Guest guest Posted March 12, 2007 Report Share Posted March 12, 2007 Greetings- I am new to the groups so I thought I would introduce myself. My name is Phoenix and I believe I have been living with lyme for about 18 years. Unfortunately when I was a child they just were not as good at diagnosing lyme and since my rash did not have a ring around it my Dr thought it must be the flue. My mom and I both thought it was lyme because my symptoms did not resolve and we live in an endemic area and pull 2-6 ticks off a day in the summer. I was not testes until a bad flare up 7 years ago that forced me to take time off from college. The test was negative so I was told I had Rheumatoid Arthritis, but I knew it was incorrect because I repeatedly tested negative for the RA antibody and it did not explain my spectrum of lyme symptoms (fatigue, dizziness, loss of balance, humming in my ears). Eventually that flare up slowly went away over about a year, but I always have some symptoms. Currently I am one year into my second big flare up which has forced me to stop working. Happily I am getting treatment finally and hope to go back to work soon. I am seeing a good neurologist locally who diagnosed me based on my symptoms, despite the negative test results. Further evidence of lyme is that doxycycline has resulted in major improvements in symptoms, health and energy. I felt better and could thing clearer than I had felt since I was a kid and got sick! But when I went off of doxycycline after 6 months my symptoms returned rapidly. Clearly I need to do more. I first learned about Buhner's book a year ago from my father who also has a stubborn case of lyme. We thought about following it then, but decided that our symptoms at the time were so sever that we could not understand it well enough. Now that we both have seen some results from doxycycline I have reread the book and am interested in starting the protocol soon. Happily my neurologist is supportive; she hopes I will do the herbs and doxycycline together and that they might work synergistically. I am a bit reluctant though to do the whole program with out the guidance of an expert. I noticed a list of Drs on Buhner's web sight that do the protocol. I was thinking of contacting the one in Mystic Conn since they would be the closest. Here are my big questions: Has any one found a source for the Andrographis 400mg standardized to 10% andrographolids? I hope this is not too controversial to ask, but has any one done the program long enough to go off treatment, and were there symptoms resolved? Thanks. Phoenix Quote Link to comment Share on other sites More sharing options...
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