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Terry,

I take Xanax (2) and a pain pill every night to help me sleep. If I forget

one or the other I wake up at least 8 or 9 times, instead of 4 or 5. Tery

(the other one, in FL)

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Terry,

I was taking Elavil for a sleeping disorder even though i do not have RA. At

first it worked really well then i started getting headaches from it. I would

wake up every morning with a headache and since i have migraines it would

turn into a migraine. I stopped taking it still have trouble sleeping but i

rather deal with that then have a migraine. There are some other meds to help

with sleeping disorders that don't have the side affects that Elavil does and

i am going to ask my dr. about them when i go next visit.

I hope the Elavil works better for you then for me. Good luck.

shelly

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I have had trouble sleeping for some time. My doctor put me on trasadone.

It helps, but I hate taking it all the time.

P

----- Original Message -----

From: <tperrella@...>

< egroups>

Sent: Monday, August 21, 2000 6:33 AM

Subject: [ ] I have a question

> I haven't really slept good since January when this mess with RA

> really got bad. The arava is starting to work and the swelling is

> starting to go down. My Rheumy put me on Elavil at night to sleep.

> Has anyone else with RA had any problems sleeping?

>

> Ohio Terry

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

>

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Ohio Terry,

I have a horrible time sleeping. I don't know if it's from pain or not

though. I just keep waking up. Might be from the meds. It's not

uncommon to put people on low dose antidepressants to help them sleep.

And sleep is important to feel better.

Jenna

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THE GUARDIANS OF GLEDE - SWP Editors Choice Award; SWP Stellar Award;

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Glad you brought that up about the antidepressants. RA is a disease that

messes with your mind and causes depression, not to mention the mood swings

of Prednisone. I am on Paxil now. Started that in March. Before that I had

been on Zoloft since spring 96. The Zoloft worked, but once I switched to

Paxil and it kicked in. WOW! I am actually happy now and motivated! Terry,

maybe you should ask your doc about that?

Rainy Sue

in Washington State

18 years RA

<<

Ohio Terry,

I have a horrible time sleeping. I don't know if it's from pain or not

though. I just keep waking up. Might be from the meds. It's not

uncommon to put people on low dose antidepressants to help them sleep.

And sleep is important to feel better.

Jenna >>

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Dear TPerrella:

Hi, I have a terrible time trying to go to sleep. I have R/A and a few other

things as well. Mostly I can't sleep because I am in so much pain from some

of the other problems I have. I have sciatica and spinal stenosis. Both are

very painful.

I also have fibromyalgia, osteoarthritis, osteoporosis, gout, and asthma.

They all give me trouble at night. My Doctor ordered elavil 10 mg for me

too. It helps a little. Good Luck.

Anjillah@...

PS I put a thick poly fiber fill pad on my bed and it helps to relieve the

pain I have when sleeping at night.

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Hi Terry,

I've had some problems sleeping before. My first rheumatologist wasn't quite

sure what to do with me when she first diagnosed me, so I wasn't on much

medication and it didn't help, so I was in too much pain to sleep. She did

prescribe something to help me, I don't remember the name unfortunately,

only that it was a small dark red tablet and that I think she said it was

some kind of muscle relaxant. It helped a bit...but once I went onto my

major load of meds, I slept much better.

Holly

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  • 9 months later...
Guest guest

I am one of those who reads but rarely writes,however,I think I remember a

lady mentioning that in an evaluation at Mayo Clinic she was told that CMTers

may suffer from chronic anemia. Does anyone know anything about this? Has

anyone ever heard this before?

Thanks alot.

Mimi Vineburg

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  • 3 years later...
Guest guest

Doug, I haven't had that sort of symptom at all. Maybe there's a

combination of your meds that is resulting in the break outs, or

maybe they are causing a deficiency or excess of some kind of

mineral or vitamin....It's so hard to tell when we take so many meds

and are allergic to so many things!

Take care,

Addy

>

>

> As most of you know, I have been on Xolair since September of

2003.

> About a year after being on it, I started breaking out in small

itchy

> spots all over my body. They look like scabs for a few days, then

> they heal up. Some have left small scars. I asked my doctor if the

> Xolair was the cause and he said it was highly doubtful.

>

> I am on a lot of other medications too but they aren't supposed to

> cause skin problems like this either.

>

> Anyone else have any probs like this?

>

> Just wondering,

>

> Doug

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Guest guest

hi doug

i'm sorry you're having such skin problems. is it possible you've developed

contact dermititus (eczema)? i have eczema, and while it improved with the

xolair, i still have flares and some constant itching. i know my skin gets very

dry and will end up with similar bumps as you described.

maybe you should see a dermotologist? have you tried putting creme (such as

eucerin or aveeno) on your skin to see if it helps?

hope it goes away. i imagine its very irritating!

heather

" Rev. Doug Beasley " <uca79ii@...> wrote:

As most of you know, I have been on Xolair since September of 2003.

About a year after being on it, I started breaking out in small itchy

spots all over my body. They look like scabs for a few days, then

they heal up. Some have left small scars. I asked my doctor if the

Xolair was the cause and he said it was highly doubtful.

I am on a lot of other medications too but they aren't supposed to

cause skin problems like this either.

Anyone else have any probs like this?

Just wondering,

Doug

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Guest guest

Hello Doug,

My son went on Xolair around the same time that you did. He just mentioned this

week that

he had scabs coming up on his skin. I will ask him more questions about it and

get back with you. Otherwise, he still has not had any problems with his

asthma, anaphylaxis, or urticaria.

We still have to call in each week to the diabetes team to adjust his insulin to

control blood sugar level.

" Rev. Doug Beasley " <uca79ii@...> wrote:

As most of you know, I have been on Xolair since September of 2003.

About a year after being on it, I started breaking out in small itchy

spots all over my body. They look like scabs for a few days, then

they heal up. Some have left small scars. I asked my doctor if the

Xolair was the cause and he said it was highly doubtful.

I am on a lot of other medications too but they aren't supposed to

cause skin problems like this either.

Anyone else have any probs like this?

Just wondering,

Doug

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Guest guest

>

> Hello Doug,

>

> My son went on Xolair around the same time that you did. He just

mentioned this week that

> he had scabs coming up on his skin. I will ask him more questions

about it and get back with you. Otherwise, he still has not had any

problems with his asthma, anaphylaxis, or urticaria.

> We still have to call in each week to the diabetes team to adjust

his insulin to control blood sugar level.

>

>

>

,

I was diagnosed as Type II Diabetic last October. I am on 15 mg of

Actos, diet and exercise and my blood sugar is perfectly under

control :) I was having skin problems long before my diabetes

diagnosis. I don't think the diabetes is my problem, but you never

know.

I think that my spots are caused by a combination of prescriptions I

am taking. I will ask the Dermatologist if there is anything he can

do.

Thanks for the reply :)

Doug

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Guest guest

My son says that his comes up as a little scab and he scratches them off. He

also is on

other medications. You know how the bugs are in Arkansas! Hopefully, they are

just

bites.

" Rev. Doug Beasley " <uca79ii@...> wrote:

>

> Hello Doug,

>

> My son went on Xolair around the same time that you did. He just

mentioned this week that

> he had scabs coming up on his skin. I will ask him more questions

about it and get back with you. Otherwise, he still has not had any

problems with his asthma, anaphylaxis, or urticaria.

> We still have to call in each week to the diabetes team to adjust

his insulin to control blood sugar level.

>

>

>

,

I was diagnosed as Type II Diabetic last October. I am on 15 mg of

Actos, diet and exercise and my blood sugar is perfectly under

control :) I was having skin problems long before my diabetes

diagnosis. I don't think the diabetes is my problem, but you never

know.

I think that my spots are caused by a combination of prescriptions I

am taking. I will ask the Dermatologist if there is anything he can

do.

Thanks for the reply :)

Doug

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Guest guest

Doug

It's not excema is it? I had an outbreak of that when I was younger

and it sounds like what you described. You haven't developed

allergies to something all of a sudden maybe? Changed laundry soap

or body soap, shampoo, etc. Or it could even be a food allergy.

Does it itch?

The Xolair hasn't caused any reaction on my skin.

Hope you find out what it is.

-

-- In , " pyle456 " <coachmac@w...> wrote:

>

>

> Doug, I haven't had that sort of symptom at all. Maybe there's a

> combination of your meds that is resulting in the break outs, or

> maybe they are causing a deficiency or excess of some kind of

> mineral or vitamin....It's so hard to tell when we take so many

meds

> and are allergic to so many things!

>

> Take care,

>

> Addy

>

>

>

>

>

> >

> >

> > As most of you know, I have been on Xolair since September of

> 2003.

> > About a year after being on it, I started breaking out in small

> itchy

> > spots all over my body. They look like scabs for a few days,

then

> > they heal up. Some have left small scars. I asked my doctor if

the

> > Xolair was the cause and he said it was highly doubtful.

> >

> > I am on a lot of other medications too but they aren't supposed

to

> > cause skin problems like this either.

> >

> > Anyone else have any probs like this?

> >

> > Just wondering,

> >

> > Doug

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