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It would be useful for people to purchase the book by Dr. L Wood, titled,

" Your Thyroid " . It is inexpensive and in paperback. Also, you can get lots

of free info (brochures, etc).from the Thyroid Foundation 1-800-THYROID. And

of course the internet has lots of good stuff, as well. (including AOL's

Better Health web page).

Esther

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  • 8 months later...
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Dear ,

Lately my eye has been twitching--this has happened to me before, usually in

the summer. I think you mentioned supplements that would help--would you

mind mentioning them again?

Thank you,

AntJoan

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In a message dated 7/23/99 2:23:55 AM !!!First Boot!!!, AntJoan@...

writes:

<< Dear ,

Lately my eye has been twitching--this has happened to me before, usually in

the summer. I think you mentioned supplements that would help--would you

mind mentioning them again?

Thank you,

AntJoan >>

Hi Joan,

I've had the same problem lately, so I don't know if my idea is

correct, but here it is: Eye twitching usually indicates too little

magnesium for the amount of calcium; while muscle cramps indicate too little

calcium. Try taking more magnesium and see if that helps.

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Hi Joan and Everybody,

My eye had been twitching too. In fact I was SURE that I was going HYPER

cause my eyes felt bulgy etc.. Turns out, after I went to the Eye Doctor

(not eye glasses doctor) that I was fine. HOWEVER, I had macular fatigue.

Twitching can very much be caused by Anxiety and lack of sleep, too much

stress.

I went home and I rested more FORCED myself to nap and sleep -- viola!

Within a day the twitching stopped. I think we get so high strung and push

ourselves (also too much computer time) that we forget that stress can injure

us.

If you add rest and time to think to your life, it will assist these

supplements in their job of repairing our ravished bodies. :)

--Kathleen

(who is off to her first vacation in four years)

In a message dated 7/23/99 1:47:21 AM Eastern Daylight Time, BU007@...

writes:

<< Subj: Re: Hyperthyroidism

Date: 7/23/99 1:47:21 AM Eastern Daylight Time

From: BU007@...

Reply-to: <A

HREF= " mailto:hyperthyroidismegroups " >hyperthyroidismegroups

</A>

hyperthyroidismegroups

In a message dated 7/23/99 2:23:55 AM !!!First Boot!!!, AntJoan@...

writes:

<< Dear ,

Lately my eye has been twitching--this has happened to me before, usually

in

the summer. I think you mentioned supplements that would help--would you

mind mentioning them again?

Thank you,

AntJoan >>

Hi Joan,

I've had the same problem lately, so I don't know if my idea is

correct, but here it is: Eye twitching usually indicates too little

magnesium for the amount of calcium; while muscle cramps indicate too little

calcium. Try taking more magnesium and see if that helps.

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  • 1 month later...

Dear and group:

One of things that you told me to do regarding zinc was to start out small

with approx. 5 mgs. However, I have been trying to find a place that sells

it in that small of a quantity and I haven't been able to. Do you have any

suggestions?

Also, I have been starting to exercise again which I do in my own home with

videos, treadmill, weights, etc. The exercise videos that I have increase my

heart rate way too high when I follow them. I was wondering if anyone knows

of any that are a good workout but are intended more for toning than

cardiovascular? I'd appreciate any suggestions, thanks

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,

Yes weight training is perfect for toning you can start with dumbbells

and go at your own pace and when you get going to fast you can rest in

between sets this can also be done at home.. I have been doing this for

the last year with good results I have lost fat and gained muscle, something

I thought I could not do!

Raven

I also noticed that my heart rate has gone down alittle and when

I rest it is more restful

Ladrisczilla@... wrote:

Dear and group:

One of things that you told me to do regarding zinc was to start out small

with approx. 5 mgs. However, I have been trying to find a place that sells

it in that small of a quantity and I haven't been able to. Do you have any

suggestions?

Also, I have been starting to exercise again which I do in my own home with

videos, treadmill, weights, etc. The exercise videos that I have increase my

heart rate way too high when I follow them. I was wondering if anyone knows

of any that are a good workout but are intended more for toning than

cardiovascular? I'd appreciate any suggestions, thanks

Click

Here!

eGroups.com home: hyperthyroidism

www. - Simplifying

group communications

--

MZ

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Dear ,

Re your query re exercise videos during recovery: When I had Graves Disease,

I could barely stand up, but, like you, I did not want to lose muscle tone (I

also missed only 1 day at work--we can do so much when we're motivated!). I

found a video entitled " Getting Better, " with Margaret , which she had

made after her own foot surgery and subtitled, " If you can't stand to

exercise! " I found this a Godsend, as I did it sitting/lying down. I

couldn't lift the amount of weight I had when I was well, but at least I

didn't lose too much muscle tone during my illness. I called the tape,

" Weight training for invalids, " and it definitely served the purpose. Plus,

it's actually a good tape--she's very personable and cheery (and is 50 years

old and looks FABULOUS). Her videos can be ordered through the Body

Electric company--the number on the box is 1-800-788-5865. The tape is from

1996, so if that number has changed, call the " 800 " directory to obtain the

current number. Another way to get the video, and other excellent videos

that will meet your needs, is through the catalogue, " The Complete Guide to

Exercise Videos, " which you can order through 1-800-433-6769; they also have

a Web site: www.collagevideo.com. I order lots of videos through them--they

review them all, so they're a good resource.

Good luck,

Joan

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Hello,

That soreness in the back of the throat is from the tapizol. Its a

kind of relay nasty taste I use to get it when I worked outside went it

is over 80 degrees or when I worked relay hard. the only way I found to

get rid of it was to stop the tapizol. I did that gradually over a six

month period. I have been off tapizol for two and a half years now with

no taste in the back of mt throat.

Raven

Ladrisczilla@... wrote:

Hi everyone,

I have been experiencing pain in my thyroid area of my neck, it sort of feels

like a sore throat but a little different. I have recently begun exercising

again and changing my diet , (no sweets, limited dairy, etc.) but other than

that not too much has changed in my daily routine. I was wondering if anyone

else experienced this? Is it normal to feel this with hyper? Any

suggestions that might help relieve the pain. Thanks a lot,

Click

Here!

eGroups.com home: hyperthyroidism

www. - Simplifying

group communications

--

MZ

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Hi everyone,

I have been experiencing pain in my thyroid area of my neck, it sort of feels

like a sore throat but a little different. I have recently begun exercising

again and changing my diet , (no sweets, limited dairy, etc.) but other than

that not too much has changed in my daily routine. I was wondering if anyone

else experienced this? Is it normal to feel this with hyper? Any

suggestions that might help relieve the pain. Thanks a lot,

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I have also experienced pain in my neck when excercising. I think that is

not a good sign. Perhaps the increase in metabolism heart rate is

stimulating the thyroid, or perhaps you have a nodule which is causing

discomfort. At any rate, listen to your body. Perhaps walking is the best

excercise for people with thyroid problems who have the symptoms you

mentioned.

Esther

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Hi everyone, have you heard of the exercise for the thyroid?It is like a form

of head stand, which would be the best way of doing it, but for most of us, a

little hard to do... The position I am talking about is called THe Bridge, it

is a Yoga move... You lay on the floor, bring knees close to your butt,

entwine your fingers under your seat, and slowly come up onto your shoulders

by wiggling back and forth on each shoulder, with your chin to your chest,

until you are as far as you can get.. Then you lift your thighs up and keep

your knees a few inches apart... it is a very good Yoga exercise and it does

help the thyroid... I'm sure you could find the exact instructions for this ,

or email me, and I will find the exact wording for it.. I usually do this one

and also lift my butt up off the floor, supporting it with my hands, and try

to get my legs out over my head, bent knees or straight, back over my head,

while lying on my back on the floor, with chin to chest.. these moves help to

stimulate the under active thyroid.... Chris

<A HREF= " http://www.the-thyroid-society.org/ " >The Thyroid Society</A>

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Hello,

Well I don't really know but I don't think it is as bad as it use to

be. I have had graves four five and a half years this december and have

been off all prescription drugs for three and a half years. I am not 100%

better but I am better the supplements that suggest help allot but

still we are missing something.

When the doctors gave me my options I found that I had none. Thyroid

problems use to be more common than cancer until the last ten years then

cancer took over.. I can't understand why there has not been more research

done. They found a cheap cure I guess and stopped.

I have not had RAI I could not do that to myself and surgery

was to much money and everything I read said it would go away or burn itself

out nether has happened but it's not as bothersome as it was. I have gained

the muscle I lost and the weight I lost, I have adapted but I am

still not 100%.

Remission maybe half way but that's it my heart rate is down and the

heat is less bothersome but things like splitting wood or working in the

sun still have to be avoided or done slowly or when its cooler. I have

used herbs like melitonin, valerian root, kava kava, skullcap, mothers

wort, catnip, chamomile, black cohosh, passion flower, bugle weed these

help a little they are all sedatives and help to calm you down but you

can't take them all the time.

This board is here to tell each other what we have found to work or

help us feel better and to share the things we have learned so keep looking

and go through the back log for more info or e-mail at B007@aol .com

for the supplement list and see what works for you and let us know how

it goes.

Raven

njhwells@... wrote:

Hi, I'm new to this board - I have Graves.

If you have stopped tapizol does this mean you had an RAI or are you

cured or in remission of hyperthroidism? I'm curious. I was

diagnoised last November and of course the Dr. (Endo) prefers I get the

RAI (which I don't want) so in the meantime I am taking 25mg of PTU /

day. I forgot one dose and felt the hyperness. I hope to find

successes of how to beat this disease.

Thanks

raven <rave-@...> wrote:

original article:hyperthyroidism/?start=27

55

> Hello,

> That soreness in the back of the throat is from the tapizol. Its a

kind

> of relay nasty taste I use to get it when I worked outside went it is

> over 80 degrees or when I worked relay hard. the only way I found to

get

> rid of it was to stop the tapizol. I did that gradually over a six

month

> period. I have been off tapizol for two and a half years now with no

> taste in the back of mt throat.

> Raven

>

> Ladrisczilla@... wrote:

>

> >

> > Hi everyone,

> I have been experiencing pain in my thyroid area of my neck, it

sort of feels

> like a sore throat but a little different. I have recently begun

exercising

> again and changing my diet , (no sweets, limited dairy, etc.) but

other than

> that not too much has changed in my daily routine. I was wondering

if anyone

> else experienced this? Is it normal to feel this with hyper? Any

> suggestions that might help relieve the pain. Thanks a lot,

>

Click

Here!

eGroups.com home: hyperthyroidism

www. - Simplifying

group communications

--

MZ

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Hi, I'm new to this board - I have Graves.

If you have stopped tapizol does this mean you had an RAI or are you

cured or in remission of hyperthroidism? I'm curious. I was

diagnoised last November and of course the Dr. (Endo) prefers I get the

RAI (which I don't want) so in the meantime I am taking 25mg of PTU /

day. I forgot one dose and felt the hyperness. I hope to find

successes of how to beat this disease.

Thanks

raven <rave-@...> wrote:

original article:hyperthyroidism/?start=27

55

> Hello,

> That soreness in the back of the throat is from the tapizol. Its a

kind

> of relay nasty taste I use to get it when I worked outside went it is

> over 80 degrees or when I worked relay hard. the only way I found to

get

> rid of it was to stop the tapizol. I did that gradually over a six

month

> period. I have been off tapizol for two and a half years now with no

> taste in the back of mt throat.

> Raven

>

> Ladrisczilla@... wrote:

>

> >

> > Hi everyone,

> I have been experiencing pain in my thyroid area of my neck, it

sort of feels

> like a sore throat but a little different. I have recently begun

exercising

> again and changing my diet , (no sweets, limited dairy, etc.) but

other than

> that not too much has changed in my daily routine. I was wondering

if anyone

> else experienced this? Is it normal to feel this with hyper? Any

> suggestions that might help relieve the pain. Thanks a lot,

>

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hi everyone,

Joyce in Vermont. Was at Dartmouth Medical Center today for a second

opinion consult with a very respected Endo specialist. He said I have a

small nodule in front of the thyroid, but that it doesn't feel like much.

I don't know he can tell by just fingering my throat like that, but what

do I know.

I have been off all 's suggested supplements for two months, I thought

I was going to get an MRI today. Guess again.

My heart hurts so much. Don't know why. It just aches from the time I

wake up and all day, at least today. OTher times the ache comes and goes,

but today I REALLY feel, it and if it is this sore tonight, I will not be

able to sleep.

If anyone has this symptom, I am supposedly not hyper but hypo, please

advise.

THanks in advance,

Joyce in Vermont

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

" Truth is a shining goddess, always veiled, always distant,

never wholly approachable, but worthy of all the devotion

of which the human spirit is capable. " Bertrand

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

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Re getting off Tapezol: I had Graves, have been off Tapezol for 2 1/2 years,

am fine, and DID NOT HAVE RAI. DO NOT HAVE THIS DESTRUCTIVE PROCEDURE! Ask

for a supplement list, or go to the archives. Stay on the Tapezol for

now if it gives you no destructive side effects, and work with your body

naturally.

Good luck,

AntJoan

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to njhwells,

I have stopped tapazole now for approximately three months after taking it

for three years, I am currently taking the vitamin supplements that

recommends but I am not in remission, I feel better than I did, but my doctor

says my levels are still too high and that I need to start back on either

tap. or PTU at the beginning of Oct. bye

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Joyce,

Have you gone to a Cardiologist? Does anyone know if thyroid disease

causes heart disease?

--kathleen

In a message dated 9/29/99 7:10:50 AM Eastern Daylight Time,

jkeeler@... writes:

<< Subj: Re: hyperthyroidism

Date: 9/29/99 7:10:50 AM Eastern Daylight Time

From: jkeeler@... (joyce keeler)

Reply-to: hyperthyroidismegroups

hyperthyroidismegroups

hi everyone,

Joyce in Vermont. Was at Dartmouth Medical Center today for a second

opinion consult with a very respected Endo specialist. He said I have a

small nodule in front of the thyroid, but that it doesn't feel like much.

I don't know he can tell by just fingering my throat like that, but what

do I know.

I have been off all 's suggested supplements for two months, I thought

I was going to get an MRI today. Guess again.

My heart hurts so much. Don't know why. It just aches from the time I

wake up and all day, at least today. OTher times the ache comes and goes,

but today I REALLY feel, it and if it is this sore tonight, I will not be

able to sleep.

If anyone has this symptom, I am supposedly not hyper but hypo, please

advise.

THanks in advance,

Joyce in Vermont

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

" Truth is a shining goddess, always veiled, always distant,

never wholly approachable, but worthy of all the devotion

of which the human spirit is capable. " Bertrand

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

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If Hyperthyroidism is not treated it can cause serious problems like an

irregular heartbeat (atriel fillibration??) which is a serious matter..

I understand Bush Sr. had this when he was first diagnosed with Graves.

If you treat it and keep the heart rate normal, I believe you should be OK.

I recently had a stress test and all was well with my heart and arteries.

(thank goodness) And I am in my late 50's and have hyperthyroidism for five

years.

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Hi Kathy,

I don't know if Thyroid disease causes heart disease. the Dartmouth Endo

specialist thinks something else is compromising my thyroid. He was very

interested in the Selenium, and how my body reacted to it. It felt as if

someone had run a river through my blood stream.

My heart is hurting less this week, but then I seem to be fighting a bad

cold, spent hours in steam room and sauna this week trying to purge it

from my system with no success.

Of course, I am hoping it is a " healing " cold that sustains itself as long

as necessary. Sure is spewing forth a lot of mucus. Sure hope it is

signaling remission.

Althought I have been off the supplements since late July, I still feel

the effects, which is a very positive sign.

I have a lot of pitting edema and starting taking potassium last week,

under 's suggestion, and noticed the dark undereye circles seemed to

lighten up a bit, at least for a few days. I am hoping this is due to the

potassium. Am eager to go back on supplements with the potassiium to see

what occurs.

You know, I started the supplements last October, just a few and then

gradually added them to include all the ones recommended for Hypos by May.

After fifteen years of struggling with this illness, these supplements

have been the ONLY thing that have worked for me. I am so grateful for

's research. I am not there yet, but I sure am better.

Kind regards,

Joyce in Vermont

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

" Truth is a shining goddess, always veiled, always distant,

never wholly approachable, but worthy of all the devotion

of which the human spirit is capable. " Bertrand

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

On Wed, 29 Sep 1999 BHthkath@... wrote:

> Joyce,

>

> Have you gone to a Cardiologist? Does anyone know if thyroid disease

> causes heart disease?

>

> --kathleen

>

>

> In a message dated 9/29/99 7:10:50 AM Eastern Daylight Time,

> jkeeler@... writes:

>

> << Subj: Re: hyperthyroidism

> Date: 9/29/99 7:10:50 AM Eastern Daylight Time

> From: jkeeler@... (joyce keeler)

> Reply-to: hyperthyroidismegroups

> hyperthyroidismegroups

>

> hi everyone,

>

> Joyce in Vermont. Was at Dartmouth Medical Center today for a second

> opinion consult with a very respected Endo specialist. He said I have a

> small nodule in front of the thyroid, but that it doesn't feel like much.

> I don't know he can tell by just fingering my throat like that, but what

> do I know.

>

> I have been off all 's suggested supplements for two months, I thought

> I was going to get an MRI today. Guess again.

>

> My heart hurts so much. Don't know why. It just aches from the time I

> wake up and all day, at least today. OTher times the ache comes and goes,

> but today I REALLY feel, it and if it is this sore tonight, I will not be

> able to sleep.

>

> If anyone has this symptom, I am supposedly not hyper but hypo, please

> advise.

>

> THanks in advance,

> Joyce in Vermont

>

> +====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

>

>

> " Truth is a shining goddess, always veiled, always distant,

> never wholly approachable, but worthy of all the devotion

> of which the human spirit is capable. " Bertrand

>

> +====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

>

>

>

>

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  • 11 months later...

Bonner,

Toxic goiter is another term for Graves' disease. Graves' disease, left

untreated, eventually goes into remission spontaneously at a rate of 10% to

25% each year (Postgraduate Medicine, Oct 99). PTU reduces your symptoms

until you go into spontaneous remission at which time the drug is weaned.

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