under active thyroid - anyone with experience please.

[Guest guest]

iodine can help goiter.

ldn might help with hashimoto but if she hypothyroid,meaning not enough thyroid

hormones then she needs some.the best is armour thyroid but i think it is very

difficult to get in britain.maybe in ireland it is possible

>

> Hi

> I posted a few weeks ago how my daughter Tara(16) was diagnosed with

unbderactive thyroid and goiter.

> I put her on LDN at 1.5mg from which her only side effects have been a few

dreamy sleeps at first then recntly stomach butterfly effects in recent days and

one or 2 nights with leg cramps.

>

> WHile I await antibody blod test results to tell us if the condition is

autoimmune or not, I have chosen not to put her on synthetic thyroxine.

>

> Today we returned to the GP for a check on a small mole which was worrying

Tara and while there the gp, who had some months ago refused to even look at LDN

literature I offered when discussing my RA, caught us on the hop and asked about

Taras meds for goiter and how they were going.

> Tara said she would not lie and so I told the gp we hadnt started and when

pushed I dsiclosed she was on LDN.

> The GP nearly swallowed her teeth and so began a most uncomfortable and

probably predictable 5 minutes. She was explicit in stating I was ill advised

and was certain that I would not put my daughters health at risk.(hear the

tone).

>

> Nothing new here, the GP knows nothing about LDN and doesnt want to. I offered

to get a doctor who does prescribe to talk with her(am intending to go to Dr

Gilhooley in SCotland soon. No positive response from GP.

> Wont be surprised if GP wants to remove us from their list(Gps can do this in

NIreland and have no legal requirement to say why!).

>

> Our next innings is due on 10th AUgust with an endocrinologist and I dread it!

> So -

> ANyone on list who can dialogue with me re throid please as the recommended

thyroid groups are not live and the iodine group doesnt respond to LDN talk at

all.

>

> I have questions about the possibility of LDN correcting thyroid and goiter

conditions without other meds.

>

> Feel ignorant and overwhelmed by the amount of stuff to plough through on the

net about thyroid. Im having enough struggle managing my own RA.

>

>

> Thanks in advance.

>

> Nuala

>

>

>

> So,

>

[Guest guest]

This is such a difficult situation you're in, Nuala - I really hope someone out there can help.In the meantime it does seem sensible on your part to wait for blood test results before doing anything drastic. And the good news is Tara doesn't seem to be having serious adverse reactions to ldn. And you've faced up to one doctor - hopefully the specialist will be more open minded. Hopefully Dr Gilhooley will be able to help. What will happen if your gp does take you off her list? Can you simply find another? ... better one?MargaretFrom: "nualawhite@..." <nualawhite@...>low dose naltrexone Sent: Friday, July 17, 2009 2:23:12 PMSubject: [low dose naltrexone] under active thyroid - anyone with experience please.

Hi

I posted a few weeks ago how my daughter Tara(16) was diagnosed with unbderactive thyroid and goiter.

I put her on LDN at 1.5mg from which her only side effects have been a few dreamy sleeps at first then recntly stomach butterfly effects in recent days and one or 2 nights with leg cramps.

WHile I await antibody blod test results to tell us if the condition is autoimmune or not, I have chosen not to put her on synthetic thyroxine.

Today we returned to the GP for a check on a small mole which was worrying Tara and while there the gp, who had some months ago refused to even look at LDN literature I offered when discussing my RA, caught us on the hop and asked about Taras meds for goiter and how they were going.

Tara said she would not lie and so I told the gp we hadnt started and when pushed I dsiclosed she was on LDN.

The GP nearly swallowed her teeth and so began a most uncomfortable and probably predictable 5 minutes. She was explicit in stating I was ill advised and was certain that I would not put my daughters health at risk.(hear the tone).

Nothing new here, the GP knows nothing about LDN and doesnt want to. I offered to get a doctor who does prescribe to talk with her(am intending to go to Dr Gilhooley in SCotland soon. No positive response from GP.

Wont be surprised if GP wants to remove us from their list(Gps can do this in NIreland and have no legal requirement to say why!).

Our next innings is due on 10th AUgust with an endocrinologist and I dread it!

So -

ANyone on list who can dialogue with me re throid please as the recommended thyroid groups are not live and the iodine group doesnt respond to LDN talk at all.

I have questions about the possibility of LDN correcting thyroid and goiter conditions without other meds.

Feel ignorant and overwhelmed by the amount of stuff to plough through on the net about thyroid. Im having enough struggle managing my own RA.

Thanks in advance.

Nuala

So,

[Guest guest]

My, that's wonderful. I'm so glad for you - looks like a way through at long last. Well done for not giving up.MargaretFrom: Nuala White <nualawhite@...>Margaret Schooling <mschooling@...>Sent: Friday, July 17, 2009 7:53:57 PMSubject: RE: [low dose naltrexone]

under active thyroid - anyone with experience please.

Thanks Margaret, Just spoke with Dr Gilhooley who rang me!

He supports my decision to not put Tara on Thyroxin

and on putting her on LDN! We discussed both our conditions briefly

trying to work out if it would be worthwhile travelling to see him in

Glasgow (Plane or boat). I already got progress from the call because

he believes the diclofenac I am taking is blocking the effect of the LDN and

probably causing the persistent inflammation! Think Im gonna book T and I in for late

August and go over and arrange whatever tests might reveal how we best procedd. This feels like good, if expensive news. Also he will write to the GP and advise

them of his involvement as a way of getting them off my back! Hope….again…! Nuala

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Margaret Schooling

Sent: 17 July 2009 17:47

To:

low dose naltrexone

Subject: Re: [low dose naltrexone]

under active thyroid - anyone with experience please.

This is such a difficult situation you're in, Nuala - I really hope

someone out there can help.

In the meantime it does seem sensible on your part to wait for blood test

results before doing anything drastic.. And the good news is Tara doesn't seem to be having serious adverse reactions to ldn. And you've faced up

to one doctor - hopefully the specialist will be more open minded.

Hopefully Dr Gilhooley will be able to help.

What will happen if your gp does take you off her list? Can you simply find

another? ... better one?

Margaret

From: "nualawhite@ btinternet. com"

<nualawhite@btintern et.com>

low dose naltrexone

Sent: Friday, July 17, 2009

2:23:12 PM

Subject: [low dose naltrexone] under

active thyroid - anyone with experience please.

Hi

I posted a few weeks ago how my daughter Tara(16) was diagnosed with

unbderactive thyroid and goiter.

I put her on LDN at 1.5mg from which her only side effects have been a few

dreamy sleeps at first then recntly stomach butterfly effects in recent days

and one or 2 nights with leg cramps.

WHile I await antibody blod test results to tell us if the condition is

autoimmune or not, I have chosen not to put her on synthetic thyroxine..

Today we returned to the GP for a check on a small mole which was worrying Tara

and while there the gp, who had some months ago refused to even look at LDN

literature I offered when discussing my RA, caught us on the hop and asked

about Taras meds for goiter and how they were going.

Tara said she would not lie and so I told the

gp we hadnt started and when pushed I dsiclosed she was on LDN.

The GP nearly swallowed her teeth and so began a most uncomfortable and

probably predictable 5 minutes. She was explicit in stating I was ill advised

and was certain that I would not put my daughters health at risk.(hear the

tone).

Nothing new here, the GP knows nothing about LDN and doesnt want to. I offered

to get a doctor who does prescribe to talk with her(am intending to go to Dr

Gilhooley in SCotland soon. No positive response from GP..

Wont be surprised if GP wants to remove us from their list(Gps can do this in

NIreland and have no legal requirement to say why!).

Our next innings is due on 10th AUgust with an endocrinologist and I dread it!

So -

ANyone on list who can dialogue with me re throid please as the recommended

thyroid groups are not live and the iodine group doesnt respond to LDN talk at

all.

I have questions about the possibility of LDN correcting thyroid and goiter

conditions without other meds.

Feel ignorant and overwhelmed by the amount of stuff to plough through on the

net about thyroid. Im having enough struggle managing my own RA.

Thanks in advance.

Nuala

So,

[Guest guest]

Hi Nuala,

RE: WHile I await antibody blod test results to tell us if the condition is

autoimmune or not, I have chosen not to put her on synthetic thyroxine.

If her hypothyroidism turns out to NOT be autoimmune -- ie; no antibodies --

then some extra iodine may be beneficial in correcting the sluggish thyroid

without taking THR. I know that some Hashi folks (autoimmune thyroid) take

iodine but my naturopath does NOT recommend that for the autoimmune version of

thyroid disease.

RE: Wont be surprised if GP wants to remove us from their list(Gps can do this

in NIreland and have no legal requirement to say why!).

Wow . I understand your GP's concern about NOT treating thyroid disease because

the thyroid is involved in almost every function in the body -- it's REALLY

important to have optimal thyroid levels. However, it seems pretty early in

your daughter's diagnosis so you have a 'little' time to figure out the path you

want to take.

RE: ANyone on list who can dialogue with me re throid please as the recommended

thyroid groups are not live and the iodine group doesnt respond to LDN talk at

all. I have questions about the possibility of LDN correcting thyroid and

goiter conditions without other meds. Feel ignorant and overwhelmed by the

amount of stuff to plough through on the net about thyroid. Im having enough

struggle managing my own RA.

>

I would go to www.elaine-moore.com and ask your questions to Elaine. She has

written several books on thyroid disease AND LDN.

Best wishes,

Jann

[Guest guest]

iodine actually made me WORSE.Today's antibodies 498 (supposed to be under 25).Raising dose to 3mg, not going to wait 3 months to increase to 4.5Any other suggestions?AmyFrom: jannz2 <jbreslin@...>Subject: [low dose naltrexone] Re: under active thyroid - anyone with experience please.low dose naltrexone Date: Friday, July 17, 2009, 3:48 PM

Hi Nuala,

RE: WHile I await antibody blod test results to tell us if the condition is autoimmune or not, I have chosen not to put her on synthetic thyroxine.

If her hypothyroidism turns out to NOT be autoimmune -- ie; no antibodies -- then some extra iodine may be beneficial in correcting the sluggish thyroid without taking THR. I know that some Hashi folks (autoimmune thyroid) take iodine but my naturopath does NOT recommend that for the autoimmune version of thyroid disease.

RE: Wont be surprised if GP wants to remove us from their list(Gps can do this in NIreland and have no legal requirement to say why!).

Wow . I understand your GP's concern about NOT treating thyroid disease because the thyroid is involved in almost every function in the body -- it's REALLY important to have optimal thyroid levels. However, it seems pretty early in your daughter's diagnosis so you have a 'little' time to figure out the path you want to take.

RE: ANyone on list who can dialogue with me re throid please as the recommended thyroid groups are not live and the iodine group doesnt respond to LDN talk at all. I have questions about the possibility of LDN correcting thyroid and goiter conditions without other meds. Feel ignorant and overwhelmed by the amount of stuff to plough through on the net about thyroid. Im having enough struggle managing my own RA.

>

I would go to www.elaine-moore. com and ask your questions to Elaine. She has written several books on thyroid disease AND LDN.

Best wishes,

Jann

[Guest guest]

Hi Nuala,

I’d also recommend visiting Sosnow’s website on thyroid

and autoimmunity http://www.ahsta.com/Home/tabid/90/Default.aspx

Jayne

We

need trials for LDN, please support this campaign if you are a British citizen

http://petitions.number10.gov.uk/LowDNaltrexone/

From: low dose naltrexone

[mailto:low dose naltrexone ] On Behalf Of nualawhite@...

Sent: 17 July 2009 13:23

low dose naltrexone

Subject: [low dose naltrexone] under active thyroid - anyone with

experience please.

Hi

I posted a few weeks ago how my daughter Tara(16) was diagnosed with

unbderactive thyroid and goiter.

I put her on LDN at 1.5mg from which her only side effects have been a few

dreamy sleeps at first then recntly stomach butterfly effects in recent days

and one or 2 nights with leg cramps.

WHile I await antibody blod test results to tell us if the condition is

autoimmune or not, I have chosen not to put her on synthetic thyroxine.

Today we returned to the GP for a check on a small mole which was worrying Tara

and while there the gp, who had some months ago refused to even look at LDN

literature I offered when discussing my RA, caught us on the hop and asked

about Taras meds for goiter and how they were going.

Tara said she would not lie and so I told the gp we hadnt started and when

pushed I dsiclosed she was on LDN.

The GP nearly swallowed her teeth and so began a most uncomfortable and

probably predictable 5 minutes. She was explicit in stating I was ill advised

and was certain that I would not put my daughters health at risk.(hear the

tone).

Nothing new here, the GP knows nothing about LDN and doesnt want to. I offered

to get a doctor who does prescribe to talk with her(am intending to go to Dr

Gilhooley in SCotland soon. No positive response from GP.

Wont be surprised if GP wants to remove us from their list(Gps can do this in

NIreland and have no legal requirement to say why!).

Our next innings is due on 10th AUgust with an endocrinologist and I dread it!

So -

ANyone on list who can dialogue with me re throid please as the recommended

thyroid groups are not live and the iodine group doesnt respond to LDN talk at

all.

I have questions about the possibility of LDN correcting thyroid and goiter

conditions without other meds.

Feel ignorant and overwhelmed by the amount of stuff to plough through on the

net about thyroid. Im having enough struggle managing my own RA.

Thanks in advance.

Nuala

So,

[Guest guest]

Hi Amy, >RE: iodine actually made me WORSE.> Today's antibodies 498 (supposed to be under 25).

Yes...that's what I've heard can happen with 'iodine'...especially if

you have the autoimmune version of thyroid disease and since you're

tracking your [TPO ?] antibodies then it looks like you do. I know

the iodine therapy is very controversial...I've never tried it because

of the doctor's and naturopath's advice...but I'm aware that a lot of

thyroid folks think it helps them.

Not sure how you get rid of the extra iodine you took...but you could

take extra selenium to help bring down those TPO antibodies. Also LDN

helped bring down my TPO antibodies. I had the most benefit while I

was at the 3mg...but I guess you'll have to experiment and see what

dose works best for you. It was about 4-5 mos after starting LDN that

I appreciated the decline in TPO. How long have you been on LDN and how often are you retesting ?

Best wishes,

Jann

[Guest guest]

when people have problem with iodine it is because they are detoxing bromine.it

becomes too difficult on the adrenal which are weak by most thyroid patients.in

the us most people are full of bromine and have little iodine and therefore they

develp thyroid problems.to get rid of the bromine is very good ,but you must

know how to support the adrenal with vit c,celtic salt and more.if you are

intrested you can learn it in the iodine group.in the bread in the us they took

the iodine out and put the te bromine in.

>

> Hi Amy,

> >

> RE: iodine actually made me WORSE.

> > Today's antibodies 498 (supposed to be under 25).

>

> Yes...that's what I've heard can happen with 'iodine'...especially if

> you have the autoimmune version of thyroid disease and since you're

> tracking your [TPO ?] antibodies then it looks like you do. I know

> the iodine therapy is very controversial...I've never tried it because

> of the doctor's and naturopath's advice...but I'm aware that a lot of

> thyroid folks think it helps them.

>

> Not sure how you get rid of the extra iodine you took...but you could

> take extra selenium to help bring down those TPO antibodies. Also LDN

> helped bring down my TPO antibodies. I had the most benefit while I was

> at the 3mg...but I guess you'll have to experiment and see what dose

> works best for you. It was about 4-5 mos after starting LDN that I

> appreciated the decline in TPO. How long have you been on LDN and how

> often are you retesting ?

>

> Best wishes,

> Jann

>

[Guest guest]

When using Iodine, you have to start slowly. One drop for 2-3 weeks, then 2

drops for 2-3 weeks, and so on.

At the same time you should use 1/4-1/2 tsp natural Sea Salt in a large glass of

water daily, and perhaps take a Selenium supplement.

I was at 5 drops last summer and suddenly increased to 10 drops (I didn't know

you should do a slow increase). I gave myself huge swelling and pain in the back

of my mouth/throat.

This year I have increased very slowly to 6 drops, and doing fine. My internal

goiter disappeared for the first time in 10 years, and I no longer choke on

food, drink, and even saliva.

You can use Iodine to help with Hashi's, but you have to keep to a very low

dose.

~ unity