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Greetings-

I am new to the groups so I thought I would introduce

myself. My name is Phoenix and I believe I have been living with

lyme for about 18 years. Unfortunately when I was a child they just

were not as good at diagnosing lyme and since my rash did not have a

ring around it my Dr thought it must be the flue. My mom and I both

thought it was lyme because my symptoms did not resolve and we live

in an endemic area and pull 2-6 ticks off a day in the summer. I was

not testes until a bad flare up 7 years ago that forced me to take

time off from college. The test was negative so I was told I had

Rheumatoid Arthritis, but I knew it was incorrect because I

repeatedly tested negative for the RA antibody and it did not explain

my spectrum of lyme symptoms (fatigue, dizziness, loss of balance,

humming in my ears). Eventually that flare up slowly went away over

about a year, but I always have some symptoms.

Currently I am one year into my second big flare up which has

forced me to stop working. Happily I am getting treatment finally

and hope to go back to work soon. I am seeing a good neurologist

locally who diagnosed me based on my symptoms, despite the negative

test results. Further evidence of lyme is that doxycycline has

resulted in major improvements in symptoms, health and energy. I

felt better and could thing clearer than I had felt since I was a kid

and got sick! But when I went off of doxycycline after 6 months my

symptoms returned rapidly. Clearly I need to do more.

I first learned about Buhner's book a year ago from my father

who also has a stubborn case of lyme. We thought about following it

then, but decided that our symptoms at the time were so sever that we

could not understand it well enough. Now that we both have seen some

results from doxycycline I have reread the book and am interested in

starting the protocol soon. Happily my neurologist is supportive;

she hopes I will do the herbs and doxycycline together and that they

might work synergistically. I am a bit reluctant though to do the

whole program with out the guidance of an expert. I noticed a list

of Drs on Buhner's web sight that do the protocol. I was thinking of

contacting the one in Mystic Conn since they would be the closest.

Here are my big questions: Has any one found a source for the

Andrographis 400mg standardized to 10% andrographolids? I hope this

is not too controversial to ask, but has any one done the program

long enough to go off treatment, and were there symptoms resolved?

Thanks.

Phoenix

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