Guest guest Posted July 20, 1999 Report Share Posted July 20, 1999 I feel very hopeless here, and please forgive me list friends, I don't want to bring anyone else down with me, but I am really believing that lyme is an incureable disease, with very little hope for even transitory relief of symptoms. It took me four years to get an accurate dx, and I when I finally got that I thought NOW I can get some treatment and get out of this mess! I don't think that's going to happen. I managed to get to see what seems to be the only LLD in Texas, but I'm not getting anywhere there either. I'm on 100mg of doxy twice a day which we all know is doing nothing. I've given up on my primary doc who wants nothing to do with my lyme, and has referred me back to insurance managed rhuemy who gave me methotraxate the last time I was there. She determined that I have rhumatoid arthuritis and fibromyalgia. I'm sure if I go see her again she'll be very cold and irked that I didn't take here prescription, which I didn't because I had learned that steroids are bad for lymies. On the other hand, even if I was able to get all the big gun meds, I still feel it's hopeless. I see on this list, many folks talking about pic lines, IV vitamin c, and all the other meds, and please please forgive me, I mean no offense in the world, but it looks like in spite of all the above mentioned treatments and any others known to man, ( I'm a really new subscriber), but I just don't ever see anyone saying they are cured, feeling good, and back to their normal lifestyle. Am I mistaken? Is there any hope? If anyone can contradict my view I would be thrilled. If there is a cure, someone please tell what it is? At this point I feel it's useless to waste any more time, energy, and money to go to any doctors. I think I'd better resign myself to being almost bedfast or at least housebound, and in constant pain,etc. I seem to be here in tears night and day over it. I guess that will pass when I get myself truly resigned to it, but it sure is a difficult thing to do. I apologize for being a whiney crybaby, and I give many thanks to all of you on this list for letting me vent my distress. I know you have your own pain and trouble and don't need to hear someone else's, and I send you my best wishes and prayers. Barbara Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.