STOP STEERE

[Guest guest]

>Anyone ready to take a stand to STOP STEERE?

>

Hi,

Is there anything that we at out computers can do in addition to suggesting

questions? Mine would be why is he closed to new research and why doesn't

he listen to patients? MS people used to complain about pain but docs

learned in school that MS doesn't cause pain! So knowledge about that

disease was held up because patients weren't listened to. And this

situation sounds similiar with exception that Steere doesn't even listen to

other doctors! Also, would it be appropriate to publically offer support

MI doc, mentioned in previous press release post who cannot treat lyme? He

was my former doc and was not only competant but a truly good person.

The reference to suicide caught my eye as I live in MI - home of the

infamous Dr. Kevorkian. People with CFIDS/FM have sought him for aid in

their suicides. I have know of other folks with difficult to diagnose

conditions, who are not believed and helped in some way, also committing

suicide. One of the lists I have is named after a CFIDS listmember who

took her life rather than endure the quaility of life her illness brought.

If Steere has caused this kind of misery, these facts must be brought out

and his treatment protocal ended - especially in view that people not

matching CDC criteria get treated, and get remission or better. It also

sounds like the CDC isn't listening either - something I have seen before.

CDC purposely misappropriated CFS research monies recently and when I had a

certain parasitic infection, and alternative doc dx'ed it as it supposedly

didn't exist in USA. It is both sad and frightening to know our

institutions that are supposed to help and protect us cannot be trusted.

Getting off my soapbox now,

Christie

~The patient's word is the best diagnostic tool!~