Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 , I can't help you, but wanted you to know that someone will, maybe not today, but keep checking back. Didn't want you to think your post went unnoticed and we didn't care. There is a person on another support group I'm on, that lives in France, she is having same problem you have. But we have it here in America too, doctors not admitting Lyme even exists. But there are good ones out there too, just hard to find. Hang in there, help is on the way. Vicki [Lyme-aid] hello from london >From: " anna quist " <anarquist@...> > > >hi, > >this is to confirm my interest in this group. im not sure how things work with it but im basically out here looking to share information on how to live with lyme. > >i was diagnosed a year ago and misdiagnosed for 18months, i was infected in new england. my big problem is that i live in london, england and can find no help or support and just get bounced about from doctor to doctor. > >i guess i have this chronic variety or some additional infection, im not sure but i have fatigue, joint pain, memory loss and a million other things, recently i had an attack of bells palsey. in the uk people have no idea about the disease and im in a constant battle to explain things and work at curing myself. > >basically im trying herbal treatments with occasional reliance on antinflamitory drugs and pain killers. my big problem is not knowing whats going to hit me next and having no one around to talk to about it. ive recently discovered im allergic to most antibiotics and hyper sensitive to other things such as insect bites. i accept this as part of the deal but would like to be more sure. > >sorry if this is a bit of a ramble, got any ideas? know any uk/euro sites/addresses i can contact? thanx for your time > >peter van der haan-- > >On 18 Oct 1999 17:55:03 -000 ONElist wrote: >> >>Hello, >> >>This is the ONElist Communities service. >> >>This is an automatic confirmation message from ONElist. This message was >>sent when you registered with ONElist, to verify that the email address >>you gave was correct and to verify that you wish to join these >>communities. >> >>Email address : anarquist@... >> >>We offer two methods to confirm your ONElist account. You can reply to >>this email, using the reply function in your email program. It will >>automatically be sent to the correct address. >> >>In addition, you can also confirm your account by going to the following >>web page: >> >>/confirm.cgi?email=anarquist%40chickmail%2Ecom & id=34 996 >> >>If you have received this message in error, please ignore it. >> >>To join other communities, change your current memberships, or start new >>communities, please visit the ONElist web site, at >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 Hi , Glad you found us and if you have any questions we try to help. Many of us here in the States have much difficulty finding a doctor to treat chronic Lyme Disease also. Seems as though this is happening throughout the world. I guess the biggest thing is to find you are not the only one going through all the pain, exhaustion, and other ills accompanying this disease. And the politics of getting proper treatment. Barb - Michigan BLFITZMA@... May have been born with LD. Believe my mom had, but not Dx. I flared in '95 with major flu-like symptoms, numbness & tingling in extremities, double-vision. Had to stop work, Rx's - various oral abxs., sleeping pills, pills for depression, pills for pain, for anxiety, for high blood pressure, for muscles..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Hi, Just had a thought for finding medical help with Lyme in London. I realize this might be " way out " there! Now, I am going on the possible assumption that American or American-trained doctors _may_ have more knowledge of Lyme - so, how about: contact the American embassy or consulate to find out if a) any American doctors on staff who may be more familiar with Lyme can see you any referrals to American or American-trained doctors can be given to you I don't know what it might involve, but I would definitely make clear to someone that your purpose is to find a doctor more familiar with Lyme - a disease more prevalent in the U.S. than England (does it exist in England?) and that this is a serious medical issue! I should think that some Foreign Service officer could take this up. If they insist you be American, perhaps the British embassy in a New England city (Boston?) could take up the question of locating a doctor more familiar with Lyme. I'm not sure how that would work - but perhaps someone could research Lyme doctors here and find out if any are travelling to England or have professional colleagues there. Do any of the London hospitals have exchange programs with American medical schools, which might put you in touch with docs more familiar with Lyme? Does anyone know if one of the LLMD (Lyme Literate MD) lists on websites here contain names of doctors in other countries? Will keep thinking - Best wishes, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 I just re-read my post about docs in London: how many times can we say, " who might be more familiar with Lyme " ? [grin] I'd say it was Lyme-brain, but I don't even know yet if I have that excuse! Best wishes to you all, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Hi , Here are some links from the UK regarding Lyme: http://www.dis.strath.ac.uk/vie/LymeEU/disease-overview_1.html http://www.dis.strath.ac.uk/vie/LymeEU/consultants.html http://www.wadhurst.demon.co.uk/lyme/index.htm E-MAIL: Mark Greenfield mark@... I sure hope these links can help you find a good doctor and treatment. Best to you, Marta McCoy Tick found in scalp, August 1996. I live in Southern New Jersey and my tick bite was from here. Tested positive for HME & Lyme disease in Feb 1997. Have had 6 weeks of IV, on oral meds for over 3 years now. Suffering from Peripheral Neuropathy, Herniated cervical discs. Still herx monthly. >From: " anna quist " <anarquist@...> > > >hi, > >this is to confirm my interest in this group. im not sure how things work with it but im basically out here looking to share information on how to live with lyme. > >i was diagnosed a year ago and misdiagnosed for 18months, i was infected in new england. my big problem is that i live in london, england and can find no help or support and just get bounced about from doctor to doctor. > >i guess i have this chronic variety or some additional infection, im not sure but i have fatigue, joint pain, memory loss and a million other things, recently i had an attack of bells palsey. in the uk people have no idea about the disease and im in a constant battle to explain things and work at curing myself. > >basically im trying herbal treatments with occasional reliance on antinflamitory drugs and pain killers. my big problem is not knowing whats going to hit me next and having no one around to talk to about it. ive recently discovered im allergic to most antibiotics and hyper sensitive to other things such as insect bites. i accept this as part of the deal but would like to be more sure. > >sorry if this is a bit of a ramble, got any ideas? know any uk/euro sites/addresses i can contact? thanx for your time > >peter van der haan-- > > Quote Link to comment Share on other sites More sharing options...
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