Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Hi Karla,Sorry for all your losses. I think alot of us can relate. Story of my life being a pioneer. Big hug and Blessings to your health Joyce khiquita <khiquita@...> wrote: Well I lost my home, work friends, and much more...after getting ill as well. I have had this dreadful disease since I was 10 in 1969. I became seriously ill in 1994 and was not diagnosed properly till april 2005. This is the worst time to have this disease with all the politics and insurance mess going on. What we do and how we do it will mean so much for others that follow us. We are the benchmarker the trail blazers...so lets get to getting well and prove Buhner correct. I lived in Texas but moved to NC the past april to be near Dr Jemsek...who just had his license suspended for treating. So Now I am Dr..less starting out again. I am an RN and Lyme literate. I know most of us are. So hello to all I am excited to be hear on the apex of this group.. Love and Light, Karla --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Hi Karla, This is here (Makayla'smom) for the sake of our other . I just wanted to say I,too,am sorry for your losses.Nice to have an R.N. I am treating my 16 year old daughter,Makayla with many things which I will share when I am not so brain dead....good night everyone.(Makayla'smom) khiquita <khiquita@...> wrote: Well I lost my home, work friends, and much more...after getting ill as well. I have had this dreadful disease since I was 10 in 1969. I became seriously ill in 1994 and was not diagnosed properly till april 2005. This is the worst time to have this disease with all the politics and insurance mess going on. What we do and how we do it will mean so much for others that follow us. We are the benchmarker the trail blazers...so lets get to getting well and prove Buhner correct. I lived in Texas but moved to NC the past april to be near Dr Jemsek...who just had his license suspended for treating. So Now I am Dr..less starting out again. I am an RN and Lyme literate. I know most of us are. So hello to all I am excited to be hear on the apex of this group.. Love and Light, Karla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 im going through a very similiar situation. i got dianosed when i was 15. no one told me anything..take these anti-x for 3 weeks..youll be better..here i am 22, in college, no money, just lost my health insurance after being fully covered all of my life. started having panic attacks 6 mos ago. went to doc under insurance said i had generalized anxiety and gave me clonopin.. then after my insurance was dropped..started having weird neurological symptoms, panic attack weird feeling going up into the back of my skull joint pain..etc, memory loss, weird sense that i was gonna die soon...i just new something wasnt right with my body and didnt even dawn on my that it might be the lymes..well i looked it up and i had many symptoms and thanks to the support groups..i now know im relasping of 2nd stage lyme...i dont have insurance and it taking me awhile to get to the help i need thro medicaid..family disowned me no help from them...i am having severe chestpains..and since you are a RN i was wondering if thats just a symptom and i can wait till i get adequate treatment..ive been to john hopkins er and they said i had a sinus arrhythmia which im sure is caused by the lyme..what should i do with no insurance...im struggling here...i just dont want to get a heart block or something because no doctor will see me until i have coverage..even the free clinics are taking forever.......I NEED HELP AND ADVICE from a LLRN!! PLEASE THANKS SO MUCH LONNA -- In , " khiquita " <khiquita@...> wrote: > > Well I lost my home, work friends, and much more...after getting ill > as well. I have had this dreadful disease since I was 10 in 1969. I > became seriously ill in 1994 and was not diagnosed properly till april > 2005. This is the worst time to have this disease with all the > politics and insurance mess going on. What we do and how we do it will > mean so much for others that follow us. We are the benchmarker the > trail blazers...so lets get to getting well and prove Buhner correct. > I lived in Texas but moved to NC the past april to be near Dr > Jemsek...who just had his license suspended for treating. So Now I am > Dr..less starting out again. I am an RN and Lyme literate. I know most > of us are. So hello to all I am excited to be hear on the apex of this > group.. > Love and Light, > Karla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 I`m not an RN but I seriously reccomend starting the salt/c protocol. the Buhner protocol , or the Cowden protocol ASAP !!! Salt/c is cheapest and you can add Samento cat`sclaw for alittle more that will help a great deal. Also get some Chlorella and milkthistle to help detox. Getting connected into lyme support groups will really help guide you. You`re on the right track. But if your heart is wacky go to the emer. room ! in WV acidstars72684 <acidstars72684@...> wrote: im going through a very similiar situation. i got dianosed when i was 15. no one told me anything..take these anti-x for 3 weeks..youll be better..here i am 22, in college, no money, just lost my health insurance after being fully covered all of my life. started having panic attacks 6 mos ago. went to doc under insurance said i had generalized anxiety and gave me clonopin.. then after my insurance was dropped..started having weird neurological symptoms, panic attack weird feeling going up into the back of my skull joint pain..etc, memory loss, weird sense that i was gonna die soon...i just new something wasnt right with my body and didnt even dawn on my that it might be the lymes..well i looked it up and i had many symptoms and thanks to the support groups..i now know im relasping of 2nd stage lyme...i dont have insurance and it taking me awhile to get to the help i need thro medicaid..family disowned me no help from them...i am having severe chestpains..and since you are a RN i was wondering if thats just a symptom and i can wait till i get adequate treatment..ive been to john hopkins er and they said i had a sinus arrhythmia which im sure is caused by the lyme..what should i do with no insurance...im struggling here...i just dont want to get a heart block or something because no doctor will see me until i have coverage..even the free clinics are taking forever.......I NEED HELP AND ADVICE from a LLRN!! PLEASE THANKS SO MUCH LONNA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 I just read at the LS site that Marc doesn't recommend using Cat's Claw for Lyme. I know there are others here on salt/c. I would be interested to know what you are doing, your thoughts. Ballady im going through a very similiar situation. i got dianosed when i was > 15. no one told me anything..take these anti-x for 3 weeks..youll be > better..here i am 22, in college, no money, just lost my health > insurance after being fully covered all of my life. started having > panic attacks 6 mos ago. went to doc under insurance said i had > generalized anxiety and gave me clonopin.. then after my insurance was > dropped..started having weird neurological symptoms, panic attack > weird feeling going up into the back of my skull joint pain..etc, > memory loss, weird sense that i was gonna die soon...i just new > something wasnt right with my body and didnt even dawn on my that it > might be the lymes..well i looked it up and i had many symptoms and > thanks to the support groups..i now know im relasping of 2nd stage > lyme...i dont have insurance and it taking me awhile to get to the > help i need thro medicaid..family disowned me no help from them...i am > having severe chestpains..and since you are a RN i was wondering if > thats just a symptom and i can wait till i get adequate treatment..ive > been to john hopkins er and they said i had a sinus arrhythmia which > im sure is caused by the lyme..what should i do with no insurance...im > struggling here...i just dont want to get a heart block or something > because no doctor will see me until i have coverage..even the free > clinics are taking forever.......I NEED HELP AND ADVICE from a LLRN!! > PLEASE > THANKS SO MUCH > LONNA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Did he say why not? I'm counting on it to raise my CD-57. D. ballady4 <ballady4@...> wrote: I just read at the LS site that Marc doesn't recommend using Cat's Claw for Lyme. I know there are others here on salt/c. I would be interested to know what you are doing, your thoughts. Ballady --------------------------------- Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Ballady, I found that Buhners protocol in my experience, many many times superior/ complete than salt/C protocol. OK, I couldn't stay longer with salt/C, but reached maximum amount (and still a bit more) rather fast. I could never reach though 6 grams vit C (only about 2 grams, low bowel tolerance). I herxed in awful ways with salt (tinitus, extreme jitterness) then got high blood pressure. I shifted slowly to Buhner's herbs, herxed differently with them, in softer ways I found, maybe because herbs were also cleansing, while salt not (and as I was on low Vit C, that was bad news). I find though that salt helped me with lowering too high amounts of borrelia in the blood (and maybe other pathogens) rather fast. But once I quit it, I was happy to have done it. Arthritic pains were not affected by salt, in my experience. After I discovered that salt is also used by dr. K. to kill intestinal parasites, but it's just a small part on the treatment of lyme disease. Selma > > I just read at the LS site that Marc doesn't recommend using Cat's > Claw for Lyme. I know there are others here on salt/c. I would be > interested to know what you are doing, your thoughts. > > Ballady > > im going through > a very similiar situation. i got dianosed when i was > > 15. no one told me anything..take these anti-x for 3 weeks..youll be > > better..here i am 22, in college, no money, just lost my health > > insurance after being fully covered all of my life. started having > > panic attacks 6 mos ago. went to doc under insurance said i had > > generalized anxiety and gave me clonopin.. then after my insurance was > > dropped..started having weird neurological symptoms, panic attack > > weird feeling going up into the back of my skull joint pain..etc, > > memory loss, weird sense that i was gonna die soon...i just new > > something wasnt right with my body and didnt even dawn on my that it > > might be the lymes..well i looked it up and i had many symptoms and > > thanks to the support groups..i now know im relasping of 2nd stage > > lyme...i dont have insurance and it taking me awhile to get to the > > help i need thro medicaid..family disowned me no help from them...i am > > having severe chestpains..and since you are a RN i was wondering if > > thats just a symptom and i can wait till i get adequate treatment..ive > > been to john hopkins er and they said i had a sinus arrhythmia which > > im sure is caused by the lyme..what should i do with no insurance...im > > struggling here...i just dont want to get a heart block or something > > because no doctor will see me until i have coverage..even the free > > clinics are taking forever.......I NEED HELP AND ADVICE from a LLRN!! > > PLEASE > > THANKS SO MUCH > > LONNA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Hi Selma, I really think you need to ramp up very slowly on the salt/c. Those who go too fast invariably post problems. I had terrible diarrhea and bloating also at first, but it eventually passed. I really think this was a die-off reaction. As for the high blood pressure. I have read accounts where this happens to some people but it only lasts a short time and then lowers to normal, if you persevere. I'm not trying to convince you, though, to return to salt/c, just speaking to your experience. I'm glad that you have found something that feels " right " for you. I think it vitally important to listen to our own intuition. Ballady im going through > > a very similiar situation. i got dianosed when i was > > > 15. no one told me anything..take these anti-x for 3 weeks..youll > be > > > better..here i am 22, in college, no money, just lost my health > > > insurance after being fully covered all of my life. started having > > > panic attacks 6 mos ago. went to doc under insurance said i had > > > generalized anxiety and gave me clonopin.. then after my > insurance was > > > dropped..started having weird neurological symptoms, panic attack > > > weird feeling going up into the back of my skull joint pain..etc, > > > memory loss, weird sense that i was gonna die soon...i just new > > > something wasnt right with my body and didnt even dawn on my that > it > > > might be the lymes..well i looked it up and i had many symptoms > and > > > thanks to the support groups..i now know im relasping of 2nd stage > > > lyme...i dont have insurance and it taking me awhile to get to the > > > help i need thro medicaid..family disowned me no help from > them...i am > > > having severe chestpains..and since you are a RN i was wondering > if > > > thats just a symptom and i can wait till i get adequate > treatment..ive > > > been to john hopkins er and they said i had a sinus arrhythmia > which > > > im sure is caused by the lyme..what should i do with no > insurance...im > > > struggling here...i just dont want to get a heart block or > something > > > because no doctor will see me until i have coverage..even the free > > > clinics are taking forever.......I NEED HELP AND ADVICE from a > LLRN!! > > > PLEASE > > > THANKS SO MUCH > > > LONNA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 I`ve been doing Samento for 18 months with incredible success and just began adding salt/c. I am no expert and very new to salt/c. But I don`t know why adding Samento could hurt the healing process...seems to me it could only help. With my understanding of how they both work ....I`ll have to see if I can find the info from Marc why he doesn`t reccomend it.I`ve heard MANY people that use various protocols together. I think it`s whatever you feel works best for you. I`m always interested in the science behind the protocols and just use my common sense to decide what would work best. I`ve been self-treating myself and my husband and my six kids this way for 18 months and have had nothing but improvement. I continue to research every day and learn as I go...and PRAY : ) in WV ballady4 <ballady4@...> wrote: I just read at the LS site that Marc doesn't recommend using Cat's Claw for Lyme. I know there are others here on salt/c. I would be interested to know what you are doing, your thoughts. Ballady Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 , I didn't look thoroughly but I did find one message from Marc and this was only about cat's claw, not anything else. He said (paraphrasing) that people would get effects in the beginning but that over time they planed off and then ceased. It's likely he said more about it but, as I said, I didn't look thoroughly through all the posts. Ballady I just read at the LS site that Marc doesn't recommend using Cat's > Claw for Lyme. I know there are others here on salt/c. I would be > interested to know what you are doing, your thoughts. > > Ballady > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Well I lost my home, work friends, and much more...after getting ill > as well. I have had this dreadful disease since I was 10 in 1969. I > became seriously ill in 1994 and was not diagnosed properly till april > 2005. This is the worst time to have this disease with all the > politics and insurance mess going on. What we do and how we do it will > mean so much for others that follow us. We are the benchmarker the > trail blazers...so lets get to getting well and prove Buhner correct. > I lived in Texas but moved to NC the past april to be near Dr > Jemsek...who just had his license suspended for treating. So Now I am > Dr..less starting out again. I am an RN and Lyme literate. I know most > of us are. So hello to all I am excited to be hear on the apex of this > group.. > Love and Light, > Karla > > > > > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Well I lost my home, work friends, and much more...after getting ill > as well. I have had this dreadful disease since I was 10 in 1969. I > became seriously ill in 1994 and was not diagnosed properly till april > 2005. This is the worst time to have this disease with all the > politics and insurance mess going on. What we do and how we do it will > mean so much for others that follow us. We are the benchmarker the > trail blazers...so lets get to getting well and prove Buhner correct. > I lived in Texas but moved to NC the past april to be near Dr > Jemsek...who just had his license suspended for treating. So Now I am > Dr..less starting out again. I am an RN and Lyme literate. I know most > of us are. So hello to all I am excited to be hear on the apex of this > group.. > Love and Light, > Karla > > > > > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Hi Karla, I missed your post the first time around. I like what you say: " We are the benchmarker the trail blazers...so lets get to getting well and prove Buhner correct. " so true. May good health prevail, ellen - > > > > khiquita <khiquita@> wrote: Well > I lost my home, work friends, and much more...after getting ill > > as well. I have had this dreadful disease since I was 10 in 1969. I > > became seriously ill in 1994 and was not diagnosed properly till april > > 2005. This is the worst time to have this disease with all the > > politics and insurance mess going on. What we do and how we do it will > > mean so much for others that follow us. We are the benchmarker the > > trail blazers...so lets get to getting well and prove Buhner correct. > > I lived in Texas but moved to NC the past april to be near Dr > > Jemsek...who just had his license suspended for treating. So Now I am > > Dr..less starting out again. I am an RN and Lyme literate. I know most > > of us are. So hello to all I am excited to be hear on the apex of this > > group.. > > Love and Light, > > Karla > > > > > > > > > > > > > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less. > > > > Quote Link to comment Share on other sites More sharing options...
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