Re: Re: speech after age 5

[Guest guest]

How often did you give the b12 with folinic and in what dose?

_____

From: [mailto: ]

On Behalf Of rwb000

Sent: Tuesday, July 13, 2010 4:04 PM

Subject: [ ] Re: speech after age 5

Contradicts our personal experience and numerous experiences I have read

online or heard directly from parents.

Little or no speech until 6-7 yrs. At 14 he is chatterbox. Vitamin B-12 w

Folinic from Kirkmans elicited full sentences with a week at about 7yrs.

Probably the most interesting thing his language has taught us is that he

recalls MORE THAN US about his childhood. When and where we went, Teachers

names, schools etc. Very incredible revelations that he was taking in 110%,

but giving out 0%.

GFCF was our first step. Enzymes for Gluten and Casein have been miracles.

> >

> > Hello,

> >

> > I have heard from lot of people especially speech therapist that

autistic

> > child with no or little language cannot be recovered after the age of 5

years.

> > They say may what we do he can not attain full speech. Can any one deny

this by

> > narrating their experience? How much truth is in this claim?

> >

> >

> > Regards,

> >

> >

> > Sajeel

> >

>

[Guest guest]

dear Vitaly,

Can you explain what supplements and medicines you gave and are now giving? Any

therapies used.

Regards,

Sajeel

On Wed Jul 14th, 2010 9:39 PM PKT vitlap7 wrote:

>My son is almost 8 now and practically has the same speech as a typical child

his age.

>

>He had no real speech till almost 6.

>

>Detox and chelation made the biggest impact to change that.

>

>Regards,

>

>Vitaly

>

>

>>

>> >

>>

>> > Hello,

>>

>> >

>>

>> > I have heard from lot of people especially speech therapist that autistic

>>

>> > child with no or little language cannot be recovered after the age of 5

years.

>>

>> > They say may what we do he can not attain full speech. Can any one deny

this by

>>

>> > narrating their experience? How much truth is in this claim?

>>

>> >

>>

>> >

>>

>> > Regards,

>>

>> >

>>

>> >

>>

>> > Sajeel

>>

>> >

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Exactly true of my son. knew everything ..from when he had no speech and we

thought he was lost.

The b's are very bioavalable in goat raw milk and we have the MTHFR mutation

in our family so I think we are on to somethings here!

From: [mailto: ]

On Behalf Of rwb000

Sent: Tuesday, July 13, 2010 5:04 PM

Subject: [ ] Re: speech after age 5

Contradicts our personal experience and numerous experiences I have read

online or heard directly from parents.

Little or no speech until 6-7 yrs. At 14 he is chatterbox. Vitamin B-12 w

Folinic from Kirkmans elicited full sentences with a week at about 7yrs.

Probably the most interesting thing his language has taught us is that he

recalls MORE THAN US about his childhood. When and where we went, Teachers

names, schools etc. Very incredible revelations that he was taking in 110%,

but giving out 0%.

GFCF was our first step. Enzymes for Gluten and Casein have been miracles.

> >

> > Hello,

> >

> > I have heard from lot of people especially speech therapist that

autistic

> > child with no or little language cannot be recovered after the age of 5

years.

> > They say may what we do he can not attain full speech. Can any one deny

this by

> > narrating their experience? How much truth is in this claim?

> >

> >

> > Regards,

> >

> >

> > Sajeel

> >

>

[Guest guest]

My son regained speech with the gf/cf/sf diet. the most significant gain

was seen after removing soy protein. For days after we did this, he said

his first sentence!

Every experience is unique. One thing that helped was that at age three, he

came down with his first bout of pneumonia. (he has had this eight times

since regression). Anyway, the first time came on very quickly. He had a

tiny cough at four in the afternoon, and by two in the morning he was in the

emergency room diagnosed with a significant pneumonia n the left lung. He

was treated IM with a broad spectrum antibiotic for two days and then

followed up with ten days of oral omnicef. On the fourth day of treatment,

he sat up and said all the words he had known before regression!

I did some research and found a study using vancomycin in children with

autism. In the study, all children receiving the vancomycin made progress!

This blew me away. but then the study stated that once the children were

taken off the vancomycin they regressed to baseline. When I read this, I

literally cried. It was like in the story, " Flowers for Algernon. " Charlie

gains but then loses everything. Our son did regress again after going of

the antibiotics; however, he did not regress to baseline. He was able to

still say some one syllable words/utterances, and babbling and echolalia

increased. I worked with him and just kept doing biomed.

We weren't able to chelate until 2006 due to his neutrophil count, so we did

diet, vitamins, minerals, and amino acids. the most important amino acid

for my son has been Acetyl-L-Carnitine. They did some amazing studies on

this amino acid at Berkley and then added Alpha-Lipoic-Acid and found even

more amazing results in mice : when giving ALC to very old mice -- over time

the old mice began to act like middle age mice. Then when they added ALA to

the mix, the report stated that the results were tantamount to the old mice

performing the Macarena! In other words, they acted even younger. The

study hypothesized that these two things in combination had the propensity

to repair cells at the mitochondrial level.

I know that both of these have been used by many to help children with

autism. I know ALC has helped my son.

Don't believe anyone who tells you your child will " never... " We were told

our son would never talk meaningfully again. We have short conversations

now. For my son, receptive language came back first. Then expressive

language, and finally a year ago at age nine, reciprocal language began to

emerge.

For us, the use of the broad spectrum antibiotic let us know that our son

COULD talk, and that there was some biomedical process going on that was

interfering with the ability --most probably something bacterial in nature,

so we continued with biomed. Later, chelation also brought improvement, as

well.

[Guest guest]

Can I ask whichbroad specturm antibitoic you used that helped your son? Does he

have a problem with clostridia?

My daughter has bad receptive language and we were toldto use L'Acetyl Carnitine

by our DAN but it makes her hyperactive. Did you notice hyperactivity with the

LAC and if so, did it disappear over time?

 

Thank you

 

--- Στις ΠαÏ., 16/07/10, ο/η Haven DeLay <hdelay@...>

έγÏαψε:

Από: Haven DeLay <hdelay@...>

Θέμα: Re: [ ] Re: speech after age 5

ΠÏος:

ΗμεÏομηνία: ΠαÏασκευή, 16 ΙοÏλιος 2010, 5:02

 

My son regained speech with the gf/cf/sf diet. the most significant gain

was seen after removing soy protein. For days after we did this, he said

his first sentence!

Every experience is unique. One thing that helped was that at age three, he

came down with his first bout of pneumonia. (he has had this eight times

since regression). Anyway, the first time came on very quickly. He had a

tiny cough at four in the afternoon, and by two in the morning he was in the

emergency room diagnosed with a significant pneumonia n the left lung. He

was treated IM with a broad spectrum antibiotic for two days and then

followed up with ten days of oral omnicef. On the fourth day of treatment,

he sat up and said all the words he had known before regression!

I did some research and found a study using vancomycin in children with

autism. In the study, all children receiving the vancomycin made progress!

This blew me away. but then the study stated that once the children were

taken off the vancomycin they regressed to baseline. When I read this, I

literally cried. It was like in the story, " Flowers for Algernon. " Charlie

gains but then loses everything. Our son did regress again after going of

the antibiotics; however, he did not regress to baseline. He was able to

still say some one syllable words/utterances, and babbling and echolalia

increased. I worked with him and just kept doing biomed.

We weren't able to chelate until 2006 due to his neutrophil count, so we did

diet, vitamins, minerals, and amino acids. the most important amino acid

for my son has been Acetyl-L-Carnitine. They did some amazing studies on

this amino acid at Berkley and then added Alpha-Lipoic-Acid and found even

more amazing results in mice : when giving ALC to very old mice -- over time

the old mice began to act like middle age mice. Then when they added ALA to

the mix, the report stated that the results were tantamount to the old mice

performing the Macarena! In other words, they acted even younger. The

study hypothesized that these two things in combination had the propensity

to repair cells at the mitochondrial level.

I know that both of these have been used by many to help children with

autism. I know ALC has helped my son.

Don't believe anyone who tells you your child will " never... " We were told

our son would never talk meaningfully again. We have short conversations

now. For my son, receptive language came back first. Then expressive

language, and finally a year ago at age nine, reciprocal language began to

emerge.

For us, the use of the broad spectrum antibiotic let us know that our son

COULD talk, and that there was some biomedical process going on that was

interfering with the ability --most probably something bacterial in nature,

so we continued with biomed. Later, chelation also brought improvement, as

well.

[Guest guest]

I know I take ALC for energy. Talk with your child's doctor as there may be

another amino acid to add or something else. I believe ALC is vital to

helping our children. It is one of the few amino acids that has been shown

to repair damaged cells inside at the mitochondrial level (a study out of

Berkley). Research the Reader's Digest Archives to find the article. I am

hoping the hyperactivity is due to something else.

The antibiotic my son was put on was Rocephan IM for two days (they gave two

shots, one in each leg for two days), and then he was on oral Omnicef for

ten days following.

However, the research shows that children with autism often improve when put

on Vancomycin IM. See if your child's doctor would be amenable to trying

this. Keep in mind the research shows the children regressed to baseline

after being taken of the Vancomycin. but in our son's case, he didn't

regress all the way to baseline and we built on the speech he retained.

My son has always been one who gets better when on antibiotics, but he has

an immune dysfunction and has had to be on them a lot (often). It has its

downside, so it is like a roller coaster. Another thing you might want to

consider is to feed your child young coconut Kefir. Go to Body Ecology diet

website to learn how to make it. I think his could help your child a lot.

I haven't tried it yet, but intend to soon. It has helped a lot of kids.

My son regained speech slowly. His receptive speech (giving one command at

a time) was never a real problem. By age five, he had some expressive

speech. He could finally tell me where he hurt, what he wanted to eat when

given two choices. Reciprocal speech did not really emerge until age nine

(I think).

Hope this helps. For the hyper activity, have you considered L-theanine?

Ask your doctor about it. There is a spray. I carry it with me. It is

root beer flavored and he will spray it in his mouth. It seems to help.

[Guest guest]

your son gained reciprocal speech at age 9, is his language development normal

for his age now? I am asking because based on what you are describing about your

son he seems similar to mine (he is 6 now)thank you!

From: Haven DeLay <hdelay@...>

Subject: Re: [ ] Re: speech after age 5

Date: Saturday, July 31, 2010, 10:22 AM

 

I know I take ALC for energy. Talk with your child's doctor as there may

be

another amino acid to add or something else. I believe ALC is vital to

helping our children. It is one of the few amino acids that has been shown

to repair damaged cells inside at the mitochondrial level (a study out of

Berkley). Research the Reader's Digest Archives to find the article. I am

hoping the hyperactivity is due to something else.

The antibiotic my son was put on was Rocephan IM for two days (they gave two

shots, one in each leg for two days), and then he was on oral Omnicef for

ten days following.

However, the research shows that children with autism often improve when put

on Vancomycin IM. See if your child's doctor would be amenable to trying

this. Keep in mind the research shows the children regressed to baseline

after being taken of the Vancomycin. but in our son's case, he didn't

regress all the way to baseline and we built on the speech he retained.

My son has always been one who gets better when on antibiotics, but he has

an immune dysfunction and has had to be on them a lot (often). It has its

downside, so it is like a roller coaster. Another thing you might want to

consider is to feed your child young coconut Kefir. Go to Body Ecology diet

website to learn how to make it. I think his could help your child a lot.

I haven't tried it yet, but intend to soon. It has helped a lot of kids.

My son regained speech slowly. His receptive speech (giving one command at

a time) was never a real problem. By age five, he had some expressive

speech. He could finally tell me where he hurt, what he wanted to eat when

given two choices. Reciprocal speech did not really emerge until age nine

(I think).

Hope this helps. For the hyper activity, have you considered L-theanine?

Ask your doctor about it. There is a spray. I carry it with me. It is

root beer flavored and he will spray it in his mouth. It seems to help.