Introduce myself

[Guest guest]

Hello and welcome! Your situation sounds a lot like mine. I have had

two surgeries (disectomy and fusion w/hardware). I am still considering the

implants. It's a huge decision that only you can make. I have found the people

in this group are fantastic for information. I learned a lot here. It made me

better prepared with questions for my surgeon.

I just had a nerve root block yesterday. It will take about a week to know if it

worked. I had one in 2003 and it didn't do anything. So we will see.

My concerns about the stimulator is what is the quality of life going to be.

Understanding, there will be restricts to a point... will I be able to do what

I do now without having pain and or will it restrict me. That was the biggest

question. Everyone is different some it works for and some it doesn't. They

can't tell you. One of the ways to find out is to go through the trial.

However, I was told that sometimes the trial goes great and then they put the

unit in and it is not as effective. It's hard to say.

How old are you and what are your symptoms now? When did this start for your?

Take Care and welcome!

- Mass

Introduce myself

Hello all! My name is and I just joined.A little bit of

background:I hurt my back several years agon tripping over one of my

sons toys.Since then I have had a laminectomy and a 2 level

fusion.Plus I dont know how many injections, steriods and

stuff.Nothing has worked for any length of time.Well,I went to the dr

last week and he suggested the spine stimulator thingy.Says I have

nerve damage in my back,poss due to all the surgeries,and that nothing

else can be done for me.He sent me home with a whole bunch of info and

told me to think about it.So,here I am.I would love any info or input

from anyone.Im prob gonna go ahead and schedule it,but I would love to

learn all I can.

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[Guest guest]

Hi ,

Glad you found this group! My advice to you is that you find an

otologist to do your second surgery if you aren't already using one.

I had an ENT for my first surgery and an otologist for my second and

the difference was incredible. An otologist will probably remove the

cholesteatoma in one surgery and do reconstruction in the second

surgery. I recently had a re-growth of a cholesteatoma removed and am

looking forward to reconstruction surgery in January. I haven't been

able to hear out of my left ear very well for a long time, so I can't

wait to see if this reconstruction works out!

Welcome to the group!

Millie

[Guest guest]

Hey - Good luck with the second surgery-

I just had my surgery 3 days ago- I know what you're going through!

What school did you get into? When is the surgery scheduled?

[Guest guest]

I'll be heading off to Beloit College in Wisconsin in the fall as a

sophomore transfer. My surgery is scheduled for June 26th so I should

be able to go for a re-look surgery in December when I'm home for

winter break. Hope your recovery is going well!

[Guest guest]

Hi Jean:

Welcome.

That is fantastic for test results! I tested at 80% which was pretty good, but

I hope to get to 99%!

Rhona

cause of hearing loss unknown

Cochlear Awareness Network Advocate

4/3/07 Surgery, left ear Nucleus Freedom

5/8/07 Activated

Univ of Miami

Dr. Balkany

[Guest guest]

Hey we're almost neighbors! I live in Malden, MA, right down the

street from you! Small world, huh! Congrats on your CI and

activation! My surgery is next Tuesday (21st) and I'll be getting two

CI's at the same time! Can't wait! I'm so excited to hear how well

you're doing since activation! Hey, if you don't mind me asking, where

did you get your surgery? I'm going to Mass. Eye & Ear in Boston. I

can't wait to hear how you progress in the coming months.

Congratulations again!

>

> I appologize for not doing this before; my name is jean and im a

single mother in Danvers mass. I recived my implant 7/5/07 and was

activated 8/03/07. The good news is im at 99% (twice) for the

testing!!!! I also wanted to share i went to my first concert saturday

it was Def Lepord stix and foriegner and they rocked the house, but the

best part was i heard them!! Please forgive me for not doing this

sooner, and not popping in that much its summer and that means FUN!!!

thanks all, jean

>

> ---------------------------------

> Pinpoint customers who are looking for what you sell.

>

>

[Guest guest]

Hi

Welcome to CI Hear! Wow, about hearing the concert. What a CI

Moment! Continued success to you!

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day BWP 1/2/03 (A Happy Day!)

3G 1/31/03 (An Even Happier Day!)

[Guest guest]

, I am only going by what i was told and unfortunatlly all of my childhood

records are gone. And yes i am a young mother i had my daughter at 19. Can

someone tell me what to do when you put the mole skin on your processor how to

get the sticky stuff off? thanks jean

---------------------------------

Building a website is a piece of cake.

Small Business gives you all the tools to get online.

[Guest guest]

Hi

Thanks for the update. Have the kids early, and you'll remember why

God gives children to young people. My cousin and his wife inherited 4

children from her late sister. So now, at ages 60 and 64, they have a 15

yr old, a 12 yr old and a set of 5 yr old twins. I said, " You'll learn

why God give children to young people " .

I know when I first went for evaluation, Ohio Sate Univ. was doing a

survey on hearing loss and one of the questions they asked was if I ever

had German measles. Indeed I did, but it was like 25 years earlier. And

both my siblings had it as well, and neither lost their hearing. So,

lots of research being done on what causes hearing loss.

Can't help with the moleskin. Never use the stuff. Even on my

moles!!

, I am only going by what i was told and unfortunatlly all of my

childhood records are gone. And yes i am a young mother i had my daughter

at 19. Can someone tell me what to do when you put the mole skin on your

processor how to get the sticky stuff off? thanks jean

[Guest guest]

Hi lind,

It nice to hear that is doing well. I can remember working with him.

Very bright boy indeed! Do continue doing this work cause it is definately

help to open doors to our child's true potential!

Miss all of you!

Yonie

From: lind Hitchcock <roshitch@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Monday, February 16, 2009 10:43:56 AMSubject: introduce myself

Hello Everyone,

I am excited to be part of this group! My name is lind. We live in Seattle, Wa. My child's name is and he is 9 years old. We have seen numerous professionals (neurologist, psychologists) but have never been given an official diagnosis. My son is very bright but struggles with organization, motor skills and integrating information. He is also extremely anxious and has a lot of OCD symptoms. We attended the 2008 Mastgutova Surrey camp and my son has made significant gains since then. We have also worked with Handle, Brain Gym, DIR Floortime, NAET, craniosacral and homeopathy. I also home school. We have a room with swings, spandex and mini tramp and the constant sensory imput is the best way I have found to help him get through school work. I have taken the Lifelong Reflexes course. Thank

you.

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[Guest guest]

Hi everyone,

Just wanted to say hello to everyone & introduce myself. My name is Helena and

live in Crete, Greece. I lived many years in Calif. but for the past 16 yrs I

live here again.

I was rx with RRMS this past Dec. 2008. I couldn't believe it bc I was always

very active, ate pretty healthy, exercised etc...never even had allergies...

I'm a fighter and said to myself I will fight this monster. My neurologist put

me on rebif inteferone 22mg. I asked if there was natural remedies for this and

he said " wish there was " . I just couldn't accept this but I felt pressured into

taking the injections from my family & husband being that my walking was getting

worse & worse. I took rebif for a month and a half. In that time frame I was

praying and searching on the internet for alternative medicine which I found but

most of it was in the US and I thought how can I find this stuff here in this

small part of the world? & if I do fine it, I would need someone that knows

about this stuff like a homeopath or naturopath. It seemed a bit hopeless but I

lifted it up in prayers all these months from Feb-April.

The Lord answered my prayers. About a month ago a girl I had met in the hospital

called me and told me about a homeopath here in town and she said he could help

me. She said he helped this other girl with MS start walking & she was

wheelchair bound. I'm not wheelchair bound. I still walk a little but w/ great

difficulties. I have a cane for balance etc...

I met up w/ the homeopath in Apr & this is what he suggested for me...

I'm taking Syntol (probiotic supp) and Neprinol (cleanses blood & other goodies

for the immune system etc...) Plus Omega 3 supp.

I ordered wheatgrass online from UK and I add a full tsp in my juices twice a

day.

I'm also on a strict diet...no refined sugar & no refined carbs. Very little

lean meats. Eat lots of fish esp salmon & lots of greens salads & veggies.

Been on LDN for 2 weeks now along with Silver colloidal(I add 5 drops of

hydrogen peroxide) & MMS (miracle mineral solution)...

Once a day I mix 1 tsp baking soda in a glass of filtered water.

In the evening I drink 5 drops iodine & iodid in a glass of filtered water. He

cooperates with a certain pharmacy here which did the correct mixing of iodine &

iodid for me so I couldn't really say the correct mixture for I don't know.

I found a different neurologist to write up the LDN and that was sent to Athens

pharmacy to be compounded.

Everyday I juice 3 apples(usually I have it for breakfast)

In the afternoon I juice 2 beets & about 5-6 carrots (lots of vit.to help build

my immune system)

I see a tiny difference for the better in my walking so far. Slowly but surely.

He also told me to look into " Inclined Bed Therapy " . I saw on youtube.com a

video on it. My husband will hopefully get around to fixing the bed for me.

We've had so much to do it's been a bit overwhelming.

Also we put filter for our showers and got a better quality filter for our sink

& drinking water. I was going for hydrotherapy & he told me to stop bc of the

chlorine in the pool.

Praise the Lord for providing for me this homeopath. These past 2 weeks I

haven't really noticed anything besides a tiny difference for the better in my

walking. It's still early but I am doing all I can to beat this. I definitely am

looking forward to walking normally again & then God willing running. This all

takes time he said & sometimes I might feel worse before I start feeling better.

I will post down the road when I start seeing bigger & better results.

I wanted to share my experience so far w/ everybody just in case this can help

any one of you it would be a big blessing.

The Lord bless you all & give you all strength to overcome all you're going

through.

Helena

[Guest guest]

Hi Issy:

Do you have any recent lab results you can give us along with reference ranges?

If you don't have a copy of them, you can call your surgery and ask for these

labs.

Can you tell us what supplements you are currently taking and in what

amounts...have you had any recent labs on Iron or Ferritin? (stored iron)

Are you sleeping at night or waking up several times? Any digestion problems or

stomach problems? Are you in menopause? Have you had any labs done for sexual

hormones such as estradiol, testosterone or progesterone, DHEA?

Cheers,

JOT

-> Anyone help??? My GP and the endocrinologist are saying my thyroid levels

are normal.

>

> Issy

>