Re: Is it time to increase my dose?

[Guest guest]

I've been on LDN for two days now...lol....for fibromyalgia.

I started at 4.5 mg, per Dr Skip's (the pharmacist) advice. No side effects,

none, nada. I'm feeling incredibly wonderful (no muscle pain, clear thinking

etc)and hoping it stays that way! I'm cautious since it is only my 2nd day. If I

still feel amazingly healthy in one week, I'll own it!

>

> I have hypothyroidism with hashimoto's. I've been taking 1.5 mg. LDN

> for fibromyalgia for about 3 weeks now. About the first 2 weeks I

> could really tell the difference and the pain subsided. This last

> week I've noticed the muscle pain is returning and I'm also very stiff

> and sore when I wake up. Should I bump up to 3 mg.? My doc wrote a

> prescription for 1.5 mg. and gave the pharmacy another prescription

> for 3 mg. in case I needed to go up but I want to ask if bumping up is

> a normal progression for fibro.

>

> thank you,

>

>

> Kem in Eugene

> <º)))><

>

[Guest guest]

That's great it's working so well for you. It seems to be loosing it's effect on me at 1.5 mg. Does anyone else here know if it's time to increase my dose? Please see original post below.<<Posted by: "lostalibi" lostalibi@... lostalibiWed Jul 1, 2009 2:47 pm (PDT)I've been on LDN for two days now...lol....for fibromyalgia.I started at 4.5 mg, per Dr Skip's (the pharmacist) advice. No side effects, none, nada. I'm feeling incredibly wonderful (no muscle pain, clear thinking etc)and hoping it stays that way! I'm cautious since it is only my 2nd day. If I still feel amazingly healthy in one week, I'll own it!>> I have hypothyroidism with hashimoto's. I've been taking 1.5 mg. LDN > for fibromyalgia for about 3 weeks now. About the first 2 weeks I > could really tell the difference and the pain subsided. This last > week I've noticed the muscle pain is returning and I'm also very stiff > and sore when I wake up. Should I bump up to 3 mg.? My doc wrote a > prescription for 1.5 mg. and gave the pharmacy another prescription > for 3 mg. in case I needed to go up but I want to ask if bumping up is > a normal progression for fibro.> > thank you,> > > Kem in Eugene> <º)))><>> Kem in Eugene <º)))><

[Guest guest]

Doses lower than 1.75mg have no therapeutic effect.

[Guest guest]

You can increase your dose anytime - theres no set times to stay on any

particular amount. Some people just start at the maximum dose of 4.5mg anyway

so it`s certainly OK to double up to 3mg now.

- In low dose naltrexone , Kem Tillford <Losinit4good@...> wrote:

>

> That's great it's working so well for you. It seems to be loosing

> it's effect on me at 1.5 mg. Does anyone else here know if it's time

> to increase my dose? Please see original post below.

>

> <<Posted by: " lostalibi " lostalibi@... lostalibi

> Wed Jul 1, 2009 2:47 pm (PDT)

>

>

>

> I've been on LDN for two days now...lol....for fibromyalgia.

> I started at 4.5 mg, per Dr Skip's (the pharmacist) advice. No side

> effects, none, nada. I'm feeling incredibly wonderful (no muscle pain,

> clear thinking etc)and hoping it stays that way! I'm cautious since it

> is only my 2nd day. If I still feel amazingly healthy in one week,

> I'll own it!

>

>

> >

> > I have hypothyroidism with hashimoto's. I've been taking 1.5 mg. LDN

> > for fibromyalgia for about 3 weeks now. About the first 2 weeks I

> > could really tell the difference and the pain subsided. This last

> > week I've noticed the muscle pain is returning and I'm also very

> stiff

> > and sore when I wake up. Should I bump up to 3 mg.? My doc wrote a

> > prescription for 1.5 mg. and gave the pharmacy another prescription

> > for 3 mg. in case I needed to go up but I want to ask if bumping up

> is

> > a normal progression for fibro.

> >

> > thank you,

> >

> >

> > Kem in Eugene

> > <º)))><>>

>

>

> Kem in Eugene

> <º)))><

>

[Guest guest]

Kem, I haven't been doing LDN for that long, but I'll share my experience. I'm

also taking LDN for Hashi's and started off at 1.5mg. I stayed at that dose for

2 weeks and upped it to 2.0mg since I'm doing the liquid. I stayed at that dose

for another 2 weeks and upped it to 3.0mg. After another 2 weeks, I upped it to

4.0mg where I've currently been at for the past 4 weeks. I just had my anti-TPA

antibodies checked and they have decreased fairly significantly, from 587 to

155.

I started noticing that I was feeling a bit hyper just over 2 months after

starting the LDN and started lowering my thyroid dose. It's been hard to tell

where I need to be on the dose, since I've been transitioning from T3 only back

to Armour after clearing a Reverse T3 problem. So the hyper feeling could have

been the LDN helping out or just me overshooting the transition back to Armour,

hard to say.

So at this point, I would say that you're probably okay with increasing your

dose, but you definitely want to keep charting your temps according to Dr Rind's

method to have more of an idea of whether you're heading hyper. And I would

think it would be a good idea to get some labs done if you start feeling at all

hyper or within 2-3 months of when you started the LDN, whichever comes first.

I don't know much about fibro, but from what I've read on here from others, the

increase might help with the return of your pain and stiffness. And as long as

you keep close tabs on your thyroid status, it should be fine there, as well.

ka

> >

> > I have hypothyroidism with hashimoto's. I've been taking 1.5 mg. LDN

> > for fibromyalgia for about 3 weeks now. About the first 2 weeks I

> > could really tell the difference and the pain subsided. This last

> > week I've noticed the muscle pain is returning and I'm also very

> stiff

> > and sore when I wake up. Should I bump up to 3 mg.? My doc wrote a

> > prescription for 1.5 mg. and gave the pharmacy another prescription

> > for 3 mg. in case I needed to go up but I want to ask if bumping up

> is

> > a normal progression for fibro.

> >

> > thank you,

> >

> >

> > Kem in Eugene

> > <º)))><>>

>

>

> Kem in Eugene

> <º)))><

>

[Guest guest]

Yes, but she has Hashi's, so she needs to be careful that she doesn't go

hyperthyroid if/when the LDN starts to reduce her antibody levels.

ka

> > >

> > > I have hypothyroidism with hashimoto's. I've been taking 1.5 mg. LDN

> > > for fibromyalgia for about 3 weeks now. About the first 2 weeks I

> > > could really tell the difference and the pain subsided. This last

> > > week I've noticed the muscle pain is returning and I'm also very

> > stiff

> > > and sore when I wake up. Should I bump up to 3 mg.? My doc wrote a

> > > prescription for 1.5 mg. and gave the pharmacy another prescription

> > > for 3 mg. in case I needed to go up but I want to ask if bumping up

> > is

> > > a normal progression for fibro.

> > >

> > > thank you,

> > >

> > >

> > > Kem in Eugene

> > > <º)))><>>

> >

> >

> > Kem in Eugene

> > <º)))><

> >

>

[Guest guest]

Skip's Pharmacy usually recommends starting at 1.5mgs then increase slowly.

Art

---

>

> I've been on LDN for two days now...lol....for fibromyalgia.

> I started at 4.5 mg, per Dr Skip's (the pharmacist) advice. No side effects,

none, nada. I'm feeling incredibly wonderful (no muscle pain, clear thinking

etc)and hoping it stays that way! I'm cautious since it is only my 2nd day. If I

still feel amazingly healthy in one week, I'll own it!

>

[Guest guest]

The time to increase dosage is whenever you feel ready to. 4.5mgs is considered

the optimal adult dose.

Art

---

>

> That's great it's working so well for you. It seems to be loosing

> it's effect on me at 1.5 mg. Does anyone else here know if it's time

> to increase my dose? Please see original post below.

>

[Guest guest]

I have to disgree I've been taking 1.5 for a year and a half and it has done wonders CyndiSent from my iPhoneClenz@... On Jul 1, 2009, at 10:13 PM, Bren <TwisterAlley2@...> wrote:

Doses lower than 1.75mg have no therapeutic effect.

[Guest guest]

Perhaps it depends on the ailment.... ie I've heard MS and Thyroid patients need

to start slowly. I trust Skip and didn't ask for justification of the dosage

> >

> > I've been on LDN for two days now...lol....for fibromyalgia.

> > I started at 4.5 mg, per Dr Skip's (the pharmacist) advice. No side effects,

none, nada. I'm feeling incredibly wonderful (no muscle pain, clear thinking

etc)and hoping it stays that way! I'm cautious since it is only my 2nd day. If I

still feel amazingly healthy in one week, I'll own it!

> >

>

[Guest guest]

Hi Cyndi,

For what illness / ailment are you taking LDN for?

Art

---

>

> I have to disgree I've been taking 1.5 for a year and a half and it

> has done wonders

>

> Cyndi

> Sent from my iPhone

> Clenz@...

[Guest guest]

I'm just repeating what Bihari and zagon say, Bihari says no therapeutic effect

under 1.75mg and Zagon thinks not under 2mg. Are you using it for autoimmunity

or cancer or something different?

========

>

> >

> >

> >

> > Doses lower than 1.75mg have no therapeutic effect.

> >

> >

>

[Guest guest]

B, I think you meant this to go to the group, so I'll reply to the board and

hopefully others will also respond.

I am hypothyroid and have hashi's and was originally on levothyroxine (generic

synthroid) for a few years before switching to Armour thyroid. I switched to

Armour because I wanted a more complete thyroid hormone. Armour contains T4,

T3, T2, T1 and calcitonin where synthroid is a synthetic T4 only med.

I didn't really notice any difference when I switched, but that was because I

had a problem with Reverse T3 which was blocking my thyroid receptors and was

the reason why NO thyroid hormone treatment was helping me to feel better. I

was able to get rid of the RT3 by going to a T3 only med for a while. Since

we're getting a little off topic, if you want to know more about Reverse T3 and

why it's a problem, please go here:

http://www.stopthethyroidmadness.com/reverse-t3/

Once I got rid of the RT3, I finally was able to feel the effects of the thyroid

meds and then transitioned back to Armour. After that, I started on the LDN to

try and bring my Hashi's antibodies under control. As I posted earlier, so far

it seems to be lowering the antibodies quite well and I've only been on it for

2.5 months, slowly working my way up to my current dose of 4.0mg, so I'm hoping

I'll see even further improvement as time goes on.

As far as transitioning from synthroid to Armour, you need to make sure your

adrenals are in decent shape in order to handle the T3 that is in Armour.

Again, this is a bit off-topic and there are a couple of weblinks I will refer

you to where you can learn a great deal about all of this. Here they are:

www.stopthethyroidmadness.com

NaturalThyroidHormones/

NaturalThyroidHormonesADRENALS/

I think this is all that I can address from your message.

Hope this helps,

ka

From: " duchonb@... " <duchonb@...>

Has anyone had experience with having hypo,graves and hashis and of going from

levothroid or synthroid to armour. And then going on LDN?

I have many medical issues eg cancer tho NED right now,fibro,the above thyroid

issues,osteoporosis,mildly elevated FBS. Just to name a few lol

So, my questions relate both my complicated thyroid profile and transitioning to

armour and then relates to getting on LDN

This is a very well informed grouits helpful to read all the positive as well as

problematic effects of LDN

B

Sent from my Verizon Wireless BlackBerry

>

> Kem, I haven't been doing LDN for that long, but I'll share my experience.

I'm also taking LDN for Hashi's and started off at 1.5mg. I stayed at that dose

for 2 weeks and upped it to 2.0mg since I'm doing the liquid. I stayed at that

dose for another 2 weeks and upped it to 3.0mg. After another 2 weeks, I upped

it to 4.0mg where I've currently been at for the past 4 weeks. I just had my

anti-TPA antibodies checked and they have decreased fairly significantly, from

587 to 155.

>

> I started noticing that I was feeling a bit hyper just over 2 months after

starting the LDN and started lowering my thyroid dose. It's been hard to tell

where I need to be on the dose, since I've been transitioning from T3 only back

to Armour after clearing a Reverse T3 problem. So the hyper feeling could have

been the LDN helping out or just me overshooting the transition back to Armour,

hard to say.

>

> So at this point, I would say that you're probably okay with increasing your

dose, but you definitely want to keep charting your temps according to Dr Rind's

method to have more of an idea of whether you're heading hyper. And I would

think it would be a good idea to get some labs done if you start feeling at all

hyper or within 2-3 months of when you started the LDN, whichever comes first.

>

> I don't know much about fibro, but from what I've read on here from others,

the increase might help with the return of your pain and stiffness. And as long

as you keep close tabs on your thyroid status, it should be fine there, as well.

>

> ka

[Guest guest]

I have SPMS and Transverse Myelitis and when I started 3 years and 10 months ago there was no protocol of 1.5mg for a month, 3mg for a month and 4.5mg there after so I started on 3mg and got great benefits from day one. I then waited 5 months then went up to the 4.5mg dose and am still doing great.

Those patients who are taking thyroid hormone replacement for a diagnosis of Hashimoto’s thyroiditis with hypothyroidism ought to begin LDN at the lowest range (1.5mg for an adult). Be aware that LDN may lead to a prompt decrease in the autoimmune disorder, which then may require a rapid reduction in the dose of thyroid hormone replacement in order to avoid symptoms of hyperthyroidism.

May there be a miracle in YOUR life today and may you have the EYES to see it..From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years 10 months on LDN with Skip's Pharmacy.....No Relapses.....Crystal's MS,TM & LDN Websitewww.crystalsmstmldn.org

LDN Website www.ldninfo.org Crystal's LDN Support GroupLDN_Users/

LDN MySpace

www.myspace.com/low dose naltrexone

LDN Help - International Users’ Resources

www.ldn-help.com

Low Dose Naltrexone Database

http://ldn-database.carnebeach.com/

Up the Creek with a Paddle

www.marybradleybooks.com

Skip's Compounding Pharmacywww.skipspharmacy.com

From: lostalibi <lostalibi@...>low dose naltrexone Sent: Thursday, July 2, 2009 9:45:04 AMSubject: [low dose naltrexone] Re: Is it time to increase my dose?

Perhaps it depends on the ailment.... ie I've heard MS and Thyroid patients need to start slowly. I trust Skip and didn't ask for justification of the dosage

[Guest guest]

Point well taken Crystal;-) I did start off on 1.5mg. for 1 month. I could tell it wasn't enough several days ago so my doc bumped me up to 3 mg LDN. I lowered my naturethroid from 3 gr. to 2 1/2 gr. 2 weeks ago and have stayed at that level since. My doc is aware of the possibilities of too much thyroid with raising the ldn. If I find I need to go down to 2 gr. of thyroid I will.I'm also starting to use Isocort, just 5 mg. in morning and at 3pm. I'm in the middle of a kitchen remodel and totally stressed out! I just walked my husband through directions on the phone. He's picking up our wood laminate floors in Portland today and he zigged when he needed to zag.. He didn't have a map, thought he knew where he was going and made every bone head move he could. Big problem was the flooring place closes at 1pm today. I talked him to the flooring place with 3 whole minutes to spare!!! Jeez, then someone came to the door, my dogs were having a cow because the lady had a dog with her. I couldn't even hear her because my dogs (dachshunds) were wanting to get hold of her dog. I finally got rid of her then the phone rang, auto message...aaahhhhh! Jeez, am I havin fun yet?? I had NO idea how hectic my daily life was until I started dosing on the Isocort and it calmed and made me feel more at ease so I could deal with stuff as it comes along.<<Posted by: "Crystals MS TM LDN Website" angelindisguise67@... angelindisguise67Thu Jul 2, 2009 6:19 pm (PDT)I have SPMS and Transverse Myelitis and when I started 3 years and 10 months ago there was no protocol of 1.5mg for a month, 3mg for a month and 4.5mg there after so I started on 3mg and got great benefits from day one. I then waited 5 months then went up to the 4.5mg dose and am still doing great. Those patients who are taking thyroid hormone replacement for a diagnosis of Hashimoto’s thyroiditis with hypothyroidism ought to begin LDN at the lowest range (1.5mg for an adult). Be aware that LDN may lead to a prompt decrease in the autoimmune disorder, which then may require a rapid reduction in the dose of thyroid hormone replacement in order to avoid symptoms of hyperthyroidism. May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group Owner>> Kem in Eugene <º)))><