Re: Flagyl Veterans: PLEASE HELP

[Guest guest]

Hi Joan,

Scary. poor thing. Geez, I just saw DR B and now I am on a new schedule.

They recommend SIX 500 mg tablets/day for 21 days. Blasting those cysts I

guess. I've been on the dose you're on now and I am more down. Weird. No

patience, etc. I am sure now that it must be from flagyl since any effects

from HBOT have worn off. I can empathize with you if you feel crazy!

Love,

Helen

[Guest guest]

In a message dated 6/6/00 5:25:01 PM Eastern Daylight Time,

Namkrats3@... writes:

<< I am on my

8th week of Flagyl (1000mg/day) and it's making me crazy. I remember

beth and others saying that this could happen. I am on 40mg/day of

Prozac, which up until this point has been helpful.

Any suggestions? I feel anxious, depressed, and like I want to scream! >>

ya may not like my answer...SCREAM>>>>> go with it...just hang tough and this

too shall pass...not kidding...wouldn't lie to ya....cry when ya need to...do

not watch any sad movies...<grin>

..I remember getting VERY upset about the most stupid thing...I KNEW IT WAS

STUPID..knew it was crazy to cry about it...but cry i did...and when i was

done crying...all better...my husband was moved to tear if ya looked at him

the wrong way...damn he defined what Flagyl meloncholy looked like...hang on

girlfriend.....if overly anxious...hold back the caffeine levels which can

aggravate it and figure out coping mechanisms for when ya are over the

edge...example...withdraw to a different room...take a walk....hug a

tree.....avoid confrontations/arguments...learn to walk away for YOUR health

deep breathe FORCE YOURSELF to relax ... way hard to do...but knowing you

can exert even a minute amount of control over it all...may help ya muddle

thru a tough moment...Bernadette

[Guest guest]

Joan,

Wow 1000 a day of flagyl??? Alot. I was on 250 mg a day and started getting

better - the brain fig lessened and I started talking on a 2nd grade level. I

am off it now and want to get back on. It worked for me but that is a lot.

Stay well - will let you know what happens. KIM

[Guest guest]

Hi Guys,

Well, it's finally happened. I am on my

8th week of Flagyl (1000mg/day) and it's making me crazy. I remember

beth and others saying that this could happen. I am on 40mg/day of

Prozac, which up until this point has been helpful.

Any suggestions? I feel anxious, depressed, and like I want to scream!

Thanks,

Joan LI NY

[Guest guest]

Hi Joan,

Scary. poor thing. Geez, I just saw DR B and now I am on a new schedule.

They recommend SIX 500 mg tablets/day for 21 days. Blasting those cysts I

guess. I've been on the dose you're on now and I am more down. Weird. No

patience, etc. I am sure now that it must be from flagyl since any effects

from HBOT have worn off. I can empathize with you if you feel crazy!

Love,

Helen

[Guest guest]

In a message dated 6/6/00 5:25:01 PM Eastern Daylight Time,

Namkrats3@... writes:

<< I am on my

8th week of Flagyl (1000mg/day) and it's making me crazy. I remember

beth and others saying that this could happen. I am on 40mg/day of

Prozac, which up until this point has been helpful.

Any suggestions? I feel anxious, depressed, and like I want to scream! >>

ya may not like my answer...SCREAM>>>>> go with it...just hang tough and this

too shall pass...not kidding...wouldn't lie to ya....cry when ya need to...do

not watch any sad movies...<grin>

..I remember getting VERY upset about the most stupid thing...I KNEW IT WAS

STUPID..knew it was crazy to cry about it...but cry i did...and when i was

done crying...all better...my husband was moved to tear if ya looked at him

the wrong way...damn he defined what Flagyl meloncholy looked like...hang on

girlfriend.....if overly anxious...hold back the caffeine levels which can

aggravate it and figure out coping mechanisms for when ya are over the

edge...example...withdraw to a different room...take a walk....hug a

tree.....avoid confrontations/arguments...learn to walk away for YOUR health

deep breathe FORCE YOURSELF to relax ... way hard to do...but knowing you

can exert even a minute amount of control over it all...may help ya muddle

thru a tough moment...Bernadette

[Guest guest]

Joan,

Wow 1000 a day of flagyl??? Alot. I was on 250 mg a day and started getting

better - the brain fig lessened and I started talking on a 2nd grade level. I

am off it now and want to get back on. It worked for me but that is a lot.

Stay well - will let you know what happens. KIM

[Guest guest]

Hi Guys,

Well, it's finally happened. I am on my

8th week of Flagyl (1000mg/day) and it's making me crazy. I remember

beth and others saying that this could happen. I am on 40mg/day of

Prozac, which up until this point has been helpful.

Any suggestions? I feel anxious, depressed, and like I want to scream!

Thanks,

Joan LI NY

[Guest guest]

Not trying to do a one upsmanship, but two members in my family are taking

1500 m.g. and 2000 m.g. of Flagyl.

Sincerely,

Annie

[Guest guest]

Dear Joan,

Did you speak with your LLMD about adjusting the flagyl doseage downward - if

this is a herx?

Also, what about tinidazole (sp?) - the European equivalent which is supposed

to have fewer side effects?

[Guest guest]

Yes Joan, Flaygl made me crazy after 4 weeks. i was on celexa at the

time and my doctor changed me to Paxil.. i cant explain, what happened

while i was on flaygl. just know i was really crazier than usual! i

cant remember all the problems because it was last summer. There is so

much of last year i dont remember. - its all so wierd. I stoped the

flaygl at the 5th week. i had already alienated most of my friends and

family by then. If i ever go back on it - at least i will know its

effect on me and can be more aware of my behavior.

roe

--- Namkrats3@... wrote:

> Hi Guys,

> Well, it's finally happened. I am on my

> 8th week of Flagyl (1000mg/day) and it's making me crazy. I remember

> beth and others saying that this could happen. I am on 40mg/day

> of

> Prozac, which up until this point has been helpful.

>

> Any suggestions? I feel anxious, depressed, and like I want to

> scream!

>

> Thanks,

> Joan LI NY

>

>

>

>

>

>

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__________________________________________________

[Guest guest]

Dear Joan,

Daughter has been on flagyl (only 750 mg/day) for several weeks. One thing

that I noticed in a BIG way was when she would take super anti-oxidant pills

from holistic doc - he suggested to take between meals for best effect - 3

days in a row she did this & 3 days in a row got cranky (not unmanageable /

not deressed) - told doc about it & he said more than likely the

anti-oxidants were pulling too many neurotoxins out of tissues at once &

overwhelming her system. He then recommended taking anti-oxidants with meals

- hasn't happened since... So, perhaps it's the neruotoxins overwhelming

your body? (Just guessing - after reading of Dr. Shoemaker's protocol, I

began trying to do what I can to " bind " neurotoxins to herbs & " up " the dose

of antioxidants to " munch up " toxins...)

Also - are you on an anti-candida regimen? Have read that the flagyl REALLY

generates candida - that's been our experience. (The holistic regimen we ar

using works very well - symptoms not nearly as noticable after even 1 dose -

now that we know what " normal " is (with regard to candida). LOL!) If anyone

wants info, can send it your way. I do believe, however, that at least the

products we're purchasing must be purchased through a doc (or perhaps massage

person / acupuncturist, etc.) - they're NOT prescription & anything but toxic

/ dangerous (garlic, castor bean acid derivative & fibre shakes), but

companies only sell to docs...

Hope this helps!

Blessings & velcro hugs,

Chris

In a message dated 00-06-06 17:25:03 EDT, you write:

<< Hi Guys,

Well, it's finally happened. I am on my

8th week of Flagyl (1000mg/day) and it's making me crazy. I remember

beth and others saying that this could happen. I am on 40mg/day of

Prozac, which up until this point has been helpful.

Any suggestions? I feel anxious, depressed, and like I want to scream!

Thanks,

Joan LI NY

>>

[Guest guest]

In a message dated 00-06-06 21:31:29 EDT, you write:

<< Not trying to do a one upsmanship, but two members in my family are taking

1500 m.g. and 2000 m.g. of Flagyl.

Sincerely,

Annie >>

Dear Annie & All,

Have heard the higher doseages (assuming they're tolerated) are better...

Blessings,

Chris

[Guest guest]

maybe Xanax might help?

In a message dated 6/7/00 8:27:54 AM, roe0325@... writes:

<<Any suggestions? I feel anxious, depressed, and like I want to

> scream!

>

> Thanks,

> Joan LI NY

>

> >>

[Guest guest]

To My Wonderful Friends,

I want to thank you all for trying to help me through my Flagyl

crisis. Knowing that I have you all with me makes it more bearable. I

will answer your e-mails as soon as I can.

Love,

Joan LI NY

[Guest guest]

Hi Helen,

Did I hear you right...3000mg of Flagyl a day for 21 days?! Wow! I

hope you can handle it...you've been through so much.

I am toughing it out for now...we'll see.

Hey, if you are seeing the " Dr B. " on Long Island, stop by my

house...I'm right on the way!!! Let me know.

Take Care,

Joan LI NY

[Guest guest]

Hi Kim,

My LLMD started me out on 250mg. of Flagyl and gradually

increased it. He wants me to stick with it until I see him again next

month, to see if this is a " cycle " ... as he calls it. He did tell me to

back off the dose if I really couldn't handle it...we'll see.

I hope that the Flagyl works for you again. I read the other day that

you (right?) went riding for the first time in a while...that's

wonderful! I've always had horses, but as I got sicker and sicker I

could no longer have any more after they passed away.

Where do you keep them?

Feel better,

Joan LI NY

[Guest guest]

In a message dated 00-06-07 16:37:22 EDT, you write:

<< My LLMD did say to lower it if it was a problem. Did anyone in

your family try tinidazole (sp)?

Take care,

Joan LI NY

>>

Dear Joan,

No - not yet... We're treating with non-LLMD (what an " education " he's

getting - VBG!) & is only willing to give 750 mg flagyl - not the tinidazole

(who knows why?). Said he feels the side effects are probably less because

the flagyl is more effective??? I've read that the tissue penetration is

better with flagyl due to the molecular weight, so dosing has to be higher

with tinidazole - then another study says that the tinidazole works better...

Sigh...

Not even sure the 750 mg. flagyl is high enough dose, but we're going with

it, as that's what we have to work with (also taking 1,000 biaxin per day).

Blessings,

Chris

[Guest guest]

Hi Roe,

Hey, are you the same nne that was on the list last year? :-)

Thanks for the reply. I'm sorry that you had problems with Flagyl, but

appreciate your telling me about your experience. Now I don't feel

alone.

Take care,

Joan LI NY

[Guest guest]

Hi Again

My LLMD did say to lower it if it was a problem. Did anyone in

your family try tinidazole (sp)?

Take care,

Joan LI NY

[Guest guest]

Hi Guys,

Well, it's finally happened. I am on my

8th week of Flagyl (1000mg/day) and it's making me crazy. I remember

beth and others saying that this could happen. I am on 40mg/day of

Prozac, which up until this point has been helpful.

Any suggestions? I feel anxious, depressed, and like I want to scream!

Thanks,

Joan LI NY

~~~~~~~~~~~~~~~~~~~~

Joan,

Xanax 0.25 mg and Zoloft 50 mg worked much better for me. I think

anxiousness hit me first but not so bad that I felt I needed anything.

Depression, but aggrevated with home problems, when it hit, took me down

into the dark hole.........scary. I hated to think I " needed " some

medication but I believe they saved me!! I remember walking into the dotors

office and was putting up the brave front, but for various reasons I started

crying. Everyone is so different though. I now only use Xanax when I feel

anxious inside, not so often now, and sometimes take with Ambien 10 mg for

sleep. The Zoloft , I now am breaking in half and then will go to every

other day to see how I do. There is something about the Flagyl that sure

affects the nervous system and it feels like you are spinning out of

control. It does pass, but I think not uncommon to stay " affected " for some

of us, and I really do think we need something to get thru this.

Barb

[Guest guest]

Hi Barb,

Thanks for the Flagyl info. Would I be able to take Xanax along with the

Prozac, or is that a no-no? I'd hate to give up the Prozac, as it's been

a real help to me.

How have you been feeling?

Thanks again,

Joan

[Guest guest]

I was on the list last summer and then dropped out - it became

overwhelming and things here were different with the group then, i am

glad i am back. but i may not be the same rosanne you are thinking of.

roe

--- Namkrats3@... wrote:

> Hi Roe,

> Hey, are you the same nne that was on the list last year? :-)

>

> Thanks for the reply. I'm sorry that you had problems with Flagyl,

> but

> appreciate your telling me about your experience. Now I don't feel

> alone.

>

> Take care,

> Joan LI NY

>

>

>

>

>

__________________________________________________