Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Hi All, Just thought along the lines of lyme & CFS, this may be interesting to some of you fine folks. When my daughter first became ill last fall, she was diagnosed by a few " specialists " with POTS / OI - POTS is postural orthostatic tachacardia syndrome & OI is orthostatic intolerance. For those of you who were like myself (before I had heard of these BS " diagnoses " - simply put this means that she could not tolerate standing up without racing pulse, palpitations, dizziness, vision changes, blood pressure dropping). Need I tell you every doc refused to test for lyme? (GRRR!) Well, on the doc treadmill we went - searching for the CAUSE - not a misstatement of her symptoms. None of these " specialists " could tell me why this dx was made when she would have all of these symptoms WITHOUT standing up. (For those of you who " know " me - you must know I " reamed " these docs up one side & down the other for daring to restate the INCORRECT symptoms. LOL!) One actually told me something attacks the autonomic (or automatic - breathing, etc.) nervous system - but they don't know what it is & there is no way to stop it; that " it " usually runs its course within a year & no way can docs predict how much damage " it " will do. At any rate, when we finally got the lyme dx (6 wks later!!!) - we were happy to have a dx & something WE could attack! LOL! We then posted to the " Fainters United " forum (a POTS board) & just today received an email from someone on that board who, in utter frustration with her autonomic problems, had a western blot done & it came back positive. (Big surprise, hu??) Sent her tons of links (VBG!) & invited her to join us here - " lyme central. " So there are more people out there with garbage can dxs who DO have lyme. Don't mean to offend anyone here either - but I can't for the life of me understand how anyone could stop searching for the CAUSE and/or something - some remedy - that would at least allow one to function on a daily basis. Guess it's all in one's make-up. I'm sure I'd still be researching 20+ hours per day if we hadn't found the cause of daughter's illness. (Now I've switched from cause to cure!) Blessings & velcros, Chris Quote Link to comment Share on other sites More sharing options...
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