Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 lol...but I am not on abx. Cyntha Landon Idaho Re: [ ] low grade fever here > From: lc lott <lclott@...> > > Cyntha- > No you are not weird or the only one with low grade > fevers. I have them constantly when on abx. Same > degrees. 99 to 101. Within a week of going off the abx > is is back down to 97.6 > I always thought it was the abx working. > L(MI) > > --- Cyntha Landon <cyntha@...> wrote: > > From: " Cyntha Landon " <cyntha@...> > > > > So who has problems with a low grade fever. Humm > > am I weird or what. my > > temp generally runs between 99.8 to 101.F Just > > curious. Seems like I have > > asked this one before so I appologize. > > > > > > > ------------------------------------------------------------------------ > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Don't worry , I get the fevers at least once a month for about a week, in the late afternoon or evening, even off abx's. In fact, I think I get them more often when I'm off the abx's. I don't try to figure anything out with this disease anymore, just share experiences. This is a common symptom of Lyme. My opinion is that the fevers mean you still have the Bb in your system (or co-infection) and your body's natural response while trying to kill it, is a fever. Why only in some of us, and why some only in the afternoon, or different, I don't know. Except to say, Lyme acts and affects us all differently. Guess it depends on your immune system's strength before you got Lyme, and/or the strain of Lyme you have, and whether or not you have co-infections, and other auto-immune disorders. Like me, I already had Hypothyroid, Anemia (but got much worse since Lyme), and controlled my Hypoglycemia (low blood sugar) with diet. So my immune system was already dealing with quite a lot, albeit, minor disorders, but still probably had something to do with how sick I got/am with Lyme. Don't worry too much about the fevers, but do mention them to your doctor next visit, so he can document it. And remember heat at a particular temp kills the Bb, and that is why I think the fever is your body's natural defense, or part of it. Take care, Vicki Re: [ ] low grade fever here >From: " Cyntha Landon " <cyntha@...> > >lol...but I am not on abx. > >Cyntha Landon Idaho > Re: [ ] low grade fever here > > >> From: lc lott <lclott@...> >> >> Cyntha- >> No you are not weird or the only one with low grade >> fevers. I have them constantly when on abx. Same >> degrees. 99 to 101. Within a week of going off the abx >> is is back down to 97.6 >> I always thought it was the abx working. >> L(MI) >> >> --- Cyntha Landon <cyntha@...> wrote: >> > From: " Cyntha Landon " <cyntha@...> >> > >> > So who has problems with a low grade fever. Humm >> > am I weird or what. my >> > temp generally runs between 99.8 to 101.F Just >> > curious. Seems like I have >> > asked this one before so I appologize. >> > >> >> > > >> ------------------------------------------------------------------------ >> >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Hi, Marta, It is true that low graded fevers are indicative of the body's struggling with the foreign invaders.. but whenever I had the fevers, I ended up having accidents cuz the body coordination, vertigo, and brain fog would get so bad.. I have ended up in ER several times..and gone to see the dr other times.. Now that the antibiotics are taking of the fevers, I don't have to go to ER and face that dr who asked me if I am accident prone!! lol hugs, elizabeth In a message dated 3/21/00 9:14:54 AM Eastern Standard Time, mlmccoy@... writes: << oncerned about his fevers. The doctor told me " A fever is a wonderful thing....it is the body's way to fight infection naturally " True, we don't want it to get too high, that's a given, but I sure do envy you guys who are having fevers, because even after 28 days of IV, and feeling so sick and >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Hi gang, Quick comment here, I recall taking my son to the pediatrician years ago, concerned about his fevers. The doctor told me " A fever is a wonderful thing....it is the body's way to fight infection naturally " True, we don't want it to get too high, that's a given, but I sure do envy you guys who are having fevers, because even after 28 days of IV, and feeling so sick and clammy, feeling like I must have a temp, and alas, the thermometer always reads normal. I have no doubt I am still loaded with Bb, but I think my immune system has just given up the fight. Hugs, Marta >From: " Vicki Ferraro " <ferraroa@...> > >Don't worry , >I get the fevers at least once a month for about a week, in the late >afternoon or evening, even off abx's. In fact, I think I get them more often >when I'm off the abx's. I don't try to figure anything out with this disease >anymore, just share experiences. This is a common symptom of Lyme Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Hi , You are right the coordination problems, vertigo and brain fog, when accompanied by fevers are your body's way of telling you, you are mighty sick and should stay in bed. I am glad the abx are helping you combat the fevers, but for myself personally, I just wish I would really have a fever when I feel like I do, and supposedly the heat generated from said fevers will help kill off those nasty chetes. Hugs, Marta - >From: shasus@... > >Hi, Marta, > >It is true that low graded fevers are indicative of the body's struggling >with the foreign invaders.. but whenever I had the fevers, I ended up having >accidents cuz the body coordination, vertigo, and brain fog would get so >bad.. I have ended up in ER several times..and gone to see the dr other >times.. Now that the antibiotics are taking of the fevers, I don't have to go >to ER and face that dr who asked me if I am accident prone!! lol > >hugs, > >elizabeth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 I have had a low fever for a while. Sometimes it makes me feel awful and other times I don't notice it as much. Why is it that some of us have this fever and others run low??? Does this mean that our immune systems are fighting the ketes just as they would a virus? Or could there be some kind of viral component for some of us? Any ideas? Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Irene, I used to have low grade fevers when I was not on antibiotics or on too low dosage of antibiotics.. Apparently it s from the spirochettes being active and our immune system responds by sending immunological cells, such as T cells, B cells to destroy the spirochetters, resulting in an increase in body temperature. I have no idea why some don't have the fever while others do.. I personally don't care for the fevers as they have caused countless accidents, since I wasn't content to stay inside the house doing nothing but resting.. Do the fevers abate when you take antibiotics? Mine is pretty rare nowadays.. elizabeth << From: renier1@... I have had a low fever for a while. Sometimes it makes me feel awful and other times I don't notice it as much. Why is it that some of us have this fever and others run low??? Does this mean that our immune systems are fighting the ketes just as they would a virus? Or could there be some kind of viral component for some of us? Any ideas? Irene >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Hi Irene, Wish I knew, for the last few nights I have been wakening either drenched with sweat, or shivering so badly that my teeth rattle my brain. I should take my temp when this happens, but always forget. I used to have low grade fevers early in my LD, now hardly ever, either normal or a little low. I am guessing my immune system gave up fighting. Hugs, Marta >From: renier1@... > >I have had a low fever for a while. Sometimes it makes me feel awful and >other times I don't notice it as much. Why is it that some of us have this >fever and others run low??? Does this mean that our immune systems are >fighting the ketes just as they would a virus? Or could there be some kind >of viral component for some of us? Any ideas? Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Hi , It's interesting that you mentioned the level of abx in relation to the fever. I did go off abx for 1 mo to clean out and then began a low dose regimen just waiting for approval for IV. This is when the fevers did surface again. I'm still waiting for approval and the fevers are on and off. Thanks for the info. Wonder if anyone else has noticed this relationship? Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Hi , It's interesting that you mentioned the level of abx in relation to the fever. I did go off abx for 1 mo to clean out and then began a low dose regimen just waiting for approval for IV. This is when the fevers did surface again. I'm still waiting for approval and the fevers are on and off. Thanks for the info. Wonder if anyone else has noticed this relationship? Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Marta, This fever issue is interesting. I think I'm going to track it along with other symptoms and put in the computer along with my different meds and see if there is anything I can understand from it. Someone gave me a list of symptoms down the left column and days across the top (one month per page). I think you then put a code of 0-10 (least to most) next to each symptom. I would then write the abx regimen under the columns at the bottom of the page. Since my meds change periodically. One dr uses this to track their patients and it's an excellent idea for everyone to be able to see more clearly how we are progressing. When I go to bed and my feet and hands are freezing; when I wake up I'm hot and feel feverish. Strange stuff! Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Hi Irene, I am noticing it, the highest fever I have is 99.5, yet I feel like I have a raging fever, I wake up soaked, take my temp and it is 98. I finished 28 days of IV on the 18th, and put myself on 1000mg of Ceftin and 250mg of Zith, till I hear from my doctor. It is making me feel like I am constantly herxing. Maybe it is a good thing I got a break from IV, yet I am hoping my doctor will get a second approval for another round of IV soon. Hugs, Marta - >From: renier1@... > >Hi , >It's interesting that you mentioned the level of abx in relation to the >fever. I did go off abx for 1 mo to clean out and then began a low dose >regimen just waiting for approval for IV. This is when the fevers did >surface again. I'm still waiting for approval and the fevers are on and off. > Thanks for the info. Wonder if anyone else has noticed this relationship? >Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Marta, This fever issue is interesting. I think I'm going to track it along with other symptoms and put in the computer along with my different meds and see if there is anything I can understand from it. Someone gave me a list of symptoms down the left column and days across the top (one month per page). I think you then put a code of 0-10 (least to most) next to each symptom. I would then write the abx regimen under the columns at the bottom of the page. Since my meds change periodically. One dr uses this to track their patients and it's an excellent idea for everyone to be able to see more clearly how we are progressing. When I go to bed and my feet and hands are freezing; when I wake up I'm hot and feel feverish. Strange stuff! Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Hi Irene, I am noticing it, the highest fever I have is 99.5, yet I feel like I have a raging fever, I wake up soaked, take my temp and it is 98. I finished 28 days of IV on the 18th, and put myself on 1000mg of Ceftin and 250mg of Zith, till I hear from my doctor. It is making me feel like I am constantly herxing. Maybe it is a good thing I got a break from IV, yet I am hoping my doctor will get a second approval for another round of IV soon. Hugs, Marta - >From: renier1@... > >Hi , >It's interesting that you mentioned the level of abx in relation to the >fever. I did go off abx for 1 mo to clean out and then began a low dose >regimen just waiting for approval for IV. This is when the fevers did >surface again. I'm still waiting for approval and the fevers are on and off. > Thanks for the info. Wonder if anyone else has noticed this relationship? >Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi Irene, Good idea keeping the symptom journal, I wish I was so disciplined but long ago lost that ability to focus. Let us know what you discover. I had another bad night, sweats cause me to wake up freezing, fell asleep once with thermometer in my mouth, found it in the bedcovers, one of the umpteen times I got up. Bad dreams forced me out of bed at 3AM....what a life we lead. Hugs, Marta >From: renier1@... > >Marta, >This fever issue is interesting. I think I'm going to track it along with >other symptoms and put in the computer along with my different meds and see >if there is anything I can understand from it. Someone gave me a list of >symptoms down the left column and days across the top (one month per page). >I think you then put a code of 0-10 (least to most) next to each symptom. I >would then write the abx regimen under the columns at the bottom of the page. > Since my meds change periodically. One dr uses this to track their patients >and it's an excellent idea for everyone to be able to see more clearly how we >are progressing. > >When I go to bed and my feet and hands are freezing; when I wake up I'm hot >and feel feverish. Strange stuff! Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi Irene, Good idea keeping the symptom journal, I wish I was so disciplined but long ago lost that ability to focus. Let us know what you discover. I had another bad night, sweats cause me to wake up freezing, fell asleep once with thermometer in my mouth, found it in the bedcovers, one of the umpteen times I got up. Bad dreams forced me out of bed at 3AM....what a life we lead. Hugs, Marta >From: renier1@... > >Marta, >This fever issue is interesting. I think I'm going to track it along with >other symptoms and put in the computer along with my different meds and see >if there is anything I can understand from it. Someone gave me a list of >symptoms down the left column and days across the top (one month per page). >I think you then put a code of 0-10 (least to most) next to each symptom. I >would then write the abx regimen under the columns at the bottom of the page. > Since my meds change periodically. One dr uses this to track their patients >and it's an excellent idea for everyone to be able to see more clearly how we >are progressing. > >When I go to bed and my feet and hands are freezing; when I wake up I'm hot >and feel feverish. Strange stuff! Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi, Irene I am wondering if you can share your list with us.. I am curious to see what it looks like.. hugs, elizabeth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi Marta, I'm sorry to hear that you are having so many problems! I think you mentioned that you are on orals now, right? I am wondering about the night sweats...I haven't had any while on abx, and I'm wondering if it happens to those with Erlichiosis or Babesia. I am supposedly not suffering from those...anybody with " just LD " get them? Thanks, Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Irene, Marta and all, I have noticed that when I am not on abx, my temp is between 96.5 and 97.3, but while on abx it's usually between 98 and 98.8...interesting. Hugs to all, Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Since we are all talking about temps - mine is always low, between 97.6 - 98 when I'm on abx, and before I got sick (due Hypothyroid, maybe), but when I go off abx's I get like Marta sometimes, and other times I have a temp between 99.5-100. Or like Marta, feel like I'm burning up with a raging fever and its only 98! This Lyme truly is a weird disease! Vicki >From: Namkrats3@... > >Irene, Marta and all, >I have noticed that when I am not on abx, my temp is between 96.5 and >97.3, but while on abx it's usually between 98 and 98.8...interesting. >Hugs to all, >Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 Well Joan, According to my LLMD, my ehrlichiosis was cleared up long ago with abx....now where have I heard that one before??? I am on orals, I kind of think this nightsweat stuff in my case is hormonal right now. I am way overdue for my period, had it twice in early February, not at all in March. I do feel might sick though, and would also have to compare this feeling with when I do have my period and am having a cyclic herx. I am kind of glad I am off IV right now at least temporarily cannot imagine how that would make me feel. Hugs, Marta >From: Namkrats3@... > > >Hi Marta, >I'm sorry to hear that you are having so many problems! I think you >mentioned that you are on orals now, right? I am wondering about the >night sweats...I haven't had any while on abx, and I'm wondering if it >happens to those with Erlichiosis or Babesia. I am supposedly not >suffering from those...anybody with " just LD " get them? >Thanks, >Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 You're right Joan, and when I get a temp, the highest is only 99.5, yet I feel like I am burning up. This is a strange disease. Hugs, Marta >From: Namkrats3@... > >Irene, Marta and all, >I have noticed that when I am not on abx, my temp is between 96.5 and >97.3, but while on abx it's usually between 98 and 98.8...interesting. >Hugs to all, >Joan LI NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 Joan- I have horrible night sweats every night... I have tested neg for co-infections and have taken Doxy just in case it was false neg. The sweats seem to be worse when everything else is worse too... Some days I get up feeling severly dehydrated from sweating so much during the night... L --- Namkrats3@... wrote: > From: Namkrats3@... > > > Hi Marta, > I'm sorry to hear that you are having so many > problems! I think you > mentioned that you are on orals now, right? I am > wondering about the > night sweats...I haven't had any while on abx, and > I'm wondering if it > happens to those with Erlichiosis or Babesia. I am > supposedly not > suffering from those...anybody with " just LD " get > them? > Thanks, > Joan LI NY > > > ------------------------------------------------------------------------ > LOW RATE, NO WAIT! > Get a NextCard Visa, in 30 seconds! Get rates > as low as 2.9% Intro or 9.9% Fixed APR and no hidden > fees. > Learn more at: > 1/937/5/_/484634/_/954278945/ > ------------------------------------------------------------------------ > > Send to -Offtopiconelist messages > unrelated to Lyme, please. > Archives can be found at: > /group/lyme-aid. > They are filed by month, pick a month and search > those archives for subjects you are interested. > Lyme chat, go to this URL: > /chat/lyme-aid > Should you have trouble opening the page, go back to > / and make sure you are > registered with a password. You can ask ONELIST to > remember you, and will only have to do this one > time. > To unsubscribe, send email to > -unsubscribeonelist > You may substitute " subscribe " , or " digest " or > " normal " for > the word " unsubscribe " ( " normal " is the opposite of > " digest " ). Leave blank both the message and subject > header. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Joan- I have horrible night sweats every night... I have tested neg for co-infections and have taken Doxy just in case it was false neg. The sweats seem to be worse when everything else is worse too... Some days I get up feeling severly dehydrated from sweating so much during the night... L --- Namkrats3@... wrote: > From: Namkrats3@... > > > Hi Marta, > I'm sorry to hear that you are having so many > problems! I think you > mentioned that you are on orals now, right? I am > wondering about the > night sweats...I haven't had any while on abx, and > I'm wondering if it > happens to those with Erlichiosis or Babesia. I am > supposedly not > suffering from those...anybody with " just LD " get > them? > Thanks, > Joan LI NY > > > ------------------------------------------------------------------------ > LOW RATE, NO WAIT! > Get a NextCard Visa, in 30 seconds! Get rates > as low as 2.9% Intro or 9.9% Fixed APR and no hidden > fees. > Learn more at: > 1/937/5/_/484634/_/954278945/ > ------------------------------------------------------------------------ > > Send to -Offtopiconelist messages > unrelated to Lyme, please. > Archives can be found at: > /group/lyme-aid. > They are filed by month, pick a month and search > those archives for subjects you are interested. > Lyme chat, go to this URL: > /chat/lyme-aid > Should you have trouble opening the page, go back to > / and make sure you are > registered with a password. You can ask ONELIST to > remember you, and will only have to do this one > time. > To unsubscribe, send email to > -unsubscribeonelist > You may substitute " subscribe " , or " digest " or > " normal " for > the word " unsubscribe " ( " normal " is the opposite of > " digest " ). Leave blank both the message and subject > header. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Hi , When I had a consultation with my 1st LLMD last year, one of the things he asked me was if I ever had night sweats, as I hadn't mentioned them. I told him that on occasional nights I would wake up dripping, with a pool of " water " on my chest. He tested me for co-infections, which were negative and recommended tx for Lyme disease. Since being on tx, I have not had the night sweats...plenty of other sx, but not that. Confusing? BTW, did you work out the problems w/your LLMD? I hope so! See you in Gettysburg, Joan LI NY Quote Link to comment Share on other sites More sharing options...
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