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PANDA/Trifeletti

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I just got this note from Dr. Trifiletti in NJ that I saw 6 months ago. This

letter came after I inquired about the testing done at that time that he said

showed nothing. I found him very disorganized when I went to see him with my

child and no help at all. My girl had symptoms of her mental sickness at birth

so I don't know if his letter is something that makes sense. She also has not

only OCD. It appears she has psychosis of some sort too. I need your opinion.

Thanks Below is what he sent:

I've attached all the testing we've done on Peggy. We did do some limited

metabolic testing. We did also do a microarray genetic test which was normal.

After analyzing hundreds of children with PANDAS, I've noticed patterns of

changes in the immune system in some kids. Peggy seems to show one of these (low

IgE and IgG4); it's a pattern that I only discovered recently by looking at

hundreds of kids' data. I only got to analyzing Peggy's data yesterday so this

is why haven't contacted you sooner.

It's important that we do a follow up visit to discuss, this could be very

important to why she developed OCD.

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