Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Hi, This is a question for the Michigan contingency. About 5 years ago I suddenly had high blood pressure (200/100), edema,tachycardia, and inexplicable weight gain. My sleep med was changed to deseryl as it also lowered my BP and I was given diuretics. Last year I suddenly had clogged lungs, PVC's (abnormal heart beat), skipped beats, dizziness and was house bound with these problems. My PCP said I was fine even tho my daughter spoke up in my behalf. PCP has me records of recordings of high BP, but doesn't believe it unless she sees it. Times I am very tired or more sick than usual, the bp goes down so she has only seen it once. I had abnormal stress and echo suggesting beginnings of congestive heart failure and pulmonany edema. PDP admits changes in heart are due to high BP(while still maintaining my BP is normal!), but neither Pulm nor pcp will refer me to a Cardio! In addition, I have had other cardio-vascular issues as 2 retinal infarcts, and pulm problems as asthma and now fluid. Pulm was one who suggested I had problems with heart and possible mitochrondrical disorder, but now after talking with PCP I am now " essentially normal. " I'm not and I know it! Bottom line is I am an adult, know my body and feel I should be in charge of my health care. It seems that if I want to consult a doc I should be able to on my own, but can't get into group I want without a referral. My LLMD is very concerned about these issues and wants me to follow up with Cardio. I am trying to do that locally, but I may have to travel! So I would like to know if anyone in MI (I'm in Flint area and know I might have to travel) knows of a cardiologist who is good with people with chronic disease and lyme. I feel very let down by local doc and THIS is more frightening than the illness. In the meantime, I know I need another primary care doc. Heck, this one (who has good rep!) looks at abnormal tests and declares them normal, discounts objective signs as raspy voice and walking with a weave, and says my infections are " emotionally induced. " Here in Flint area docs tend to know each other and know they talk about patients so this is touchy - I interviewed potential doc and she called my PCP telling her I had seen her -so much for confidentially. This doc shopping is so old, illness has taken over my life, and I just need a doc to help pull the various problems together with me, and have a bit of caring for their patients. I don't think this is unreasonable. Have others had such problems with primary docs? Thanks for listening and for any feedback, Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 If all these variations are documented, the first thing I would advise is finding a good attorney. I'm not an attorney, but what you have here is call "fraudulent assessment of condition." If your PCP is a member of an HMO, he or she will probably think they are protected, but your attorney will know for sure. I'm also fairly sure that MI is one of the states where there is a mandated MINIMUM of care for LD patients. Get legal help right now. Message: 23 Date: Tue, 21 Mar 2000 00:46:55 -0500 From: "C.Tab." <tab@...>Subject: MI LL CardioHi,This is a question for the Michigan contingency. About 5 years ago Isuddenly had high blood pressure (200/100), edema,tachycardia, andinexplicable weight gain. My sleep med was changed to deseryl as it alsolowered my BP and I was given diuretics. Last year I suddenly had cloggedlungs, PVC's (abnormal heart beat), skipped beats, dizziness and was housebound with these problems. My PCP said I was fine even tho my daughterspoke up in my behalf. PCP has me records of recordings of high BP, butdoesn't believe it unless she sees it. Times I am very tired or more sickthan usual, the bp goes down so she has only seen it once.I had abnormal stress and echo suggesting beginnings of congestive heartfailure and pulmonany edema. PDP admits changes in heart are due to highBP(while still maintaining my BP is normal!), but neither Pulm nor pcp willrefer me to a Cardio! In addition, I have had other cardio-vascular issues as 2 retinal infarcts,and pulm problems as asthma and now fluid. Pulm was one who suggested I had problems with heart and possiblemitochrondrical disorder, but now after talking with PCP I am now"essentially normal." I'm not and I know it! Bottom line is I am an adult,know my body and feel I should be in charge of my health care. It seemsthat if I want to consult a doc I should be able to on my own, but can't getinto group I want without a referral. My LLMD is very concerned about theseissues and wants me to follow up with Cardio. I am trying to do thatlocally, but I may have to travel!So I would like to know if anyone in MI (I'm in Flint area and know I mighthave to travel) knows of a cardiologist who is good with people withchronic disease and lyme. I feel very let down by local doc and THIS ismore frightening than the illness. In the meantime, I know I need another primary care doc. Heck, this one (whohas good rep!) looks at abnormal tests and declares them normal, discountsobjective signs as raspy voice and walking with a weave, and says myinfections are "emotionally induced." Here in Flint area docs tend to knoweach other and know they talk about patients so this is touchy - Iinterviewed potential doc and she called my PCP telling her I had seen her-so much for confidentially.This doc shopping is so old, illness has taken over my life, and I justneed a doc to help pull the various problems together with me, and have abit of caring for their patients. I don't think this is unreasonable. Haveothers had such problems with primary docs?Thanks for listening and for any feedback,ChristieR. -- Euless, TexasA Tick Made Me SickTIICS Are Keeping Me That Way(The Insurance Industry Captive Specialists)http://www.angelfire.com/biz/romarkaraoke/james.html3-10-2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 If all these variations are documented, the first thing I would advise is finding a good attorney. I'm not an attorney, but what you have here is call "fraudulent assessment of condition." If your PCP is a member of an HMO, he or she will probably think they are protected, but your attorney will know for sure. I'm also fairly sure that MI is one of the states where there is a mandated MINIMUM of care for LD patients. Get legal help right now. Message: 23 Date: Tue, 21 Mar 2000 00:46:55 -0500 From: "C.Tab." <tab@...>Subject: MI LL CardioHi,This is a question for the Michigan contingency. About 5 years ago Isuddenly had high blood pressure (200/100), edema,tachycardia, andinexplicable weight gain. My sleep med was changed to deseryl as it alsolowered my BP and I was given diuretics. Last year I suddenly had cloggedlungs, PVC's (abnormal heart beat), skipped beats, dizziness and was housebound with these problems. My PCP said I was fine even tho my daughterspoke up in my behalf. PCP has me records of recordings of high BP, butdoesn't believe it unless she sees it. Times I am very tired or more sickthan usual, the bp goes down so she has only seen it once.I had abnormal stress and echo suggesting beginnings of congestive heartfailure and pulmonany edema. PDP admits changes in heart are due to highBP(while still maintaining my BP is normal!), but neither Pulm nor pcp willrefer me to a Cardio! In addition, I have had other cardio-vascular issues as 2 retinal infarcts,and pulm problems as asthma and now fluid. Pulm was one who suggested I had problems with heart and possiblemitochrondrical disorder, but now after talking with PCP I am now"essentially normal." I'm not and I know it! Bottom line is I am an adult,know my body and feel I should be in charge of my health care. It seemsthat if I want to consult a doc I should be able to on my own, but can't getinto group I want without a referral. My LLMD is very concerned about theseissues and wants me to follow up with Cardio. I am trying to do thatlocally, but I may have to travel!So I would like to know if anyone in MI (I'm in Flint area and know I mighthave to travel) knows of a cardiologist who is good with people withchronic disease and lyme. I feel very let down by local doc and THIS ismore frightening than the illness. In the meantime, I know I need another primary care doc. Heck, this one (whohas good rep!) looks at abnormal tests and declares them normal, discountsobjective signs as raspy voice and walking with a weave, and says myinfections are "emotionally induced." Here in Flint area docs tend to knoweach other and know they talk about patients so this is touchy - Iinterviewed potential doc and she called my PCP telling her I had seen her-so much for confidentially.This doc shopping is so old, illness has taken over my life, and I justneed a doc to help pull the various problems together with me, and have abit of caring for their patients. I don't think this is unreasonable. Haveothers had such problems with primary docs?Thanks for listening and for any feedback,ChristieR. -- Euless, TexasA Tick Made Me SickTIICS Are Keeping Me That Way(The Insurance Industry Captive Specialists)http://www.angelfire.com/biz/romarkaraoke/james.html3-10-2000 Quote Link to comment Share on other sites More sharing options...
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