Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 I believe every case will be different with the overall success rate of low and slow being the best. When we started this journey, I learned of Dr. Cutler and the truth is we were still scared and indoctrinated into believing the MD knew best. NOT. Our son got better in many ways. Due to his low neutrophil count, we did not chelate for several years. Our son got better by instituting diet changes: gf/cf/sf. he was helped by adding metabolic supports, generally the ones recommended by Dr. Cutler but were also prescribed by our son's DAN physician. In addition, instituting a modified ABA/Floortime program in our home helped our son, as well. When we finally started to chelate, we did oral, transdermal, suppository. None of that worked at all. Later, we did IV chelation using DMPS and then DMSA and then DMPS with EDTA. I strongly recommend against this, and wish we'd listened to DR. Cutler and done his protocol. While a lot of metals came out, and our son did improve in some ways, his stimming returned whereas before we began chelation, his stimming had stopped. The worst part was our son had a reaction seven months into IV chelation. The MD said it was a " coincidence. " Where had I heard that before? We went back again, and though nervous, he had another treatment, and again, he had a respiratory reaction --and this time it snowballed into pneumonia. In addition, he developed an allergy to sulfa drugs and even broke out in hive after eating broccoli --something that had never happened before. We thought it was the sulfur in the DMPS. We took a break for several months, and then worried as he tested high in lead again. We saw regression. We went back in June of this year and began IV chelation with EDTA only. On the fourth treatment, our son had a severe asthma attack afterward. Then the doctor said he wanted to continue with the treatment but add giving oral prednisolone before the treatment. Our son had had oral prednisolone before and that had resulted in a psychotic episode. We said " No freaking way. " and have not been back. We thank our lucky stars that nothing more serious happened to our son, and we will never do IV chelation again. We now wish we had done the AC protocol back when we first learned of it. Our son has improved so much over the years with the other interventions. He regained all forms of speech. We believe if we had started the AC protocol sooner, he might have lost the ASD diagnosis by now. We are getting his yeast under control, and plan to start the AC protocol within the next two weeks. It may take three years (it can take 100-300 rounds, I believe), but I believe it is best to be cautious with these compounds, and IV chelation moves metals around. I think this is what happened to our son and brought the stimming back. I was alwasy scared to death whenever he got the IV treatment, and rightfully so. In addition, there are many physicians out there who are charging parents and not filing insurance even when they have coverage for this. It is okay if you tell the parents, but many aren't even telling them so they can file it, so IV can be extremely draining to the budget. I know the DAN protocol just about broke us. Read Andy's book. I think you will gain much insight from it. Hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 > > > > > > Folks: > > > > > > I'm considering using the Cutler Method for my son . Can people give me an indication about whether this method has worked for them. I have a lot of reading to do yet but wanted to know whether the following approach is reasonable: > > > > > > 1. do hair test (http://home.earthlink.net/~moriam/HOW_TO_hair_test.html#counting_rules) > > > > > > 2. try supplements > > > > > > 3. if hair test comes back positive, do chelation.... if not then to a short trial chelation to see if it works for sure. > > > > > > What are the dangers of following these rules. What are the success rates. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 This may give you some additional information to think about. ALA is very powerful and can cross the BBB. Several years ago I read an article about a study done at Berkley. They fed very old mice Acetyl-L-Carnitine, and over time, the mice began acting like middle aged mice. Then they added in ALA, and over time the results were phenomenal. The old mice acted like young mice. However, mice do no have amalgam fillings in their mouths. The combination of Acetyl-L-Carnitine and ALA was then formulated into a supplement called Juvenon. I bought some and took it --(before I knew better), as I have amalgam fillings in my mouth. Talk about brain fog! It was awful. I don't think anyone with amalgams in their mouth should take ALA, though you can buy it at Wal-Mart OTC. i wonder how many people do that and then wonder why they can't think straight. If you chelate, you want to use the AC protocol because it keeps the metals from redepositing elsewhere in the body. You must remove all amalgams first and wait a while before beginning chelation. Read Andy's book, get a hair test done, and if it shows heavy metal toxicity, then you should chelate. Never take ALA as a supplement if you have amalgam fillings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 Thanks for this information! Both scientifical research and you own practical experience! Sincerely, ________________________________ From: Haven DeLay <hdelay@...> Sent: Mon, November 22, 2010 9:26:11 AM Subject: Re: [ ] Re: Andy Cutler method vs. DAN method  This may give you some additional information to think about. ALA is very powerful and can cross the BBB. Several years ago I read an article about a study done at Berkley. They fed very old mice Acetyl-L-Carnitine, and over time, the mice began acting like middle aged mice. Then they added in ALA, and over time the results were phenomenal. The old mice acted like young mice. However, mice do no have amalgam fillings in their mouths. The combination of Acetyl-L-Carnitine and ALA was then formulated into a supplement called Juvenon. I bought some and took it --(before I knew better), as I have amalgam fillings in my mouth. Talk about brain fog! It was awful. I don't think anyone with amalgams in their mouth should take ALA, though you can buy it at Wal-Mart OTC. i wonder how many people do that and then wonder why they can't think straight. If you chelate, you want to use the AC protocol because it keeps the metals from redepositing elsewhere in the body. You must remove all amalgams first and wait a while before beginning chelation. Read Andy's book, get a hair test done, and if it shows heavy metal toxicity, then you should chelate. Never take ALA as a supplement if you have amalgam fillings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 Thanks , You are very knowledgeable about Dr. Cutler's protocols. Have you successfully used this with your children. Thanks, Tom > > > > > > > > Folks: > > > > > > > > I'm considering using the Cutler Method for my son . Can people give me an indication about whether this method has worked for them. I have a lot of reading to do yet but wanted to know whether the following approach is reasonable: > > > > > > > > 1. do hair test (http://home.earthlink.net/~moriam/HOW_TO_hair_test.html#counting_rules) > > > > > > > > 2. try supplements > > > > > > > > 3. if hair test comes back positive, do chelation.... if not then to a short trial chelation to see if it works for sure. > > > > > > > > What are the dangers of following these rules. What are the success rates. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 > > > > > > Thanks for that quick response Ideals. Please let me ask a follow question. What is (are) the fundamental difference(s) between Cutler's Method and the DAN method. Why is Cutler's method safe. > > > > > > > Andy Cutler's protocol uses safe quantities of chelators (small doses) given at the half life of the chelator, which follows basic principles of pharmacology. This means that there is a steady supply of chelator in the blood for the chelation period while the metal moves out of the body. During that period of time the metals actually move and there is little or no redistribution of metals to new areas where they would cause more harm. > > > > The principles of pharmacology that Andy uses are nothing new. They have been used with dosing drugs for years. In the case of chelation it is ****absolutely essential***** to give doses at the half life because of the ****toxicity of the metals**** that we are trying to move. > > > > DAN protocols are variable depending on which doctor prescribes them. (It doesn't take much to become a DAN practitioner). In general they prescribe doses of chelator which are far too high for the individual and the doses are given at intervals longer than the half life. That means that with **every dose** there is a large amount of redistribution of metals and great harm when those metals settle to new cells and tissues in the body, where they weren't before. The redistribution caused by DAN protocols is very important because that is what leads to long term often irreversible worsening of symptoms which can be devastating to the child or adult (and completely avoidable if the person uses Andy's protocol). > > > > To give you an idea of differences in doses.... Andy's protocol uses 1/8-1/2 mg/lb of ALA, DMSA or DMPS. DAN protocols can use up to 10 mg/kg. If you do the math you will find that DAN doctors give hugely excessive quantities of chelators. If you follow the groups and listen to the side effects that adults report sometimes from even the tiniest doses of chelators, like 5-25 mg, you will understand why adults like me want to speak out when they hear that DAN doctors are giving kids 10 mg DMSA/kg. Search autism mercury archives and you will find that those kind of doses have been reported here. 25 mg was too much for me (about 1/8 mg/lb). > > > > Andy is a PhD chemist who cured himself. He did so by reading all of the literature first to know what to do, then he supplemented himself, and he chelated himself. He understands what is going on with the chemistry of the human body. His supplement list is designed to replace the things that the person needs in order to heal properly. Doctors and naturopaths or others who are prescribing chelators do not have anywhere near the qualifications that Andy has. Plus he has been listening to chelation experiences ever since he started to write his " Amalgam Illness " book. > > > > Andy's protocol requires the use of ALA to clear metals from the brain and internal organs. DAN groups do not use ALA properly. Most DAN protocols do not use ALA and those that do use ALA at an interval longer than the half life which would actually force metals INTO the brain leading to long term worsening. The DAN community simply does not understand the proper use of ALA from what I can tell. > > > > Different DAN doctors do different things. I am generalizing from what I have read here over the years and from reading DAN consensus committee reports. > > > > We have files in the frequent dose chelation group of links to progress reports from people who used Andy's protocol and others we call " adverse reaction to inappropriate chelation " which would include DAN protocols. There is also a file of Andy's posts and some posts from Andy on the differences between Andy and DAN protocols. He adds humor usually. > > > > J > > > > > > > Best, > > > Tom > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 I just wanted to comment on this post. I have a mouth full of amalgam fillings and I have been taking 600mg/day of ALA for blood sugar control for the past 4 weeks. Initally I was taking 300mg in the am and 300 in the pm but now I am just taking 600 in pm. How come I have not had any of the effects you are describing. ALA is widely recommended for blood sugar control along with a few other supplements. Cinnamon etc. I did not have any problems and it did reduce my morning blood sugar from around 115 to high 80's within a few days. I have not had any physical change. I would be curious to hear some of your comments. I joined this group a few days after I started the ALA myself. I plan on started my DD age 4 right after Christmas with Andy's method and have been wondering about this for quite some time. Thanks, > > This may give you some additional information to think about. ALA is very > powerful and can cross the BBB. Several years ago I read an article about a > study done at Berkley. They fed very old mice Acetyl-L-Carnitine, and over > time, the mice began acting like middle aged mice. Then they added in ALA, > and over time the results were phenomenal. The old mice acted like young > mice. > > However, mice do no have amalgam fillings in their mouths. The combination > of Acetyl-L-Carnitine and ALA was then formulated into a supplement called > Juvenon. I bought some and took it --(before I knew better), as I have > amalgam fillings in my mouth. Talk about brain fog! It was awful. > > I don't think anyone with amalgams in their mouth should take ALA, though > you can buy it at Wal-Mart OTC. i wonder how many people do that and then > wonder why they can't think straight. > > If you chelate, you want to use the AC protocol because it keeps the metals > from redepositing elsewhere in the body. You must remove all amalgams first > and wait a while before beginning chelation. > > Read Andy's book, get a hair test done, and if it shows heavy metal > toxicity, then you should chelate. Never take ALA as a supplement if you > have amalgam fillings. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 I think you might need Andy to comment. I only know when I took it, I had horrible brain fog, and then reading up about ALA, the likelihood that it might just move the metals around or possibly pull the mercury from an amalgam filling made me think that was possibly why I had the severe brain fog after taking it. Of course, at the time, I knew nothing about the AC protocol, and I was not dosing on the half-life, so that may have been a factor. I'd like to hear Dana or Andy's view on this, for if one could do ALA while having amalgams, I'd like to know if it is indeed beneficial so long as you dose every three hours. I don't think I would try it again unless Dana or Andy commented about the safety of it if one has amalgam's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 > > I think you might need Andy to comment. I only know when I took it, I had > horrible brain fog, and then reading up about ALA, the likelihood that it > might just move the metals around or possibly pull the mercury from an > amalgam filling made me think that was possibly why I had the severe brain > fog after taking it. > > Of course, at the time, I knew nothing about the AC protocol, and I was not > dosing on the half-life, so that may have been a factor. I'd like to hear > Dana or Andy's view on this, for if one could do ALA while having amalgams, Some people can. They're the ones not sensitive to mercury. The sensitive ones will get slammed and it is VERY VERY hard to reverse the damage they do. It's like playing russian roulette a few times with a revolver you see laying on a table - you can SEE that 4 cylinders are empty. The other 2 might or might not be. The people who tolerate mercury well are those whose genetics didn't load either of the remaining cylinders. The sensitive people are the ones whose genes loaded one or both of them. If the cylinders turn out not to be loaded, you can play any number of times with no consequence. The problem is you don't know if they're loaded, you only find out if you experience a consequence. Whether it is a bullet from a revolver or horrible neurological symptoms from ALA, you do NOT want to find out that way. It's best to try something else instead. > I'd like to know if it is indeed beneficial so long as you dose every three > hours. Yes. Very much so. Also for chronic active hepatitis C. 3 hour dosing works better than 1-3 times a day dosing. > I don't think I would try it again unless Dana or Andy commented > about the safety of it if one has amalgam's. I would never suggest trying it with amalgams if you were not in a life threatening situation. Andy http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 Here is an old post of Andy's: http://onibasu.com/archives/am/53055.html > > > > > > Folks: > > > > > > I'm considering using the Cutler Method for my son . Can people give me an indication about whether this method has worked for them. I have a lot of reading to do yet but wanted to know whether the following approach is reasonable: > > > > > > 1. do hair test (http://home.earthlink.net/~moriam/HOW_TO_hair_test.html#counting_rules) > > > > > > 2. try supplements > > > > > > 3. if hair test comes back positive, do chelation.... if not then to a short trial chelation to see if it works for sure. > > > > > > What are the dangers of following these rules. What are the success rates. > > > > > > Quote Link to comment Share on other sites More sharing options...
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