Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Dear Helen, So sorry to hear about your daughter's bulls eye rash! I HATE THIS DISEASE!!!!! Did you start daughter on high dose abxs right away??? Don't mean to tell you what to do here - but I can tell you what I'd do - Id get abxs & dose her heavily NOW before disaease has a chance to really " set up camp " in her body! Maybe your LLMD will see her right away & test for co-infections (heard they're very common now a days). Blessings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Marta, I to have A* blood and my body does the exact same thing as yours. I always prided myself on my iron stomach. By the way, thanks Vicki, and everybody else who posted about e-mail by phone. I now am scheduled to be in E. Hampton on the 19th of March and begin HBOT on the 20th. I won't be in Md. Plans have changed about going to their facility. Ok anybody. I need support BIGTIME. The other shoe has dropped. Our wonderful 21 year old daughter who was on IV meds the summer before she went away to college and has seemed FINE until now just came home last night from college (she is a junior) and showed us a hugh horrible bullseye on her right ribcage. Honestly, I almost fainted but tried to be strong. Please God, I hate this damn disease. I cried for an hour--she didn't see me. I am numb. Luckily we are about to leave for an appt with a local LLMD who has agreed to help us all if we need her. We really see Dr " B " but that is a haul. Took pictures and a video last night. I didn't sleep 5 hours. Pray for us. This is so hard. I am sick over this. Love, Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 helen....good luck in all endeavors......as always my prayers are with u and ur family.....god how many of us does this disease have to harm before we are heard and taken seriously????? was talking to a person last nite.....lyme came up ....i told my story....she told me her brother has it and has been doing well.....but that she had just talked to him and he was starting to have his " spells " again.......easily treated my ass......cured......yeah rite........it just makes me so.......well u all know.....love to urs Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Dear Helen, So sorry to hear about your daughter's bulls eye rash! I HATE THIS DISEASE!!!!! Did you start daughter on high dose abxs right away??? Don't mean to tell you what to do here - but I can tell you what I'd do - Id get abxs & dose her heavily NOW before disaease has a chance to really " set up camp " in her body! Maybe your LLMD will see her right away & test for co-infections (heard they're very common now a days). Blessings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Dear Helen, I'm so sorry to hear about your daughter, but glad to hear that you didn't go to MD. I inquired about their HBO site and didn't hear good things. My daughter and I have started HBO at Hyperbaric Services of America (mostly at Great Neck--we had 1 tx at East Hampton the day of an appt with Dr. B.) and are very pleased with how we are treated and they follow the Fife (sp?) protocol. We've finished 1 week of treatments. I had a horrible herx (haven't felt that bad for 3 years) starting the night of the first 2 txs that lasted 1 1/2 days. Then I felt my usual okay but not normal.(I mean like pre-Lyme). My daughter hasn't had any sign of a herx and I don't know whether to be glad or anxious. Good luck to you during your treatments and I hope your daughter gets treated fast and with big doses. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Dear Helen, I'm so sorry to hear about your daughter, but glad to hear that you didn't go to MD. I inquired about their HBO site and didn't hear good things. My daughter and I have started HBO at Hyperbaric Services of America (mostly at Great Neck--we had 1 tx at East Hampton the day of an appt with Dr. B.) and are very pleased with how we are treated and they follow the Fife (sp?) protocol. We've finished 1 week of treatments. I had a horrible herx (haven't felt that bad for 3 years) starting the night of the first 2 txs that lasted 1 1/2 days. Then I felt my usual okay but not normal.(I mean like pre-Lyme). My daughter hasn't had any sign of a herx and I don't know whether to be glad or anxious. Good luck to you during your treatments and I hope your daughter gets treated fast and with big doses. Eileen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.