

Hi, Renate!

One suggestion is to go to the Cure Show page (there's a link in the navigation

bar) and do a search for EYE or any other symptoms or phrase you're interested

in.

There also may be an immunicsBuddies group on this -- click on the

immunicsBuddies link on our home page.

The other, very powerful way to do it is to go to the Hub (also linked on the

navigation bar) and test through it. Where you test yes is where you'll find

the info/lesson/talk you need. The links where your fingers open may not at

first seem relevant to your eyes, but believe me, unless you're getting

interference, you will find what you need that way.

Try it & let us know what happens in the Cure Drive:

http://www.thecuredrive.org

Love,

Keely Stahl

(The Lesson Maven)

keely@...

-- --

vision

Dear Keely, I searched without success to find eye/vision related cure

information for my " age related " am 65, symptoms. On what page do I find this

info.? thanks

Warm regards

Renate

[Guest guest]

On Wed, 04 Jan 2006 mukul chaudhri wrote :

>The vision that you glorify in your mind, the ideal that you enthrone

>in your heart, this you will build your life by, this you will become.

>[ As A Man Thinketh]

>

>Dream your dreams, for in them lies truth denied to men grown wise.

>[ Bach Livingston Seagull]

>

> FROM :

>

>

>

>MUKUL CHAUDHRI

[Guest guest]

Jaxi,

I've been on 4.5mg LDN for over 6 years now and feel it has stopped my

age related short sightedness from progressing in that time and in fact

has possibly even improved my ability to read without glasses in

certain circumstances! I'm still very comfortably using a set of

glasses I've had for about 8 years!

jaxi wrote:

Now if anyone read this far. Have others who are not taking LDN for

MS seen changes in their vision? I was getting ready to do my yearly

eye appt and get some new glasses but now wonder if I should hold off

a little bit.

Jaxi

[Guest guest]

I have the same glasses I've had for about 5 yrs now.. have not been for an eye exam. I know I'm OK. I've been taking Pycnogenol and or Grapeseed Extract for going on 15 yrs now and I believe this antioxidant works well for eye sight as well....works on our total circulatory system. For me, I can't say LDN has done it...

[low dose naltrexone] Re: Vision

Jaxi,I've been on 4.5mg LDN for over 6 years now and feel it has stopped my age related short sightedness from progressing in that time and in fact has possibly even improved my ability to read without glasses in certain circumstances! I'm still very comfortably using a set of glasses I've had for about 8 years! jaxi wrote: Now if anyone read this far. Have others who are not taking LDN for

MS seen changes in their vision? I was getting ready to do my yearly

eye appt and get some new glasses but now wonder if I should hold off

a little bit.

Jaxi

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.791 / Virus Database: 271.1.1/2779 - Release Date: 03/29/10 23:32:00

[Guest guest]

That's wonderful to hear as I have a newbie LDN acquiantance with vision

problems who has asked me this exact question. I will be pleased to tell her

that you (anonymously of course) have found improvement. My vision has not

deteriorated, which in itself is good news.

Silvia (PPMS 20 months on LDN)

>

> Has anyone noticed an improvement in vision after taking LDN? It seems since

I have taken LDN there has been a remarkable improvement in my vision. I have

been taking other nutrients too but nothing to really target vision.

>

> Just wondering...

>

> Laurie Tiscione

>

[Guest guest]

I have been taking ldn for over a year now and there have been significant changes in my vision----definitely for the better. I take ldn for ms.

Had noticed a slight fluctuation after the 1st month or so, then a gradual increase in distance vision. Seeing things I have not been able to see in years. Although my family was elated, they are not quite sure if they like the idea that Mom can now see when the dusting never actually got done! This email is a classic example----2 years ago I was not able to focus or see the screen of my laptop. Today, I am able to see the screen without benefit of my glasses. Granted, my vision has not returned entirely by any means, but there has been drastic (at least in my mind) improvement. Colors are still faded, but now my world is not total black & white.

[Guest guest]

Wonderful news. Enjoy the view!!!!!

Trish

I have been taking ldn for over a year now and there have been

significant changes in my vision----definitely for the better. I take ldn

for ms.

Had noticed a slight fluctuation after the 1st month or so, then

a gradual increase in distance vision. Seeing things I have not been able

to see in years. Although my family was elated, they are not

quite sure if they like the idea that Mom can now see when the

dusting never actually got done! This email is a classic example----2

years ago I was not able to focus or see the screen of my laptop. Today, I am

able to see the screen without benefit of my glasses. Granted, my vision

has not returned entirely by any means, but there has been drastic (at least in

my mind) improvement. Colors are still faded, but now my world is not

total black & white.

[Guest guest]

When you talk about LDN improving vision, do you refer to vision problems caused

by MS, or just vision problems in general?

I could definitely use some vision improvement! Mine is just standard myopia.

Jaye

>

>

>

> I have been taking ldn for over a year now and there have been significant

> changes in my vision----definitely for the better.

[Guest guest]

My son said that he looks at walls (or large spaces), because looking at my face

makes the wall behind me blurry. then if he looks at the wall, my face is

blurry. he'd rather look at a large wall, where that is not a problem. he also

said cartoons are easy to watch, because they don't have the 3D effect that

something is closer than something else.

has anyone experienced this? do prism glasses help this? i researched

opthalmologists, so I will contact someone tomorrow; but so many times the

" professionals " don't know nearly as much as the moms (and dads) who are the

real professionals. Any ideas?

and i added cod liver oil (i guess the A is good for eyes)

Martha

[Guest guest]

Wow, my friend, a very intelligent autism grandma, was telling me exactly what

your son was saying the other day, that TV or computer screens are more

comfortable for them to watch because of the 3D issue. Apparently this is quite

common among our children with autism. May I ask how old your son is? Maybe I

can ask her if she has heard of any treatments for it.

Liz

>

> My son said that he looks at walls (or large spaces), because looking at my

face makes the wall behind me blurry. then if he looks at the wall, my face is

blurry. he'd rather look at a large wall, where that is not a problem. he also

said cartoons are easy to watch, because they don't have the 3D effect that

something is closer than something else.

> has anyone experienced this? do prism glasses help this? i researched

opthalmologists, so I will contact someone tomorrow; but so many times the

" professionals " don't know nearly as much as the moms (and dads) who are the

real professionals. Any ideas?

> and i added cod liver oil (i guess the A is good for eyes)

> Martha

>

[Guest guest]

Thanks for the reply. My son is 8, so he can tell me about it, finally. He

still has some trouble with language, but getting better slowly. If she knows

of anything, please pass it along.

I read up on it last night via google. I sent a message to a local

opthalmalogist. I hope she calls me soon. I want to see if she has any ideas

of how to help him. they do vision exercises and things. I don't know yet.

I also posted it because my son is now 8 and has had trouble with this all

along, but never mentioned it to me because he couldn't find the language to do

so. I think it may be common too.

I will post more as I find out more if you want.

Martha

> >

> > My son said that he looks at walls (or large spaces), because looking at my

face makes the wall behind me blurry. then if he looks at the wall, my face is

blurry. he'd rather look at a large wall, where that is not a problem. he also

said cartoons are easy to watch, because they don't have the 3D effect that

something is closer than something else.

> > has anyone experienced this? do prism glasses help this? i researched

opthalmologists, so I will contact someone tomorrow; but so many times the

" professionals " don't know nearly as much as the moms (and dads) who are the

real professionals. Any ideas?

> > and i added cod liver oil (i guess the A is good for eyes)

> > Martha

> >

>

[Guest guest]

Some resources from my friend:

http://www.visiontherapystories.org/vision_autism.html

http://www.visionhelp.com/vh_autism_06.html

> > >

> > > My son said that he looks at walls (or large spaces), because looking at

my face makes the wall behind me blurry. then if he looks at the wall, my face

is blurry. he'd rather look at a large wall, where that is not a problem. he

also said cartoons are easy to watch, because they don't have the 3D effect that

something is closer than something else.

> > > has anyone experienced this? do prism glasses help this? i researched

opthalmologists, so I will contact someone tomorrow; but so many times the

" professionals " don't know nearly as much as the moms (and dads) who are the

real professionals. Any ideas?

> > > and i added cod liver oil (i guess the A is good for eyes)

> > > Martha

> > >

> >

>

[Guest guest]

I know Andy has talked about behavioral optometrist in the past and gave a few

sites to find local ones. Try searching onibasu I know it's there.

>

> My son said that he looks at walls (or large spaces), because looking at my

face makes the wall behind me blurry. then if he looks at the wall, my face is

blurry. he'd rather look at a large wall, where that is not a problem. he also

said cartoons are easy to watch, because they don't have the 3D effect that

something is closer than something else.

> has anyone experienced this? do prism glasses help this? i researched

opthalmologists, so I will contact someone tomorrow; but so many times the

" professionals " don't know nearly as much as the moms (and dads) who are the

real professionals. Any ideas?

> and i added cod liver oil (i guess the A is good for eyes)

> Martha

>

[Guest guest]

My vision is overall okay, but when I get tired it gets kind of

" jumpy " . It's hard to explain, but it feels like my eyes are making

lots of tiny little jerky movements and it's a lot of work to stay

focused on one spot. Also, if you go to Dr Shoemaker's site (he's a

leading practitioner treating patients with mold illness), you'll find

a vision test that purports to uncover mold toxin effects. I have

taken and definitively failed that online test several times. I am not

currently practicing any major detox regimens, but I do use a FIR

sauna fairly often which I think helps sweat out the bad stuff.

Marcia on

in Salem, Massachusetts

On Dec 19, 2011, at 1:30 AM, M. C. wrote:

> First, I wish each of you a holiday season that exceeds

> your wildest expectations!

>

> Now, my question is: are you experiencing difficulty with

> your vision? Blurred vision, etc. Please let me know what

> type of vision issues you are battling and [perhaps most

> important of all] what solutions have you found? Have you

> been successful in attempts to have your glasses adjusted

> so that you now enjoy renewed and clear vision?

>

> I forgot to post this earlier. My appointment is at 11:30

> EST, Monday the 19th. So hopefully you will be able to

> provide feedback before then.

>

> In advance, thanks for the time/energy you invest in

> replying to my questions.

>

>

[Guest guest]

Hi Marcia,

do you think it's nystagmus?

http://en.wikipedia.org/wiki/Nystagmus

I had this twice in conjunction with vertigo. My left eye was twitching, room

was spinning at a certain angle and speed. Right eye was doing the same at a

different angle and speed. Had to lay with my eyes closed for about ten minutes

till it went away on its own.

Hasn't come back since.

Marti

>

> > First, I wish each of you a holiday season that exceeds

> > your wildest expectations!

> >

> > Now, my question is: are you experiencing difficulty with

> > your vision? Blurred vision, etc. Please let me know what

> > type of vision issues you are battling and [perhaps most

> > important of all] what solutions have you found? Have you

> > been successful in attempts to have your glasses adjusted

> > so that you now enjoy renewed and clear vision?

> >

> > I forgot to post this earlier. My appointment is at 11:30

> > EST, Monday the 19th. So hopefully you will be able to

> > provide feedback before then.

> >

> > In advance, thanks for the time/energy you invest in

> > replying to my questions.

> >

> >

>

>

>

>

[Guest guest]

In addition to the biotoxin issue, I wonder if this is at all connected with the

muscle fatigue CFS causes everywhere, because it is muscles that enable our eyes

to focus.

Years ago I did the Bates Method to make my eyes better. He wrote the book

" Better Eyesight without Glasses " . There are lots of exercises that help relax

the eye muscles so they work better. These muscles don't rest while while

you're asleep, but you can make them rest. One example is rub your hands

together fast to generate heat, then cup your eyes with your hands, preventing

light getting through, but making sure not to touch the eyeball. Another

involves wearing special eye glasses that are black (leather? forget) with pin

point wholes in them. The Bates Method really works, but does take a

significant amount of time, and once you stop your vision gets worse again.

>

> > First, I wish each of you a holiday season that exceeds

> > your wildest expectations!

> >

> > Now, my question is: are you experiencing difficulty with

> > your vision? Blurred vision, etc. Please let me know what

> > type of vision issues you are battling and [perhaps most

> > important of all] what solutions have you found? Have you

> > been successful in attempts to have your glasses adjusted

> > so that you now enjoy renewed and clear vision?

> >

> > I forgot to post this earlier. My appointment is at 11:30

> > EST, Monday the 19th. So hopefully you will be able to

> > provide feedback before then.

> >

> > In advance, thanks for the time/energy you invest in

> > replying to my questions.

> >

> >

>

>

>

>

[Guest guest]

Dear Marti,

I plowed my way through the wikipedia article, and I'm not sure if

this is what happens to me or not. It might be. Next time I get my

eyes checked I might ask about it.

What you describe, with your eyes showing the room spinning as

different angles and speed, sounds truly awful. I'm glad it went away

for you.

Best wishes,

Marcia

On Dec 20, 2011, at 11:57 AM, marti_zavala wrote:

> Hi Marcia,

> do you think it's nystagmus?

>

> http://en.wikipedia.org/wiki/Nystagmus

>

> I had this twice in conjunction with vertigo. My left eye was

> twitching, room was spinning at a certain angle and speed. Right eye

> was doing the same at a different angle and speed. Had to lay with

> my eyes closed for about ten minutes till it went away on its own.

>

> Hasn't come back since.

>

> Marti

>

>

> >

> > > First, I wish each of you a holiday season that exceeds

> > > your wildest expectations!

> > >

> > > Now, my question is: are you experiencing difficulty with

> > > your vision? Blurred vision, etc. Please let me know what

> > > type of vision issues you are battling and [perhaps most

> > > important of all] what solutions have you found? Have you

> > > been successful in attempts to have your glasses adjusted

> > > so that you now enjoy renewed and clear vision?

> > >

> > > I forgot to post this earlier. My appointment is at 11:30

> > > EST, Monday the 19th. So hopefully you will be able to

> > > provide feedback before then.

> > >

> > > In advance, thanks for the time/energy you invest in

> > > replying to my questions.

> > >

> > >

> >

> >

> >

> >

[Guest guest]

Could be (muscle fatigue, that is). It does seem to get worse the more

tired I am.

M.

On Dec 20, 2011, at 12:21 PM, sy.sherlock@... wrote:

> In addition to the biotoxin issue, I wonder if this is at all

> connected with the muscle fatigue CFS causes everywhere, because it

> is muscles that enable our eyes to focus.

>

> Years ago I did the Bates Method to make my eyes better. He wrote

> the book " Better Eyesight without Glasses " . There are lots of

> exercises that help relax the eye muscles so they work better. These

> muscles don't rest while while you're asleep, but you can make them

> rest. One example is rub your hands together fast to generate heat,

> then cup your eyes with your hands, preventing light getting

> through, but making sure not to touch the eyeball. Another involves

> wearing special eye glasses that are black (leather? forget) with

> pin point wholes in them. The Bates Method really works, but does

> take a significant amount of time, and once you stop your vision

> gets worse again.

>

>

> >

> > > First, I wish each of you a holiday season that exceeds

> > > your wildest expectations!

> > >

> > > Now, my question is: are you experiencing difficulty with

> > > your vision? Blurred vision, etc. Please let me know what

> > > type of vision issues you are battling and [perhaps most

> > > important of all] what solutions have you found? Have you

> > > been successful in attempts to have your glasses adjusted

> > > so that you now enjoy renewed and clear vision?

> > >

> > > I forgot to post this earlier. My appointment is at 11:30

> > > EST, Monday the 19th. So hopefully you will be able to

> > > provide feedback before then.

> > >

> > > In advance, thanks for the time/energy you invest in

> > > replying to my questions.

> > >

> > >

> >

> >

> >

> >

[Guest guest]

Hi all--

My sight as well SEEMED -for a time-- to be better sometimes than others...

Then, with the onset of illness, it just got flat out bad; bifocals which I

NEED. Also a must is the polarizing feature thing although this was always true

-- used to notice years ago driving at night.

NOW .. my eyes tend to tear a great deal (fun, but beats being too dry)and I

seem to have what looks like/ similar to the beginning of a sty in one, and

something similar in the other but on the lower lid, near the tear -or whatever

this is- duct. I've had exams each year, but nothing special. I also seem to

need new glasses each year although this isn't covered, of course. I splurged

last time and got the kind which will darken in bright light which is a huge

help. Doubt I can afford this again.

Jane

> > >

> > > > First, I wish each of you a holiday season that exceeds

> > > > your wildest expectations!

> > > >

> > > > Now, my question is: are you experiencing difficulty with

> > > > your vision? Blurred vision, etc. Please let me know what

> > > > type of vision issues you are battling and [perhaps most

> > > > important of all] what solutions have you found? Have you

> > > > been successful in attempts to have your glasses adjusted

> > > > so that you now enjoy renewed and clear vision?

> > > >

> > > > I forgot to post this earlier. My appointment is at 11:30

> > > > EST, Monday the 19th. So hopefully you will be able to

> > > > provide feedback before then.

> > > >

> > > > In advance, thanks for the time/energy you invest in

> > > > replying to my questions.

> > > >

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi, M.C.

Over the years, many problems. I was dx'ed with " mild lupus, " then Sjogren's,

now undifferentiated diffuse connective tissue disease. I do take plaquenil,

which has helped to bring down my inflammation as measured by c-reactive

protein. I don't think it causes any problems with dryness, but I am checked

every six months to make sure it doesn't damage the retinas.

A few years ago, I had some out of control viral infections (HHV-6, CMV, EBV)

and took valcyte. During that time, I had a vitreal separation in one eye

(flashing lights, many more floaters than before). I was careful not to rub my

eyes, and took lots of bilberry and lutein. It healed up after a few months.

At one point, my eyes were so dry (there is a test called Schirmer) that I

couldn't cry at all. I used Restasis drops for several years. Eventually, I had

my lower tear ducts sealed. Now the dryness is mostly gone, but I still use

plain tears a few times a day.

I have had a cataract so bad I couldn't see any of the letters on the vision

test with that eye. I now use Can-C (available at Swanson's and other places)

once a day. When I first used it twice a day, I had some grit in my eyes from

the dissolving cataract. It's a form of l-carnosine, which dissolves the cooked

sugar (advanced glycation end products) which makes up cataracts and also can

clog arteries. Anyway, my vision returned. My brother also had great success, he

can see again. No surgery needed for either of us!

If you have high oxidative stress, it can contribute to cataract formation. My

doctor recommended benfotiamine, a fat-soluble form of B-1 to quell inflammation

and protect from AGE's. It has helped and I take it faithfully.

I usually pass the VCS test, but am mold sensitive. Not everyone flunks it, but

it's a good thing to check into.

Somewhere I read where the twitching right eyelid comes from, but I can't

remember. It does mean something and a lot of us have it.

Also, I was dx'ed with trigeminal neuralgia after having major pain from a

poorly fitting night-time dental guard. When I saw the picture of the trigeminal

nerve, I realized that the aches and swollen feeling around my right eye were

probably that, not ocular migraines as I had been told. The key symptom was a

sharp pain in the right side of my nose, but I didn't know to mention that to a

doctor.

I take Petadolex (or other brands with the same description) for the TGN and

migraines. It's not totally effective, but helps elasticity of the blood vessels

in the brain, and I don't have the right eye pain any more. I would do anything

to keep the TGN at bay, it is so painful.

TGN is co-morbid with fibromyalgia, don't know whether you have that.

Long answer, sorry. No, changing my glasses never helped with any of this. If

you have dry eyes, please address it as it can cause damage. I kept telling the

opthamologist that I had dry eyes, but he didn't realize how serious it was

until he did the Schirmer test. Basically, bone dry. I asked him for it and he

couldn't think of a good reason to say no, and lo and behold, I had a real

problem.

How did your appointment go?

>

> First, I wish each of you a holiday season that exceeds

> your wildest expectations!

>

> Now, my question is: are you experiencing difficulty with

> your vision? Blurred vision, etc. Please let me know what

> type of vision issues you are battling and [perhaps most

> important of all] what solutions have you found? Have you

> been successful in attempts to have your glasses adjusted

> so that you now enjoy renewed and clear vision?

>

> I forgot to post this earlier. My appointment is at 11:30

> EST, Monday the 19th. So hopefully you will be able to

> provide feedback before then.

>

> In advance, thanks for the time/energy you invest in

> replying to my questions.

>

[Guest guest]

I thought of nystagmus, too. I would consult a neurologist if possible. It's not

that I think you necessarily having anything serious (many, many people get

nystagmus), but you might have something like a nerve infection that is

treatable, and treatment might help your other symptoms, too.

-- Judy

> >

> > > First, I wish each of you a holiday season that exceeds

> > > your wildest expectations!

> > >

> > > Now, my question is: are you experiencing difficulty with

> > > your vision? Blurred vision, etc. Please let me know what

> > > type of vision issues you are battling and [perhaps most

> > > important of all] what solutions have you found? Have you

> > > been successful in attempts to have your glasses adjusted

> > > so that you now enjoy renewed and clear vision?

> > >

> > > I forgot to post this earlier. My appointment is at 11:30

> > > EST, Monday the 19th. So hopefully you will be able to

> > > provide feedback before then.

> > >

> > > In advance, thanks for the time/energy you invest in

> > > replying to my questions.

> > >

> > >

> >

> >

> >

> >