Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 While this is my first time posting I have been reading your writings for well over a year and appreciate the care you share amongst each other. I was diagnosed with PPMS in 1996 and have been " progressing " for the past 3 years. During the past 6 months if have slowly transitioned to the Best Bet Diet and am pretty much there and am on LDN. The LDN dosage has been a challenge but now after a year or so my body is settling at 3 mgs. The spasticity is still and issue but it's getting better. My main complaint now is of excruciating burning pain in my arms and legs. It hits in waves 24/7 but it's especially horrible at night, so sleep is pretty much a thing of the past. My neurologist has given me various medications for it, including gabapentin, Elavil, Lyrica and Cymbalta, but all they do is get me drowsy, sleepy, dopey and suicidal with no real relief of the pain. Any ideas on what I should try for this would be greatly appreciated. Thank you --Kathy D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 if you do not have high blood pressure,i would try 3x500 mg D-Phenylalnie on empty stomach for the pain.it keeps the endorphines working longer during the day and help with pain http://www.iherb.com/ProductDetails.aspx?pid=8607 with this code you get 5 dollars off your first order ZAH179 > > While this is my first time posting I have been reading your writings for well over a year and appreciate the care you share amongst each other. I was diagnosed with PPMS in 1996 and have been " progressing " for the past 3 years. During the past 6 months if have slowly transitioned to the Best Bet Diet and am pretty much there and am on LDN. The LDN dosage has been a challenge but now after a year or so my body is settling at 3 mgs. The spasticity is still and issue but it's getting better. My main complaint now is of excruciating burning pain in my arms and legs. It hits in waves 24/7 but it's especially horrible at night, so sleep is pretty much a thing of the past. My neurologist has given me various medications for it, including gabapentin, Elavil, Lyrica and Cymbalta, but all they do is get me drowsy, sleepy, dopey and suicidal with no real relief of the pain. Any ideas on what I should try for this would be greatly appreciated. Thank you > --Kathy D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 has PPMS and uses LDN. Here is her story: http://ldn.proboards.com/index.cgi?board=personal & action=display & thread=804 Art -- > > While this is my first time posting I have been reading your writings for well over a year and appreciate the care you share amongst each other. I was diagnosed with PPMS in 1996 and have been " progressing " for the past 3 years. During the past 6 months if have slowly transitioned to the Best Bet Diet and am pretty much there and am on LDN. The LDN dosage has been a challenge but now after a year or so my body is settling at 3 mgs. The spasticity is still and issue but it's getting better. My main complaint now is of excruciating burning pain in my arms and legs. It hits in waves 24/7 but it's especially horrible at night, so sleep is pretty much a thing of the past. My neurologist has given me various medications for it, including gabapentin, Elavil, Lyrica and Cymbalta, but all they do is get me drowsy, sleepy, dopey and suicidal with no real relief of the pain. Any ideas on what I should try for this would be greatly appreciated. Thank you > --Kathy D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 As a reply to the woman who is taking LDN foor her progressive MS: You write about severe pain & trouble sleeping & asked for ideas. In my quest to mange my RRMS for more than 20yrs, the product which has helped me the most is something called glyconutrients. They are a little expensive, but have helped keep me in remission (9yrs), with no pain at all. Helped me within days & I have never done steroids. Other important thing I do is weekly B12 injections. feel better Quote Link to comment Share on other sites More sharing options...
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