What should we be telling Congress about LDN?

[Guest guest]

Good discussion on re-patenting, lots of ramifications to consider before we

move forward. Another area I'd like to figure out: what call to action do we

have for Congress and the Whitehouse?

We could put the " email Congress " button on all the LDN websites, with a

suggested letter, and everyone adds their own personal LDN story. Anyone have

experience with such an effort? I could start this on my own, but I figure why

not ask the smart folks in the LDN forum?

I already have a conversation going to educate Congressman Burgess, because he

is an MD and involved in MS research funding, and I know that similar efforts

are being made in California. I'd like to have a list of suggested actions, and

if necessary conjure a politician to put forth an LDN research funding bill, so

that all institutions already involved in research (Penn State, UCSF, Stanford,

NIH) can get the proper funds to move forward.

I know that Dr Gluck has addressed congress before on LDN, maybe there are some

leads there.

This is the CDMRP effort aided by Burgess:

http://msactivist.blogspot.com/2009/03/help-secure-15-million-for-ms-research.ht\

ml

Last year, MS activists reached a new milestone and helped secure $5 million for

MS research in FY 2009 under the Congressionally Directed Medical Research

Programs (CDMRP). The CDMRP is a Department of Defense (DoD) program that is

funded annual via the Defense Appropriations Act.

SammyJo

http://LDNers.org

[Guest guest]

The Lyme disease movement is a good example, here is an example of their

political call to action website

http://www.cwork.com/